RUNNING HEAD: Experience Interview
Experience Interview
Sarah Maine
Liberty University
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Experience Interview
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Experience Interview
Part 1: Demographics
Name of person you are interviewing: April Warder
Name of individual with the disability: Katrisha “Katy” Ellis
Describe the disability: ADHD and Bipolar Disorder
Age of the individual with the disability: 16 years old
Describe the relationship between the family member and the individual with the disability: April
is Katy’s mother and guardian
Part 2: Questionnaire Interview
How did you learn that Katy has a disability?
Her brother Rory was diagnosed with ADHD in kindergarten, so we were already watching Katy
closely when she started school. She could not keep up in school. She was easily distracted and
very inattentive; so she was diagnosed with ADHD at age 5 and started medication then. A few
years later, she started displaying excessive anger, which is fairly common with ADHD. When
she was said, we were told she might have bipolar disorder, so they told us to keep an eye out for
that. Spring semester of seventh grade, it got really bad. She started being very rebellious and
defiant. At first, we just thought it was puberty, but it was worse than other kids with puberty. I
remembered they told us to watch for bipolar disorder, so I started looking up symptoms online. I
took her to see a psychiatrist the month before she turned 14, and he added bipolar disorder. I had
her re-tested by a psychologist, and she agreed with the diagnosis. So five years old for ADHD
and thirteen for bipolar disorder.
If you were giving advice to professionals who need to explain to a parent that his/her child has a
special need, what would that advice be?
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I would use the correct terminology, but I would also use everyday examples. I think it’s
important for parents to know the terms that they are going to keep hearing, but on the other
hand, it’s new and overwhelming, and if you’re using new vocabulary, they’re going to be like
“huh?” So you also need to be giving very specific examples of what that looks like.
How did you feel when you received the diagnosis?
It was actually a relief because we knew something was wrong, but we weren’t quite sure what.
Some people are anti-labels and think too many kids have labels, but I think if we have a label
then we have a starting point.
Have your feelings changed since the initial diagnosis? Describe.
I didn’t realize how hard it was going to be and how much it was going to affect our lives. I
guess I thought we would get her on the right meds and she’ll get stable. Two and a half years
later, we haven’t found the right combo of meds, she’s not stable, and I never know what she is
going to do.
What have been the positive aspects of having a child in the family with a disability?
It has made me more understanding and patient. I think it’s made me a better teacher, too.
What have been the problems or challenges you have experienced having a child with a
disability?
One of the big frustrations with living in Idaho is there’s not a lot of treatment options available
in Idaho, and my insurance doesn’t want to cover as much as she needs.
I get calls from the school a lot. I always have my phone with me, and I’m always checking it to
see if there’s an emergency. I had to quit work because it was too stressful. I would have to leave
work to deal with her situation sometimes. Not only is the school calling me in the middle of the
day, but she’s got multiple providers that I have to take her to. So to try and work all day and
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then squeeze all that in at four o’clock at night was exhausting. I have fibromyalgia myself, so I
was already barely surviving work, and then it was just too much with Katy.
How did your other children react to learning their sister had a disability?
Oh my gosh, poor Rory. Rory has mild autism, so he’s very rule-bound, very legalistic, very
structured - so here’s Katy, who’s totally opposite of him, and he does not get it at all. It drives
him crazy. Andy is mentally six years old. He’s still very egocentric, so he doesn’t really think
about Katy. It’s obviously been harder on Rory,
What impact has Katy had on them?
Well, Rory tends to worry more about her. If she’s just in a bad mood or crying, he wonders if
she needs to go to the hospital or if she’s suicidal or if she’s going to trash the house again. He’s
definitely on guard more around her, but he still loves her, and they still tease and bicker like
brother and sister.
What kinds of support have been most helpful to you?
Counseling. Not only do I take Katy to counseling, my husband and I go to counseling. I have
my own counselor just to vent. My husband and I go more to focus on parenting strategies, but I
go just to say “Can you believe what my daughter did this week?” So counseling’s been huge.
There’s a thing called NAMI - National Association for Mental Illness. They do a class called
“Family to Family.” It’s a 12-week course, and that was a big help. I read books, I talk to other
parents. But every child is so unique, sometimes it helps, and sometimes it scares me more. One
time, I went to a NAMI support group, and their kids were worse than mine, and it was freaking
me out. So I quit going. My best friend, I text her a lot. Nothing my daughter does shocks her.
She’s been my best friend for 33 years, and she’s just really accepting of everything. So yeah we
have friends and counselors. Family is a little harder because there’s mental health issues on both
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sides of our family. I don’t tell them everything Katy does because it could just make them feel
worse, and it’s not their fault. She definitely got the worst genes from both sides of the family.
How would you prioritize your family needs and the areas in which you feel that you need more
assistance?
Katy can’t be left alone. She’s too impulsive. She’s a danger to herself and to others. I send her to
her dad’s because I’m required to by law, but he has ADHD also and lets her get away with
murder. So she’s actually worse after coming back from her dad’s. There’s not a lot of people I
feel like I can send her to in order to have a break myself. My husband is a saint. He came into
our family knowing that Rory had problems, so he already knew about that. But then three years
later I got fibromyalgia, and two years after that Katy was diagnosed bipolar, so he’s amazing -
but he’s also a workaholic, so I guess that might be his escape.
What have been your experiences in working with school personnel? What have they done that
has been most helpful? What have they done that was least helpful or even harmful?
I am totally mama-bear, and Nampa School District sometimes gets sick of me because I want
more than they wanna give. I had to fight and fight to get Katy back on an IEP when they
decided to take her off in sixth grade. Thankfully, I went to the state department, and I told them
I didn’t feel like I was getting through to the school district, and they sent me a facilitator. That’s
made a huge difference to make sure I’m being heard to. I go to the meetings, and there’s a room
full of school staff. They talk and talk and talk, and they forget to let you talk. I have a Master’s
in Special Education. Not only do I know my daughter better than them, but I know the laws,
too. It helps to have the facilitator from the State Department. Now that I’m “that parent” they
usually send someone from the district office that knows what all the district can offer and will
sometimes offer things that the school staff didn’t think to offer. They just assigned Katy a PSR
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worker - Psychosocial Rehabilitation worker - all day every day. So when Katy starts acting up,
this person will tell her other ways to handle the situations.
How could the school help your child transition to adulthood?
I want her to learn some independence, so eventually she can get out of the house and know how
to be on her own. The PSR worker is helping a lot because she’s helping Katy learn better, more
acceptable behaviors. But at the same time, this PSR is with her all the time, and I don’t want
Katy to rely on someone being there at all times to help her. She has to be able to learn on her
own. I’m hoping the worker will start weaning of being around Katy and that she’ll start to be
around her less and less as time goes on.
If I were to be Katy’s teacher next year, what advice would you want to give me so that he/she
has an optimal learning experience?
Actually read the IEP and follow the accommodations. It is given to you for a reason. Also,
please voice your concerns about Katy early on. Don’t wait until she’s failing your class. Just
have good communication with me throughout the year.
What would you want me to do/not do in terms of my interactions with you if I were Katy’s
teacher?
What I love about Katy’s English teacher is that every week she emails me what she enjoyed
about Katy each week, and I appreciate that so much. Don’t have your first communication with
me be a bad one. Contact me in a positive way first, not just when Katy is in trouble. Also, don’t
blame Katy for everything. Even though Katy has disabilities doesn’t mean everything is her
fault. She has an IEP for a reason, so use it. Just because Katy is having a problem doesn’t mean
the teacher or the other student isn’t also at fault. We are all human, and we all make mistakes.
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I am just learning about students with disabilities and how to work effectively with them in my
classroom. What other information would you like me—and my classmates—to know about
working with children with special needs?
Acceptance is a big one. Be accepting of all students, disability or not, and learn that because
they are all different, they all learn differently. So learn to teach in different ways. Have you ever
heard of the Universal Design of Learning? That and individualized teaching are very important
to remember when teaching. Every kid is different.
Part 3: Summary of Research-Based Strategies
There are three teaching methods I believe would work best for this family, both in the
classroom and at home. We would begin with Universal Design for Learning (UDL) strategies.
UDL is “a teaching strategy to build flexibility into the instruction so that the products and
environments can be usable by the largest possible number of students” (Kirk et al., 2015, pp.
53). Simply put, this means the teacher would teach the content material to the class in different
ways so that the most amount of students will be able to understand it. For Katy and her class, I
would start the UDL approach by having a clear set of expectations posted in the room for the
whole class to abide by. This gives the whole class a clear understanding of the rules and give
Katy something to reference to if need be. I would also learn how to teach the same content in
different ways. For example, if I were teaching the students about a specific musical era, I would
give them a handout to fill in the blanks when I am telling them about it. I would also have some
music excerpts playing to give some clues of what type of music was written and performed
during that era. This gives the students a few different ways to learn the material.
I would also recommend Katy use social skills training in her IEP. “A social skills
training program for adolescents has been prepared based on social learning theory. This theory
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focuses on modeling, imitating, observing, and reinforcing behaviors, which have been found to
have significant effects on learning these behaviors (Nedim & Sungur, 2015, pp. 699). Social
skills training is still a relatively new strategy but has been found to help some students with
their behavioral disabilities. Student with behavioral disabilities usually meet together in a small
group setting and practice good behaviors while role-playing “real-life” situations. April
mentioned Katy does really well with the PSR worker assigned to her. Based on this, I believe
social skills training would be great for her. It will help her in the same way her PSR worker
does, but she would learn how to do it with her peers so she can become less dependent on that
PSR worker to tell her what is a good behavior and what is not.
The third strategy I believe would be beneficial for Katy and her family is known as the
cognitive strategy approach. These self-management techniques help the students to claim a
higher responsibility for their actions and behaviors. There are four common sections to these
techniques: self-monitoring, self-instruction, self-evaluation, and self-reinforcement. “....these
methods rely on the cooperation of the child and encourage the development of effective
conscious coping skills” (Kirk t al., 2015, pp. 270). These have proven to be very effective with
students with behavioral disabilities, and I believe Katy would do well with these, too. As her
teacher, I would aid her in setting an appropriate goal for herself and help her learn how to
monitor and maintain her progress herself. Once she has completed these goals, she would be
rewarded with something we both believe to be an acceptable treat (i.e. extra computer time).
Part 4: Conclusion – Reflection and Discussion
April has three children with disabilities: Rory (21) with mild autism, Katy (16) with
ADHD and bipolar disorder, and Andy (15) with a learning disability. She also has a Masters in
Special Education and has been a special education teacher before. She loves her kids and works
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really hard to make sure they get what they need for their education, even at the expense of her
own health. She is a strong and patient woman, and I respect her immensely. After hearing some
of what she has gone through with Katy, I do not know what I would have done had I been in her
situation. April has not only struggled with raising Katy with her disabilities, but she has also had
to fight the school district on several occasions and even had to go around them to get the State
Department involved. She has been with disabled students both as a parent and a teacher, and she
offered me some great advice on several aspects.
I know every student is different and learn in different ways, but I believe the teaching
strategies I recommended above would be able to help Katy with her disabilities. They can help
with many aspects of her life: distractions, communication, socialization, individualized learning,
and controlling her behaviors. I believe Katy can become a functioning member of community
someday with access to the appropriate resources. I hope the state facilitator assigned to Katy’s
case can help April get Katy’s next IEP to include a great transition plan. April tells me Katy
wants to be a veterinarian one day.
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References
Kirk, S., Gallagher, J., & Coleman, M. R. (2015). Educating exceptional children. Stamford, CT:
Cengage Learning.
Nedim Bal, P. & Sungur, G. (2015). The effect of social skills training program on adolescents.
Journal Of International Social Research, 8(39), 699-702.