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Topic7InformedConsentConfidentialityandDiagnosingEthicalGuidelines.pdf

Volume 35¡Number ll]anuary 2OI3lPages 15-28

Informed Consent, Confidentiality, and Diagnosing: Ethical Guidelines for Counselor Practice

Victoria E. Kress

Rachel M. HofTman

Nicole Adamson

Karen Eriksen

Informed consent and confidentiaKty are discussed in the context of counselors' use of the DSM

diagnostic system. Considerations that can facilitate counselor diagnostic decision-making

related to informed consent and confidentiality are identified in a case application. Suggestions

that can enhance ethical diagnostic practices are provided.

The Gouncil for the Accreditation of Gounseling and Related Educational Programs (GAGREP, 2009) requires that all trainees be instructed in ethical principles (GAGREP, Section II.G.I.j). The GAGREP standards also require that clinical mental health counselors and addictions counselors be trained in the use of the Diagnostic and Statistical Manual of Mental Disorders (DSM-IV-TR, hereafter DSM; American Psychiatric Association [APA], 2000; GAGREP Standards for Glinical Mental Health Gounseling Section K. 1 and Standards for Addiction Gounseling Section K.I). With regard to the intersection of ethics and diagnosis and in relation to informed consent, the American Gounseling Association (AGA) Gode of Ethics (2005) states "Gounselors take steps to ensure that clients understand the implications of diagnosis" (A.2.b.). The American Mental Health Gounselors Association (AMHGA) Gode of Ethics (2010) asserts that "Informed consent is ongoing and needs to be reassessed throughout the counseling relationship" (B.2.d.).

The DSM contains 297 diagnoses (APA, 2000), which will be explored with generally equal breadth and depth in the next DSM iteration (APA, 2011). It may therefore be difficult for counselors to fully understand the myriad eth- ical considerations that need to be addressed when applying DSM diagnoses (Eriksen & Kress, 2005). Galley (2009) stated that because they are elusive

Victoria £. Kress is affiliated with Youngstown State University: Rachel Hoffman with Meridian Services, Youngstown, OH; Nicole Adamson with the University of Narth Carolina at Greensboro, and Karen Eriksen with the Eriksen Institute. Delray Beach, Florida. Correspondence about this article should be addressed to Victoria E. Kress, Beeghly Hall, Department of Counseling and Special Education, youngstown State University, Youngstown, OH 44555. E-mail: [email protected].

Journal of Mental Health Counseling

aspects of counselors' personal and professional behavior, ethics must be explicitly addressed if they are to be fully integrated into professional practices. Explicit discussions of DSM ethics-related issues are thus important if coun- selors are to be deliberate and ethical in their practice (Galley, 2009).

There is a need for context-specific applications of ethics related to informed consent, confidentiality, and the DSM (Eriksen & Kress, 2005; Kress, Hoffman, & Eriksen, 2010). A lack of professional exchange about this topic could give the impression that it is not of importance. Gonversely, more detailed discussions should facilitate ethical practices related to the DSM, con- fidentiality, and informed consent (Galley, 2009). Although professional codes of ethics focus on appropriate use of the DSM (AGA, E.5.a.-E.5.d.; AMHGA, D.1.-D.3.) and GAGREP requires counselor training in its use, the literature offers minimal guidance on how to. use the DSM ethically. Only a few articles have touched specifically on the topic of client-informed consent and confi- dentiality as related to the DSM (e.g., Bassman, 2005; Kress et a l , 2010; Walker, Logan, Glark, & Leukefeld, 2005).

Ghent diagnosis has risks, and clients are often not fully apprised of them. This lack of transparency compromises the counseling values of beneficence and nonmaleficenee (because client well-being may be jeopardized), and autonomy (because the client is not given all the information needed for an informed deeision). Galley (2009) suggested that counselors consider complex ethics issues comprehensively, explicitly identifying problems and relating them to the principles of beneficence, nonmaleficenee, justice, and fidelity. Galley suggested there is value in examining all ethical codes that apply to a particular dilemma and identifying how the standards are being executed.

According to Galley (2009), if upon consideration a counselor is unable to conclude that ethical codes are being upheld, it is necessary to explore the issue in greater depth. Galley suggested consulting resources to help identify desirable ethical standards and how they can be applied to a given ethical dilemma. This article disseminates a new way of demonstrating that ethical codes are upheld when diagnosing clients.

Because the literature provides no guidance, it is important to explore the multiple ethical dimensions of diagnosing, informed consent, and confiden- tiality (Galley, 2009). Thus we discuss confidentiality and informed consent as related to counselors' use of the DSM, offer specific suggestions for optimizing ethically-sensitive diagnosis, and describe a case study application.

INFORMED CONSENT CONSIDERATIONS AND DIAGNOSIS

Diagnosis is often not discussed as part of the informed consent process (Gampbell, 2000; Eriksen & Kress, 2005; Fisher, 2002; Kress et a l , 2010). At a minimum, clients should be informed that they may receive a diagnosis and.

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Informed Consent, Confidentiality

once given a diagnosis, they should be told what it is (Kress et al., 2010). A diagnosis allows for reimbursement by third-parfy payers (i.e., health

insurance companies or agency grant funders; Braun & Gox, 2005). Insurance companies require a medical diagnosis for reimbursements. Further, in organi- zations that obtain government or other funding to treat specific diagnoses (e.g., addictions), only clients diagnosed with those problems may receive ser- vices. Thus, DSM diagnoses give clients opportunities to attain needed ser- vices, which is particularly important given the high costs of treatment. From a psychological perspecfive, another potential strength is that some clients find relief and validafion in having a label to describe their difficult experiences (Goodwin, 2009; Marzanski, Jainer, & Avery, 2002; Mitchell, 2007). Moreover, diagnosis can be used to guide counselor interventions and treat- ment plans. Ideally, counselors use diagnoses to select treatments that have proved to be successful.

The well-documented risks of diagnosis (e.g., Eriksen & Kress, 2005, 2006; Ivey & Ivey, 1998, 1999; Zalaquett, Fuerth, Stein, Ivey, & Ivey, 2008) should also be conveyed to clients. Ghents with mental health diagnoses may be stigmatized at school or work and viewed and treated negafively (Eriksen & Kress, 2006). They may come to think of themselves as "less than" or perhaps as permanently "ill" with little possibilify of becoming or seeing themselves as "well." Those diagnosed may take on the identify of a "sick" person and find it difficult to separate themselves from the label (Eriksen & Kress, 2005).

Glients who are not aware that not all DSM diagnoses are reimbursable may agree to incur the risks of receiving a diagnosis but not receive the finan- cial benefit (Braun & Gox, 2005). Although the Paul Wellstone and Pete Domenici Mental Health Parify and Addiction Equify Act of 2008 (the Federal Mental Health Parify Act; U.S. Department of Health and Human Services, 2008) prohibits providing discrepant benefits for mental health and substance abuse treatment, third-parfy payers are not required to reimburse for mental disorders that are not biologically based (U.S. Department of Health and Human Services, 2008). In other words, treatment for those mental illnesses (i.e., many illnesses other than schizophrenia, schizoaffecfive disorder, major depressive disorder, bipolar disorder, paranoia and other psychotic disorders, obsessive-compulsive disorder, and panic disorder) is considered supplemental, and insurance companies have discrefion about whether to reimburse (U.S. Department of Health and Human Services, 2008). Also, under the Parify Act, employers can choose which non-biologically-based mental health and sub- stance use diagnoses they will reimburse—there is no coverage mandate. Glients should be informed that though a diagnosis may be required for third- parfy reimbursement for services, some diagnoses may not be eligible.

The counselor's challenge is to find a balance between adequately explaining the potential harms associated with diagnosis and the benefits (see

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Hinkle, 1999, for a broader discussion of these issues; Kress et a l , 2010). Because even trained counselors may struggle to do this, it is especially impor- tant to gain an objective view to help clients get an impartial picture of DSM advantages and disadvantages.

Veracity is also highly valued in the health professions (Hill, 2003). Veracity is the commitment of a professional to be open and honest with a client, despite the discomfort that might occur. Because the well-being of the client is at the heart of the relationship, it is imperative that the counselor be truthful and realistic. In the short term, it might seem more beneficent to give clients information that will encourage them to receive the services they seem to need, but for some clients the long-term consequences of diagnosis may out- weigh the treatment benefits. Thus, fully informing clients of the potenfial risks as well as benefits of diagnosis allows counselors to uphold the traditional coun- seling values of beneficence, nonmaleficence, and autonomy (Galley, 2009).

Some counselors, feeling uncomfortable discussing diagnostic informa- tion with clients, may avoid full disclosure (Hill, 2003), and when counselors fully explain the risks of diagnosis, clients might choose not to receive services. The value of veracity suggests that counselors should nevertheless discuss uncomfortable topics like diagnosis because that will promote long-term ben- efits for counselors and clients (Hill, 2003).

Martin, Garske, and Davis (2000) found that an open and honest exchange is a key predictor of therapeutic success regardless of many other fac- tors, such as the difficulties associated with diagnosis. Glients should have the opportunity to freely determine whether they will agree to receive a diagnosis. Gounselors might provide the following information to present an objective view of the diagnostic process: (a) whether the client's third-party payer or a prospective and desired program will require a diagnosis; (b) the most common problems associated with a diagnosis; (c) the benefits of a diagnosis; and (d) what the options are should the client choose not to receive a diagnosis or not to have a third-party payer involved. As most counseling employers require a diagnosis by the end of the first session, discussions related to diagnosis need to be part of informed consent discussions early in that meeting.

CONFIDENTIALITY CONSIDERATIONS

Ethical practice requires that counseling professionals provide informa- tion about diagnosis and confidentiality as part of the informed consent process. Gonfidentiality-related information helps to ensure that client agree- ment to participate in counseling is adequately informed (AGA, 2005; AMHGA, 2010; Kaplan et al., 2009; Ponton, 2009). Thoughtfully and thor- oughly conveying that information to clients assures clients that counselors will keep them apprised of important information while keeping the counseling

Informed Consent, Confidentiality

experience confidential. Glients have a right to discuss and understand the risks and benefits of counseling before agreeing to participate.

The AGA (2005) and AMHGA (2010) Godes of Ethics state that clients have the right to confidentiality and to have its limitations explained. There are risks involved with the unanticipated—sometimes inadvertent—release of diagnostic information, and clients have a right to know of them.

Grover (2005) commented that "consent may not be truly informed in that the full implications of having the diagnosis and of having it communi- cated to others may not be adequately understood by the client at the time he or she proffers consent" (p. 78). For example, a client who signs a release on a job application that allows an employer to check into counseling history may be harmed, and the employer may not employ people with certain diagnoses (e.g., the military; Gouture & Penn, 2003). Parents of young clients may sign releases for mental health professionals to communicate with schools (U.S. Department of Health and Human Services, 2010), perhaps making a diagno- sis part of the ehild's permanent school record, which can result in stigmatiza- tion as long as the client is a student.

Mental health records and diagnoses may also be used against clients dur- ing legal battles and in court hearings (Dentón, 1989; Kress et a l , 2010; Scott, 2000; Woody, 2000); the result can range from stigmatization and embarrass- ment to a loss in a legal batfle. Diagnoses become a permanent part of client mental health records, which offen must be released in civil or criminal cases (Luepker, 2003; Scott, 2000; Woody, 2000). Although privileged communica- tion is a responsibility of counseling professionals, the law does not always sup- port such ethical considerations (Fisher, 2003). Gounseling information- including diagnoses —may have to be disclosed in court and might lead to a client not being awarded custody of a child (Glosoff, Herlihy, & Spence, 2000). Although it is routinely mentioned during the initial informed consent conver- sation that a judge's written order can overrule confldentiality, clients may not foresee the impact this could have on them.

Gonfidentiality is further complicated in group or family counseling, where diagnostic information may be shared; the legal system offen does not acknowledge privileged communication in such situations (Woody, 2000).

There are also risks in releasing diagnostic codes to insurance companies (Ackley, 1997; Gampbell, 2000) that clients need to be made aware of (Braun & Gox, 2005). A client's diagnosis becomes a permanent part of the insurance record affer one reimbursed service using the ascribed diagnosis is billed (Privacy Rights Glearinghouse, 2011). This information can then be classified as a preexisting condition that can be accessed by future employers and insur- ers. Depending on state laws and how long ago the client was diagnosed (U.S. Department of Labor, 2009), clients may lose job or insurance opportunities based upon past mental health diagnoses.

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Employers may also determine that some clients are not suitable employ- ees because their mental health needs are severe or from fear that they will raise employer insurance premiums. What complicates the issue is that such clients may have difficulfy obtaining their own health insurance due to docu- mented preexisting conditions (Ackley, 1997; Gampbell, 2000). If they are able to secure insurance, services for preexisting conditions may not be reimbursed immediately, if at all. Therefore, clients who lose their health insurance may have to pay for their own counseling or suffer with untreated difficulties.

Glients may also consent to diagnoses being released without fully under- standing what they are consenting to. In other words, clients may not grasp the long-term implications of sharing diagnoses (e.g., the client wants information shared with disabilify services, yet the information may be defamatory, such as a diagnosis of malingering). Glients may not understand that when diagnoses are released to other professionals, they may become a permanent part of those files, too. Einally, clients should understand that some diagnoses are retained indefinitely. Eor example, a person diagnosed with alcohol dependence will always—according to the DSM—be diagnosed with alcohol dependence, even though the disorder may be qualified as "in remission" (APA, 2000).

Eurther complicating this issue of confidentialify and informed consent is the fact that clients may only be made aware of their diagnosis when, or even after, the information has been shared (Grover, 2005). Glients are often given a diagnosis at the initial session, and if that session is reimbursed, it automati- cally becomes part of the client's permanent mental health record (Privacy Rights Glearinghouse, 2011). Therefore, clients fypically only have the length of one session to determine if they want a diagnosis. Even if the informed con- sent discussion is thorough, clients may not have enough time to process the information and make an informed decision before their health records are affected and the associated risks are incurred.

CASE APPLICATION

The following composite case based on the authors' experiences illus- trates some of the ethical problems that may arise in relation to diagnosis, con- fidentialify, and informed consent.

Gase Study Madison, 28, is a mother of three who recently separated from her hus-

band of five years. She has reported feeling sad and lonely since, and she also reported a history of "significant periods of sadness and depression." She stated that the separation has already become contentious and was fearful that her husband would make the divorce proceedings difficult.

Madison has also been using alcohol to cope; she estimated that she

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Informed Consent, Confidentiality

drinks three to four times a week. Although she said that she has not experi- enced any negative effects of her alcohol use, she was aware that using alcohol was not a good way of coping with her sadness. On the advice of a friend, Madison decided to seek counseling to get help with her alcohol use and sad- ness at a local agency that offers services on a sliding fee scale. As part of the informed consent process, the counselor, Rita, explains to Madison that she may receive a mental health diagnosis and informs her that the purpose of the diagnosis is to help determine the best treatment for her problems.

Rita incorporated information from Madison's intake assessment and ini- tial interviews to formulate a diagnosis. The client's primary complaint was her feelings of sadness and depression, and Rita considered a primary diagnosis of adjustment disorder with depressed mood. However, Madison reported having had depressive symptoms before the separation. This information supported the primary Axis I diagnosis of Depressive Disorder N.O.S. The additional con- cern about alcohol use did not warrant a secondary Axis I diagnosis of alcohol dependence, but the full criteria for alcohol abuse were met.

Madison was forthcoming about her impending divorce, her struggles with alcohol use, and her feelings that she was not an effective parent. She completed about 20 sessions of counseling before choosing to discontinue treatment because she "felt better." Rita felt that Madison had made good progress and was supportive of her decision to discontinue treatment. About two months later, Rita received a subpoena from family court. Madison and her husband were involved in a custody dispute and the Family Gourt Judge had appointed a guardian ad litem to help determine the best living circum- stances for the children. Rita was subpoenaed to testify about Madison's func- tioning, her diagnosis, and her progress in treatment. Rita is concerned that Madison's diagnosis (depressive disorder NOS and alcohol abuse) may be taken out of context in the custody determination; she believes that Madison may be unnecessarily penalized for her decision to seek treatment.

Case Discussion Although Madison was aware that she would be assigned a mental health

diagnosis as part of the counseling process, she was not explicitly informed that this information might be subpoenaed in the divorce proceedings. Rita obtained consent from Madison for her diagnosis and treatment but did not explain that Madison's diagnosis might be used as an indication that she was unable to be an effective parent. This is particularly noteworthy because Rita was aware that the divorce would be acrimonious.

Rita might have taken the initiative to expand upon the limits of confi- dentiality, exploring with Madison situations that often result in mental health records being subpoenaed. Informing Madison that her diagnoses might be revealed in court would have given her enough information to decide if she

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was comfortable with the risk of receiving a diagnosis. It would also have been helpful for Rita to explore with Madison how the diagnosis might be used adversely in the court case. Exploring with Madison how mental health disor- ders may be (incorrectly) perceived by others as negative could have helped prepare her for possible disclosure of potentially damaging informafion.

Preparing Madison for possible disclosure might also have altered how forthcoming she was with personal information. Rita might have discussed the possibilify of Madison electing to be treated without a formal diagnosis, which would probably have resulted in her, rather than a third parfy, paying for the services. Although not legally required, these discussions might have helped Madison make a more thoughtful informed consent decision.

PRACTICE SUGCESTIONS

Even when counselors are aware of and willing to discuss informed con- sent issues related to diagnosis, finding a therapeutic balance in describing the risks and benefits takes skill (Martin et al., 2000). The realities of deciding how and when to provide this information and how much information needs to be revealed to facilitate, rather than harm, counseling efforts are complicated. For example, even when clients are informed, many may decide that they have no choice but to accept these risks, because without reimbursement they would be unable to pursue counseling (Wittig, 2000).

The ethical principle of beneficence requires that counselors strive to improve the qualify of their clients' lives (Remley & Herlihy, 2007). A compre- hensive understanding of the benefits and risks of giving diagnoses could potenfially conflict with the counselor's ascription to beneficence. In fact. Mead, Hohenshil, and Singh (1997) found that over 60% of clinicians were aware of instances of intentional over- or under-diagnosis. That is, some clini- cians reported giving a less serious diagnosis than was warranted or putting only the least serious diagnosis on the client's permanent record to avoid labeling or stigmatizing the client (Mead et a l , 1997). Glinicians also reported giving or continuing to use an unwarranted Axis I diagnosis so that the client could receive third-parfy reimbursement for mental health services.

Although altering diagnoses might seem to allow counselors to uphold the values of beneficence and nonmalfeasance, it is not only ethically unsound, it is illegal (Mezzich, 1999; Welfel, 2002). Not only can under- or over-diagnos- ing clients prevent them from receiving the care that they need, it also inter- feres with their right to autonomy (Remley & Herlihy, 2007). The value of veracify also compels counselors to be honest with clients (Hill, 2003). The authors cited suggest completely describing the benefits and risks of accurate diagnosis and allowing clients to make the final decision on diagnosis—and emphasizing that diagnoses will not be inappropriately ascribed.

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Informed Consent. Confidentiality

A best practice approach to informed consent and diagnosis may be to openly discuss the facts that are likely to impact clients and offer assistance and information as they weigh their choices (Kaplan et al., 2009). Eriksen and Kress (2006) suggested that the medical model for making mental health diag- noses can coexist with a multifaceted counseling approach. Gounselors should take care to understand symptoms and cures in terms of the client's worldview, social Stressors, and interpersonal history (Eriksen & Kress, 2006).

Once sure that a diagnosis is accurate, the counselor can explain the probable counseling duration, process, and outcome to the client, and process with the client the benefits and any possible unhelpful consequences (Eriksen & Kress, 2006; Hill, 2003). Using basic counseling techniques that promote introspection and problem-solving skills, clients can be empowered to assess their ability to overcome the potential risks of diagnosis.

Glearly, not all situations carry significant diagnosis-related risks, and a counselor should determine when risks are more likely. When working with clients at particularly high risk of a negative effect of receiving a diagnosis (e.g., those involved in custody hearings), counselors should provide more thorough and detailed education about the risks and benefits during the intake session and may discuss how clients might manage these risks (Fisher, 2002; Jepson & Robertson, 2003; Luepker, 2003; McGivern & Marquart, 2000).

When they are educated about the risks, clients are better able to decide whether they want to receive a diagnosis. In helping clients establish what they will do to manage possible risks, it may be useful to encourage them to garner additional information to inform their decision. Depending on the situation, a client might benefit from a better understanding of the implicafions of receiv- ing a diagnosis. For example, if involved in a custody dispute, clients might choose to speak to their attorneys before continuing counseling. They might also ask their attorneys about what counseling records can and cannot be shared with third parties, and what disclosure might mean for them.

In terms of managing risks, clients might also be invited to consider what information they disclose to the counselor. Glients may elect to share some but not other information. For example, a client who is seeking counseling for depression issues might elect to withhold a past substance abuse history. For a client seeking, say, to enter the military, that might be a prudent decision.

Electing to not receive a diagnosis may place the financial burden of treat- ment on clients who may not be able to afford counseling, but it also provides clients who do have greater financial means with more opportunities to avoid being diagnosed. However, most counseling agencies have policies that require that clients complete a DSM multi-axial assessment, so clients wishing to avoid formal diagnosis may have no choice but to seek counseling in private practice settings. Gonversely, clients who do not have the means to seek private practice counseling may be forced to receive diagnoses and thus be subjected —

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arguably unfairly—to the risks of diagnostic labeling (Erikson & Kress, 2005). There are also be intervention and treatment issues when counselors diag-

nose some, but not other, clients. Theoretically, counselors working from a tra- ditional model may rely on a diagnosis to guide treatment interventions; these counselors may not feel comfortable withholding a diagnosis. Gounselors electing to not provide a diagnosis might instead select interventions and treat- ment approaches that are rooted in the client's stated presenting concern. For example, instead of diagnosing a client with depression and applying a Gognitive Behavioral Therapy (GBT) approach, a counselor might instead identify the treatment goals clients want specifically to address (e.g., finding more joy in life) and use GBT approaches to help them do so.

Gomplicating informed consent discussions is the fact that informed con- sent is generally acquired before counseling services are provided; thus, it is often difficult to determine how much detail to cover in the discussion. Rather than conceiving of informed consent as an agreement to be reached before counseling (i.e., a one-time event), such discussions should be part of the full assessment and counseling process. As the counseling process unfolds, coun- selors need to exercise discretion in deciding when and how to fully inform clients (Fisher, 2002; Jepson & Robertson, 2003).

Gounselors also need to guard against informing clients too late in coun- seling of the potential limitations of diagnosis; if clients have agreed to the counseling relationship on the basis of incomplete information, information provided too late may damage a therapeutic alliance (Fisher, 2003). Moreover, counselors may want to inform clients about the possibility that an initial DSM diagnosis may change, given new information gathered over the course of several sessions. In other words, clients should be informed that DSM diag- noses are dynamic rather than static; they may change with a client's symptom presentation. If the diagnosis does change during counseling, the elient should be informed about the rationale for the change. Related to this issue, client improvements or changes (e.g., remission, severity indicators) should also be documented in client records, including discharge/termination summaries.

Gounselors' theoretical models generally shape their relationships with clients and may also influence the degree to which they discuss with clients the risks and benefits of diagnosis. Some schools of thought (e.g.. Feminist Gounseling Theory) place counselors in more egalitarian roles with clients; others encourage counselors to promote a more authoritarian relationship (Gorey, Gorey, & Gallahan, 2007; Marzanski et al., 2002). However, whether they embrace or shun the power assoeiated with their therapeutic role, coun- selors should be aware of the power they have related to use of the DSM within the counseling relationship. Thoughfful reflection on how power influences the diagnosis or informing clients about diagnoses may be helpful in making decisions related to informed consent and the diagnostic process.

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Informed Consent, Confidentiality

In summary, counselors are responsible for evaluating the consequences of issuing diagnoses, following jurisdictional laws, and upholding ethical stan- dards. At minimum, we recommend that clients be fully informed, both in wrifing and orally, of potential benefits and risks of a DSM diagnosis. Although there is no one-size-fits-all approach, here is an example of a statement that a counselor might use orally or in informed consent documents:

A formal assessment will be conducted in order to help me gain an understanding of your current situation; it is possible tbat you will receive a diagnosis. The purĵ ose of the diagnosis is to help us and other mental health professionals identify the problems you are experiencing and the counsel- ing procedures that may be most helpful in treating those problems. In some cases, a diagnosis may also be required in order to receive third-party reimbursement for services counselors provide. Certain diagnoses (e.g., partner or parent<hild relational problems, academic problems, personal- ity disorders) may not be covered by your insurance plan.

It is important that we review several possible limitations of mental health diagnosis. First, if you use a third-party payer to pay for your services, your diagnosis, or diagnoses, will be revealed to the insur- ance company as part of the reimbursement request. It is your responsibility to contact your insur- ance company to identify the organization's specific method for storing and sharing confidential information. If you are concerned about this, we can discuss alternative options, ineluding out-of- pocket pay, pro bono services, or referral to other service providers. Also, if you are involved in any type of litigation, such as a child custody situation, your counseling records, including your mental health diagnosis, may be subpoenaed by the courts and released during eourt proceedings.

Lastly, please be aware that your mental health diagnosis—and any accompanying records — may be revealed if you sign a release of information for disclosure of your medical records to any other agency or individual (e.g., school, probation office, family physician).

This discussion should occur before any assessment, and follow-up con- versations may be required. Specifically, informed consent should be seen as a confinuing process that occurs before any major event in the counseling rela- fionship (e.g., giving or changing a diagnosis, releasing records, bringing a sig- nificant other into a session).

The authors have found that using this statement with clients invites healthy dialogue. Glients who have been to numerous other mental health providers have expressed surprise that they had previously received a diagnosis. Some clients express gratitude for making them more aware of the benefits and risks associated with sharing certain information. Glients appear to most value specific examples of how confidenfial informafion could cause harm.

DISCUSSION

A thorough discussion of informed consent and confidenfialify issues as related to the DSM should occur early in the counseling process. Before coun- selors ascribe a diagnosis, clients should be informed that they may receive one and, once a diagnosis is made, they should be informed of it. After reviewing this information, a thorough discussion of the possible repercussions of a formal

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diagnosis should be addressed, and unique client life circumstances (e.g., get- ting a divorce, renegotiating child custody, planning to enlist in the military) that could be impacted by a diagnosis should be explored.

Glients need to be informed about the diagnostic process, including (a) what DSM diagnoses are in general and their own specific diagnosis; (b) how diagnoses are made and when they are changed; (c) that clients may receive one or more diagnoses; (d) the role the client will play in formulation of the diagnosis; and (e) the risks and benefits of receiving a diagnosis. The extent to which a client is given information about informed consent issues needs to be based on the treatment setting, the presenting client concerns and needs, and the personal ramifications to the client receiving the diagnosis. Decisions related to the depth to which informed consent issues and diagnosis are dis- cussed will ultimately be based upon clinical judgment. However, counselors are ethically bound to ensure that this judgment is informed.

Gounselors need to be aware of the potential power differential inherent in the diagnostic process. Although DSM diagnoses are currently a necessity, counselors must intentionally balance the process of diagnosing with the foun- dational values (e.g., strength-based, wellness-oriented) of the counseling pro- fession. However, by providing information about DSM diagnosis and being transparent about the diagnostic process, counselors can help establish a posi- tive foundation for counseling.

REFERENCES

Aekley, D. C. (1997). Breaking free of managed care. New York, NY: Guilford. American Counseling Association. (2005). Gode of ethics. Alexandria, VA: Author. American Mental Health Counselors Association. (2010). Code of ethics. Alexandria, VA: Author. American Psychiatric Association. (2000). Diagnostic and statistical manual of mental disorders

(4th ed., text revision). Washington, DC: Author. American Psychological Association. (2011). New framework proposed for manual of mental dis-

orders [Press release]. Retrieved from http://www.dsm5.org/Newsroom/Documents/ DSM5Structure_050411.pdf

Bassman, R. (2005). Mental illness and the freedom to refuse treatment. Professional Psychology: Research and Practice, 36, 488-497. doi:10.1037/0735-7028.36.5.488

Braun, S. A., & Cox, J. A. (2005). Managed mental health care: Intentional misdiagnosis of men- tal disorders. Journal of Gounseling and Development, 83, 425-433. Retrieved from www.eoun- seling.org

Calley, N. (2009). Promoting a contextual perspective in the application of the ACA Code of Ethics: The ethics into action map. Journal of Gounseling Ö Development, 87, 476-482. Retrieved from www.eounseling.org

Campbell, J. (2000). Consumers' perspective of confidentiality and health records. In J. J. Cates & B. S. Arons (Eds.), Privacy and confidentiality in mental health care (pp. 5-32). Baltimore, MD: Brooks.

Corey, C , Corey, M., & Callahan, P. (1997). Issues and ethics in the helping professions (7th ed.). Belmont, CA: Brooks/Cole.

Informed Consent, Confidentiality

Council for Accreditation of Counseling and Related Educational Programs. (2009). 2009 stan- dards. Alexandria, VA: Author.

Couture, S., & Penn, D. (2003). Interpersonal contact and the stigma of mental illness: A review of the literature, journal of Mental Health, 12, 291-306. doi:10.1080/09638231000118276

Dentón, W. H. (1989). DSM-II-R and the family therapist: Ethical considerations. Journal of Marital and Family Therapy, 15, 367-377. Retrieved from http://www.vviley.com/bw/ joumal.asp?ref=0194-472X&site=l

Eriksen, K., & Kress, V. E. (2005). Beyond the DSM story: Ethical quandaries, challenges, and best practices. Thousand Oaks, CA: Sage.

Eriksen, K., & Kress, V. E. (2006). The DSM and professional counseling identity: Bridging the gap. Journal of Mental Health Counseling, 28, 202-217. Retrieved from www.amhca.org

Fisher, C. B. (2002). A goodness-of-fit ethic of informed consent. Fordham Urban Law Journal, 30, 159-171. Retrieved from http://law.fordham.edu/ulj

Fisher, C . B . (2003). Decoding the ethics code: A practical guide for psychologists. Thousand Oaks, CA: Sage.

Glosoff, H. L., Herlihy, B., & Spence, E. (2000). Privileged communication in the counselor- client relationship. Journal of Counseling Ó Development, 78, 454-462. Retrieved from www.counseling.org

Coodwin, C. (2009). Evidence-hased guidelines for treating bipolar disorder: Revised second edi- tion—recommendations from the British Association for Psychopharmacology. journal of Psychopharmacology, 23, 346-388. doi:10.1177/0269881109102919

Crover, S. (2005). Reification of psychiatric diagnoses as defamatory: Implications for ethical clin- ical practice. Ethical Human Psychology and Psychiatry, 7, 77-86. Retrieved from www.springer- pub.com/ehpp

Hill, J. (2003). Veracity in medicine. Lancet, 362(9399), 1944. Retrieved from www.thelancet.com Hinkle, J. S. (1999). A voice from the trenches: A reaction to Ivey and Ivey. journal of Counseling

and Development, 77, 474-483. Retrieved from www.counseling.org Ivey, A. E., & Ivey, M. B. (1998). Reframing DSM-IV: Positive strategies from developmental coun-

seling and therapy. Journal of Counseling Ö' Development, 76, 334-350. Retrieved from www.counseling.org

Ivey, A. E., & Ivey, M. B. (1999). Toward a developmental diagnostic and statistical manual: The vitality of a contextual framework. Journal of Counseling and Development, 77, 484-491. Retrieved from www.counseling.org

Jepson, R. C , & Robertson, R. (2003). Difficulties in giving fiilly informed eonsent. British Medical journal, 326(7397), 1038. Retrieved from www.bmj.com

Kaplan, D. M., Kocet, M. M., Cottone, R. R., GlosofF, H. L., Miranti, J. C , Moll, E. C. ... Tarvydas, V. M. (2009). New mandates and imperatives in the revised ACA Code of Ethics. Journal of Counseling and Development, 87, 241-256. Retrieved from www.counseling.org

Kress, V. E., Hoffman, R., & Eriben, K. (2010). Ethical dimensions of diagnosing: Considerations for clinical mental health counselors: Counseling and Values, 55, 101-112.

Luepker, E. T. (2003). Record keeping in psychotherapy and counseling: Protecting confidentiality and the professional relationship. New York, NY: Brunner-Routledge.

Martin, D. ]., Carske, J. P., & Davis, M. K. (2000). Relation of the therapeutic alliance with out- come and other variables, journal of Consulting and Clinical Psychology, 68, 438-450. doi:10.1037/0022-006X.68.3.438

Marzanski, M., Jainer, A. K., & Avery, C. (2002). What have you been told about your illness? Information about diagnosis among psychiatric inpatients. International journal of Psychiatry in Clinical Practice, 6, 103-106. doi: 10.1080/136515002753724108

McCivem, J. E., & Marquart, A. M. (2000). Legal and ethical issues in child and adolescent assess- ment. In E. S. Shapiro & T. R. Kratochwill (Eds.), Behavioral assessment in schools: Theory, research, and clinical foundations (2nd ed., pp. 387-434). New York, NY: Cuilford.

Mead, M., Hohenshil, T., & Singh, K. (1997). How the DSM system is used by clinical counselors: A national study. Journal of Mental Health Gounseling, 19, 383-401. Retrieved from www.amhca.org

Mezzich, J. (1999). Ethics and comprehensive diagnosis. Psychopathology, 32, 135-140. doi: 10.1159/000029080

Mitchell, A. J. (2007). Reluctance to disclose difficult diagnoses: A narrative review comparing communication by psychiatrists and oncologists. Supportive Gere in Gancer, 15, 819-828. doi: 10.1007/s00520-007-0226-y

Ponton, R. F. (2009). The ACA code of ethics: Articulating counseling's professional covenant. Journal of Gounseling Ó Development, 87, 117-121. Retrieved from www.counseling.org

Privaey Rights Clearinghouse. (2011). Fact sheet 8a: HIPAA basics: Medical privacy in the elec- tronic age. Retrieved from vvww.privacyrights.org

Remley, T. P., & Herlihy, B. (2007). Ethical, legal, and professional issues in counseling (2nd ed.). Columbus, OH: Pearson.

Scott, R. W. (2000). Legal aspects of documenting patient care (2nd ed.). Caithersburg, MD: Aspen.

U.S. Department of Health and Human Services. (2008). H.R. 1424. Retrieved from http://frweb- gate.access.gpo.gov/cgi-bin/getdoe.cgi?dbname=110_cong_bills&docid=f:h 1424enr.txt.pdf

U.S. Department of Health and Human Services. (2010). Privacy and your health information. Retrieved September 21, 2010 from http://www.hhs.gov/ocr/privacy/hipaa/ understanding/con- sumers/consumer_summary.pdf

U.S. Department of Labor. (2009). Elaws: Health benefits advisor glossary. Retrieved from http://www.dol.gOv/elaws/ebsa/liealth/4.asp

Walker, R., Logan, T., Clark, J. J., & Leukefeld, C. (2005). Informed consent to undergo treat- ment for substance abuse: A recommended approach. Journal of Substance Abuse Treatment, 29, 241-251. doi:10.1016/j.jsat.2005.08.001

Welfel, E. (2002). Ethics in counseling and psychotherapy. Pacific Crove, CA: Brooks/Cole. Wittig, V. R. (2000). Legislative update. Perspectives in Psychiatric Gare, 36, 107-108. Retrieved

from http://w\vw.wiley.com/bw/journal.asp?ref=0031-5990 Woody, R. H. (2000). Ghild custody: Practice standards, ethical issues, and legal safeguards for men-

tal health professionals. Sarasota, FL: Professional Resource Press. Zalaquett, C. P., Fuerth, K. M., Stein, C , Ivey, A. E., & Ivey, M. B. (2008). Reframing the DSM-

IV-TR from a multicultural social justice perspective. Journal of Gounseling &• Development, 86, 364-371. Retrieved from www.counseling.org

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