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R E V I E W

Traveling Towards Disease: Transportation Barriers to Health Care Access

Samina T. Syed • Ben S. Gerber • Lisa K. Sharp

Published online: 31 March 2013

� Springer Science+Business Media New York 2013

Abstract Transportation barriers are often cited as bar-

riers to healthcare access. Transportation barriers lead to

rescheduled or missed appointments, delayed care, and

missed or delayed medication use. These consequences

may lead to poorer management of chronic illness and thus

poorer health outcomes. However, the significance of these

barriers is uncertain based on existing literature due to wide

variability in both study populations and transportation

barrier measures. The authors sought to synthesize the

literature on the prevalence of transportation barriers to

health care access. A systematic literature search of peer-

reviewed studies on transportation barriers to healthcare

access was performed. Inclusion criteria were as follows:

(1) study addressed access barriers for ongoing primary

care or chronic disease care; (2) study included assessment

of transportation barriers; and (3) study was completed in

the United States. In total, 61 studies were reviewed.

Overall, the evidence supports that transportation barriers

are an important barrier to healthcare access, particularly

for those with lower incomes or the under/uninsured.

Additional research needs to (1) clarify which aspects of

transportation limit health care access (2) measure the

impact of transportation barriers on clinically meaningful

outcomes and (3) measure the impact of transportation

barrier interventions and transportation policy changes.

Keywords Healthcare access � Transportation barriers � Medication access � Healthcare barriers

Introduction

Transportation is a basic but necessary step for ongoing

health care and medication access, particularly for those

with chronic diseases (Fig. 1). Chronic disease care requires

clinician visits, medication access, and changes to treat-

ment plans in order to provide evidence-based care.

However, without transportation, delays in clinical inter-

ventions result. Such delays in care may lead to a lack of

appropriate medical treatment, chronic disease exacerba-

tions or unmet health care needs, which can accumulate

and worsen health outcomes [1, 2].

Patients with transportation barriers carry a greater

burden of disease which may, in part, reflect the relation-

ship between poverty and transportation availability [3]. As

a result, understanding the relationship between transpor-

tation barriers and health may be important to addressing

health in the most vulnerable who live in poverty.

Transportation is often cited as a major barrier to health

care access [4–35]. Studies have found transportation barriers

impacting health care access in as little as 3 % or as much as

S. T. Syed (&) Section of Endocrinology, Diabetes and Metabolism, University

of Illinois at Chicago, 1819 W. Polk Street, M/C 640, Chicago,

IL 60612, USA

e-mail: [email protected]

B. S. Gerber

Jesse Brown Veterans Affairs Medical Center, Chicago,

IL 60612, USA

e-mail: [email protected]

B. S. Gerber

Institute for Health Research and Policy, University of Illinois

at Chicago, MC 275, 454 Westside Research Office Bldg.,

1747 West Roosevelt Road, Chicago, IL 60608, USA

L. K. Sharp

Institute for Health Research and Policy, University of Illinois

at Chicago, MC 275, 463 Westside Research Office Bldg.,

1747 West Roosevelt Road, Chicago, IL 60608, USA

e-mail: [email protected]

123

J Community Health (2013) 38:976–993

DOI 10.1007/s10900-013-9681-1

67 % of the population sampled [25, 36]. The wide variability

in study findings makes it difficult to determine the ultimate

impact that transportation barriers have on health.

This review summarizes and critically evaluates the

empirical evidence on transportation barriers to health care

access for primary and chronic disease care. For each of the

61 studies reviewed, we evaluated the population charac-

teristics, methods, measures of transportation barriers and

results (Table 1). Results are organized into three sections:

(1) measurement of transportation barriers, (2) transporta-

tion barriers and demographic differences, and (3) mea-

surement of the impact of transportation barriers.

Additionally, we define a research agenda based on gaps in

the literature and discuss potential intervention opportuni-

ties and public policy considerations.

Methods

We searched for peer-reviewed studies that addressed

transportation barriers in relation to ongoing health care

access. Inclusion criteria were as follows: (1) study

addressed access barriers for ongoing primary care or

chronic disease care; (2) study included assessment of

transportation barriers; and (3) study was completed in the

United States. Articles dealing with access to prenatal care,

emergency or acute care, or exclusive attention to general

screening and prevention were excluded as they may rep-

resent a single visit or limited time period of care.

We used PubMed with the following keyword search

terms (number of articles returned): transportation barriers

(963), transportation barriers clinic (129), transportation

barriers pharmacy (13), transportation barriers hospital

(183), transportation barriers doctor (69), transportation

barriers health access (276), and transportation barriers

chronic disease (33). Medical Subject Heading (MESH)

terms included health services accessibility AND trans-

portation (575). Additional background information was

found using the terms transportation barriers health access

to search Web of Science and Psych Info, and transpor-

tation barriers to search The New York Academy of

Medicine Library’s Grey Literature Report.

Abstracts were reviewed for inclusion criteria, and if

necessary, full text articles were also reviewed. A sec-

ondary review of bibliographies was also conducted. In the

final review, 61 articles met the inclusion criteria. The

search was concluded in December 2012.

Results

Measures of Transportation Barriers

Vehicle Access and Mode of Travel

Nine studies assessed the influence of vehicle access upon

access to health care, and all found a positive relationship

[24–26, 37–42]. Vehicle access refers to either owning a

car or having access to a car through a family member or

friend. Arcury et al. [37] studied the relationship of trans-

portation to health care utilization in 1,059 rural Appala-

chians and found that people who knew someone who

regularly provided rides to a member of their family had a

greater utilization of health care (Odds Ratio, OR 1.58).

Those with a driver’s license, independent of other factors,

also had greater health care utilization (OR 2.29).

Guidry et al. [26] surveyed 593 cancer patients throughout

Texas, and found 38 % of whites, 55 % of African Americans,

and 60 % of Hispanics identified poor access to a vehicle as a

barrier that could result in missing a cancer treatment.

A study by Salloum et al. [38] looked retrospectively

(2000–2007) at 406 cancer patients to see if patients were

more or less likely to receive first line chemotherapy based

on their demographics. Patients who were significantly less

likely to receive first line chemotherapy lived in neigh-

borhoods that had a higher percentage of households

without any vehicle. Distance to the nearest chemotherapy

facility was not a significant factor.

Rask et al. [40] studied obstacles to care for 3,897 urban,

low socioeconomic status (SES) adults in Atlanta and found

that walking or using public transportation to receive medi-

cal care was an independent predictor of not having a regular

source of care (OR 1.44). Patients who did not use private

transportation were also more likely to delay care (OR 1.45).

Patient

Improved Health Outcomes

Improved care based on clinical guidelines

Appropriate changes to medication regimen

Prevention of chronic disease complications

Timely Medical Care

Clinician Visit

Transportation

Timely Medication Access

New prescriptions/treatments

Medication refills

Fig. 1 Model of relationship between transportation, health care access and outcomes

J Community Health (2013) 38:976–993 977

123

T a

b le

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th o

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w S

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D o

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rv e y

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if fi

c u

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g

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]

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S ,

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2

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W h

it e s,

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s

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se ,

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m b

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a n

d u

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c h

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m o

re

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d h

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in g

a fr

ie n

d o

r re

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v e

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sp o

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o n

(O R

1 .5

8

m o

re v

is it

s)

B la

z e r

e t

a l.

[1 4

]

N =

4 ,1

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a d

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s, a g

e 6

5 ?

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rt h

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S ,

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% fe

m a le

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n -B

la c k

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it e )

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/8 7

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a ly

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fo r

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se ,

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a rr

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D o

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to th

e

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se o

f ‘‘

d is

ta n

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’’ ?

(1 )

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d if

fe re

n c e

b e tw

e e n

u rb

a n

a n

d ru

ra l

re si

d e n

ts in

h e a lt

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rv ic

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d e la

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d u

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d is

ta n

c e

o r

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B o

rd e rs

e t

a l.

[5 4

]

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2 ,0

9 7

a d

u lt

s, a g

e 6

5 ?

R u

ra l

(W e st

T e x

a s)

, m

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S 7

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fe m

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, 1

9 4

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o n

-H is

p a n

ic ,

1 4

8

H is

p a n

ic

T e le

p h

o n

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rv e y

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b a rr

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to h

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h

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‘‘ A

lw a y

s/ u

su a ll

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tr a n

sp o

rt a ti

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a ll

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e t

tr a n

sp o

rt a ti

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[3 6

]

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p ri

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d ,

6 4

%

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R a c e

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p o

rt e d

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rv ie

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d id

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th e

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g

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[5 6

]b N

= 1

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in n

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% fe

m a le

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4 7

% fe

m a le

p a re

n t

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1 ,3

1 4

W h

it e s,

5 3

9 A

m e ri

c a n

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s

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b a rr

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to h

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if fi

c u

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s w

it h

tr a n

sp o

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o n

’’ (1

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m e ri

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s (3

9 %

) v

s. W

h it

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(1 8

% )

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c u

lt ie

s w

it h

tr a n

sp o

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u p

p e t

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[4 9

]

N =

1 6

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u lt

s, m

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a g

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6 w

it h

sp in

a l

c o

rd in

ju ri

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g h

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, A

la b

a m

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% h

a d

in c o

m e

g re

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r th

a n

2 5

,0 0

0 d

o ll

a rs

, 1

4 %

fe m

a le

, 6

3 %

w h

it e

F a c e

to fa

c e

su rv

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o n

b a rr

ie rs

to fo

ll o

w -

u p

a p

p o

in tm

e n

ts

O b

st a c le

s fo

r fo

ll o

w -u

p in

c lu

d e d

d is

ta n

c e

to tr

a v

e l

a n

d a v

a il

a b

il it

y o

f

tr a n

sp o

rt a ti

o n

(2 )

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n -c

o m

p li

a n

c e

w it

h a p

p o

in tm

e n

ts

a ss

o c ia

te d

w it

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is ta

n c e

to tr

a v

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(P =

0 .0

0 4

) a n

d a v

a il

a b

il it

y o

f

tr a n

sp o

rt a ti

o n

(P =

0 .0

3 3

)

978 J Community Health (2013) 38:976–993

123

T a

b le

1 c o

n ti

n u

e d

A u

th o

r P

o p

u la

ti o

n M

e th

o d

s M

e a su

re o

f tr

a n

sp o

rt a ti

o n

b a rr

ie rs

(# o

f it

e m

s)

R e su

lt s

C ra

in e t

a l.

[1 5

]b N

= 1

,3 7

6 c a re

ta k

e rs

o f

c h

il d

re n

w it

h

a st

h m

a

8 m

e tr

o in

n e r-

c it

ie s

(l o

c a ti

o n

s n

o t

sp e c ifi

e d

), lo

w S

E S

/7 4

%

M e d

ic a id

,3 6

% fe

m a le

, 7

3 %

B la

c k

F a c e

to fa

c e

su rv

e y

o n

b a rr

ie rs

to h

e a lt

h

c a re

a c c e ss

‘‘ H

a d

n o

w a y

to g

e t

th e re

’’ (1

) N

o w

a y

to g

e t

to c li

n ic

fo r

fo ll

o w

-u p

c a re

(1 6

% )

C u

n n

in g

h a m

e t

a l.

[1 7

]

N =

2 ,8

6 4

a d

u lt

s w

it h

H IV

N a ti

o n

a l,

m ix

e d

S E

S ,

8 4

7 fe

m a le

s, 1

,3 9

9

W h

it e /9

5 9

B la

c k

/4 1

5 H

is p

a n

ic

F a c e

to fa

c e

a n

d te

le p

h o

n e

su rv

e y

s o

n

b a rr

ie rs

to h

e a lt

h c a re

a c c e ss

a n

d

re a so

n s

fo r

d e la

y in

g c a re

‘‘ In

th e

la st

6 m

o n

th s,

h a v

e y

o u

e v

e r

h a d

to g

o w

it h

o u

t h

e a lt

h c a re

b e c a u

se y

o u

d id

n ’t

h a v

e a

w a y

to g

e t

th e re

? ’’

(1 )

P o

st p

o n

e d

c a re

b e c a u

se n

o tr

a n

sp o

rt a ti

o n

(1 5

.4 %

) (w

e ig

h te

d fo

r n

u m

b e r

o f

H IV

p e rs

o n

s in

U S

w h

o w

e re

u n

d e r

c a re

fr o

m Ja

n u

a ry

to M

a rc

h 1

9 9

6 )

D ia

m a n

t

e t

a l.

[1 8

]

N =

1 ,8

1 9

a d

u lt

s

L o

s A

n g

e le

s, C

a li

fo rn

ia ,

lo w

S E

S ,

6 9

%

fe m

a le

, 5

6 %

H is

p a n

ic /L

a ti

n o

, 2

3 %

B la

c k

, 1

7 %

W h

it e

F a c e

to fa

c e

su rv

e y

s o

n b

a rr

ie rs

to h

e a lt

h

c a re

a c c e ss

‘‘ In

th e

p a st

1 2

m o

n th

s, h

a v

e y

o u

e v

e r

p u

t

o ff

g o

in g

to th

e d

o c to

r fo

r m

e d

ic a l

c a re

b e c a u

se y

o u

d id

n ’t

h a v

e a

w a y

to g

e t

th e re

? ’’

(1 )

D e la

y e d

c a re

in p

ri o

r 1

2 m

o n

th s

(3 3

% )

D id

n o

t h

a v

e tr

a n

sp o

rt a ti

o n

to g

e t

to th

e

d o

c to

r (1

2 %

)

F it

z p

a tr

ic k

e t

a l.

[6 0

]

N =

4 ,8

8 9

M e d

ic a re

e li

g ib

le a d

u lt

s, a g

e

6 5

?

F o

rs y

th C

o u

n ty

, N

C ;

S a c ra

m e n

to C

o u

n ty

,

C A

; W

a sh

in g

to n

C o

u n

ty ,

M D

;

A ll

e g

h e n

y C

o u

n ty

, P

A ;

m ix

e d

S E

S /

7 0

% w

it h

su p

p le

m e n

ta l

p ri

v a te

in su

ra n

c e ,

5 9

% fe

m a le

, 8

3 %

W h

it e

R e tr

o sp

e c ti

v e

su rv

e y

s o

n p

a tt

e rn

s o

f

h e a lt

h c a re

u se

a n

d b

a rr

ie rs

to c a re

‘‘ H

o w

m u

c h

[m o

d e ra

te /v

e ry

m u

c h

/a

w h

o le

lo t]

d id

e a c h

o f

th e

fo ll

o w

in g

a ff

e c t

y o

u r

a b

il it

y to

se e

th e

d o

c to

r… tr

a n

sp o

rt a ti

o n

d if

fi c u

lt y

’’ (1

)

C it

e d

a b

a rr

ie r

to se

e in

g th

e d

o c to

r (4

% );

O f

th o

se c it

in g

a b

a rr

ie r,

2 1

% h

a d

tr a n

sp o

rt a ti

o n

d if

fi c u

lt ie

s

B a rr

ie rs

to c a re

a ss

o c ia

te d

w it

h o

ld e r

a g

e ,

fe m

a le

g e n

d e r,

m in

o ri

ti e s,

lo w

e r

in c o

m e ,

la c k

o f

c o

m p

le m

e n

ta ry

in su

ra n

c e

F lo

re s

e t

a l.

[2 4

]

N =

2 0

3 c h

il d

re n

’s c a re

ta k

e rs

B o

st o

n ,

M a ss

a c h

u se

tt s,

lo w

S E

S ,

L a ti

n o

F a c e

to fa

c e

su rv

e y

o n

b a rr

ie rs

to h

e a lt

h

c a re

a c c e ss

T ra

n sp

o rt

a ti

o n

p ro

b le

m s

in c lu

d in

g la

c k

o f

a c a r,

e x

c e ss

iv e

d is

ta n

c e ,

e x

p e n

se o

r

in c o

n v

e n

ie n

c e

o f

p u

b li

c tr

a n

sp o

rt a ti

o n

(n o

t sp

e c ifi

e d

)

T ra

n sp

o rt

a ti

o n

b a rr

ie r

a s

a re

a so

n th

e y

h a d

n o

t b

ro u

g h

t c h

il d

in fo

r a

m e d

ic a l

v is

it (2

1 %

); m

o st

c it

e d

re a so

n

L a c k

o f

a c a r

a s

m o

st fr

e q

u e n

t

tr a n

sp o

rt a ti

o n

d if

fi c u

lt y

(6 2

% )

C li

n ic

s lo

c a te

d to

o fa

r fr

o m

h o

m e

(1 1

% )

G ia

m b

ru n

o

e t

a l.

[2 5

]b N

= 1

5 7

h e a d

st a rt

h e a lt

h c o

o rd

in a to

rs

N e w

Y o

rk C

it y

, N

e w

H a m

p sh

ir e ,

P u

e rt

o

R ic

o ,

U S

V ir

g in

Is la

n d

s

M a il

e d

su rv

e y

o n

b a rr

ie rs

to m

e d

ic a l

d ia

g n

o si

s a n

d tr

e a tm

e n

t fo

r h

e a d

st a rt

c h

il d

re n

T ra

n sp

o rt

a ti

o n

b a rr

ie rs

(4 )

in c lu

d e d

a c c e ss

to p

ri v

a te

tr a n

sp o

rt a ti

o n

, a c c e ss

to p

u b

li c

tr a n

sp o

rt a ti

o n

, c o

st o

f

tr a n

sp o

rt a ti

o n

, d

is ta

n c e

to p

ro v

id e r

B a rr

ie rs

to h

e a lt

h c a re

a c c e ss

in c lu

d e d

:

P ri

v a te

tr a n

sp o

rt a ti

o n

n o

t a v

a il

a b

le

(6 7

% )

D is

ta n

c e

to p

ro v

id e r

(6 3

% )

C o

st o

f tr

a n

si t

(6 3

% )

N o

p u

b li

c tr

a n

si t

a v

a il

a b

le (4

8 %

)

J Community Health (2013) 38:976–993 979

123

T a

b le

1 c o

n ti

n u

e d

A u

th o

r P

o p

u la

ti o

n M

e th

o d

s M

e a su

re o

f tr

a n

sp o

rt a ti

o n

b a rr

ie rs

(# o

f it

e m

s)

R e su

lt s

G u

id ry

e t

a l.

[2 6

]b N

= 5

9 3

a d

u lt

s w

it h

c a n

c e r

T e x

a s,

m ix

e d

S E

S ,

5 6

% fe

m a le

, 4

2 %

W h

it e ,

4 0

% B

la c k

, 1

5 %

H is

p a n

ic

M a il

e d

su rv

e y

o n

tr a n

sp o

rt a ti

o n

b a rr

ie rs

to c a n

c e r

tr e a tm

e n

t

T ra

n sp

o rt

a ti

o n

b a rr

ie rs

(4 )

in c lu

d e d

d is

ta n

c e

to tr

e a tm

e n

t c e n

te r,

a c c e ss

to a

v e h

ic le

, fi

n d

in g

so m

e o

n e

to d

ri v

e th

e m

to tr

e a tm

e n

t, m

o d

e o

f tr

a v

e l

B a rr

ie rs

to g

e tt

in g

c a n

c e r

tr e a tm

e n

t w

e re

g re

a te

st fo

r H

is p

a n

ic s,

th e n

B la

c k

s, th

e n

W h

it e s:

D is

ta n

c e

H is

p a n

ic (6

6 %

), B

la c k

(5 1

% ),

W h

it e

(3 7

% )

A c c e ss

to a

v e h

ic le

H is

p a n

ic (5

0 %

), B

la c k

(4 6

% ),

W h

it e

(1 9

% )

F in

d in

g so

m e o

n e

to d

ri v

e th

e m

H is

p a n

ic

(6 6

% ),

B la

c k

(5 5

% ),

W h

it e

(3 7

% )

H e c k

m a n

e t

a l.

[4 4

]

N =

2 2

6 a d

u lt

s w

it h

H IV

/A ID

S

U rb

a n

/r u

ra l

(W is

c o

n si

n ),

5 4

%

m a d

e \

$ 1

0 ,0

0 0

, 1

9 %

fe m

a le

, 6

9 %

W h

it e /2

3 %

B la

c k

M a il

e d

su rv

e y

o n

b a rr

ie rs

to c a re

T ra

n sp

o rt

a ti

o n

b a rr

ie rs

(2 )

in c lu

d e d

la c k

o f

tr a n

sp o

rt a ti

o n

a n

d lo

n g

d is

ta n

c e

to

p ro

v id

e r

w it

h li

k e rt

sc a le

ra n

g in

g fr

o m

1 (n

o p

ro b

le m

a t

a ll

) to

4 (m

a jo

r

p ro

b le

m )

M o

re ru

ra l

th a n

u rb

a n

p a ti

e n

ts c it

e d

p ro

b le

m s

w it

h d

is ta

n c e

(2 .8

6 v

s 1

.6 1

o n

li k

e rt

sc a le

; P

= 0

.0 0

1 ),

tr a n

sp o

rt a ti

o n

(2 .0

3 v

s 1

.6 2

o n

li k

e rt

sc a le

; P

= 0

.0 5

)

H o

ff m

a n

e t

a l.

[1 9

]

N =

3 4

a d

u lt

s w

it h

a st

h m

a

U rb

a n

(P it

ts b

u rg

h ),

m ix

e d

S E

S ,

9 4

%

fe m

a le

, ra

c e

n o

t re

p o

rt e d

M a il

e d

su rv

e y

s o

n 1

0 b

a rr

ie rs

to

c o

m p

li a n

c e

w it

h a st

h m

a c a re

‘‘ L

a c k

o f

tr a n

sp o

rt a ti

o n

’’ (1

) L

a c k

o f

tr a n

sp o

rt a ti

o n

a ss

o c ia

te d

w it

h

p a ti

e n

ts w

h o

g o

to th

e e m

e rg

e n

c y

ro o

m

fo r

th e ir

u su

a l

p la

c e

o f

c a re

(P =

0 .0

2 )

Jo h

n so

n e t

a l.

[2 0

]

N =

3 4

,5 0

4 h

o n

o ra

b ly

d is

c h

a rg

e d

v e te

ra n

s, a g

e 1

8 –

6 4

N a ti

o n

a l,

m ix

e d

S E

S ,

A m

e ri

c a n

In d

ia n

/

A la

sk a n

n a ti

v e ,

W h

it e

A n

a ly

si s

o f

N a ti

o n

a l

H e a lt

h In

te rv

ie w

S u

rv e y

(N H

IS )

(1 9

9 7

– 2

0 0

6 )

fo r

h e a lt

h

c a re

c o

v e ra

g e

a n

d re

a so

n s

fo r

d e la

y e d

c a re

B a rr

ie rs

to re

c e iv

in g

ti m

e ly

c a re

… tr

a n

sp o

rt a ti

o n

p ro

b le

m s

(n o

t sp

e c ifi

e d

)

A m

e ri

c a n

In d

ia n

/A la

sk a n

N a ti

v e

m o

re

li k

e ly

to d

e la

y c a re

th a n

W h

it e s

d u

e to

tr a n

sp o

rt a ti

o n

p ro

b le

m s

(O R

2 .9

)

K ri

p a la

n i

e t

a l.

[6 4

]

N =

8 4

a d

u lt

s

U rb

a n

(A tl

a n

ta ),

lo w

S E

S ,

4 1

% fe

m a le

,

8 8

% B

la c k

T e le

p h

o n

e su

rv e y

o n

b a rr

ie rs

to d

is c h

a rg

e

m e d

ic a ti

o n

a d

h e re

n c e

L e v

e l

o f

d if

fi c u

lt y

v is

it in

g p

h a rm

a c y

(n o

t

sp e c ifi

e d

)

P a ti

e n

t w

it h

d if

fi c u

lt y

v is

it in

g th

e

p h

a rm

a c y

le ss

li k

e ly

to fi

ll p

re sc

ri p

ti o

n

o n

d a y

o f

d is

c h

a rg

e (2

0 %

v s

5 5

% ;

P =

0 .0

0 2

)

T ra

n sp

o rt

a ti

o n

a ss

is ta

n c e

w o

u ld

im p

ro v

e

m e d

ic a ti

o n

u se

6 5

% )

K ru

z ic

h e t

a l.

[4 8

]b N

= 1

0 2

c a re

g iv

e rs

o f

c h

il d

re n

re c e iv

in g

m e n

ta l

h e a lt

h tr

e a tm

e n

t in

re si

d e n

ti a l

fa c il

it y

, g

ro u

p h

o m

e ,

o r

p sy

c h

ia tr

ic u

n it

3 1

U S

S ta

te s,

m ix

e d

S E

S ,

7 8

% w

h it

e

M a il

e d

su rv

e y

s o

n b

a rr

ie rs

to

p a rt

ic ip

a ti

o n

in c h

il d

re n

’s m

e n

ta l

h e a lt

h

tr e a tm

e n

t

T ra

n sp

o rt

a ti

o n

b a rr

ie rs

(3 )

in c lu

d e d

d is

ta n

c e ,

c o

st o

f tr

a n

si t,

la c k

o f

tr a n

si t

B a rr

ie rs

to p

a rt

ic ip

a ti

o n

in c a re

id e n

ti fi

e d

:

D is

ta n

c e

fr o

m p

ro v

id e r

(4 4

% )

C o

st o

f tr

a n

si t

(2 8

% )

L a c k

o f

a c c e ss

to tr

a n

si t

(1 0

% )

D is

ta n

c e

w a s

th e

m o

st im

p o

rt a n

t b

a rr

ie r

(2 2

% )

980 J Community Health (2013) 38:976–993

123

T a

b le

1 c o

n ti

n u

e d

A u

th o

r P

o p

u la

ti o

n M

e th

o d

s M

e a su

re o

f tr

a n

sp o

rt a ti

o n

b a rr

ie rs

(# o

f it

e m

s)

R e su

lt s

L a m

o n

t e t

a l.

[5 2

]a N

= 1

1 0

a d

u lt

s

C h

ic a g

o ,

m ix

e d

S E

S ,

2 6

% fe

m a le

, 6

7 %

w h

it e

R e tr

o sp

e c ti

v e

e v

a lu

a ti

o n

o f

a ss

o c ia

ti o

n

b e tw

e e n

c a n

c e r

su rv

iv a l

a n

d d

is ta

n c e

fr o

m p

a ti

e n

t’ s

re si

d e n

c e

to tr

e a ti

n g

in st

it u

ti o

n

D is

ta n

c e

(N /A

) P

a ti

e n

ts li

v in

g m

o re

th a n

1 5

m il

e s

fr o

m

in st

it u

ti o

n h

a d

1 /3

h a z a rd

ra ti

o fo

r

d e a th

, a n

d w

it h

e v

e ry

1 0

m il

e s

tr a v

e le

d ,

h a z a rd

o f

d e a th

d e c re

a se

d b

y 3

.2 %

C o

m p

a re

d w

it h

W h

it e s,

B la

c k

s h

a d

1 /3

th e

h a z a rd

ra te

o f

d e a th

O n

a v

e ra

g e ,

th o

se tr

a v

e li

n g

m o

re th

a n

1 5

m il

e s

w e re

m o

re o

ft e n

w h

it e ,

m a le

,

c o

ll e g

e e d

u c a te

d ,

h a d

h ig

h e r

fa m

il y

in c o

m e s

L e v

in e

e t

a l.

[6 7

]

N =

5 ,8

4 0

a d

u lt

st ro

k e

su rv

iv o

rs a g

e

4 5

?

N a ti

o n

a l,

S E

S n

o t

re p

o rt

e d

, in

c lu

d e d

B la

c k

s a n

d W

h it

e s

R e tr

o sp

e c ti

v e

su rv

e y

u si

n g

N H

IS d

a ta

(1 9

9 7

– 2

0 0

4 )

to id

e n

ti fy

in a b

il it

y to

a ff

o rd

m e d

ic a ti

o n

s

L a c k

o f

tr a n

sp o

rt a ti

o n

d e la

y in

g c a re

(1 )

P a ti

e n

ts w

h o

c o

u ld

n o

t a ff

o rd

m e d

ic a ti

o n

s

m o

re fr

e q

u e n

tl y

re p

o rt

e d

tr a n

sp o

rt a ti

o n

b a rr

ie rs

(1 5

v s.

3 %

; P

\ 0

.0 0

1 )

L it

te n

b e rg

e t

a l.

[5 3

]

N =

7 8

1 a d

u lt

d ia

b e ti

c s,

5 1

% a g

e 6

5 ?

V e rm

o n

t, 5

8 %

w it

h p

ri v

a te

in su

ra n

c e /

5 8

% M

e d

ic a re

/2 0

% M

e d

ic a id

/5 %

m il

it a ry

/2 %

u n

in su

re d

, 5

4 %

fe m

a le

,

9 7

% w

h it

e

M a il

e d

su rv

e y

s, fa

c e

to fa

c e

in te

rv ie

w s,

a n

d d

is ta

n c e

m e a su

re m

e n

ts to

e v

a lu

a te

th e

ro le

o f

tr a v

e l

b u

rd e n

a s

a b

a rr

ie r

to

in su

li n

u se

D is

ta n

c e

(N /A

) L

o n

g e r

d ri

v in

g d

is ta

n c e

a ss

o c ia

te d

w it

h

le ss

u se

o f

in su

li n

(O R

fo r

u si

n g

in su

li n

fo r

e a c h

k m

o f

d ri

v in

g d

is ta

n c e

0 .9

7 )

M a lm

g re

n

e t

a l.

[6 1

]

N =

1 2

5 a d

u lt

s, a g

e 6

2 ?

S e a tt

le ,

lo w

S E

S ,

7 1

% w

o m

e n

, 7

7 %

W h

it e

F a c e

to fa

c e

su rv

e y

o n

h e a lt

h st

a tu

s a n

d

a c c e ss

o f

h e a lt

h c a re

a n

d u

n m

e t

n e e d

s

‘‘ W

h ic

h o

f th

e fo

ll o

w in

g h

a v

e e v

e r

m a d

e

it h

a rd

to g

e t

c a re

? …

n o

tr a n

sp o

rt a ti

o n

… d

is ta

n c e

to o

fa r’

’ (2

)

P ro

b le

m s

o b

ta in

in g

c a re

(4 6

% )

N o

tr a n

sp o

rt a ti

o n

(1 0

% )

In su

ffi c ie

n t

in c o

m e

to m

e e t

p e rs

o n

a l

n e e d

s w

a s

a ss

o c ia

te d

w it

h m

o re

fi n

a n

c ia

l a n

d st

ru c tu

ra l

b a rr

ie rs

M a rt

in e z

e t

a l.

[5 8

]b N

= 1

0 7

H IV

y o

u th

, a g

e 1

5 -2

4

C h

ic a g

o ,

N e w

a rk

, N

e w

Y o

rk ,

M ia

m i,

5 1

% w

it h

st a b

le h

o u

si n

g ,

6 4

% fe

m a le

,

7 3

% B

la c k

F a c e

to fa

c e

su rv

e y

s o

n p

ro c e ss

o f

tr a n

si ti

o n

in g

H IV

y o

u th

fr o

m d

ia g

n o

si s

to tr

e a tm

e n

t in

c lu

d in

g n

e e d

s a ss

e ss

m e n

t

a n

d b

a rr

ie rs

to c a re

B a rr

ie rs

to a c c e ss

in g

h e a lt

h c a re

… tr

a n

sp o

rt a ti

o n

to h

e a lt

h c a re

se tt

in g

s (1

)

T ra

n sp

o rt

a ti

o n

to h

e a lt

h c a re

w a s

a b

a rr

ie r

(4 0

% )

M u

se y

e t

a l.

[2 7

]b N

= 5

6 a d

u lt

d ia

b e ti

c s

U rb

a n

(A tl

a n

ta ),

lo w

S E

S ,

2 1

w o

m e n

,

1 0

0 %

B la

c k

F a c e

to fa

c e

su rv

e y

s o

n p

re c ip

it a ti

n g

c a u

se s

o f

d ia

b e ti

c k

e to

a c id

o si

s (D

K A

)

L a c k

o f

m o

n e y

fo r

tr a n

sp o

rt a ti

o n

to

p h

a rm

a c y

(1 )

D K

A c a u

se d

b y

c e ss

a ti

o n

o f

in su

li n

(6 7

% );

5 0

% o

f th

e se

p a ti

e n

ts c it

e d

la c k

o f

m o

n e y

fo r

in su

li n

o r

fo r

tr a n

sp o

rt a ti

o n

to th

e p

h a rm

a c y

N e m

e t

e t

a l.

[5 1

]b N

= 3

9 0

a d

u lt

s, a g

e 6

5 ?

R u

ra l

(O rl

e a n

s C

o u

n ty

, V

e rm

o n

t) , in

c o

m e

le ss

th a n

5 0

,0 0

0 d

o ll

a rs

, g

e n

d e r

a n

d ra

c e

n o

t sp

e c ifi

e d

M a il

e d

su rv

e y

s o

n m

e a su

re s

o f

h e a lt

h

c a re

a ss

o c ia

ti o

n

D is

ta n

c e

(N /A

) D

is ta

n c e

to d

o c to

r w

a s

n o

t a ss

o c ia

te d

w it

h u

ti li

z a ti

o n

o f

h e a lt

h c a re

O k

o ro

e t

a l.

[5 0

]b N

= 4

6 ,6

5 9

a d

u lt

s, a g

e 6

5 ?

N a ti

o n

a l,

m ix

e d

in c o

m e /a

ll in

su re

d ,

6 5

%

fe m

a le

, 8

7 %

W h

it e

R e tr

o sp

e c ti

v e

a n

a ly

si s

o f

b e h

a v

io ra

l ri

sk

fa c to

r su

rv e il

la n

c e

sy st

e m

(2 0

0 2

) to

e x

p lo

re b

a rr

ie rs

to c a re

fo r

a d

u lt

s o

ld e r

th a n

a g

e 6

5

T ra

n sp

o rt

a ti

o n

b a rr

ie rs

in c lu

d e d

n o

tr a n

sp o

rt a ti

o n

o r

d is

ta n

c e

(1 )

9 %

o f

th o

se w

h o

c o

u ld

n o

t o

b ta

in n

e e d

e d

m e d

ic a l

c a re

c it

e d

d is

ta n

c e

o r

n o

tr a n

sp o

rt a ti

o n

a s

b a rr

ie r

to c a re

J Community Health (2013) 38:976–993 981

123

T a

b le

1 c o

n ti

n u

e d

A u

th o

r P

o p

u la

ti o

n M

e th

o d

s M

e a su

re o

f tr

a n

sp o

rt a ti

o n

b a rr

ie rs

(# o

f it

e m

s)

R e su

lt s

P e sa

ta e t

a l.

[3 9

]

N =

1 0

1 c h

il d

re n

’s fa

m il

ie s

M id

w e st

e rn

m e tr

o p

o li

ta n

c li

n ic

(l o

c a ti

o n

n o

t sp

e c ifi

e d

), lo

w S

E S

, 5

4 %

B la

c k

,

4 1

% W

h it

e

T e le

p h

o n

e su

rv e y

o n

d y

n a m

ic s

b e h

in d

m is

se d

a p

p o

in tm

e n

ts

T ra

n sp

o rt

a ti

o n

p ro

b le

m s

(n o

t sp

e c ifi

e d

) T

ra n

sp o

rt a ti

o n

a s

th e

p ri

m a ry

re a so

n fo

r

m is

se d

a p

p o

in tm

e n

ts (n

o ri

d e

o r

c a r)

(5 1

% )

P h

e le

y e t

a l.

[6 8

]b N

= 2

2 ,7

0 3

a d

u lt

a p

p o

in tm

e n

ts

In n

e r

c it

y M

in n

e a p

o li

s, lo

w S

E S

, ra

c e

n o

t

re p

o rt

e d

R e tr

o sp

e c ti

v e

a n

a ly

si s

o f

c h

a n

g e

in ra

te

o f

fa il

e d

a p

p o

in tm

e n

ts d

u ri

n g

p u

b li

c b

u s

st ri

k e

R a te

o f

fa il

e d

a p

p o

in tm

e n

ts p

e r

1 0

0

sc h

e d

u le

d a p

p o

in tm

e n

ts (N

/A )

S tr

ik e

p e ri

o d

a ss

o c ia

te d

w it

h in

c re

a se

d

m is

se d

v is

it s

if v

is it

w a s

w it

h a

n u

rs e

(R R

1 .1

7 ,

P v

a lu

e =

0 .0

1 );

n o

im p

a c t

o n

d o

c to

r’ s

v is

it s

P ro

b st

e t

a l.

[4 5

]

N =

2 ,4

3 2

h o

u se

h o

ld s

N a ti

o n

a l

H o

u se

h o

ld T

ra v

e l

S u

rv e y

(N H

T S

), m

ix e d

S E

S ,

6 2

% fe

m a le

,

7 1

% W

h it

e

R e tr

o sp

e c ti

v e

a n

a ly

si s

o f

2 0

0 1

N a ti

o n

a l

H o

u se

h o

ld T

ra v

e l

S u

rv e y

to d

e te

rm in

e

tr a v

e l

b u

rd e n

to h

e a lt

h c a re

b y

g e o

g ra

p h

y a n

d ra

c e

T ra

v e l

b u

rd e n

s m

e a su

re d

b y

d is

ta n

c e

g re

a te

r th

a n

3 0

m il

e s

o r

ti m

e g

re a te

r

th a n

3 0

m in

; m

o d

e o

f tr

a v

e l,

d a y

a n

d

ti m

e o

f tr

ip ,

d ri

v e r/

p a ss

e n

g e r

st a tu

s,

tr a ffi

c ,

re g

io n

(n o

t sp

e c ifi

e d

)

R u

ra l

re si

d e n

c e

a ss

o c ia

te d

w it

h h

ig h

e r

tr a v

e l

b u

rd e n

b y

d is

ta n

c e

(O R

2 .6

7 )

a n

d

ti m

e (O

R 1

.8 0

)

B la

c k

s h

a d

h ig

h e r

tr a v

e l

b u

rd e n

s b

y ti

m e

(O R

3 .0

4 )

c o

m p

a re

d to

u rb

a n

re si

d e n

c e

a n

d W

h it

e s

R a sk

e t

a l.

[4 0

]

N =

3 ,8

9 7

a d

u lt

s

U rb

a n

(A tl

a n

ta ),

lo w

S E

S ,

5 3

% fe

m a le

,

8 9

% B

la c k

F a c e

to fa

c e

su rv

e y

to d

e te

rm in

e

c o

rr e la

ti o

n o

f o

b st

a c le

s to

m e d

ic a l

c a re

,

la c k

o f

c a re

, o

r d

e la

y in

c a re

L a c k

o f

tr a n

sp o

rt a ti

o n

(1 )

W a lk

in g

o r

u si

n g

p u

b li

c tr

a n

sp o

rt a ti

o n

to

re a c h

h o

sp it

a l

m o

re li

k e ly

to n

o t

h a v

e a

re g

u la

r so

u rc

e o

f c a re

(O R

1 .4

7 )

If n

o p

ri v

a te

tr a n

sp o

rt a ti

o n

, m

o re

li k

e ly

to

d e la

y c a re

(O R

1 .6

0 )

L a c k

o f

p ri

v a te

tr a n

sp o

rt a ti

o n

w a s

a n

in d

e p

e n

d e n

t p

re d

ic to

r o

f n

o t

h a v

in g

a

re g

u la

r so

u rc

e o

f c a re

a n

d d

e la

y in

g c a re

R e if

e t

a l.

[2 1

]b N

= 9

4 H

IV c a se

m a n

a g

e rs

U rb

a n

/R u

ra l

(N o

rt h

C a ro

li n

a ),

8 6

%

fe m

a le

, 5

9 %

W h

it e

M a il

e d

su rv

e y

o n

b a rr

ie rs

to h

e a lt

h c a re

fo r

H IV

p a ti

e n

ts

T ra

n sp

o rt

a ti

o n

b a rr

ie rs

(2 )

in c lu

d e d

la c k

o f

a d

e q

u a te

tr a n

sp o

rt a ti

o n

a n

d lo

n g

tr a v

e l

d is

ta n

c e s

to h

e a lt

h c a re

se rv

ic e s

L a c k

o f

tr a n

sp o

rt a ti

o n

w a s

a m

a jo

r b

a rr

ie r

fo r

a c c e ss

in g

c a re

fo r

c li

e n

ts (4

1 %

)

L o

n g

tr a v

e l

d is

ta n

c e s

to h

e a lt

h c a re

se rv

ic e s

w a s

a m

a jo

r b

a rr

ie r

fo r

a c c e ss

in g

c a re

fo r

c li

e n

ts (3

3 %

)

R it

tn e r

e t

a l.

[6 2

]

N =

1 ,0

8 3

, a d

u lt

s, m

e a n

a g

e 7

8

M e tr

o S

o u

th F

lo ri

d a ,

lo w

S E

S ,

8 3

8

w o

m e n

, 8

1 8

W h

it e ,

2 5

2 H

is p

a n

ic

G ro

u p

a d

m in

is te

re d

su rv

e y

o n

h e a lt

h c a re

a c c e ss

b a rr

ie rs

in a n

e ld

e rl

y p

o p

u la

ti o

n

w h

o u

se d

a y

ti m

e m

e a l

p ro

g ra

m s

a n

d

m o

st ly

u se

p u

b li

c tr

a n

sp o

rt a ti

o n

T ra

n sp

o rt

a ti

o n

b a rr

ie rs

(n o

t sp

e c ifi

e d

) L

a c k

o f

tr a n

sp o

rt a ti

o n

w a s

re a so

n fo

r n

o t

re c e iv

in g

c a re

in p

a st

6 m

o n

th s

(6 .1

% )

R u

st e t

a l.

[2 2

]

N =

3 0

,6 7

7 a d

u lt

s

N a ti

o n

a l,

m ix

e d

S E

S ,

ra c e

v a ri

e d

R e tr

o sp

e c ti

v e

a n

a ly

si s

o f

2 0

0 5

N a ti

o n

a l

h e a lt

h in

te rv

ie w

su rv

e y

(N H

IS )

to

e x

p lo

re re

la ti

o n

sh ip

b e tw

e e n

E D

v is

it s

a n

d b

a rr

ie rs

to h

e a lt

h c a re

‘‘ N

o tr

a n

sp o

rt a ti

o n

’’ (1

) L

ik e li

h o

o d

o f

E D

v is

it in

1 y

e a r

if a t

le a st

1 b

a rr

ie r

v s

n o

b a rr

ie r:

1 in

3 a d

u lt

s

(3 3

% )

v s

1 in

5 (2

0 %

)

O f

5 a c c e ss

b a rr

ie rs

, ‘‘

n o

tr a n

sp o

rt a ti

o n

’’

w a s

g re

a te

st O

R (O

R 1

.8 8

)

982 J Community Health (2013) 38:976–993

123

T a

b le

1 c o

n ti

n u

e d

A u

th o

r P

o p

u la

ti o

n M

e th

o d

s M

e a su

re o

f tr

a n

sp o

rt a ti

o n

b a rr

ie rs

(# o

f it

e m

s)

R e su

lt s

S a ll

o u

m

e t

a l.

[3 8

]a N

= 4

0 6

a d

u lt

s w

it h

c a n

c e r

S o

u th

e a st

M ic

h ig

a n

, m

e d

ia n

in c o

m e

4 8

,0 0

0 d

o ll

a rs

/p a ti

e n

ts h

a d

to b

e

e n

ro ll

e d

in a

h e a lt

h c a re

p la

n in

th e

1 y

e a r

p re

c e d

in g

c a n

c e r

d ia

g n

o si

s/ 1

2 %

d id

n o

t o

w n

c a rs

in h

o u

se h

o ld

, 4

1 %

fe m

a le

, 6

9 %

W h

it e ,

2 9

% B

la c k

R e tr

o sp

e c ti

v e

a n

a ly

si s

o f

fa c to

rs

a ss

o c ia

te d

w it

h a d

h e re

n c e

to

c h

e m

o th

e ra

p y

g u

id e li

n e s

in p

a ti

e n

ts

w it

h n

o n

-s m

a ll

c e ll

lu n

g c a n

c e r

(2 0

0 0

– 2

0 0

7 )

T ra

n sp

o rt

a ti

o n

b a rr

ie rs

(2 )

in c lu

d e d

v e h

ic le

a c c e ss

a n

d d

is ta

n c e

to tr

e a tm

e n

t

fa c il

it y

P re

d ic

to rs

o f

c h

e m

o th

e ra

p y

u n

d e ru

se

in c lu

d e d

lo w

e r

v e h

ic le

a c c e ss

in th

e

n e ig

h b

o rh

o o

d (O

R 6

.9 6

)

D is

ta n

c e

tr a v

e le

d w

a s

n o

t a ss

o c ia

te d

w it

h

a d

h e re

n c e

to c h

e m

o th

e ra

p y

tr e a tm

e n

t

g u

id e li

n e s

N o

ra c ia

l d

if fe

re n

c e s

in th

e re

c e ip

t o

f

c h

e m

o th

e ra

p y

(n e it

h e r

u n

d e r

o r

o v

e ru

se )

S a rn

q u

is t

e t

a l.

[4 7

]

N =

6 4

a d

u lt

s w

it h

H IV

R u

ra l

(C a li

fo rn

ia ),

m a jo

ri ty

m a d

e le

ss

th a n

2 0

,0 0

0 d

o ll

a rs

/y e a r,

1 0

0 %

fe m

a le

R e tr

o sp

e c ti

v e

fa c e

to fa

c e

su rv

e y

s o

n

b a rr

ie rs

to h

e a lt

h c a re

T ra

n sp

o rt

a ti

o n

b a rr

ie rs

(4 )

in c lu

d e d

m o

d e

to tr

a v

e l,

tr a v

e l

ti m

e ,

d if

fi c u

lt y

tr a v

e li

n g

, la

c k

o f

tr a n

sp o

rt a ti

o n

M o

st c o

m m

o n

re a so

n fo

r m

is se

d

a p

p o

in tm

e n

ts w

a s

tr a n

sp o

rt a ti

o n

b a rr

ie rs

(3 7

.5 %

); a s

c o

m m

o n

a s

‘‘ n

o t

fe e li

n g

p h

y si

c a ll

y w

e ll

’’

D if

fi c u

lt y

tr a v

e li

n g

to a p

p o

in tm

e n

t

4 5

.3 %

L a c k

o f

tr a n

sp o

rt a ti

o n

3 1

.2 %

T ra

n sp

o rt

a ti

o n

c h

a ll

e n

g e s

a ss

o c ia

te d

w it

h

lo w

e r

in c o

m e

S il

v e r

e t

a l.

[4 2

]b N

= 6

9 8

a d

u lt

s

N e w

Y o

rk C

it y

su b

u rb

, lo

w S

E S

, 8

3 %

fe m

a le

, 7

3 %

H is

p a n

ic

F a c e

to fa

c e

su rv

e y

s o

n tr

a n

sp o

rt a ti

o n

b a rr

ie rs

to c li

n ic

T ra

n sp

o rt

a ti

o n

b a rr

ie rs

(6 )

in c lu

d e d

‘‘ h

o w

d id

y o

u tr

a v

e l

to th

e c li

n ic

to d

a y

, (i

f b

y

b u

s) a p

p ro

x im

a te

ly h

o w

m u

c h

ti m

e d

id

y o

u sp

e n

d o

n th

e b

u st

to tr

a v

e l

fr o

m

y o

u r

h o

m e

to th

e c li

n ic

, h

a v

e y

o u

e v

e r

m is

se d

a c li

n ic

a p

p o

in tm

e n

t b

e c a u

se o

f

tr a n

sp o

rt a ti

o n

p ro

b le

m s,

in a

ty p

ic a l

m o

n th

h o

w o

ft e n

d o

y o

u h

a v

e

tr a n

sp o

rt a ti

o n

p ro

b le

m s,

h o

w o

ft e n

d o

y o

u u

se th

e b

u s

(o ft

e n

/s o

m e ti

m e s/

n e v

e r

fo r

w o

rk /g

ro c e ri

e s/

c li

n ic

o r

h o

sp it

a l/

v is

it fa

m il

y o

r fr

ie n

d s)

, (i

f a p

p li

e s)

w h

a t

is th

e m

a in

re a so

n th

a t

y o

u d

o n

’t u

se th

e

b u

s m

o re

o ft

e n

to tr

a v

e l

to th

e c li

n ic

? ’’

M is

se d

o r

re sc

h e d

u le

d a n

a p

p o

in tm

e n

t

d u

e to

tr a n

sp o

rt a ti

o n

p ro

b le

m s

(2 3

.5 %

)

C h

ro n

ic tr

a n

sp o

rt a ti

o n

p ro

b le

m s

(3 0

% )

D if

fi c u

lt ie

s a ff

o rd

in g

tr a n

sp o

rt a ti

o n

to

c li

n ic

(n e a rl

y 2

5 %

)

B u

s u

se rs

tw ic

e a s

li k

e ly

to re

p o

rt h

is to

ry

o f

m is

se d

/r e sc

h e d

u le

d a p

p o

in tm

e n

ts

(4 0

% v

s. 1

8 %

c a r

u se

rs ;

P \

0 .0

0 1

)

S k

in n

e r

e t

a l.

[4 6

]

N =

3 8

,8 6

6 h

o u

se h

o ld

s o

f c h

il d

re n

w it

h

sp e c ia

l h

e a lt

h c a re

n e e d

s

U rb

a n

/R u

ra l

(n a ti

o n

a l)

, lo

w S

E S

, 8

3 %

w h

it e ,

9 %

B la

c k

R e tr

o sp

e c ti

v e

a n

a ly

si s

fr o

m 2

0 0

0 to

2 0

0 2

N a ti

o n

a l

S u

rv e y

o f

C h

il d

re n

w it

h

S p

e c ia

l H

e a lt

h C

a re

N e e d

s fr

o m

th e

N a ti

o n

a l

C e n

te r

fo r

H e a lt

h S

ta ti

st ic

s to

e x

a m

in e

b a rr

ie rs

to h

e a lt

h c a re

n e e d

s

fo r

u rb

a n

a n

d ru

ra l

sp e c ia

l n

e e d

s

c h

il d

re n

‘‘ tr

a n

sp o

rt a ti

o n

/n o

t a v

a il

a b

le in

a re

a ’’

(1 )

T ra

n sp

o rt

a ti

o n

/s e rv

ic e

n o

t a v

a il

a b

le in

a re

a w

a s

a b

a rr

ie r

fo r

a n

y k

in d

o f

c a re

(O R

1 .5

8 ),

fo r

o b

ta in

in g

p re

sc ri

p ti

o n

s

(O R

3 .5

8 ),

fo r

th e ra

p y

(O R

2 .5

0 )

S m

it h

e t

a l.

[5 9

]b N

= 1

4 7

c a re

g iv

e rs

o f

a st

h m

a ti

c c h

il d

re n

U rb

a n

(S t.

L o

u is

, M

is so

u ri

), lo

w S

E S

, ra

c e

n o

t re

p o

rt e d

S c a le

d su

rv e y

o f

p ro

s a n

d c o

n s

to p

ri m

a ry

c a re

fo ll

o w

-u p

a ft

e r

E D

v is

it fo

r a st

h m

a

F in

d in

g tr

a n

sp o

rt a ti

o n

to g

e t

to

a p

p o

in tm

e n

t (1

)

F in

d in

g tr

a n

sp o

rt a ti

o n

w a s

a b

a rr

ie r

fo r

p a re

n ts

to o

b ta

in fo

ll o

w -u

p c a re

J Community Health (2013) 38:976–993 983

123

T a

b le

1 c o

n ti

n u

e d

A u

th o

r P

o p

u la

ti o

n M

e th

o d

s M

e a su

re o

f tr

a n

sp o

rt a ti

o n

b a rr

ie rs

(# o

f it

e m

s)

R e su

lt s

S tr

a u

ss e t

a l.

[5 4

]

N =

9 7

3 a d

u lt

d ia

b e ti

c s

V e rm

o n

t/ N

e w

H a m

p sh

ir e /n

o rt

h e rn

N e w

Y o

rk ,

9 8

% in

su re

d /2

1 %

M e d

ic a id

,

5 5

% fe

m a le

, 9

7 %

W h

it e

A n

a ly

si s

o f

V e rm

o n

t D

ia b

e te

s

In fo

rm a ti

o n

S y

st e m

to e x

a m

in e

re la

ti o

n sh

ip b

e tw

e e n

d ri

v in

g d

is ta

n c e

a n

d g

ly c e m

ic c o

n tr

o l

D ri

v in

g d

is ta

n c e

(N /A

) L

o n

g e r

d ri

v in

g d

is ta

n c e s

fr o

m h

o m

e to

si te

o f

p ri

m a ry

c a re

w a s

a ss

o c ia

te d

w it

h

p o

o re

r g

ly c e m

ic c o

n tr

o l

w it

h e a c h

2 2

m il

e s

o f

d ri

v in

g d

is ta

n c e

a ss

o c ia

te d

w it

h a

0 .2

5 %

in c re

a se

in h

e m

o g

lo b

in

A 1

c

T ie

rn e y

e t

a l.

[6 6

]a ,b

N =

4 6

,7 2

2 a ll

a g

e s

(2 3

,0 1

5 in

1 9

9 3

;

2 3

,7 0

7 in

1 9

9 4

)

In d

ia n

a ,

M e d

ic a id

re c ip

ie n

ts ,

6 6

% B

la c k

C o

h o

rt st

u d

y c o

m p

a ri

n g

h e a lt

h c a re

u ti

li z a ti

o n

o f

M e d

ic a id

p a ti

e n

ts b

e fo

re

(1 9

9 3

) a n

d a ft

e r(

1 9

9 4

) a

c h

a n

g e

in

tr a n

sp o

rt a ti

o n

re im

b u

rs e m

e n

t p

o li

c y

H e a lt

h c a re

u ti

li z a ti

o n

(N /A

) V

is it

s to

h o

sp it

a l

b a se

d p

ri m

a ry

c a re

c li

n ic

s d

e c li

n e d

(1 6

% )

V is

it s

to n

e ig

h b

o rh

o o

d h

e a lt

h c li

n ic

s

in c re

a se

d (7

% )

E m

e rg

e n

c y

a n

d u

rg e n

t c a re

v is

it s

fe ll

(8 %

)

V is

it s

fo r

m e d

ic a ti

o n

fi ll

s fe

ll (1

8 %

)

H o

sp it

a li

z a ti

o n

s in

c re

a se

d sl

ig h

tl y

w it

h

n o

c h

a n

g e

in n

u m

b e r

o f

in p

a ti

e n

t d

a y

s

W a ll

a c e

e t

a l.

[3 ]

N =

5 ,0

0 0

(2 0

0 2

N a ti

o n

a l

tr a n

sp o

rt a ti

o n

a v

a il

a b

il it

y a n

d u

se su

rv e y

b y

b u

re a u

o f

tr a n

sp o

rt a ti

o n

st a ti

st ic

s- B

T S

)c

R e tr

o sp

e c ti

v e

a n

a ly

si s

o f

B T

S ,

N H

IS ,

M E

P S

to e st

im a te

m a g

n it

u d

e o

f

tr a n

sp o

rt a ti

o n

b a rr

ie rs

to h

e a lt

h c a re

a n

d

p o

p u

la ti

o n

s a ff

e c te

d n

a ti

o n

a ll

y

T ra

n sp

o rt

a ti

o n

b a rr

ie rs

N a ti

o n

a l

h e a lt

h in

te rv

ie w

su rv

e y

(1 )

M E

P S

(3 )

N a ti

o n

a l

tr a n

sp o

rt a ti

o n

a v

a il

a b

il it

y a n

d

u se

su rv

e y

(n o

t sp

e c ifi

e d

)

3 .6

m il

li o

n A

m e ri

c a n

s (e

st im

a te

d )

m is

s a t

le a st

o n

e m

e d

ic a l

tr ip

a y

e a r

b e c a u

se o

f

tr a n

sp o

rt a ti

o n

a n

d p

o p

u la

ti o

n is

m o

re

li k

e ly

to b

e o

ld e r,

p o

o re

r, fe

m a le

,

m in

o ri

ty ,

le ss

e d

u c a te

d

5 3

.7 %

o f

c h

il d

re n

w h

o m

is se

d c a re

d u

e

to tr

a n

sp o

rt a ti

o n

li v

e in

m e tr

o a re

a s

o f

1

m il

li o

n o

r m

o re

w h

il e

o n

ly 4

7 .5

% o

f a ll

U .S

. c h

il d

re n

li v

e in

th e se

a re

a s

W a sh

in g

to n

e t

a l.

[6 3

]

N =

3 ,6

1 1

a d

u lt

v e te

ra n

s

N a ti

o n

a l,

m ix

e d

S E

S ,

1 0

0 %

fe m

a le

,

2 3

% m

in o

ri ti

e s

T e le

p h

o n

e su

rv e y

o f

b a rr

ie rs

to h

e a lt

h

c a re

a c c e ss

R e a so

n fo

r d

e la

y e d

c a re

o r

u n

m e t

n e e d

… tr

a n

sp o

rt a ti

o n

d if

fi c u

lt ie

s (1

)

3 5

.7 %

o f

th o

se o

v e r

a g

e 6

5 re

p o

rt e d

tr a n

sp o

rt a ti

o n

d if

fi c u

lt ie

s

W e a th

e rs

e t

a l.

[3 4

]

N =

3 0

0 a d

u lt

c a re

ta k

e rs

o f

a m

ig ra

n t

c h

il d

le ss

th a n

a g

e 1

3

4 c o

u n

ti e s

in E

a st

e rn

N o

rt h

C a ro

li n

a ,

7 3

% o

f c h

il d

re n

la c k

e d

in su

ra n

c e ,

n e a rl

y 7

0 %

c h

il d

re n

w e re

fo re

ig n

b o

rn

(6 2

% fr

o m

M e x

ic o

)

F a c e

to fa

c e

su rv

e y

s o

f fa

c to

rs a ss

o c ia

te d

w it

h u

n m

e t

m e d

ic a l

n e e d

s fo

r c h

il d

re n

o f

m ig

ra n

t w

o rk

e rs

P ri

m a ry

re a so

n fo

r th

e la

st e p

is o

d e

o f

u n

m e t

m e d

ic a l

n e e d

… la

c k

o f

tr a n

sp o

rt a ti

o n

(1 )

5 3

% o

f c h

il d

re n

h a d

u n

m e t

m e d

ic a l

n e e d

L a c k

o f

tr a n

sp o

rt a ti

o n

w a s

p ri

m a ry

re a so

n

fo r

la st

e p

is o

d e

o f

u n

m e t

m e d

ic a l

n e e d

(8 0

% )

984 J Community Health (2013) 38:976–993

123

T a

b le

1 c o

n ti

n u

e d

A u

th o

r P

o p

u la

ti o

n M

e th

o d

s M

e a su

re o

f tr

a n

sp o

rt a ti

o n

b a rr

ie rs

(# o

f it

e m

s)

R e su

lt s

W e lt

y e t

a l.

[6 5

]

N =

1 4

3 a d

u lt

m e m

b e rs

o f

e p

il e p

sy .c

o m

w it

h e p

il e p

sy

W o

rl d

w id

e ,

(1 1

9 U

S /2

4 o

u ts

id e

U S

),

7 5

% fe

m a le

, S

E S

n o

t re

p o

rt e d

, ra

c e

n o

t

re p

o rt

e d

W e b

su rv

e y

o n

im p

a c t

o f

li m

it e d

tr a n

sp o

rt a ti

o n

o n

m e d

ic a ti

o n

a d

h e re

n c e

T ra

n sp

o rt

a ti

o n

a s

a b

a rr

ie r

to m

e d

ic a ti

o n

a c c e ss

(8 )

in c lu

d in

g ‘‘

a p

p ro

x im

a te

ly

h o

w fa

r fr

o m

y o

u r

h o

m e

is y

o u

r

p h

a rm

a c y

lo c a te

d (m

il e s)

; if

y o

u d

o n

o t

d ri

v e ,

a re

th e re

o th

e r

fo rm

s o

f

tr a n

sp o

rt a ti

o n

a v

a il

a b

le ;

w h

a t

b e st

d e sc

ri b

e s

y o

u r

p ri

m a ry

m o

d e

o f

tr a n

sp o

rt a ti

o n

, d

o y

o u

e v

e r

h a v

e tr

o u

b le

p ic

k in

g u

p p

re sc

ri p

ti o

n m

e d

ic a ti

o n

s o

n

ti m

e b

e c a u

se o

f tr

a n

sp o

rt a ti

o n

p ro

b le

m s,

h o

w o

ft e n

d o

tr a n

sp o

rt a ti

o n

p ro

b le

m s

k e e p

y o

u fr

o m

g e tt

in g

y o

u r

p re

sc ri

p ti

o n

m e d

ic a ti

o n

s o

n ti

m e ,

h o

w

o ft

e n

d o

y o

u e v

e r

m is

s d

o se

s o

f

m e d

ic a ti

o n

b e c a u

se y

o u

c a n

n o

t g

e t

to

th e

p h

a rm

a c y

to p

ic k

u p

y o

u r

m e d

ic a ti

o n

s, d

o y

o u

b e li

e v

e y

o u

h a v

e

se iz

u re

s b

e c a u

se y

o u

a re

n o

t a b

le to

p ic

k u

p y

o u

r m

e d

ic a ti

o n

s o

n ti

m e ,

d o

y o

u fe

e l

y o

u w

o u

ld m

is s

fe w

e r

d o

se s

o f

m e d

ic a ti

o n

if tr

a n

sp o

rt a ti

o n

w a s

n o

t a n

is su

e ? ’’

P a ti

e n

ts w

h o

c o

u ld

n o

t d

ri v

e v

s th

o se

w h

o

c o

u ld

:

T ro

u b

le p

ic k

in g

u p

m e d

ic a ti

o n

s o

n ti

m e

d u

e to

tr a n

sp o

rt a ti

o n

b a rr

ie rs

(5 1

% v

s

2 0

% )

W o

u ld

m is

s fe

w e r

d o

se s

if tr

a n

si t

n o

t a n

is su

e (4

5 v

s. 2

2 %

)

T h

o u

g h

t h

a d

se iz

u re

s b

e c a u

se d

id n

o t

g e t

m e d

ic a ti

o n

s o

n ti

m e

(2 8

v s.

1 8

% )

L iv

in g

c lo

se r

a n

d h

a v

in g

m a il

se rv

ic e

p h

a rm

a c ie

s d

id n

o t

im p

ro v

e re

c e ip

t o

f

o n

ti m

e re

fi ll

s

W h

e e le

r

e t

a l.

[3 3

]

N =

3 0

3 re

c e n

tl y

h o

sp it

a li

z e d

a d

u lt

s w

it h

d ia

b e te

s

U rb

a n

(A tl

a n

ta ),

lo w

S E

S ,

4 6

% fe

m a le

,

9 1

% B

la c k

F a c e

to fa

c e

su rv

e y

s o

n b

a rr

ie rs

to fo

ll o

w -

u p

d ia

b e te

s c a re

a ft

e r

h o

sp it

a l

d is

c h

a rg

e

‘‘ n

o tr

a n

sp o

rt a ti

o n

to g

e t

to d

o c to

r’ ’

(1 )

M o

st c o

m m

o n

b a rr

ie r

to fo

ll o

w -u

p c a re

w a s

n o

tr a n

sp o

rt a ti

o n

(6 0

% )

J Community Health (2013) 38:976–993 985

123

T a

b le

1 c o

n ti

n u

e d

A u

th o

r P

o p

u la

ti o

n M

e th

o d

s M

e a su

re o

f tr

a n

sp o

rt a ti

o n

b a rr

ie rs

(# o

f it

e m

s)

R e su

lt s

Y a n

g e t

a l.

[4 1

]

N =

1 8

3 c a re

g iv

e rs

o f

c h

il d

re n

a tt

e n

d in

g

p e d

ia tr

ic c li

n ic

U rb

a n

(H o

u st

o n

, T

e x

a s)

, lo

w S

E S

/8 0

%

M e d

ic a id

, 4

4 %

H is

p a n

ic , 2

8 %

A fr

ic a n

A m

e ri

c a in

F a c e

to fa

c e

a n

d te

le p

h o

n e

su rv

e y

s o

f

tr a n

sp o

rt a ti

o n

b a rr

ie rs

to k

e e p

in g

a p

p o

in tm

e n

ts

T ra

n sp

o rt

a ti

o n

b a rr

ie rs

(1 6

) in

c lu

d e d

‘‘ fo

rm s

o f

tr a n

sp o

rt a ti

o n

m o

st o

ft e n

u se

d to

c li

n ic

, fo

rm o

f tr

a n

sp o

rt a ti

o n

to

la st

a p

p o

in tm

e n

t k

e p

t, tr

a v

e l

ti m

e in

m in

u te

s to

c li

n ic

fo r

la st

a p

p o

in tm

e n

t

k e p

t, u

su a l

tr a v

e l

ti m

e to

c li

n ic

, n

u m

b e r

o f

m is

se d

a p

p o

in tm

e n

ts in

la st

1 2

m o

n th

s d

u e

to tr

a n

sp o

rt a ti

o n

p ro

b le

m s’

’ a n

d y

e s/

n o

it e m

s in

c lu

d e d

‘‘ e v

e r

u se

d H

o u

st o

n b

u se

s, a c c e ss

to a

c a r,

c o

st o

f tr

a n

sp o

rt a ti

o n

to o

h ig

h in

H o

u st

o n

, d

if fi

c u

lt y

g e tt

in g

to la

st

a p

p o

in tm

e n

t, e v

e r

m is

se d

a p

p o

in tm

e n

t

d u

e to

tr a n

sp o

rt a ti

o n

p ro

b le

m ,

e v

e r

ta k

e n

a c h

il d

to a

c lo

se r

c li

n ic

, e v

e r

la te

to a p

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986 J Community Health (2013) 38:976–993

123

Flores et al. studied 203 children’s caretakers and found

that 21 % of inner-city children faced transportation bar-

riers to timely health care. Of these, 62 % cited lack of a

car as the specific barrier, which exceeded other reasons

including excessive distance, expense, or inconvenience of

public transportation [24].

Two studies reported that 25 % of patients missed an

appointment due to transportation problems [41, 42]. Yang

et al. [41] studied 183 urban caregivers from Houston and

their children’s missed appointments, finding that an

inability to find a ride resulted in at least one missed

appointment for 25 % of the sample. The study also found

that 82 % of those who kept their appointments had access

to a car, compared to just 58 % of those who did not keep

their appointments. Similarly, in a study of 698 low-

income adult patients, Silver et al. [42] found that 25 % of

missed appointments/rescheduling needs were due to

transportation problems and bus users were twice as likely

to miss their appointments compared to car users.

One study investigated transit accessibility to health care

by either public transit or by foot in various low income

counties in the Bay Area [43]. Results revealed that transit

accessibility to a hospital, defined as getting to a hospital or

clinic in 30 min or less by public transit or � mile by foot, varied from 0 to 28 %. Additionally, 55 % of missed

appointments or late arrivals were due to transportation

problems.

Collectively, these studies suggest that lack or inacces-

sibility of transportation may be associated with less health

care utilization, lack of regular medical care, and missed

medical appointments, particularly for those from lower

economic backgrounds.

Urban and Rural Geography

Urban and rural locations often differ in transit options,

cost of transit, and availability of and distance to health

care providers. Despite this, results were mixed in the four

studies that compared the impact of transportation barriers

on health care access for urban and rural residences [14,

44–46]. Blazer et al. [14] surveyed 4,162 urban and rural

adults over 65 in North Carolina to investigate why patients

delayed or neglected to see a doctor. The study showed no

difference between urban and rural adults in either their use

of health services or identification of transportation barri-

ers. Similarly, a study by Skinner et al. [46] included

38,866 households, and found no difference in reports of

delayed care between urban and rural parents after con-

trolling for SES.

In contrast, three studies found that rural patients face

greater transportation barriers to health care access than

their urban counterparts [44–46]. Rural patients reported

more problems with transportation and travel distance to

health care providers and had a higher burden of travel for

health care when measured by distance and time traveled

[45]. In a study by Sarnquist et al. [47] that did not make

urban comparisons, but included 64 rural, adult HIV

patients, 31 % were lacking transportation and 37 % were

missing appointments due to transportation problems.

Travel Burden by Time and Distance

Nine studies evaluated distance as a barrier to health care

access with mixed results [25, 26, 48–54]. Six found that

distance was a barrier to care [25, 26, 48–51]. Of those, five

investigated a variation of the question, ‘Is distance a

barrier to health care access?’, to measure the impact of

distance [25, 26, 48–50]. The sixth study explored the

association between distance to providers and patient

reported health care utilization [51]. In contrast, two

studies found that distance to a provider was not associated

with differences in health care utilization [53, 54]. Sur-

prisingly, one study by Lamont et al. [52] found that a

longer distance to one’s health care facility was associated

with improved health care access. Two studies looked at

the relationship of distance to either medication use or

clinical outcomes, reporting that longer driving distances

from one’s physician are associated with less insulin use or

poorer glycemic control independent of social, clinical or

economic factors [53, 54].

Transportation Barriers and Demographic Differences

Transportation Barriers and Ethnic Differences

Of six studies comparing transportation barriers to health

care access across ethnic groups, five found differences [3,

20, 26, 45, 55, 56]. To understand whether ethnic differ-

ences independently account for differences in transporta-

tion barriers, socioeconomic factors must be considered

because they can influence transportation variables [57].

Three studies used national data sets to explore trans-

portation barriers to health care access in minorities, and all

controlled for SES [3, 20, 45]. A large secondary analysis

of National Health Interview Survey (NHIS) data, Medical

Expenditure Panel Survey (MEPS) data, and Bureau of

Transportation Statistics (BTS) data, by Wallace et al. [3],

estimated that 3.6 million people do not obtain medical

care due to transportation barriers. These individuals were

more likely to be older, poorer, less educated, female, and

from an ethnic minority group. Individuals carrying the

highest burden of disease also faced the greatest burden of

transportation barriers. In the second study, Johnson et al.

[20] analyzed NHIS data from 1997 to 2006 to compare

reasons for delayed health care access between 34,504

American Indian/Alaskan Natives and White Veterans, and

J Community Health (2013) 38:976–993 987

123

found that American Indian/Alaskan Natives were more

likely to delay care due to transportation problems.

A third study by Probst et al. [45] utilized a cross-sec-

tional household survey, conducted by the US Department

of Transportation, to look at ethnic differences in burden of

travel for health care. Burden of travel was measured as

greater than 30 min or 30 miles to a health care provider.

Distance traveled did not vary significantly, but African

Americans had higher burdens of travel as compared to

Whites even after controlling for mode of travel and SES.

In contrast, a study by Borders et al. [55] controlled for

SES and found no significant difference in transportation

barriers between rural Hispanics and Whites accessing

health care in Texas.

Finally, two additional studies found differences by

ethnicity, although they did not control for SES. In a study

of 593 adults with cancer, Guidry et al. [26] found that

Hispanics’ transportation barriers to cancer treatment were

greater than those of African Americans, and African

Americans’ barriers were greater than Whites. Transpor-

tation barriers included distance to treatment center, access

to a vehicle, and finding someone to drive them to treat-

ment. Call et al. [56] contrasted barriers to health care

access between 1,853 American Indians and Whites

enrolled in the Minnesota Health Care program. The study

found that 39 % of American Indians reported transporta-

tion barriers compared to 18 % of Whites.

Overall, studies that explored health care access and

transportation barriers among members of ethnic minorities

and Whites suggested that access is superior for Whites

even after controlling for SES.

Special Populations: Children, the Elderly, and Veterans

Certain populations may face unique circumstances with

transportation barriers to health care access. For children,

significant transportation barriers to health care access have

been repeatedly identified [15, 24, 34, 39, 41, 48, 58, 59].

In two separate studies of inner-city children, 18–21 % of

respondents cited transportation barriers as the reason for

not bringing a child in for needed health care [15, 24].

Among migrant farm workers, 80 % cited lack of trans-

portation as the primary reason for the last episode that

their child faced an unmet medical need [34].

The elderly may face a unique combination of access

barriers due to disability, illness and likely a greater need

for frequent visits to their clinician. Among the elderly

reporting any barrier to health care access, 3–21 % repor-

ted having transportation barriers, although insurance sta-

tus and income varied among studies [9, 14, 36, 55, 60–62].

Additional studies of more low-income elderly may be

necessary to clarify the role of transportation barriers to

health care access.

Two studies examined transportation barriers to health

care access for Veterans, a group that often has access to

the federal health care system and may receive federally

supported transportation assistance. In one study, 19 % of

Veterans with colorectal cancer had difficulty with trans-

portation to appointments, and a second study found that

35 % of female Veterans over age 65 had transportation

barriers to health care access [23, 63].

Measuring the Impact of Transportation Barriers

Missed Clinic Appointments

Two studies selected patients for research specifically

because of missed health care appointments to identify the

reasons. In one study of 200 children with a history of

missed appointments, 51 % parents identified transporta-

tion barriers as the primary reason for missing clinic

appointments [42]. In another study, Yang et al. [41] sur-

veyed 183 caregivers of urban children in Texas, and

grouped patients based on show rates for a single

appointment over a 9-week period. There was a 26 % no

show rate overall. For those with a history of missed

appointments, 50 % cited transportation problems com-

pared to 30 % of those who kept appointments. Factors

associated with missed appointments included not owning

a car and not having access to a car.

Pharmacy and Medication Access

Five studies explored the relationship between transporta-

tion barriers and medication access with all reporting an

inverse association [27, 64–67]. Kripalani et al. [64] studied

patterns of discharge medication fills in 84 adults living in

urban Atlanta. The study found that following hospital dis-

charge, patients reporting difficulty visiting the pharmacy

had lower prescription fill rates than those not reporting

difficulty (20 vs. 55 % respectively). Additionally, 65 % of

patients felt transportation assistance would improve medi-

cation use after discharge. Musey et al. [27] examined the

causes for 56 diabetic ketoacidosis [DKA] admissions at

Grady Memorial Hospital in Atlanta. He found that 67 % of

DKA admissions were related to stopping insulin and 50 %

of those patients cited either lack of money for insulin or for

transportation to get their medicine.

Welty et al. [65] created an online survey through epi-

lepsy.com to study the relationship between transportation

barriers and anti-epileptic use. The study included 143 web

site members and found that 45 % of respondents who

could not drive said they would miss fewer doses of their

medications if transportation was not a problem.

Tierney et al. [66] examined the relationship between

transportation policy and health care utilization in a cohort

988 J Community Health (2013) 38:976–993

123

study of 46,722 Medicaid patients, and found that restric-

tion of Medicaid payments for transportation resulted in

decreased medication refills. A study by Levine et al. [67]

found that transportation barriers were associated with not

being able to afford medications, emphasizing that those

with low incomes are often the hardest hit by all barriers,

including transportation.

Natural Experiments

Two studies have looked at natural experiments to provide

real-world insight on the impact of transportation barriers

on access to care [66, 68]. One retrospective study by

Pheley et al. [68] examined the impact of a 2-week mass

transit strike on missed appointments at an inner-city clinic

serving a low-income population in Minneapolis. There

was no difference in the number of missed appointments

between strike and non-strike periods with doctors, but

there was an increase of 4.7 failed appointments per 100

scheduled nurse visits (relative risk 1.17).

Another study by Tierney et al. [66] looked at a Med-

icaid cohort to examine the impact of a policy change that

restricted Medicaid payments for transportation on health

care utilization. The study focused on the 6-month pre-

policy period and the 6-month post-policy period for

46,722 Medicaid patients using an inner-city public hos-

pital and associated clinics. Results revealed that visits to

community clinics increased, hospitalizations increased

slightly, and visits to hospital based primary care clinics,

urgent care clinics, and emergency departments fell.

Discussion

This literature review on transportation barriers and access

to health care yielded several important findings. First,

patients with a lower SES had higher rates of transportation

barriers to ongoing health care access than those with a

higher SES (Table 1). Additionally, transportation barriers

impacted access to pharmacies and thus medication fills

and adherence. Finally, while distance from a patient to a

provider would intuitively seem to be a barrier to health

care access, the evidence is inconclusive.

Poorer populations face more barriers to health care

access in general, and transportation barriers are no

exception. In 25 separate studies, 10–51 % of patients

reported that transportation was a barrier to health care

access (Table 1). This is very significant because when

patients cannot get to their health care provider, they miss

the opportunity for evaluation and treatment of chronic

disease states, changes to treatment regimens, escalation or

de-escalation of care and, as a result, delay interventions

that may reduce or prevent disease complications (Fig. 1).

Ultimately, transportation barriers may mean the dif-

ference between worse clinical outcomes that could trigger

more emergency department visits and timely care that can

lead to improved outcomes [22]. Since patients who carry

the highest burden of disease face greater transportation

barriers, addressing these barriers to avoid worsening

health seems logical [3]. While there may be differences in

transportation barriers based on ethnicity or geography,

they may disappear after accounting for socioeconomic

factors such as income or insurance. Additionally, studies

that reported low rates of transportation barriers to health

care access often did not include more vulnerable popula-

tions, such as lower income or uninsured patients.

Mixed Evidence

Some aspects of transportation barriers, such as distance,

showed mixed evidence regarding the impact on health

care access. Distance does not necessarily equate to travel

burden and different measures of distance may alter the

results. For example, studies that measured the impact of

distance subjectively, by asking patients whether distance

to the provider was a barrier to health care access or not,

concluded it was a barrier [25, 26, 48–50]. However, other

studies that objectively measured the distance between

homes and health care facilities and subsequent health care

utilization found distance was not a barrier [52–54]. A

patient may live in a wealthy suburb, own several cars, and

have no problem accessing health care, even at a distance.

Conversely, a seemingly shorter distance for a patient who

has to walk or cannot afford public transit may prove to be

too far of a distance, and hence be identified as a barrier by

the patient.

Special Populations

Existing studies on the elderly suggest that transportation is a

less significant barrier to health care access compared to

younger populations. However, these studies lacked inclu-

sion of lower-income elderly populations and did not address

concerns that may be more relevant to the elderly, such as

safety and disability access. It is possible that the elderly may

have fewer competing demands, such as not having to share a

car with family members who need a car for work or trans-

porting children. However, additional studies are needed

with more representative samples of elderly adults before

any conclusions can be drawn about transportation barriers

to health care access in this population.

Traveling Forward: Interventions and Public Policy

Collaboration between health policy makers, urban plan-

ners, and transportation experts could lead to creative

J Community Health (2013) 38:976–993 989

123

solutions that address transportation barriers to health care

access while considering patient health, cost, and effi-

ciency. Such collaboration could also lead to studies in

areas that are lacking research, such as research on trans-

portation policy and its impact on health outcomes outside

of injury prevention [8]. These collaborations could also

use prior research to guide interventions and public policy.

In the studies reviewed, access to a vehicle was con-

sistently associated with increased access to health care

even after controlling for SES. Future interventions should

consider this link in addition to public transit discounts or

medical transportation services. For example, there have

been interventions that provide access to cars to improve

access to jobs, and these programs could be used as models

for providing cars to improve health care access [69].

Additionally, reimbursement for travel should be inves-

tigated further to determine the role it plays in keeping

appointments and avoiding fragmented care. In Tierney’s

natural experiment study, which examined the impact of

lower Medicaid payments for transportation on health care

utilization, several changes occurred in health care utiliza-

tion rates. These included an increase in community clinic

use and hospitalizations, with a decrease in visits to urgent

care clinics and emergency departments [66].

New technological innovations such as telehealth may

also address transportation barriers by reducing travel

needs over time. Telehealth services may include video

conferencing, remote monitoring, and other disease man-

agement support at a distance. One approach to providing

patient-centered care is to evaluate transportation and other

barriers to ongoing health care encounters, and provide

telehealth services when beneficial and cost-effective.

Medication access may also be improved as more services

for home medication delivery become available.

Limitations

This review was restricted in scope and had several limi-

tations. Studies with an exclusive focus on screening,

prevention, and prenatal and pregnancy care were not

evaluated and may have different findings. A majority of

the studies used cross-sectional designs thus making cause

and effect conclusions difficult (Table 1). The diversity of

demographic, geographic, social variables, and outcome

measures also make study-to-study comparisons difficult.

Efforts to generate a valid measure of transportation bar-

riers for consistent measurement may help to perform

future meta-analyses across studies. Prospective studies of

local changes in transportation options may also help

contribute to the evidence, and although randomized trials

would help isolate the impact of transportation interven-

tions they would be impractical to execute [70].

Additionally, the studies on transportation barriers to

health care access rely largely on self-report, and lacked an

exploration of whether patients were unaware of available

services or assistance. While some studies investigated the

impact of transportation barriers on objective outcomes

such as missed appointments or medication fills, these

studies were in the minority. Whether transportation bar-

riers contribute to differences in health outcomes needs to

be explored further with objective outcome measures. By

demonstrating that transportation barriers lead to missed

appointments, poorer medication adherence, and thus

poorer diabetes or blood pressure control, transportation

barriers could be more strongly linked to health access and

outcomes (Fig. 1).

Conclusion

Transportation barriers to health care access are common,

and greater for vulnerable populations. The studies

reviewed may help guide both the design of interventions

that address transportation barriers and the choice of

measures used in assessing their effectiveness. Future

studies should focus on both the details that make trans-

portation a barrier (e.g., cost, mode of travel, public transit

safety, vehicle access) and objective outcome measures

such as missed appointments, rescheduled appointments,

delayed medication fills, and changes in clinical outcomes.

Such studies would help clarify both the impact of trans-

portation barriers and the types of transportation interven-

tions needed. Millions of Americans face transportation

barriers to health care access, and addressing these barriers

may help transport them to improved health care access

and a better chance at improved health [3].

Acknowledgments We would like to acknowledge Dr. Shannon Zenk and Kathy Korytkowski for their editing and support in the

preparation of this manuscript.

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  • Traveling Towards Disease: Transportation Barriers to Health Care Access
    • Abstract
    • Introduction
    • Methods
    • Results
      • Measures of Transportation Barriers
        • Vehicle Access and Mode of Travel
        • Urban and Rural Geography
        • Travel Burden by Time and Distance
      • Transportation Barriers and Demographic Differences
        • Transportation Barriers and Ethnic Differences
        • Special Populations: Children, the Elderly, and Veterans
      • Measuring the Impact of Transportation Barriers
        • Missed Clinic Appointments
        • Pharmacy and Medication Access
        • Natural Experiments
    • Discussion
      • Mixed Evidence
      • Special Populations
      • Traveling Forward: Interventions and Public Policy
    • Limitations
    • Conclusion
    • Acknowledgments
    • References