CASE STUDY 1: THE PROBLEM OF HIGH DEDUCTIBLES AND CONSUMER DIRECTED HEALTH CARE IN U.S. HEALTH INSURANCE

March 2020 | Issue Brief

Disparities in Health and Health Care: Five Key Questions and Answers

Samantha Artiga, Kendal Orgera, and Olivia Pham

Executive Summary

1. What are health and health care disparities? Health and health care disparities refer to differences in health and health care between groups

that are closely linked with social, economic, and/or environmental disadvantage. Disparities occur

across many dimensions, including race/ethnicity, socioeconomic status, age, location, gender, disability

status, and sexual orientation.

2. Why do health and health care disparities matter? Disparities in health and health care not only affect the groups facing disparities, but also limit

overall gains in quality of care and health for the broader population and result in unnecessary

costs. Addressing health disparities is increasingly important as the population becomes more diverse. It

is projected that people of color will account for over half (52%) of the population in 2050.

3. What is the current status of disparities? Although the Affordable Care Act (ACA) lead to large coverage gains, some groups remain at

higher risk of being uninsured, lacking access to care, and experiencing worse health outcomes.

For example, as of 2018, Hispanics are two and a half times more likely to be uninsured than Whites

(19.0% vs. 7.5%) and individuals with incomes below poverty are four times as likely to lack coverage as

those with incomes at 400% of the federal poverty level or above (17.3% vs. 4.3%).

4. What are key initiatives to address disparities? The ACA’s coverage expansions and funding for community health centers increased access to coverage

and care for many groups facing disparities, and other provisions explicitly focused on reducing

disparities. At the federal level, the Department of Health and Human Services is engaged in a range of

actions to implement its 2011 action plan to eliminate racial and ethnic health disparities. States, local

communities, private organizations, and providers also are engaged in efforts to reduce health disparities,

which increasingly encompass a focus on social factors influencing health.

5. What are current challenges to addressing disparities? Recent policy changes and current priorities may lead to coverage declines moving forward.

Beyond coverage, there are an array of other challenges to addressing disparities, including limited

capacity to address social determinants of health, declines in funding for prevention and public health and

health care workforce initiatives, and ongoing gaps in data to measure and understand disparities.

Disparities in Health and Health Care: Five Key Questions and Answers

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1. What are health and health care disparities? Health and health care disparities refer to differences in health and health care between groups. A

“health disparity” refers to a higher burden of illness, injury, disability, or mortality experienced by one

group relative to another.1 A “health care disparity” typically refers to differences between groups in health

insurance coverage, access to and use of care, and quality of care. Health and health care disparities

often refer to differences that are not explained by variations in health needs, patient preferences, or

treatment recommendations and are closely linked with social, economic, and/or environmental

disadvantage. The terms “health inequality” and “inequity” also are used to refer to disparities.2,3

A complex and interrelated set of individual, provider, health system, societal, and environmental

factors contribute to disparities in health and health care. Individual factors include a variety of health

behaviors from maintaining a healthy weight to following medical advice. Provider factors encompass

issues such as provider bias and cultural and linguistic barriers to patient-provider communication. How

health care is organized, financed, and delivered also shapes disparities. Moreover a broad array of

social and environmental factors affect individuals’ health and ability to engage in healthy behaviors

(Figure 1).4

Health and health care disparities are commonly viewed through the lens of race and ethnicity,

but they occur across a broad range of dimensions. For example, disparities occur across

socioeconomic status, age, geography, language, gender, disability status, citizenship status, and sexual

identity and orientation. Federal efforts to reduce disparities focus on designated priority populations who

are vulnerable to health and health care disparities, including people of color, low-income groups, women,

Figure 1

Economic

Stability

Neighborhood

and Physical

Environment

Education Food

Community

and Social

Context

Health Care

System

Employment

Income

Expenses

Debt

Medical Bills

Support

Housing

Transportation

Safety

Parks

Playgrounds

Walkability

Zip Code/

Geography

Literacy

Language

Early Childhood

Education

Vocational

Training

Higher

Education

Hunger

Access to

Healthy Options

Social

Integration

Support Systems

Community

Engagement

Discrimination

Stress

Health Coverage

Provider

Availability

Provide

Linguistic and

Cultural

Competency

Quality of Care

Health Outcomes Mortality, Morbidity, Life Expectancy, Health Care Expenditures, Health Status, Functional Limitations

Social Determinants of Health

Disparities in Health and Health Care: Five Key Questions and Answers

3

children, older adults, individuals with special health care needs, and individuals living in rural and inner-

city areas.5,6,7 These groups are not mutually exclusive and often interact in important ways. Disparities

also occur within subgroups of populations. For example, there are differences among Hispanics in health

and health care based on length of time in the country, primary language, and immigration status.8,9

Research also suggests that disparities occur across the life course, from birth, through mid-life, and

among older adults.10,11

2. Why do health and health care disparities matter? Addressing disparities in health and health care is important not only from an equity standpoint,

but also for improving health more broadly by achieving improvements in overall quality of care

and population health. Moreover, health disparities are costly. Analysis estimates that disparities

amount to approximately $93 billion in excess medical care costs and $42 billion in lost productivity per

year as well as economic losses due to premature deaths.12

It is increasingly important to address health disparities as the population becomes more diverse.

It is projected that people of color will account for over half (52%) of the population in 2050, with the

largest growth occurring among Hispanics (Figure 2). There also are wide gaps in income across the

population. As of 2018, the richest 20% of households have an average income of $234,000, nearly 17

times the average income of $14,000 for the bottom 20% of households (Figure 3).13

Figure 2

61% 48%

12%

13%

18%

26%

5% 8%

3% 5%

2016 Total = 323.1M

2050 Total = 388.9M

Other

Asian

Hispanic

Black

White

NOTE: All racial groups are non-Hispanic. Other includes Native Hawaiians and Pacific Islanders, American Indian and Alaska Natives, and individuals with two or more

races. Data do not include residents of Puerto Rico, Guam, the U.S. Virgin Islands, or the Norther Mariana Islands.

SOURCE: U.S. Census Bureau, 2017 National Population Projections, Race by Hispanic Origin, 2017-2060. Available at:

https://www.census.gov/data/tables/2017/demo/popproj/2017-summary-tables.html.

Distribution of U.S. Population by Race/Ethnicity, 2016

and 2050

People

of Color:

39%

People

of Color:

52%

Disparities in Health and Health Care: Five Key Questions and Answers

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What is the current status of disparities? Despite overall improvements in population health over time, many disparities have persisted and,

in some cases, widened.14 People of color and low-income individuals historically have faced greater

barriers to accessing care, including a higher uninsured rate, compared to Whites and those at higher

incomes.15 Data also show that disparities in some health outcomes, such as heart disease mortality

rates among Blacks and diabetes mortality rates among AIANs, have widened over time.16

The ACA led to large coverage gains for many groups facing disparities. The ACA created new

coverage options, including a Medicaid expansion and health insurance marketplaces. Following

enactment of the ACA in 2010, there were large coverage gains across racial and ethnic groups, with the

sharpest increases after implementation of the Medicaid and marketplace expansions in 2014 (Figure

4).17 Groups of color experienced larger coverage gains compared to Whites as a share of the population,

which narrowed percentage point differences in uninsured rates between groups of color and Whites.18

However, most groups of color remained more likely to be uninsured compared to Whites as of 2018.

Moreover, the relative risk of being uninsured compared to Whites did not improve for some groups. For

example, Blacks remained 1.5 times more likely to be uninsured than Whites between 2010 and 2018,

and the Hispanic uninsured rate remained over 2.5 times higher than the rate for Whites.19 Lower-income

individuals also experienced large coverage gains that narrowed percentage point differences in

uninsured rates for poor (<100% of the federal poverty level, FPL) and near-poor (100-299% FPL)

individuals compared to those at higher incomes (400% FPL and above). Relative disparities by income

also narrowed. For example, in 2010, the uninsured rate for poor individuals was five times higher than

the rate for those at higher incomes (400% FPL or above) (30.3% vs. 6.0%), while in 2018, it was four

times higher (17.3% vs. 4.3%). However, low-income groups remained more likely to be uninsured than

those at higher incomes.

Figure 3

$14,000

$64,000

$234,000

Poorest 20% of Households

Middle 20% of Households

Richest 20% of Households

NOTE: Totals rounded to the nearest 100.

SOURCE: Semega, Jessica, et al. “Income and Poverty in the United States: 2018.” Table A-4. Current Population Reports. United States Census Bureau, September

2019, https://www.census.gov/content/dam/Census/library/publications/2019/demo/p60-266.pdf.

Gaps Between Average Annual Income of Richest and

Poorest Households in the United States, 2018

Disparities in Health and Health Care: Five Key Questions and Answers

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Beginning in 2017 and continuing in 2018, coverage gains stalled and reversed for some groups.

The uninsured rate for the total nonelderly population increased from 10.0% in 2016 to 10.4% in 2018.20

This reversal in coverage trends eroded some of the progress achieved in reducing uninsured rates for

Whites and Blacks as well as for groups with incomes above the poverty level (Figure 5).

Figure 5

-0.11%

0.60%* 0.94%*

0.65%* 0.48%*

0.79%*

-0.16% -0.35%*

-0.18%

-1.52%

<100% 100- 199%

200- 399% 400%+ White Black Hispanic Asian AIAN NHOPI

* Indicates a significant percentage-point change from 2016 to 2018.

NOTE: Includes nonelderly individuals age 0 to 64. AIAN refers to American Indiana and Alaska Native. NHOPI refers to Native Hawaiians and Other Pacific Islanders.

Changes are percentage-point changes from 2016 to 2018. The US Census Bureau’s poverty threshold for a family with two adults and one child was $20,212 in 2018.

Source: KFF analysis of 2016 and 2018 American Community Survey, 1-Year Estimates.

Change in Uninsured Rate among the Nonelderly

Population by Selected Characteristics, 2016-2018

Poverty Level (% of FPL) Race/Ethnicity

Figure 4

13.1% 12.8% 12.5% 12.3%

9.8%

7.7% 7.1%

7.3% 7.5%

19.9% 19.3% 18.9% 18.8%

14.9%

12.1% 10.7% 11.1%

11.5%

32.6% 31.3%

30.5%

30.0%

24.8%

20.6% 19.1% 18.9% 19.0%

16.7% 16.8% 16.3% 15.7%

11.2%

8.4%

7.1% 6.8%

32.0%

29.8% 30.2%

30.4%

25.6%

23.3% 22.0% 22.0% 21.8%

17.9% 17.6% 18.5%

18.1%

13.9%

9.9%

10.8% 10.6% 9.3%

2010 2011 2012 2013 2014 2015 2016 2017 2018

NOTE: Includes individuals ages 0 to 64. AIAN refers to American Indians and Alaska Natives, NHOPI refers to Native Hawaiians and Other Pacific Islanders.

SOURCE: KFF analysis of the 2010-2018 American Community Survey.

Uninsured Rates for the Nonelderly Population by Race

and Ethnicity, 2010-2018

White

Black

NHOPI

Asian

Hispanic

AIAN

Disparities in Health and Health Care: Five Key Questions and Answers

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Many groups continue to face significant disparities in access to and utilization of care. 21 For

example, among nonelderly adults, Hispanics, Blacks, and American Indians and Alaska Natives are more

likely than Whites to delay or go without needed care (Figure 6). Moreover, nonelderly Black and Hispanic

adults are less likely than their White counterparts to have a usual source of care or to have had a health

or dental visit in the previous year.22 Low-income individuals also experience more barriers to care and

receive poorer quality care than high-income individuals.23 Disparities in access and use also occur across

other dimensions. For example, individuals living in rural areas face a range of barriers to accessing care.24

Additionally, some groups are at higher risk for health conditions and experience poorer health

outcomes compared to other groups. For example, Blacks and American Indians and Alaska Natives

are more likely than Whites to report a range of health conditions, including asthma and diabetes;

American Indians and Alaska Natives also have higher rates of heart disease compared to Whites.25

Health disparities are particularly striking in AIDS and HIV diagnoses and death rates (Figure 7).26 Infant

mortality rates are higher for Blacks and American Indians and Alaska Natives compared to Whites,27 and

Black males have the shortest life expectancy compared to other groups.28 Low-income people of all

races report worse health status than higher income individuals.29 Further, research suggests that some

subgroups of the LGBT community have more chronic conditions as well as higher prevalence and earlier

onset of disabilities than heterosexuals.30

Figure 6

13% 19%17%*

24%*21%* 25%*

10%* 19%19%*

36%*

19%* 26%

Did Not See a Doctor Due to Cost Delayed Care Due to Other Reasons

White Black Hispanic Asian AIAN NHOPI

* Indicates statistically significant difference from the White population at the p<0.05 level.

NOTE: AIAN refers to American Indians and Alaska Natives. NHOPI refers to Native Hawaiians and Other Pacific Islanders. Persons of Hispanic origin may be of any

race, but are categorized as Hispanic for this analysis; other groups are non-Hispanic. Includes nonelderly individuals 18-64 years of age.

SOURCE: KFF analysis of 2018 Behavioral Risk Factor Surveillance System.

Share of Nonelderly Adults Who Did Not Receive Care or

Delayed Care in the Past Year by Race/Ethnicity, 2018

Disparities in Health and Health Care: Five Key Questions and Answers

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3. What are key initiatives to eliminate disparities? Major recognition of health and health care disparities began nearly two decades ago. Two

Surgeon General’s reports in the early 2000s showed disparities in tobacco use and access to mental

health services by race and ethnicity.31,32 The first major legislation focused on reduction of disparities,

the Minority Health and Health Disparities Research and Education Act of 2000,33 created the National

Center for Minority Health and Health Disparities, and authorized the Agency for Healthcare Research

and Quality to regularly measure progress on reduction of disparities. Soon after, the Institute of Medicine

released two seminal reports showing racial and ethnic disparities in access to and quality of care.34,35

The ACA included provisions that advanced efforts to reduce disparities.36 The ACA’s broad

coverage expansions and increased funding for community health centers improved access to coverage

and care for many groups facing disparities. Other ACA provisions explicitly focused on reducing

disparities, such as creating Offices of Minority Health within HHS agencies to coordinate disparity

reduction efforts. The ACA also promoted workforce diversity and cultural competence, increasing

funding for health care professional and cultural competence training and education materials, and

strengthened data collection and research efforts. Moreover, the ACA included prevention and public

health initiatives and created the Prevention and Public Health Fund. It also permanently reauthorized the

Indian Health Care Improvement Reauthorization Extension Act of 2009.

As the federal level, the Department of Health and Human Services (HHS) has engaged in a range

of initiatives focused on addressing disparities. In 2011, HHS developed an action plan for eliminating

racial and ethnic health disparities, which built on the Healthy People 2020 goal to achieve health equity

Figure 7

5.6 2.3 3.0

47.5

23.8 21.120.9

8.4 5.85.4 2.1 0.5 9.6

3.2 2.0

14.4 4.2 1.7

HIV Diagnosis Rate AIDS Diagnosis Rate Death Rate for Individuals with HIV Diagnosis

White Black Hispanic Asian AIAN NHOPI

NOTE: Data based on surveillance data reported by states to the CDC. AIAN refers to American Indians and Alaska Natives. NHOPI refers to Native Hawaiians and Other

Pacific Islanders. Persons categorized by race were not Hispanic or Latino. Individuals in each race category may, however, include persons whose ethnicity was not

reported. Includes individuals age 13 and older. Data for HIV and AIDS diagnoses are as of 2018 and death rate data are as of 2017. Death rates for individuals with HIV

are deaths due to any cause, not only from HIV-related illness.

SOURCE: Centers for Disease Control and Prevention, National Center for HIV/AIDS, Viral Hepatitis, STD, and TB Prevention (NCHHSTP) Atlas, 2018.

HIV or AIDS Diagnosis and Death Rate per 100,000

Among Teens and Adults by Race/Ethnicity

Disparities in Health and Health Care: Five Key Questions and Answers

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and eliminate disparities.37,38,39 Since the release of the report, HHS has undertaken various efforts to

implement the plan including coordinating programmatic and policy efforts to advance health equity,

expanding access and quality of coverage and care, and strengthening the health care infrastructure and

workforce.40 In 2013, HHS updated the national standards for Culturally and Linguistically Appropriate

Services (CLAS), which seek to ensure that people receive care in a culturally and linguistically

appropriate manner.41 In 2013, the Centers for Medicare and Medicaid Services (CMS) released an

equity plan for improving quality in Medicare, and, in 2018, it released a new rural health strategy.42 Other

CMS equity initiatives include the “From Coverage to Care” initiative focused on connecting individuals to

primary and preventive services and a minority research grant program focused on designing and testing

interventions that may reduce disparities in readmissions and/or patient experience.43

States, local communities, private organizations, and providers also are engaged in efforts to

reduce health disparities, which increasingly encompass a focus on social factors influencing

health.44 State actions to reduce disparities vary considerably. A federal review found that 23 states or

territories had a strategic plan addressing minority health or health equity and that one of the most

common goals and activities of states is measure development and data collection/analysis.45 Other

activities identified included Medicaid expansion, immunization programs, and chronic disease

management efforts.46 The review further found that many states’ disparity reduction efforts focus on

particular populations, such as children, refugees, and/or individuals experiencing homelessness.47

Private funders, local communities, managed care plans, and providers also are engaged in disparities

reduction efforts.48

4. What are current challenges to addressing disparities? As noted, there were large coverage gains following the ACA, but coverage gains stalled and

began reversing in recent years. Recent policy changes and current priorities may lead to continued

declines moving forward. For example, the federal government has decreased funds for outreach and

enrollment assistance, Congress negated the ACA individual requirement to have coverage, CMS has

encouraged and approved waivers from states to add new eligibility restrictions for Medicaid coverage,

and the Department of Homeland Security made immigration policy changes that have increased fears

among immigrant families about participating in Medicaid and CHIP. Further, the Trump administration is

pursuing additional changes, such as supporting litigation to overturn the ACA, releasing guidance

allowing states to cap federal funding for Medicaid, and adding eligibility verification requirements to

Medicaid that could further curtail coverage and lead to increases in the uninsured rate.

Beyond coverage, there are an array of other challenges to addressing disparities, including

limited capacity to address social determinants of health, declines in funding for prevention and

public health and health care workforce initiatives, and ongoing gaps in data. As noted, a range of

activities are underway to address disparities, and many of these initiatives encompass a focus on social

determinants of health. Within the health care system, these efforts often are occurring through payment

and delivery system models that focus on providing whole person care and paying for value or outcomes

instead of services.49 However, the administration has begun phasing out and changing the direction of

Disparities in Health and Health Care: Five Key Questions and Answers

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some health care payment and delivery system reforms, which may reduce resources to address social

determinants of health.50 Moreover, addressing social determinants of health will require tackling issues

that are beyond the health care system’s capacity to address, including large deficiencies in resources to

meet social needs, such as affordable housing, and structural and institutional biases and racism.

Maintaining support for public health and prevention and expanding and diversifying the health care

workforce to increase access to culturally and linguistically appropriate care also underpin efforts to

address disparities. However, funding for prevention and public health has been reduced through cuts to

the Prevention and Public Health Fund and the President’s Fiscal Year 2021 budget includes further cuts

in this area .51,52 Further, although the ACA included provisions to enhance capacity of the health care

workforce, many of these provisions were time-limited and have not received continued funding.5354

The outcome of the 2020 national elections will have important implications for disparities moving

forward. Democratic candidates have proposed or endorsed plans, including a Medicare-for-All option

and a public option, that are designed to further expand coverage to individuals and fill in some of the

remaining gaps in coverage. Several candidates have also put forth proposals to specifically target

racial/ethnic and urban/rural health disparities, especially in maternal health. In contrast, the Trump

Administration has pursued policies focused on restricting eligibility for Medicaid, capping funding for the

program, and decreased resources for outreach and enrollment assistance. In addition, litigation

challenging the ACA with support from the Trump administration is ongoing. Moving forward, whether

policies continue to focus on expanding coverage or lead to roll-backs in available coverage options,

including restrictions to Medicaid and/or elimination of the ACA, will have major implications for

disparities.

Disparities in Health and Health Care: Five Key Questions and Answers

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Endnotes

1 Definitions of health disparity differ. For example, the Department of Health and Human Services describes health disparities as “differences in health outcomes that are closely linked with social, economic, and environmental disadvantage” while the National Institutes of Health defines a health disparity as a “difference in the incidence, prevalence, mortality, and burden of disease and other adverse health conditions that exist among specific population groups in the United States.” United States Department of Health and Human Services, HHS Action Plan to Reduce Racial and Ethnic Health Disparities, (Washington, DC: Department of Health and Human Services, April 2011), http://minorityhealth.hhs.gov/npa/files/plans/hhs/hhs_plan_complete.pdf. “NIH Announces Institute on Minority Health and Health Disparities,” National Institutes of Health, published September 2010, https://www.nih.gov/news-events/news-releases/nih-announces-institute-minority-health-health- disparities.

2 However, they may have nuanced distinctions. For example, a health disparity, which typically refers to differences caused by social, environmental attributes, is sometimes distinguished from a health inequality, used more often in scientific literature to describe differences associated with specific attributes such as income or race. A health inequity implies that a difference is unfair or unethical. Centers for Disease Control and Prevention, “CDC Health Disparities and Inequalities Report – United States 2011,” Morbidity and Mortality Weekly Report 60 (Jan 2011):55-114. Olivia Carter-Pokras and Claudia Baquet. "What is a Health Disparity?" Public Health Reports 117 (Sep-Oct 2002): 426-434.

3 “NCHHSTP Social Determinants of Health: Frequently Asked Questions,” Centers for Disease Control and Prevention, accessed December 2019, https://www.cdc.gov/nchhstp/socialdeterminants/faq.html.

4 Samantha Artiga and Elizabeth Hinton, Beyond Health Care: The Role of Social Determinants in Promoting Health and Health Equity, (Washington, DC: KFF, May 2018), https://www.kff.org/disparities- policy/issue-brief/beyond-health-care-the-role-of-social-determinants-in-promoting-health-and-health- equity/.

5 Priority Populations. Content last reviewed March 2019. Agency for Healthcare Research and Quality, Rockville, MD, https://www.ahrq.gov/topics/priority-populations/index.html.

6 “Chapter Eight: Focusing on Vulnerable Populations,” Agency for Healthcare Research and Quality, published March 1998, http://archive.ahrq.gov/hcqual/meetings/mar12/chap08.html.

7 Agency for Healthcare Research and Quality, Agency for Healthcare Research and Quality: Division of Priority Populations, (Rockville, MD: Agency for Healthcare Research and Quality, April 2016), http://www.ahrq.gov/sites/default/files/wysiwyg/research/findings/factsheets/priority- populations/prioritypopulations_factsheet.pdf.

8 Health Coverage of Immigrants, (Washington, DC: KFF, February 2019), https://www.kff.org/disparities- policy/fact-sheet/health-coverage-of-immigrants/.

9 Samantha Artiga, Katherine Young, Elizabeth Cornachione, and Rachel Garfield, The Role of Language in Health Care Access and Utilization for Insured Hispanic Adults, (Washington, DC: KFF, November 2015), https://www.kff.org/disparities-policy/issue-brief/the-role-of-language-in-health-care-access-and- utilization-for-insured-hispanic-adults/.

10 Ibid.

11 National Academies of Sciences, Engineering, and Medicine; Health and Medicine Division; Board on Population Health and Public Health Practice; Committee on Community-Based Solutions to Promote Health Equity in the United States; Baciu A, Negussie Y, Geller A, et al., editors. Communities in Action: Pathways to Health Equity. Washington (DC): National Academies Press (US); 2017 Jan 11. 2, The State of Health Disparities in the United States. Available from: https://www.ncbi.nlm.nih.gov/books/NBK425844/.

Disparities in Health and Health Care: Five Key Questions and Answers

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12 Ani Turner, The Business Case for Racial Equity, A Strategy for Growth, (W.K. Kellogg Foundation and Altarum, April 2018), https://altarum.org/publications/the-business-case-for-racial-equity-a-strategy-for- growth.

13 Jessica Semega et al., Income and Poverty in the United States: 2018 Current Population Reports, (Washington, DC: US Census Bureau, September 2019), https://www.census.gov/content/dam/Census/library/publications/2019/demo/p60-266.pdf.

14 Institute of Medicine (US). How Far Have We Come in Reducing Health Disparities? Progress Since 2000: Workshop Summary. Washington (DC): National Academies Press (US); 2012. 2, What Progress in Reducing Health Disparities Has Been Made?: A Historical Perspective. Available from: https://www.ncbi.nlm.nih.gov/books/NBK114236/.

15 2018 National Healthcare Quality and Disparities Report. Rockville, MD: Agency for Healthcare Research and Quality; September 2019. AHRQ Pub. No. 19-0070-EF. https://www.ahrq.gov/sites/default/files/wysiwyg/research/findings/nhqrdr/2018qdr-final.pdf.

16 Institute of Medicine (US). How Far Have We Come in Reducing Health Disparities? Progress Since 2000: Workshop Summary. Washington (DC): National Academies Press (US); 2012. 2, What Progress in Reducing Health Disparities Has Been Made?: A Historical Perspective. Available from: https://www.ncbi.nlm.nih.gov/books/NBK114236/.

17 KFF analysis of 2018 American Community Survey.

18 KFF analysis of 2018 American Community Survey.

19 KFF analysis of 2018 American Community Survey.

20 Jennifer Tolbert, Kendal Orgera, Natalie Singer, and Anthony Damico, Key Facts about the Uninsured Population, (Washington, DC: KFF, December 2019), https://www.kff.org/uninsured/issue-brief/key-facts- about-the-uninsured-population/.

21 Samantha Artiga and Kendal Orgera, Key Facts on Health and Health Care by Race and Ethnicity, (Washington, DC: KFF, November 2019), https://www.kff.org/disparities-policy/report/key-facts-on-health- and-health-care-by-race-and-ethnicity/.

22 Ibid.

23 National Healthcare Quality and Disparities Report. Rockville, MD: Agency for Healthcare Research and Quality; September 2019. AHRQ Publication No. 19-0070-EF. https://www.ahrq.gov/research/findings/nhqrdr/nhqdr18/index.html.

24 Julia Foutz, Samantha Artiga, and Rachel Garfield, The Role of Medicaid in Rural America, (Washington, DC: KFF, April 2017), https://www.kff.org/medicaid/issue-brief/the-role-of-medicaid-in-rural- america/.

25 Samantha Artiga and Kendal Orgera, Key Facts on Health and Health Care by Race and Ethnicity, (Washington, DC: KFF, November 2019), https://www.kff.org/disparities-policy/report/key-facts-on-health- and-health-care-by-race-and-ethnicity/.

26 Centers for Disease Control and Prevention. NCHHSTP AtlasPlus. 2018. https://www.cdc.gov/nchhstp/atlas/index.htm.

27 United States Department of Health and Human Services (US DHHS), Centers of Disease Control and Prevention (CDC), National Center for Health Statistics (NCHS), Division of Vital Statistics (DVS). Linked Birth / Infant Death Records 2007-2015, as compiled from data provided by the 57 vital statistics jurisdictions through the Vital Statistics Cooperative Program, on CDC WONDER On-line Database. Accessed at http://wonder.cdc.gov/lbd-current.html.

28 Elizabeth Arias et al., “United States Life Tables, 2017,” National Vital Statistics Reports 68(7) (June 2019), https://www.cdc.gov/nchs/data/nvsr/nvsr68/nvsr68_07-508.pdf.

Disparities in Health and Health Care: Five Key Questions and Answers

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29 Paula Braveman et al., “Socioeconomic Disparities in Health in the United States: What the Patterns Tell Us,” American Journal of Public Health 100(1) (April 2010):186-196, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2837459/.

30 Jennifer Kates, Usha Ranji, Adara Beamesderfer, Alina Salganicoff, and Lindsey Dawson, Health And Access to Care and Coverage for Lesbian, Gay, Bisexual, and Transgender Individuals in the U.S., (Washington, DC: KFF, May 2018), https://www.kff.org/disparities-policy/issue-brief/health-and-access-to- care-and-coverage-for-lesbian-gay-bisexual-and-transgender-individuals-in-the-u-s/.

31 U.S. Department of Health and Human Services, Reducing Tobacco Use: A Report of the Surgeon General, (Atlanta, Georgia: Centers for Disease Control and Prevention, 2000), http://www.cdc.gov/tobacco/data_statistics/sgr/2000/index.htm.

32 U.S. Department of Health and Human Services, Mental Health: Culture, Race, and Ethnicity. A Supplement to Mental Health: A Report of the Surgeon General, (Rockville, MD: National Institute of Mental Health, August 2001), http://www.ncbi.nlm.nih.gov/books/NBK44243/.

33 Pub. L. 106–525, Nov. 22, 2000, 114 Stat. 2495.

34 U.S. Department of Health and Human Services, Unequal Treatment: Confronting Racial and Ethnic Disparities in Health Care, (Washington, DC: Institute of Medicine, March 2002), http://www.nationalacademies.org/hmd/Reports/2002/Unequal-Treatment-Confronting-Racial-and-Ethnic- Disparities-in-Health-Care.aspx.

35 U.S. Department of Health and Human Services, Unequal Treatment: What Healthcare Providers Need to Know about Racial and Ethnic Disparities in Healthcare, (Washington, DC: Institute of Medicine, March 2002), http://www.nationalacademies.org/hmd/~/media/Files/Report%20Files/2003/Unequal-Treatment- Confronting-Racial-and-Ethnic-Disparities-in-Health-Care/Disparitieshcproviders8pgFINAL.pdf.

36 Dennis Andrulis et al., Patient Protection and Affordable Care Act of 2010: Advancing Health Equity for Racially and Ethnically Diverse Populations, (Washington, DC: Joint Center for Political and Economic Studies, July 2010), https://nashp.org/wp- content/uploads/sites/default/files/files/webinars/joint.center.ppaca_.health.equity.report.pdf for a comprehensive and detailed overview of these provisions.

37 “About Healthy People”, Office of Disease Prevention and Health Promotion, accessed January 21, 2020, https://www.healthypeople.gov/2020/About-Healthy-People.

38 U.S. Department of Health and Human Services, HHS Action Plan to Reduce Racial and Ethnic Health Disparities, (Washington, DC, September 2011) https://www.minorityhealth.hhs.gov/npa/templates/content.aspx?lvl=1&lvlid=33&ID=285.

39 U.S. Department of Health and Human Services, Putting America’s Health First, FY2021 Budget in Brief, (Washington, DC, February 2020), https://www.hhs.gov/sites/default/files/fy-2021-budget-in- brief.pdf.

40 U.S. Department of Health and Human Services, HHS Action Plan to Reduce Racial and Ethnic Disparities: Implementation Progress Report 2011-2014, (Washington, DC: U.S. Department of Health and Human Services, November 2015), https://minorityhealth.hhs.gov/assets/pdf/FINAL_HHS_Action_Plan_Progress_Report_11_2_2015.pdf.

41 “National CLAS Standards”, U.S. Department of Health & Human Services, accessed February 12, 2020, https://thinkculturalhealth.hhs.gov/clas.

42 “Rural Health”, Centers for Medicare & Medicaid Services, accessed February 12, 2020, https://www.cms.gov/About-CMS/Agency-Information/OMH/equity-initiatives/rural-health/index.

43 “CMS Office of Minority Health”, Centers for Medicare & Medicaid Services, accessed February 12, 2020, https://www.cms.gov/About-CMS/Agency-Information/OMH.

44 Kathleen Gifford, Eileen Ellis, Aimee Lashbrook, Mike Nardone, Elizabeth Hinton, Robin Rudowitz, Maria Diaz, and Marina Tian, A View from the States: Key Medicaid Policy Changes: Results from a 50- State Medicaid Budget Survey for State Fiscal Years 2019 and 2020, (Washington, DC: KFF, October

Disparities in Health and Health Care: Five Key Questions and Answers

13

2019), https://www.kff.org/medicaid/report/a-view-from-the-states-key-medicaid-policy-changes-results- from-a-50-state-medicaid-budget-survey-for-state-fiscal-years-2019-and-2020/.

45 Office of Minority Health, State and Territorial Efforts to Reduce Health Disparities, (Washington, DC: U.S. Department of Health and Human Services, July 29, 2018), https://minorityhealth.hhs.gov/assets/PDF/OMH-Health-Disparities-Report-State-and-Territorial-Efforts- October-2018.pdf.

46 Ibid.

47 Ibid.

48 See for example, the Cultural-Quality-Collaborative https://www.jhsph.edu/faculty/research/map/US/1470/8309, which is a network of leading healthcare organizations that is working to share ideas, experiences, and solutions to real world problems that arise as a result of cross-cultural interactions that hinder the elimination of disparities in healthcare settings.; P. Braveman, L. Gottlieb, D. Francis, E. Arkin, and J. Acker, What Can the Health Care Sector Do to Advance Health Equity?, (Princeton, NJ: Robert Wood Johnson Foundation, November 12, 2019) https://www.rwjf.org/en/library/research/2019/11/what-can-the-health-care-sector-do-to-advance-health- equity.html; Centers for Disease Control and Prevention, “Strategies for Reducing Health Disparities – Selected CDC-Sponsored Interventions, United States, 2016” Morbidity and Mortality Weekly Report 65(1) (February 12, 2016), https://www.cdc.gov/mmwr/volumes/65/su/pdfs/su6501.pdf.

49 Tricia Brooks, Lauren Roygardner, and Samantha Artiga, Medicaid and CHIP Eligibility, Enrollment, and Cost Sharing Policies as of January 2019: Findings from a 50-State Survey, (Washington, DC: KFF, March 2019), https://www.kff.org/medicaid/report/medicaid-and-chip-eligibility-enrollment-and-cost- sharing-policies-as-of-january-2019-findings-from-a-50-state-survey/.

50 Samantha Artiga and Elizabeth Hinton, Beyond Health Care: The Role of Social Determinants in Promoting Health and Health Equity, (Washington, DC: KFF, May 2018), https://www.kff.org/disparities- policy/issue-brief/beyond-health-care-the-role-of-social-determinants-in-promoting-health-and-health- equity/.

51 Matt McKillop and Vinu Ilakkuvan, The Impact of Chronic Underfunding on America’s Public Health System: Trends, Risks, and Recommendations, 2019, (Washington, DC: Trust for America’s Health, April 2019), https://www.tfah.org/wp-content/uploads/2019/04/TFAH-2019-PublicHealthFunding-06.pdf.

52 Prevention and Public Health Fund, (Washington, DC: American Public Health Association), https://www.apha.org/- /media/files/pdf/factsheets/200129_pphf_factsheet.ashx?la=en&hash=FF100DA73DBD3AF6327ABF88C 3DD42B1959FE445.

53 Taryn Morrissey, The Affordable Care Act’s Public Health Workforce Provisions: Opportunities and Challenges, (Washington, DC: American Public Health Association, June 2011), https://www.apha.org/~/media/files/pdf/topics/aca/apha_workforce.ashx.

54 Samantha Artiga and Kendal Orgera, Key Facts on Health and Health Care by Race and Ethnicity, (Washington, DC: KFF, November 2019), https://www.kff.org/disparities-policy/report/key-facts-on-health- and-health-care-by-race-and-ethnicity/.