Barriers affecting adult women living with Dementia.

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PersonalInfluenceuponresearchOctober20192.pptx

Research from a personal perspective

Aims

Consideration of ways in which research can be influenced by personal experiences

Explore that emancipation and empowerment this makes possible

Examine ways in which sharing can influence research

Review the areas of proposition and reflexivity

Motivation to undertake research

Personal experiences throughout life are formative in terms of who we are

Most researchers begins with an area of interest generated from personal and professional interest

Closeness to a community or group / experiencing an issue will be part of the research process

It is important to be aware of personal and professional interest, to consider the effect of connection / understanding and the potential for bias

Insider perspective

Part of using personal experience related to be an insider

The boundaries between insider and outsider research may not necessarily clear-cut

Some features of a researcher’s identity are innate and unchanging, whilst other features are innate / evolving

These features influence the insider-outsider continuum

Time, place, power relationships and personalities between the researcher and researched, and the topic under examination may further influence the insider-outsider status (Mercer, 2007).

Being a part of a group of a community can mean language use is accessible and there is clear relatability

This can give a confidence to the participant which is seen to be emancipatory

Research can be a tool for empowerment ‘Giving a voice’

‘…making it possible for people to exercise power and have more control over their lives. That means having greater voice in institutions, agencies and situations which affect them’ (Croft and Beresford, 1993)

Emancipatory Research

Empowerment through participation

Participants can learn through research and can also feel they can make a different

Organisations such as Mind, Age UK, Scope raise awareness through research, influencing policy

Part of Evidence Based Practice:

‘Patient Values’

Research in health and social care to be based upon ‘inclusion’

Community, young people and Early years use accessible approaches so they are able to include a wide range of participants

Partnership approach adds ‘genuineness’ and ‘authenticity’

To engage those who will use the service gives an expert view

Disclosure and sharing experiences

Sharing power in the research setting can be critical to success

It is part of theoretical approaches, such as, Feminist research which is built upon the idea of facilitation of the ‘voice’ of participants to be heard (Letherby, 2012)

Researchers do not want to be part of the oppression and seek to make participants feel comfortable and valued

Seeing the ‘whole person’ not just as ‘data’

Sharing experiences / disclosure by researchers are seen to be important to create more equal and open dialogue

E.G. Oakley (1975) disclosed her own maternity experience

when interviewing women

Positionality

Positionality is awareness of personal experiences upon the researcher

Might also be referred to as stance / where you stand in relation to others about you

Positionality is influenced the political and socio-economic factors

To understand the researcher must consider their own origins and self

Research identity affects interaction with

participants and so data collection

Researcher identity

Researcher identity is important in terms of understanding your interest

Understanding how you relate to others

Factors which will influence you will include personal and professional

Features of race, culture, beliefs and education will influence identity and as such perception and ways of viewing others

There will be emotion connected to identity and researchers should be aware of how they bring this into the scene

Reflexivity

Reflexivity relates to re-examining the research process by reflecting back on activity and considering different approaches

This includes considering bias and questioning your own practices

Feminist discourse is based upon flexibility and ‘reflexivity’, whereby the direction of research is not predetermined, but created through the interaction with participants

Feminist informed approaches favour qualitative methods that can move with the participants, so facilitating reflexivity and potential empowerment

(Letherby, 2003; Ramazanoglu 2002).

Potential limitations

There are some issues with researching from a personal perspective on of which relates to thinking you already know the answer to the questions (pre-conceptions)

It is possible that greater emotion and subjectivity occurs

There are possibilities that the re-distribution of power is not real and that as a researcher you are different from those you seek to understand

Group discussion

Consider examples of understanding you have based upon personal experiences

Look at ways in which being part of a community / group will help with:

-access to participants

-understanding of terms and practices

What are possible pros and cons of being personally involved in research?