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NorlanderChapter13EthicalIssues.pptx

To comfort always

A Nurse’s Guide to End of Life Care

Chapter 13: Ethical Issues

Patients and families are faced with difficult choices

Decisions become more difficult when the patient cannot speak for themselves and families are conflicted

Chapter 13: Ethical Issues

Healthcare ethics

Called bioethics or medical ethics

Study of moral obligations of healthcare providers and society in preventing and treating disease and injury and in caring for people with illness and injury

Chapter 13: Ethical Issues

The most common healthcare ethics framework is based on four principles

Beneficence

Non-maleficence

Autonomy

Justice

Chapter 13: Ethical Issues

Beneficence

Obligation to act for another’s benefit

Looking at the benefits and burdens of a particular action or treatment

Non-maleficence

Obligation to “do no harm”

Looking at the burden a treatment or course of action might cause

Is the treatment going to prolong the patient’s dying without increasing quality or comfort

Chapter 13: Ethical Issues

Autonomy

Person’s right to choose independently

The right to choose also means the right to refuse treatment

Justice

Fair and equitable treatment

Broader meaning in looking at the best use of limited resources

Chapter 13: Ethical Issues

You face ethical dilemmas when you encounter conflict or controversy over a treatment or course of action

Conflicts occur when a patient lacks the capacity to make decisions for themselves and does not have an advance directive or has not communicated their wishes to family members or care providers prior to losing capacity

Chapter 13: Ethical Issues

Decision-making capacity

The ability of a patient to understand a proposed course of treatment, including the benefits and burdens, and to communicate treatment preferences or wishes to others

Questions to ask

Can you tell me why your doctor is recommending this treatment?

Can you tell me what the recommended treatment is?

Can you tell me about the benefits and risks of this treatment?

Chapter 13: Ethical Issues

Many of the common dilemmas in end-of-life care for patients and families involve either starting or discontinuing a treatment

Resuscitation

Should CPR be attempted if a patient’s heart stops?

Artificial nutrition and hydration

Should IV hydration or tube feedings be initiated?

Chapter 13: Ethical Issues

Ventilator support

Should a patient be placed on a ventilator?

If on one, should it be discontinued?

Initiation of treatment such as surgery or chemotherapy that might be considered futile or of no benefit to the patient

Chapter 13: Ethical Issues

You also see dilemmas arise over use of medications (opioids or sedatives) to control pain and other symptoms

If you use an ethical framework to address these issues, you need to meet several conditions

Medications are not given to cause death

Must be to relieve pain – intention must be to do good

Good effect must outweigh the bad effect – relief of suffering is more important that a shortened life

Chapter 13: Ethical Issues

Physician-assisted suicide

Physician prescribes lethal dosages of medication that the patient can take

Available only to terminal ill patients who are considered competent to make this choice

Have been evaluated and determined not to have depression

Legal in four states

Oregon

Washington

Montana

Vermont

Chapter 13: Ethical Issues

Euthanasia

Killing of a patient with “merciful intent”

Not legal

Condemned by most ethicists

The Hospice and Palliative Nurse’s Association (HPNA) code of ethics opposes involvement in either physician-assisted suicide or active euthanasia

Chapter 13: Ethical Issues

As a skilled clinician, you have several roles

Have a thorough understanding of the patient’s illness including

Treatment options

Implications of treatment

Usual progression of the course of illness

Chapter 13: Ethical Issues

Questions you should ask when gathering relevant information

Does the patient have decision-making capacity? If not, who is the surrogate decision maker?

Has the patient expressed their wishes prior to losing capacity verbally or in a written advance care directive?

What choices need to be addressed?

Who are the relevant family members or stakeholders in this decision?

Chapter 13: Ethical Issues

Advocate: Making sure wishes are honored

Guiding per values

Guiding patients and families to make decisions that are consistent with their values and beliefs

You can provide the guidance a patient or family might need by reframing the discussion via the concepts of benefit versus burden, harm versus good, respect for autonomy, and consideration of justice

Chapter 13: Ethical Issues

What about a nurse’s personal ethics, beliefs and values?

If your values conflict with the patient’s wishes, step back and separate your own personal values from the situation

Because decisions at the end of life entail moral, ethical and even spiritual values, you might find your own values in conflict with the wishes of the patient, family or the other healthcare providers

You can be in the position of discontinuing treatments, administering medications, or initiating treatments you believe are wrong and harmful

Chapter 13: Ethical Issues

Try to understand the meaning of the illness to the patient and family

Get help from interdisciplinary team to work through issues

Consult your ethics committee

Usually interdisciplinary

Use an ethical framework to discuss and analyze the dilemma

Chapter 13: Ethical Issues

Within many non-European American cultures, the community and family members make decisions rather than the individuals

In some cultures, full disclosure to the patient is considered disrespectful

Chapter 13: Ethical Issues

Ethics in end-of-life care encompass the moral obligation to care for a patient in a way that prevents harm and benefits the patient

As an advocate, ensure that the patient’s wishes are heard, understood, and honored

As a guide, your communication skills are essential in walking patients and families through these difficult decisions