Introduction to special education 1
Transition is an ongoing process of planning, implementing, evaluating, and balancing the details of parents’ lives with the details of their children’s lives to achieve an integrated quality of life for the entire family. Parents are the consistent thread in their children’s lives, and the responsibility for obtain- ing and following through with adult services for their children typically falls on them. Although families piece together support networks, invest per- sonal resources, and juggle multiple roles and responsibilities to help their children achieve fulfilling futures, teachers must ensure that they equip parents with needed information and resources. Current service-delivery models place families in a central role in determining services, and educators now realize that they must furnish sup- ports for parents so that they can par- ticipate effectively in this complex tran- sition process (Caldwell, 2006; Kreider, Caspe, Kennedy, & Weiss, 2007).
Parental and family involvement in the transition of youth with disabilities from school to the adult world is vital. The No Child Left Behind Act (NCLB) of 2001 emphasized the important role
that families play in their children’s education, and the Individuals With Disabilities Education Improvement Act (IDEA) of 2004 mandated parental involvement in educational planning. Research indicates that student and family participation remains one of the five national challenges facing second- ary education and transition services (Johnson, Stodden, Emanuel, Lueck- ing, & Mack, 2002; see box “Challenges
Facing Secondary Education and Transition Services”).
To provide best-practice strategies for involving parents in the successful transition of youth from school to adulthood, this article reviews the tran- sition literature and then presents find- ings from our interviews with four mothers of children with disabilities.
We also furnish a list of transition- related Internet resources for youth, families, and professionals.
Adolescent Development and Family Stress
People typically describe adolescence as a time of turmoil, distress, and con- flict between the adolescent and the family. Families of youth with dis- abilities face additional sources of
stress concerning their children’s social–sexual adjustment, vocational options and career choices, guardian- ship and advocacy issues, financial security, and needs for recreation and leisure. In addition to their traditional roles and responsibilities, parents often spend their days making telephone calls or writing e-mails to teachers,
28 COUNCIL FOR EXCEPTIONAL CHILDREN
T E A C H IN G E xc ep ti on a l C h il d re n , V o l.
41 , N
o . 6,
p p . 28
-3 6.
C o p yr
ig h t 20
09 C E C .
Mothers’ Experiences of Transition Planning for Their Children With Disabilities Elizabeth Madson Ankeny � Julia Wilkins � Jayne Spain
Although families piece together support networks, invest personal resources, and juggle multiple roles and responsibilities to help their children achieve fulfilling futures, teachers must ensure that
they equip parents with needed information and resources.
Transition
setting up and coordinating appoint-
ments with agencies, completing appli-
cations and evaluations, participating
in team meetings, and providing docu-
mentation to insurance companies to
obtain needed services that schools do
not provide (Kochhar-Bryant & Greene,
2009; see box, “Adolescent Develop-
ment and Family Stress: Suggestions
for Case Managers and Teachers”).
Team Collaboration and Roles of Families
During transition, families rely on edu- cators and other professionals to fur- nish information about future options for their children (Whitney-Thomas & Hanley-Maxwell, 1996). In fact, find- ings from the National Longitudinal Transition Study-2 (NLTS-2; Wagner, Newman, Cameto, Levine, & Marder,
TEACHING EXCEPTIONAL CHILDREN � JULY/AUG 2009 29
Challenges Facing Secondary Education and Transition Services
• Ensuring that students with disabilities have access to the full range of general education’s curricular options and learning experiences.
• Making high school graduation decisions on the basis of mean- ingful indicators of students’ learning and skills and clarifying the implications of different diploma options for students with disabilities.
• Ensuring students access to and full participation in post- secondary education, employ- ment, and independent living opportunities.
• Supporting student and family participation.
• Improving collaboration and system linkages at all levels.
Adapted from Johnson, Stodden, Emanuel, Luecking, & Mack, 2002.
Adolescent Development and Family Stress: Suggestions for Case Managers and Teachers
• Involve parents in planning for their child’s future early in the transition process.
• Use a phased approach to adult service delivery.
• Take a leadership role in creating interagency linkages.
• Draw on the knowledge of different team members.
• Provide families with the names of individuals responsible for implementing and following up on various aspects of the transition plan.
• Help family members acknowledge their changing roles and responsibilities.
• Provide ongoing communication and collaboration with families.
• Communicate with parents using their preferred mode (e-mail, letter, phone, face-to-face).
• Focus on the positive characteristics and strengths of the child.
2007) indicate that 81% of parents of youth with disabilities learned about services from their children’s schools. The wide array of services available for students with disabilities can involve multiple systems, including education, health, recreation, and vocational reha- bilitation, all of which may have dis- tinct eligibility criteria and complex qualification rules.
Although professionals recognize the importance of collaboration in managing the complexities of transi- tion, research suggests the existence of a significant gap between its assigned importance and actual practice (Blue- Banning, Summers, Frankland, Nelson, & Beegle, 2004). Moreover, school pro- fessionals may actually engage in actions that disempower families and overtly endorse their expert power (Turnbull & Turnbull, 2001).
To develop collaborative partner- ships, teachers must understand cul- turally based variations in attitudes, beliefs, and meanings of transition. Rueda, Monzo, Shapiro, Gomez, and Blacher (2005) identified several areas
in which the orientation of Latina mothers and the service delivery sys- tem were strikingly at odds. In particu- lar, the system viewed youth as auton- omous individuals, although mothers viewed their children as embedded in the family. Also, the mothers believed that educators devalued and ignored their personal knowledge of their chil- dren, whereas educators promoted the belief that professional expertise was correct. For the mothers in this study, the absence of shared perspective led to confusion, misunderstanding, and isolation.
Another study of culturally and lin- guistically diverse (CLD) families indi- cated that parents placed much more emphasis on transition-related tasks than school professionals gave them credit for. This situation occurred because families chose to prepare their children for adulthood through family and community experiences rather than through school-based approaches (Geenan, Powers, & Lopez-Vasquez, 2001). Similarly, LandAdam, Zhang, and Montoya (2007) indicated that although CLD parents often did not understand the jargon of special edu- cation (for example, more than one third of parents in that study were not familiar with the phrase transition planning), they did possess a great deal of knowledge about their children that was useful for the transition plan- ning process.
According to the NLTS-2, transition- ing youth with disabilities most often rely on their family members and friends for support when making important decisions or facing problems (Wagner et al., 2007). Because parents are likely to know their child best, professionals should respect parents’ knowledge and use parents as resources (Everson & Zhang, 2000). They should also make sure that family members understand the formalities of the transition process. Research indi- cates that families experience higher levels of satisfaction with services if they have even limited involvement in aspects of service delivery (Neely- Barnes, Graff, Marcenko, & Weber, 2008; see box, “Team Collaboration
and Roles of Families: Suggestions for Case Managers and Teachers”).
Employment for Transitioning Youth
A crucial component of transition plan- ning for students with disabilities is early exposure to employment activi- ties. Numerous studies have indicated a strong positive association between paid work experience during high school and postschool job success for youth with disabilities (Benz, Yovanoff, & Doren, 1997; Luecking & Fabian, 2000; Wittenburg & Maag, 2002). Everyone must view job development as a joint responsibility that educators, vocational rehabilitation counselors, students, and families share rather than as the sole responsibility of any one person (Everson & Moon, 1987; Ferguson, Ferguson, & Jones, 1988).
Families are likely to have a strong influence on the career development process for their children (Penick & Jepsen, 1992; Whiston & Keller, 2004). Morningstar, Turnbull, and Turnbull (1996) reported that students with dis- abilities more often secured employ- ment through parent contacts than through professional agency sources. Transition teams should therefore con- sider family networks when planning for students’ future employment (see box, “Employment for Transitioning Youth: Suggestions for Case Managers and Teachers”).
Postschool Roles of Families
The process of transition begins in early childhood when families encour- age their children to develop independ- ence, decision-making skills, and social skills (Turnbull & Turnbull, 1990). During adolescence, the roles of fami- lies may include providing material and emotional support, as well as act- ing as advocates for appropriate servic- es. Families often become the backup system for limited services, with their support continuing indefinitely over their child’s lifetime (Hanley-Maxwell, Whitney-Thomas, & Pogoloff, 1995). Several studies have indicated that the family remained the only consistent source of support for individuals with disabilities after they graduated from
30 COUNCIL FOR EXCEPTIONAL CHILDREN
Team Collaboration and Roles of Families: Suggestions for Case Managers and Teachers
• Recognize and include all parents and family structures (gay/ lesbian, adoptive, foster, grand- parents, blended) as equal partners in decision making.
• Encourage the participation of siblings and extended family members.
• Include family resources and community members in planning.
• Recognize that parents know their child best.
• Respect the family’s goals for the child.
• Ask families to share areas in which they would like more support for their child.
• Be understanding of the levels of responsibility and involvement that parents are willing or able to assume.
high school (Hanley-Maxwell, Pogoloff, & Whitney-Thomas, 1998; Morningstar et al., 1996).
In reality, no one agency provides all the necessary services for an adult with a disability. The period from 1992 to 2004 saw an increase in the number of states that offered young adults with developmental disabilities the opportu- nity to choose their service providers. As this market-based system shifted key responsibilities from state educa- tion departments to families, the sys- tem became more complicated for fam- ilies. With their increased role in seek- ing out programs, families must gain the necessary skills to find appropriate programs for their children (Breihan, 2007; see box “Postschool Roles of Families: Suggestions for Case Mana- gers and Teachers”).
Interviews With Mothers
Findings from the NLTS-2 indicated that levels of parental involvement in
the individualized education program (IEP) process related to characteristics of the families themselves. Compared with families with limited parental involvement, the following situations correlated with high levels of parental involvement:
• Retaining more family resources, such as higher incomes or higher levels of parental educational attain- ment.
• Having two parents residing in the household.
• Securing external supports.
• Belonging to support groups for families of children with disabilities (Newman, 2004).
To provide the perspectives of informed parents, we interviewed four mothers who fit the aforementioned profile of highly involved parents. Myers (2000) proposes that where in- depth descriptions are essential to the goals of the study, “small qualitative studies can gain a more personal understanding of the phenomenon and the results can potentially contribute valuable knowledge to the community” (p. 9).
Method
We recruited four mothers who had conducted a panel presentation at a local professional conference about their experiences as mothers of children with disabilities (see Table 1). We con- tacted all mothers by telephone or e- mail, and they agreed to be interviewed about their transition experiences. The first two authors each interviewed two mothers in the mothers’ homes or places of work. We conducted the inter- view by using a semistructured inter- view protocol, and each interview last- ed between 1 and 1.5 hours. We audio-
taped all interviews and subsequently transcribed them verbatim.
We implemented inductive qualita- tive data-analysis procedures (Coffey & Atkinson, 1996; Marshall & Rossman, 1999; Miles & Huberman, 1994) and completed initial coding individually. First, we read each interview transcript in detail to obtain a general sense of the whole interview. We then reread each interview transcript to begin
TEACHING EXCEPTIONAL CHILDREN � JULY/AUG 2009 31
Employment for Transitioning Youth: Suggestions for Case Managers and Teachers
• Explain career options to the student and family.
• Encourage parents’ input with regard to identifying and obtaining employment.
• Inform parents about the roles of vocational rehabilitation counselors.
• Create intentional career explo- ration and career planning, and provide specific information about job options and opportuni- ties.
• Consider quality-of-life issues, such as establishing an identity, economic independence, and access to peer groups when exploring job options.
• Provide a range of services, including skills assessment, career counseling, and job seeking.
• Encourage interagency collabora- tion to develop a cohesive set of objectives across programs.
Postschool Roles of Families: Suggestions for Case Managers and Teachers
• Point families to resources that they can use for support (e.g., organizations, professionals, community members).
• Encourage parents to join advo- cacy groups and network with other families.
• Contact community resources on behalf of parents, if necessary.
• Help families make contact with student disability services at postsecondary institutions.
• Provide information on support- ed employment programs that offer integrated sets of services.
• Help parents understand the Social Security work incentive provisions and the redetermina- tion process for youth at age 18.
• Provide information for parents on how to access a variety of adult service providers (e.g., Department of Health and Human Services Administration on Developmental Disabilities, Departments of Education and Labor, Centers for Medicaid and Medicare Services, Social Security Administration).
Table 1. Interview Participants With Child Information
Mother Child Age of Child Disability
Pam Adam 18 Mild to moderate mental retardation Val Trevor 25 Mild to moderate mental retardation Joan Kate 23 Moderate mental retardation Sharon Lisa 22 Moderate to severe mental retardation
formal coding in a systematic way. We used sentences and phrases as the units of analysis (Patton, 2002) and wrote central ideas in the margins. In the next stage of analysis, we reviewed all codes and wrote comments on pos- sible relationships among them (Pat- ton). After this initial coding of all interview transcripts, we compared our codes and revised them as necessary to reach interrater agreement. Together, we then made cross-case comparisons. We compared participants’ responses to the same question and identified similarities, differences, patterns, and themes across the data. To reduce the effects of researcher bias, the third author read and commented on our interpretations after the initial attain- ment of themes (Marques & McCall, 2005). Through this process, the fol- lowing three themes emerged:
• Goals and barriers to independence in adulthood.
• Transition as an ongoing process.
• Importance of communication and support from teachers.
Goals and Barriers to Independence in Adulthood
All mothers shared similar goals for their children: They wanted them to be independent, successful, and happy. Whereas mothers reflected positively upon their children’s experiences of inclusion, mothers of daughters expressed concern about the influence of typical peers. In particular, mothers struggled to accept the desires of their teenage daughters to date and marry and grappled with internal conflicts over wanting their daughters to live like other young adults while also rec- ognizing the need to “protect” them from such lives. In another example, Val described how her son was “like any other child” and stated, “Other kids grow up, leave home, get married; well, obviously not get married [italics added], but live their own life. And that’s pretty close to what he’s doing now.” To understand their children’s independence, these mothers had to reinterpret their expectations of what it meant to be living “like any other child.” One mother referred to her
son’s living in a group home with 24- hour support as independence inas- much as it involved his moving away from home, and other families created experiences that simulated those of typical peers, such as celebrating grad- uation from transition programs and referring to such programs as “college.”
Joan discussed the role that she played in removing her daughter from an unsuccessful job experience that she described as “total chaos.” Joan not only had to advocate for her daughter in removing her from the work setting but also had to continue coordinating such services as trans- portation and home support around Kate’s new schedule. Even when Kate was working, her mother was primari- ly responsible for managing these day- to-day activities. Such examples high- lighted the ongoing support that par- ents still had to provide for their chil- dren when they were in the workplace.
Although mothers described the role that other people, such as group home staff, played in helping their children achieve independence, they clarified that “most of the important decisions still come through us.” Sharon explained, “medically, financially, we do all that stuff for her . . . people don’t see that additional stress of caring for a child that’s an adult but still has significant needs.” Pam explained that the preparation that she and her hus- band furnished for Adam in his transi- tion to adulthood involved their volun- teering together at the public library and a local animal shelter, as well as
allowing him to scan groceries and handle money when shopping. Pam commented, “We are trying to prepare him for real-world things, but it often takes so long for him to do something that I just rush in and do it myself because I’m not patient.” Both she and her husband worked in demanding full- time jobs, and the need to maintain regular communication with Adam’s teacher and adult service providers—in addition to attending meetings, explor-
ing employment and housing options, setting up a special needs trust, and wading through complicated Social Security and medical assistance appli- cations—were additional responsibili- ties that they had to juggle.
The stories that mothers shared illustrated the reality of independence for these young adults with disabilities. Parents needed to perform certain tasks on their children’s behalf, and mothers understood that they would need to provide lifelong support. Even though these young adults faced limitations in what they could achieve independent- ly, their mothers emphasized the importance of giving them opportuni- ties to explore themselves and their options. In the words of one mother: “You’ve got to make sure you don’t close the door on someone right away because they make a mistake.”
Transition as an Ongoing Process
The mothers described the transition process as a journey that began the day that their child was born. Joan reflect- ed, “I’ve been very appreciative and blessed that in our journey, we’re not alone. Not that we were planning on going on the journey, but it’s not a bad journey.” Sharon reiterated the impor- tance of the support of others on this journey: “It’s hard, so it’s nice to have people around you to support you. Not to coddle you, just to support you.”
The mothers viewed the transition process as an ongoing quest for options and opportunities for their children. They spoke of personal research as a
means to better understand their child’s particular disability, as well as a means of coping and making sense of their unplanned roles as mothers of children with disabilities. Joan offered that her method was to “read and read and study and study and study.” The moth- ers also appreciated the knowledge and information that professionals shared. Val explained, “They knew all the places and people to get into contact with, opportunities, choices we had.”
32 COUNCIL FOR EXCEPTIONAL CHILDREN
The mothers viewed the transition process as an ongoing quest for options and opportunities for their children.
Each of the mothers spoke of the importance of initiating the transition process early, as an end-in-mind process. Joan described this end-in- mind process as looking
. . . beyond school. We know that school ends, but I think as parents we tend to live in the today and the now, but transition should start our brains thinking about what life is going to be like when school ends and then to make a picture of what that’s going to look like and how we’re going to get there.
Sharon rationalized the urgency of starting the process early by contrast- ing the transition process for her chil- dren without disabilities with the tran- sition process for her daughter who had a disability. She explained, “With a child with a disability, you’re con- stantly thinking of what’s going to hap- pen to that child when you’re not around . . . you start the process earli- er because there are so many more unknowns.”
Val echoed the importance of initiat- ing the process early and recommend- ed that parents make a conscious deci- sion to acknowledge that their child will someday leave home. She stated,
I would tell them [other parents] to start preparing now. That’s one of the biggest things; parents like to put it off so they’re not facing their child leaving home, and it’s a mistake because it’s a lot harder to do later.
Pam focused on the difficult experi- ence of going through the legal aspects of adulthood. She explained
The guardianship was the hard- est. You spend all these years celebrating all his competencies in these minor areas, like count- ing money, he could find the butter in the grocery store with- out being told where it is, or something like that, and then you basically go to a judge and have him judge your child to be incompetent. And it has to be done so that he’s not able to sign legal contracts and things like that and be taken advantage of in a big world. But it is still a really tough day.
All mothers discussed the impor- tance of preparing their children with realistic skills that help make them ready for adulthood. They spoke of the need to include more opportunities for their children to develop skills in real- life environments, including learning such streetwise skills as how to behave with strangers. Joan suggested,
Just getting out into the real world, even if it’s just an hour-a- day job situation and getting a change and a little less under the wing of the intensive support that we sometimes provide stu- dents; they’re not going to get that [in the future]. It’s not like you are going to have your own little para follow you around at work.
Although some consider the transi- tion process to be completed when an individual has secured a job and a sat- isfactory housing situation, the moth- ers in this study challenged that notion. Joan considered her daughter’s present situation and the future:
I think her housing situation is a really good fit for her right now. It’s still hard for me to picture any less restrictive setting for her right now . . . . Just because it’s working right now doesn’t mean it has to stay that way.
Joan shared similar thoughts about her daughter’s employment situation:
I would like to see her moved into a different type of work rather than just cleaning . . . . It’s very easy to just sit back and relax . . . . She’s still growing and learning . . . . If you look at your own experiences or your other kids, they’re still taking in those life experiences . . . and we are never done; I know that. And I want to give her the same window of opportunity that we would give anybody.
Communication and Support From Teachers
The mothers valued consistent and respectful communication from teach- ers. Pam stated,
We e-mail the teacher at least once a week, if not five times a day, depending on what’s
going on. She knows that Adam doesn’t report accurately so if something odd happens, she will e-mail that this is what hap- pened and I have no idea what Adam will tell you, but this is what really happened.
This type of information from the teacher assisted Pam when she com- municated with Adam at home. Mothers encouraged teachers to hon- estly and bravely address the tough issues with parents. Sharon comment- ed that when teachers engaged in respectful dialogue with her, she was more prone to accept what she consid- ered to be questionable management of her daughter. She shared, “I thought how they treated her shutting down wasn’t appropriate, but I never felt like I was looked down on; they were respectful of me.”
All mothers expressed gratitude that teachers provided information about community resources and future pro- gramming opportunities. Pam stated,
It’s been hard to go through all these different steps, but the social service people and the school people have continually reinforced, “Have I done these things yet?” “Are you remember- ing that this happens when he turns this age?” Things like that. So they are constantly prompting and educating us as we go through these different phases of his life.
She also requested that teachers share the information, and share repeatedly because “people don’t retain what they don’t expect to use.” Joan expressed the disappointment that some parents experienced when the lines of communication were weak: “You hear repeatedly from parents, ‘I didn’t hear anything about that from the school.’ You just get a little sad that there’s a breakdown there someplace.” One of the mothers explained
There are flyers all the time at school when you are in first grade, things just come home all the time. In middle school and high school, those flyers stop and the kids are supposed to know what’s going on and you get no information coming home
TEACHING EXCEPTIONAL CHILDREN � JULY/AUG 2009 33
34 COUNCIL FOR EXCEPTIONAL CHILDREN
Table 2. Transition Resources
Name of Resource Description
Annie E. Casey Foundation (www.aecf.org)
This organization serves children in foster care and children who are at risk for poor educational, economic, social, and health outcomes. It provides printed resources on a wide variety of topics, including a page for Youth Transition/Youth Development.
Family Village: A Global Village of Disability-Related Resources (www.familyvillage.wisc.edu)
This site furnishes information, resources, and opportunities available on the Internet for individuals with disabilities, their families, and service providers. A wide variety of links to Web resources pertain to transition.
Healthy & Ready to Work National Center (www.hrtw.org)
This site gives connections to nationwide health and transition expertise and focuses on understanding systems, access to quality health care, and increasing the involvement of youth. It also includes resources needed to make informed choices.
National Center on Secondary Education and Transition (www.ncset.org)
This site furnishes resources, offers technical assistance, and disseminates information related to secondary education and transition for youth with disabilities. Many resources are available in English and Spanish.
National Dissemination Center for Children with Disabilities (NICHCY; www.nichcy.org)
This site provides a wealth of resources from a variety of nationally-recognized sources. It includes Web pages with links to Transitions 101, resources for parents, resources for students, resources for professionals, and transition and specific disabilities.
PACER Center (www.pacer.org) This site includes a comprehensive catalogue of publications. The mission of the PACER Center is to enhance the quality of life of children and young adults with disabilities and their families and is based on the concept of parents helping parents.
Technical Assistance on Transition and the Rehabilitation Act (TATRA) (www.pacer.org/tatra/index.asp)
The TATRA project at the PACER Center and other parent information and training projects help families learn how they can assist young people with disabilities prepare for independent adult life in the community.
Parenting Postsecondary Students with Disabilities (www.heath.gwu.edu/node/209)
This site, from the nation's clearinghouse on postsecondary education for individuals with disabilities, discusses how to become a mentor and advocate to promote the needs of young adults.
Directory of Independent Living Centers Nationwide (www.virtualcil.net/cils)
This site provides a nationwide map with links to centers for independent living that furnish several core services: advocacy, independent living skills training, information and referral, and peer counseling.
The Arc of the United States (www.thearc.org)
The Arc is the world's largest community-based organization for people with intellectual and developmental disabilities. The site includes an array of information with links to state and local chapters.
National Secondary Transition Technical Assistance Center (NTTAC; www.nsttac.org)
NTTAC provides support and information to states, local educational agencies, practitioners, researchers, parents, and students regarding effective transition education that can enhance postschool outcomes.
National Youth Leadership Network (NYLN; http://nyln.org)
NYLN furnishes a national voice for young leaders with disabilities. The Web site includes a variety of resources, including a list of young leaders who speak on a variety of topics.
about dances, football games; you get nothing. So it is lovely when the teacher e-mails us or forwards something and says, “oh did you know this is going on?” It is extra work and extra time, but we really appreciate it.
Pam emphasized the importance of getting involved in community organi- zations: “I know who to call and I know what my options are, but if I had not been in these committees or gone to the seminars, I would not have a clue.” Joan also issued a cautionary reminder; parents need guidance about how to ask the right questions. She commented,
Too often it seems like if you don’t ask the right question, you won’t get the right answer. But if you don’t know the right ques- tion, how are you going to know? I think that is the dilem- ma that parents have.
According to Lustig (2002), the degree to which family members pos- sess strategies for seeking help can affect their caregiving experience. Given this situation, it is worth noting Pam’s recommendation for parents: “Go to the school meetings and keep questioning people and stay involved. It all comes to you when you need it if you have your hand in it.”
The mothers conveyed that they felt supported by teachers who shared sim- ilar or enhanced visions of their chil- dren’s abilities and future outcomes. Sharon described her daughter’s transi- tion-process experience in this way: “[It was] more smooth than I ever expected due to the teachers and the support I felt from them.” Referring to Lisa’s case manager, she said, “She had the same vision I do that to the best of Lisa’s abilities, we are going to pursue areas that she can do . . . and allow her to be herself.” Pam shared a similar appreciation and delight for the teacher’s belief in her son’s abilities:
She is very aware of his skills and she’s watching to pick up and take the ball and go run with it with him and I think she will actually get him to do more things with him than I would think possible.
Final Thoughts
The case manager plays a crucial role in communicating with parents and in fostering collaborative transition plan- ning. Case managers should acknowl- edge the family stress that revolves around the student’s ongoing needs and should give parents connections to community supports and resources (see Table 2). To nurture parents’ involvement in the transition-planning process, case managers must maintain honest and respectful communication with parents while respecting the fami- ly’s vision for their child’s future. Furthermore, case managers must view all family members as knowledgeable and valued participants in planning. The case manager should look beyond the student’s current status and pro- vide opportunities for him or her to learn needed skills in environments that are as real-life and age-appropriate as possible, allowing each child the opportunity to grow into an independ- ent, successful, and happy adult.
References Benz, M., Yovanoff, P., & Doren, B. (1997).
School-to-work components that predict postschool success for students with and without disabilities. Exceptional Children, 63, 155–165.
Blue-Banning, M. J., Summers, J. A., Frank- land, H. C., Nelson, L. L., & Beegle, G. (2004). Dimensions of family and profes- sional partnerships: Constructive guide- lines for collaboration. Exceptional Child- ren, 70, 167–184.
Breihan, A. W. (2007). Who chooses service providers? The spread of consumer choice, 1992–2004. Intellectual and Developmental Disabilities, 45, 365–372.
Caldwell, J. (2006). Consumer-directed sup- ports: Economic, health, and social out- comes for families. Mental Retardation, 44, 405–417.
Coffey, A., & Atkinson, P. (1996). Making sense of qualitative data: Complementary research strategies. Thousand Oaks, CA: Sage.
Everson, J., & Zhang, D. (2000). Person-cen- tered planning: Characteristics, inhibitors and supports. Education and Training in Mental Retardation and Developmental Disabilities, 35, 36–43.
Everson, J. M., & Moon, M. S. (1987). Transition services for young adults with severe disabilities: Defining professional and parental roles and responsibilities. The Journal of the Association for Persons with Severe Handicaps, 12, 87–95.
Ferguson, P. M., Ferguson, D. L., & Jones, D. (1988). Generations of hope: Parental perspectives on the transition of their children with severe retardation from school to adult life. The Journal of the Association for Persons with Severe Handicaps, 13, 177–187.
Geenan, S., Powers, L. E., & Lopez-Vasquez, A. (2001). Multicultural aspects of parent involvement in transition. Exceptional Children, 67, 265–282.
Hanley-Maxwell, C., Pogoloff, S. M., & Whitney-Thomas, J. (1998). Families: The heart of transition. In F. R. Rusch and J. Chadsey-Rusch (Eds.), Beyond high school: Transition from school to work (pp. 234–264). Belmont, CA: Wadsworth.
Hanley-Maxwell, C., Whitney-Thomas, J., & Pogoloff, S. (1995). The second shock: A qualitative study of parents’ perspectives and needs during their child’s transition from school to adult life. Journal of the Association of Persons with Severe Handi- caps, 20(1), 3–15.
Individuals With Disabilities Education Improvement Act (IDEA), 20 U.S.C. § 1400 to 1482 (1974).
Johnson, D. R., Stodden, R. A., Emanuel, E. J., Luecking, R., & Mack, M. (2002). Current challenges facing secondary edu- cation and transition: What research tells us. Exceptional Children, 68, 519–531.
Kochhar-Bryant, C. A., & Greene, G. A. (2009). Pathways for successful transition for youth with disabilities: A developmen- tal process. Columbus, OH: Allyn & Bacon/Merrill.
Kreider, H., Caspe, M., Kennedy, S., & Weiss, H. (2007). Family involvement in middle and high school students’ educa- tion. Involvement makes a difference: Evidence that family involvement pro- motes school success for every child of every age. Cambridge: MA: Harvard Fam- ily Research Project. Harvard University.
LandAdam, L. J., Zhang, D. D., & Montoya, L. (2007). Culturally diverse parents’ experiences in their children’s transition: Knowledge and involvement. Career Development for Exceptional Individuals, 30, 68–79.
Luecking, R., & Fabian, E. (2000). Paid internships and employment success for youth in transition. Career Development for Exceptional Children, 23, 205–221.
Lustig, D. C. (2002). Family coping in fami- lies with a child with a disability. Education and Training in Mental Retar- dation and Developmental Disabilities, 37, 14–22.
Marques, J. F., & McCall, C. (2005). The application of interrater reliability as a solidification instrument in a phenome- nological study. The Qualitative Report, 10, 439–462.
TEACHING EXCEPTIONAL CHILDREN � JULY/AUG 2009 35
Marshall, C., & Rossman, G. B. (1999). Designing qualitative research (3rd ed.). Thousand Oaks, CA: Sage.
Miles, M. B., & Huberman, A. M. (1994). Qualitative data analysis (2nd ed.). Thousand Oaks, CA: Sage.
Morningstar, M. E., Turnbull, A. P., & Turnbull, H. R. (1996). What do students with disabilities tell us about the impor- tance of family involvement in the transi- tion from school to adult life? Exceptional Children, 62, 249–260.
Myers, M. (2000). Qualitative research and the generalizability question: Standing firm with proteus. The Qualitative Report, 4(3/4), Retrieved December 5, 2009, from http://www.nova.edu/ssss/QR/ QR4-3/myers.html
Neely-Barnes, S., Graff, C., Marcenko, M., & Weber, L. (2008). Family decision mak- ing: Benefits to persons with develop- mental disabilities and their family mem- bers. Intellectual & Developmental Dis- abilities, 46, 93–105.
Newman, L. (2004). Family involvement in the educational development of youth with disabilities. A special topic report from the National Longitudinal Transition Study-2 (NLTS-2). Menlo Park, CA: SRI International.
No Child Left Behind Act of 2001. Pub. L. No. 107-110,115 Stat. 1425 (2001).
Patton, M. (2002). Qualitative research and evaluation methods (3rd ed.). Thousand Oaks, CA: Sage.
Penick, N. I., & Jepsen, D. A. (1992). Family functioning and adolescent career devel- opment. Career Development Quarterly, 40, 208–222.
Rueda, R., Monzo, L., Shapiro, J., Gomez, J., & Blacher, J. (2005). Cultural models and practices regarding transition: A view from Latina mothers of young adults with developmental disabilities. Excep- tional Children, 71, 401–414.
Turnbull, A., & Turnbull, H. (1990). Fami- lies, professionals, and exceptionality: A special partnership (2nd ed.). New York: Merrill.
Turnbull, A., & Turnbull, R. (2001). Families, professionals, and exceptionalities: Col- laborating for empowerment (4th ed.). Upper Saddle River, NJ: Merrill.
Wagner, M., Newman, L., Cameto, R., Levine, P., & Marder, C. (2007). Perceptions and expectations of youth with disabilities. A special topic report of findings from the National Longitudinal Transition Study-2 (NLTS-2). Menlo Park, CA: SRI International.
Whiston, S. C., & Keller, B. (2004). The influence of family of origin on career development: A review and analysis. Counseling Psychologist, 32, 493–568.
Whitney-Thomas, J., & Hanley-Maxwell, C. (1996). Packing the parachute: Parents’ experiences as their children prepare to leave high school. Exceptional Children, 63, 75–87.
Wittenburg, D., & Maag, E. (2002). School to where? A literature review on econom- ic outcomes of youth with disabilities. Journal of Vocational Rehabilitation, 17, 265–280.
Elizabeth Madson Ankeny (CEC MN Feder- ation), Associate Professor of Education, Augsburg College, Minneapolis, Minnesota. Julia Wilkins (CEC MN Federation), Assis- tant Professor of Special Education, St. Cloud State University, Minnesota. Jayne Spain (CEC MN Federation), Transition Specialist, Minnesota Department of Education, Rose- ville, Minnesota.
Address correspondence to Elizabeth Madson Ankeny, Department of Education, Augsburg College, Campus Box 312, 2211 Riverside Ave., Minneapolis, MN 55454 (e-mail: [email protected]).
TEACHING Exceptional Children, Vol. 41, No. 6, pp. 28–36
Copyright 2009 CEC.
36 COUNCIL FOR EXCEPTIONAL CHILDREN