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Learning Guide 3: Social model approaches

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K219   Critical issues in health and wellbeing

Learning Guide 3: Social model approaches

Dr Anthea Wilson with Dr Sara MacKian

This publication forms part of the Open University module K219 Critical issues in health and wellbeing. Details of this and other Open University modules can be obtained from Student Recruitment, The Open University, PO Box 197, Milton Keynes MK7 6BJ, United Kingdom (tel. +44 (0)300 303 5303; email [email protected]).

Alternatively, you may visit the Open University website at www.open.ac.uk where you can learn more about the wide range of modules and packs offered at all levels by The Open University.

The Open University, Walton Hall, Milton Keynes MK7 6AA

First published 2018

Copyright © 2019 The Open University

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Edited and designed by The Open University.

 

 

 

WEB 08393 2

2.1

Contents

· Activity planner

· Introduction

· 1 Exploring the social model

· 1.1 Why do we need a social model?

· 1.2 Understanding the social model of health

· 1.3 Lay perspectives matter

· 2 Social change for health and wellbeing?

· 2.1 Movements in women’s health

· 2.2 Intersectionality and the social model

· 3 Health is political

· 3.1 Social inequalities in health and wellbeing

· 3.2 What do the statistics show?

· 3.3 Fair society, healthy lives

· 4 Disability and the social model

· 4.1 Living the social model of disability

· 4.2 Living with disability

· 4.3 The social model re-examined

· 5 Getting ready for TMA 02

· 5.1 Writing for Level 2 assignments

· 5.2 Forming an argument

· Conclusion

· Additional selected readings

· References

· Acknowledgements

Activity planner

Start of Table

Activity

You should allow ...

You will need ...

Activity 3.1: Wellbeing beyond the reach of biomedicine

20 minutes

Audio 3.1

Activity 3.2: The social model of health

1 hour 15 minutes

Reading 3

Twitter

Activity 3.3: Working with lay perspectives of illness

40 minutes

Audio 3.2

Online poll

Activity 3.4: ‘Women’s issues’

45 minutes

Video 3.1

Audio 3.3

Twitter

Activity 3.5: Intersectionality – a Canadian perspective

1 hour 30 minutes

Online reading

Activity 3.6: Failings in social welfare provision

15 minutes

Video 3.2

Activity 3.7: Finding and handling health data

1 hour

Online health determinants tool

Activity 3.8: Addressing the determinants of health

30 minutes

Video 3.3

Activity 3.9: Social and biomedical models in action

30 minutes

Video 3.4

Video 3.5

Drag and drop tables

Activity 3.10: Exploring disability issues

45 minutes

Twitter

Activity 3.11: Considering the way forward for the social model

1 hour 20 minutes

Online reading

Online quiz

Activity 3.12: Writing effectively

40 minutes

Online reading

Activity 3.13: Exploring the language and structure of argument

1 hour 15 minutes

TMA 02

Online library resources

End of Table

Introduction

Start of Figure

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Health, wellbeing and disability are shaped by social factors

End of Figure

Start of Box

Start of Quote

Wellness is not a ‘medical fix’ but a way of living.

Greg Anderson (1995, p. 2)

End of Quote

End of Box

The biomedical model can be a powerful, persuasive force. It has been responsible for some of the greatest advances in health over the past few centuries. Nonetheless, it does have its limitations and there are equally powerful philosophical, social and political forces that have challenged its dominance. This week you will encounter some of these theoretical ideas: the social model of health, intersectionality and the social model of disability. The social and cultural determinants of health are important here.

The main focus of this learning guide is on social model approaches to health and wellbeing, which takes as its starting point not the scientific context of the body, but the social context in which people live. Your learning is therefore focused around three key questions:

Start of Study Note

Key questions

· What are the challenges to biomedicine from a social model approach?

· How do social model approaches add to our understanding of the health and wellbeing of individuals?

· How has social change had an impact on how we understand and approach illness, health and wellbeing?

End of Study Note

1 Exploring the social model

Start of Figure

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We are both individual and social beings

End of Figure

Start of Box

Start of Quote

The medical model is so dominant, so seductive in the health service, that unless we challenge it in a very concerted and focused way, we’re not going to be able to develop an alternative.

Martin Marshall (Vice Chair of the Royal College of General Practitioners) in Iacobucci (2018, p. K1034)

End of Quote

End of Box

As you know, individuals lead complex lives and, if they become unwell, some will have aspirations that go beyond what a biomedical fix can offer. But what might an alternative model of health look like? You will begin to explore this by considering challenges to health and wellbeing that are beyond the reach of biomedicine. In this first section, you will read an article that introduces you to some of the broad principles of the social model of health. You will also consider how lay knowledge – that of people who are not medical or healthcare specialists – takes a more central, and even vital, role in the social model.

There are three activities and they will take approximately 2 hours 15 minutes of study time.

1.1 Why do we need a social model?

In Learning Guide 2 you considered how the biomedical model can expand to encompass a broader, more holistic approach to treatment and care. Although holism considers ‘the complete person’ by looking, for example, for social and emotional explanations for their disease and symptoms (Henderson, 2014), the social model of health takes a different perspective. The social model explains health and wellbeing through the social context. Rather than starting with a person in a particular state of health or disease, the main focus is on how living conditions and social factors affect health and wellbeing.

Looking at Dahlgren and Whitehead’s diagram (Figure 3.1), which you first considered in Learning Guide 1, you could think of holism as starting with ‘Age, sex and constitutional factors’ and working outwards. By contrast, the social model would focus first on socioeconomic, cultural and environmental conditions before working its way through the layers to eventually consider a person’s constitutional factors.

Start of Figure

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Figure 3.1 The determinants of health (Dahlgren and Whitehead, 1993; in Dahlgren and Whitehead, 2007)

View description - Figure 3.1 The determinants of health (Dahlgren and Whitehead, 1993; in Dahlgren ...

End of Figure

Individuals have little control over many of the sociocultural factors that affect their health and wellbeing. Therefore, the social model of health lends itself to campaigns arguing for social justice and better working and living conditions, as you will discover in subsequent sections of this learning guide. In addition, the biomedical model isn’t always able to account for how sociocultural factors can interact with the diagnosis it is – or isn’t – able to provide, or how this can impact on a person’s sense of wellbeing.

For example, Yvonne John is an author who has documented the experiences of childless women. In the next activity you will hear her speak about her own experiences around childlessness. This is an opportunity to review your skills in learning from an audio resource, as well as to engage critically with the interaction of the biomedical model with sociocultural factors.

Start of Activity

Activity 3.1: Wellbeing beyond the reach of biomedicine

Allow about 20 minutes

Part A

Start of Question

Listen to Yvonne John talking on BBC Woman’s Hour about her experience of childlessness.

Start of Media Content

Audio content is not available in this format.

Audio 3.1 Yvonne’s experience of childlessness

View transcript - Audio 3.1 Yvonne’s experience of childlessness

End of Media Content

End of Question

Part B

Start of Question

Now, answer the following questions.

1. What role did biomedicine play when Yvonne and her husband were trying to conceive, and how was biomedicine unable to help her?

End of Question

Provide your answer...

View discussion - Part B

Start of Question

2. What challenges to Yvonne’s health and wellbeing did she face following the medical diagnosis? What was the impact of sociocultural expectations on her wellbeing?

End of Question

Provide your answer...

View discussion - Part

Start of Question

3. What did help Yvonne?

End of Question

Provide your answer...

View discussion - Part

Start of Question

4. Taking a social model perspective, what might you want to better understand in order to improve the health and wellbeing of Yvonne and other people in a similar situation?

End of Question

Provide your answer...

View discussion - Part

Part C

Start of Question

Now, reflect on your experience of learning from this audio clip. What differences did you find using audio rather than text and video resources? What skills did you apply?

End of Question

Provide your answer...

View discussion - Part C

End of Activity

The social model of health attempts to integrate social structures and people’s bodily existence in the world. It goes beyond the body to address the social, economic and environmental determinants of health. As you have learned, female reproductive health is one example where the social model offers a useful perspective. The biomedical model would consider reproductive health in relation to the body and reproductive roles, whereas the social model starts from the perspective of the social, cultural and economic, as well as equality issues. You will read more about the social model of health next.

1.2 Understanding the social model of health

The social model of health is so broad that it can be difficult to get a sense of it as a whole, but at the heart of it is a person’s social context. As you have already touched on, a person’s social context can bring a wide range of factors to bear on their health and wellbeing.

In the next activity, you will read a text that describes the social model of health in detail.

Start of Activity

Activity 3.2: The social model of health

Allow about 1 hour 15 minutes

Part A

Start of Question

Read Reading 3 ‘The social model of health’ by Yuill et al. (2010a), either as a webpage or PDF .

Note: when you read references to social class, take it that social class one represents ‘Higher managerial, administrative and professional occupations’. Social class five represents ‘Semi-routine and routine occupations’ (Office for National Statistics, 2010).

End of Question

Part B

Start of Question

Summarise the main points of each of the following six sections of Reading 3.

1. Individual health is enabled or inhibited by social context.

End of Question

Provide your answer...

View discussion - Part B

Start of Question

2. The body is simultaneously social, psychological and biological.

End of Question

Provide your answer...

View discussion - Part

Start of Question

3. Health is cultural.

End of Question

Provide your answer...

View discussion - Part

Start of Question

4. Biomedicine and medical science is something – but not everything.

End of Question

Provide your answer...

View discussion - Part

Start of Question

5. Health is political.

End of Question

Provide your answer...

View discussion - Part

Start of Question

6. Other voices matter.

End of Question

Provide your answer...

View discussion - Part

Part C

Start of Question

1. Consider the physical and emotional metaphors discussed by Yuill et al. (2010a) in the section ‘Health is cultural’. Can you think of any other cultural metaphors that apply to the topic of health, wellbeing or illness? You may like to record your ideas in the box below.

End of Question

Provide your answer...

Start of Question

2. Share your metaphors with your K219 peers on Twitter. Use the hashtag #OUK219metaphors. If you do not wish to post on Twitter, share your tweets on the module forum instead.

End of Question

Start of Question

3. Re-tweet one tweet you particularly like or think is interesting. When you do so, add a comment, for example, about why you like it. Doing this will help you create a conversation and you will find that talking through your ideas with others on Twitter is a key way of challenging your opinions and introducing you to new ideas. If you do not wish to do so on Twitter, comment on a tweet you particularly like or find interesting posted by another student on the module forum instead.

Remember, if you do not wish to create a Twitter account, you can still follow the conversation by searching for the hashtags using Twitter’s search page .

End of Question

View discussion - Part

End of Activity

As you work through this learning guide, you will continue to think about the range of voices that can be brought to bear on people’s understandings of health and wellbeing.

1.3 Lay perspectives matter

Start of Figure

image5.jpg

We all need a voice

End of Figure

Start of Box

Start of Quote

An understanding of health and illness is not purely the privileged knowledge of the medical profession, many sophisticated, complex but different understandings of health are also held by ordinary people; and this knowledge is termed ‘lay’.

Chris Yuill, Iain Crinson and Eilidh Duncan (2010b, p. 98)

End of Quote

End of Box

It is important that professionals consider an individual’s understanding of their health when responding to their health issues. The biomedical approach has traditionally viewed lay perspectives as inferior, driven by personal opinion, and they often deviate from the scientific and technical knowledge of experts. Traditionally therefore, under a biomedical approach, the voices of patients, their carers and other non-experts are viewed as less important than professional voices, knowledge and expertise.

By contrast, the social model of health suggests that a good understanding of lay knowledge can usefully inform expert knowledge. Rather than reinforce the distinctions between these forms of knowledge, academics following the social model argue that understanding how people construct and interpret health and wellbeing is vital to maintaining and supporting health (Yuill et al., 2010a).

People construct and interpret their own health and wellbeing based on all aspects of their personal identity and background. Cultural psychiatrist Dr Micol Ascoli believes that being able to work with people’s own cultural interpretations of mental illness is crucial to supporting their recovery. She spoke to broadcaster and psychologist Claudia Hammond about her work at Newham Centre for Mental Health in London. In the next activity, you will consider Dr Ascoli’s approach to her work and hear from one of her patients, Angela.

Start of Activity

Activity 3.3: Working with lay perspectives of illness

Allow about 40 minutes

Part A

Start of Question

Listen to the following audio, which is an extract from the radio programme ‘Mental health: mad or sad’.

Start of Media Content

Audio content is not available in this format.

Audio 3.2 Mental health: mad or sad

View transcript - Audio 3.2 Mental health: mad or sad

End of Media Content

End of Question

Part B

Start of Question

What lay perspectives on bipolar disorder are discussed in the audio? How did the speakers report the lay perspectives as being helpful? Add your findings below.

Start of Table

Lay perspective described by:

How this knowledge can help:

Angela

Provide your answer...

Provide your answer...

Dr Ascoli

Provide your answer...

Provide your answer...

End of Table

End of Question

View discussion - Part B

Part C

Start of Question

Think about a condition – a disease or disorder – that you or perhaps someone close to you has. What are your own beliefs about the causes of this condition? Are there any aspects of your background that helped to shape these beliefs?

Reflect on these questions and then answer the following polls about your beliefs regarding causes of the condition. Your vote will be anonymous and once you have submitted it you will be able to see how the other students on K219 have responded.

Start of Media Content

Interactive content is not available in this format.

End of Media Content

Start of Media Content

Interactive content is not available in this format.

End of Media Content

End of Question

View discussion - Part C

End of Activity

Whatever a person’s beliefs about health are, it is likely they will have been shaped by many factors that are specific to that person and may not always reflect wider assumptions held by society more broadly, or indeed fit with the biomedical model. This, however, does not diminish their potential value for understanding health and wellbeing because they will affect health behaviours, personal resilience and the ability to achieve health goals. Furthermore, sometimes the experiences and views of a particular group can have a profound and powerful effect on the views of wider society and alter the professional knowledge base as a result.

Start of Study Note

To sum up ...

This section has explored the need for a social model of health and explained how a person’s social environment can have a profound impact on their health and wellbeing. Listening to lay perspectives can help clinicians support patients better.

In the next section, you will consider the impact of social and cultural contexts on health and wellbeing by exploring issues around women’s health.

End of Study Note

2 Social change for health and wellbeing?

Start of Figure

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A women’s rights protest

End of Figure

Start of Box

Start of Quote

There is no such thing as a single-issue struggle because we do not live single-issue lives.

Audre Lorde (2007, p. 138)

End of Quote

End of Box

The social model highlights how important it is to recognise that health is intricately related to the society in which people live. The model also allows for the influence of culture on how illness is understood, treated and avoided. It follows that social policy can have a fundamental impact on people’s health and wellbeing. But more than that, social policies affect access to healthcare services, as well as the type of services that are available.

Some social and cultural practices and beliefs can undermine the resilience and aspirations of people in a way that has very little to do with the underlying biomedical issue they may be facing. All of this can negatively influence an individual’s sense of wellbeing and recovery in ways that are equal in impact to the physiological or mechanical fix that might come through a biomedical intervention. This section addresses the impact of social and cultural context on health and wellbeing by exploring issues around women’s health.

There are two activities and they will take around two hours 15 minutes of study time.

2.1 Movements in women’s health

Start of Figure

image7.jpg

Women protesting about reproductive rights

End of Figure

Start of Box

Start of Quote

Women need not always keep their mouths shut and their wombs open.

Emma Goldman, 1916 (see Anderson, 1970, p. 62)

End of Quote

End of Box

Social movements have a history of challenging the dominance of biomedicine and developing their own focus on health issues. An important impact of the work of social movements relates to how they have liberated what people already instinctively know about health and illness and legitimised this lay knowledge as a counter to biomedical opinions and priorities.

For example, one of the ways in which the women’s health movement has attempted to gain more control for women over their bodies and their health is by sharing experiences and information about health matters among women. The Boston Women’s Health Book Collective, which began in 1969, has been influential in this area. The work of the women in Boston influenced the development of women’s healthcare worldwide. Many of the early aims of the women’s health movement were to challenge doctors’ control over reproductive technology and to claim women’s right to control their own bodies and develop self-help groups and feminist education (Doyal and Elston, 1986).

Although these concerns still exist, many women’s organisations now focus on disadvantaged groups. The Women’s Health and Equality Consortium (WHEC, 2017), for example, has championed the needs of homeless women, migrant women, women with dementia, older women, and girls and young women in health policy. The consortium links these groups with issues such as economic disadvantage, caring roles and gender-based violence (WHEC, 2011), claiming that ‘Women are the main “shock absorbers” of poverty of households’ (p. 1).

Research can also disadvantage women if it does not accurately represent them. Alice Dan, a researcher who has been writing about women’s health since the 1970s, suggested that women’s experiences are ‘distorted in the research’ and that ‘Women’s lives exist in the gaps between the traditional disciplines’ (Dan, 2013, p. 164). Menstruation and menopause are salient examples of issues tightly bound with the social context, and which can fall between disciplines. Journalist Allison Pearson shared her experience of menopause for the BBC’s Woman’s Hour. In the next activity, you will hear her account and a discussion about ‘period poverty’. You will consider how a social model of health could help to change things for the better.

Start of Activity

Activity 3.4: ‘Women’s issues’

Allow about 45 minutes

Part A

Start of Question

Watch Video 3.1 and listen to Audio 3.3, in which the menopause and period poverty are discussed. Then complete the exercises below.

Start of Media Content

Video content is not available in this format.

Video 3.1 The menopause: I was taken aback by how crazy I felt

View transcript - Video 3.1 The menopause: I was taken aback by how crazy I felt

End of Media Content

Start of Media Content

Audio content is not available in this format.

Audio 3.3 Why ‘period poverty’ is a bigger problem than we think

View transcript - Audio 3.3 Why ‘period poverty’ is a bigger problem than we think

End of Media Content

End of Question

Part B

Start of Question

Bearing in mind the concerns identified by the women’s health movement and the ‘gaps between disciplines’ highlighted by Alice Dan above, identify issues raised in Video 3.1 and Audio 3.3 and propose solutions to them from the perspective of the social model. Add your notes to the table and, when you are finished, rank the rows to show the importance of the evidence and solutions you have identified.

Don’t worry about the practicalities – that is for the policymakers. Simply get your ideas down. This is good practice for developing your skills in academic argument, because to complete the table below you will need to match ‘evidence’ (or, in this case, the issues raised in personal accounts) with a ‘claim’ of some sort (in this case, your proposed solution, e.g. ‘Health professionals need better education on the menopause’).

Start of Media Content

Interactive content is not available in this format.

End of Media Content

End of Question

View discussion - Part B

Part C

Start of Question

If you are interested in these and similar topics, why not follow some women’s organisations on Twitter, for example:

· Wellbeing of Women: @WellbeingofWmen

· WomensResourceCentre: @whywomen

If you don’t have a Twitter account, you could explore their Twitter feeds instead by clicking on the links provided above.

End of Question

End of Activity

Over time, the women’s health movement became rather fragmented as differences based on race and ethnicity, class, sexual orientation and age emerged. A recent report has highlighted, for example, the health inequalities faced by black and ethnic minority women in the UK, and their particular vulnerability to cuts to public services (Hall et al., 2017). Despite this fragmentation, women’s voices are stronger and more diverse than ever. In essence, women’s movements have helped to assert the need for ‘lay’ knowledge to be taken seriously when considering responses to health-related issues.

The women’s movement has also influenced ideas around intersectionality, which claims that social categories interact to create unique forms of identity, ability and vulnerability. You will explore this next.

2.2 Intersectionality and the social model

Start of Figure

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There are many things and ideas associated with intersectionality, as suggested by this word cloud

View description - There are many things and ideas associated with intersectionality, as suggested by ...

End of Figure

People can identify with, and be assigned to, a range of social categories such as ‘race’, ‘gender’ and ‘class’. Moreover, their social context carries strong implications for their health. An intersectional approach argues that social categories are not simply additive – race + gender + class – but that categories intersect and interact with each other. Intersectionality is an exciting concept that opens new ways of thinking and talking about the health and wellbeing of individuals. Although its main objective is the pursuit of social justice, it can work alongside the social model in addressing diversity and inequities in health (Reid et al., 2012).

In the next activity you will read about intersectionality and develop your awareness of how academic texts are constructed.

Start of Activity

Activity 3.5: Intersectionality – a Canadian perspective

Allow about 1 hour 30 minutes

Part A

Start of Question

Read an extract from the academic paper ‘ Intersectionality and the determinants of health: a Canadian perspective ’ by Hankivsky and Christoffersen (2008).

You should read the following parts:

· The abstract.

· From the header ‘Toward a better understanding of the determinants of health’ to the end of the paragraph beginning ‘Thirdly, an intersectional perspective does not simply add social categories …’.

End of Question

Part B

Start of Question

Consider how the extract is constructed and how the authors build their argument. Read it carefully all the way through first and then work through the questions below.

1. According to the abstract, what were the authors’ purposes for writing this paper? Summarise this in your own words.

End of Question

Provide your answer...

View discussion - Part B

Start of Question

2. What is the argument that Hankivsky and Christoffersen build in the extract?

To answer this question you will need to do two things. First, make notes on the key points of each paragraph in the extract, aiming to capture the sequence of the argument. Then, read back through your notes and summarise their argument in a couple of sentences.

End of Question

Provide your answer...

View discussion - Part

Start of Question

3. How do Hankivsky and Christoffersen use signposting in the extract to progress their argument?

End of Question

Provide your answer...

View discussion - Part

Start of Question

4. Are there any concepts or themes mentioned in the extract that you already know about? Notice how the authors apply them. Are there any concepts you don’t understand? Make a note of these and look them up in a dictionary such as this one:

· The Sage Dictionary of Health and Society

End of Question

View discussion - Part

End of Activity

Start of Study Note

To sum up ...

This section has discussed how women’s movements and the concept of intersectionality can illustrate the power of a social model for promoting better health and wellbeing. Although the women’s movement and other disadvantaged groups cannot claim a single unified voice, it has certainly exposed the myriad ways that political, economic and social factors affect lives – and this is an area where there is still much to be done.

In the next section, you will further explore the other ways in which politics can influence the health and wellbeing of us all.

End of Study Note

3 Health is political

Start of Figure

image9.jpg

The UK political landscape in 2017 showing how constituencies voted in the General Election

View description - The UK political landscape in 2017 showing how constituencies voted in the General ...

End of Figure

In this section, you will focus on the relationship between the policies of government departments, such as the Department for Work and Pensions, and health and wellbeing. In particular, you will examine how the social model of health demonstrates the influence of policymakers’ decisions on health and wellbeing in various ways, both obvious and not so obvious.

There are three activities and they will take approximately 1 hour 45 minutes of study time.

3.1 Social inequalities in health and wellbeing

It is increasingly recognised that good health results from factors broader than those typically embraced by the biomedical model. Perhaps the most important challenge to biomedicine comes from the impact of social inequalities on health.

The impact of social inequality is forcefully described in a short video that you will watch in the next activity.

Start of Activity

Activity 3.6: Failings in social welfare provision

Allow about 15 minutes

Part A

Start of Question

Laura Pidcock is a Labour MP. In October 2017 she talked to journalist Owen Jones about the Department for Work and Pensions (DWP).

Watch the following video, which is a short clip from their conversation.

Start of Media Content

Video content is not available in this format.

Video 3.2 Labour MP Laura Pidcock talks to Owen Jones: ‘The DWP has caused fear and terror’

View transcript - Video 3.2 Labour MP Laura Pidcock talks to Owen Jones: ‘The DWP has caused fear and ...

End of Media Content

End of Question

Part B

Start of Question

1. What are Laura Pidcock’s criticisms of DWP’s welfare policy?

End of Question

Provide your answer...

View discussion - Part B

Start of Question

2. What are the effects on health and wellbeing according to Laura Pidcock?

End of Question

Provide your answer...

View discussion - Part

End of Activity

Mental distress of the sort you learned about in Activity 3.6 can, over time, lead to a range of physical and mental illnesses. Although the biomedical model, and the scientific perspective it brought to our understanding of health and illness, has improved life expectancy greatly over the past few centuries, the most impressive reductions in death rates have actually come from improvements in much wider environmental and social factors. The following quote from McKeown summarises this:

Start of Quote

The improvement of health during the past three centuries was due essentially to provision of food, protection from hazards, and limitation of numbers; medical science and services made an important contribution to the control of hazards but only a limited one through immunisation and therapy.

(McKeown, 1976, p. 178)

End of Quote

The point made by McKeown back in 1976 has been consistently reinforced in a range of major reports into inequalities in health, each of which has stressed that inequalities in health are caused by socioeconomic circumstances. These include Inequalities in Health: Report of a Research Working Group (Black et al., 1982); The Acheson Report (1998) and The Marmot Review (2010). You will consider the work of Michael Marmot later in this section, but first you will look at some statistics.

3.2 What do the statistics show?

When lobbying for policy changes, it is important to draw on strong evidence. Laura Pidcock, in the previous activity, presented anecdotes from her personal experience, which leaves her argument open to claims of bias and a lack of objectivity. However, to persuade a government or an organisation to make policy changes, there needs to be statistical evidence showing the size and extent of an issue. It also helps if there are also research findings about possible solutions. Moreover, changes observed over time indicate trends and could offer clues about what is causing these trends, especially if there has been a prominent socioeconomic or policy change. Personal experience is also important of course, and is often represented in government reports as cases that illustrate the personal impact of an issue.

In the next activity, you will explore some health statistics that are in the public domain, and that are used by public bodies for developing policy.

Start of Activity

Activity 3.7: Finding and handling health data

Allow about 1 hour

Start of Question

You are now going to use the Wider Determinants of Health tool.

· Go to the tool on the Public Health England website.

· On the homepage, under ‘Area type’ select ‘Region’. Under ‘Area’ select a region to focus on.

· In the green ribbon, select either ‘Trends’ or ‘Compare areas’.

· Explore the data under ‘Marmot indicators’ and ‘Health outcomes’ (tabs in the grey ribbon running along the top of the page). Look carefully at all the information on each page – there is a lot to take in at first.

· Find a chart that demonstrates either differences over time (a trend) or differences between regions. Download it, and file it where you can easily retrieve it. Write a sentence or two describing what the figures show. (You may wish to use the box below.)

End of Question

Provide your answer...

Start of Question

When you have finished return here to continue with the learning guide.

End of Question

View discussion - Part

End of Activity

3.3 Fair society, healthy lives

Start of Figure

image10.jpg

Sir Michael Marmot giving a keynote speech

End of Figure

One of the most outspoken and respected academics on the subject of social determinants of health is Professor Sir Michael Marmot. His population-based work studying data similar to what you looked at in the last activity has revealed clear links between health and socioeconomic status. You may have looked at the ‘Marmot indicators’, which were named after him. In 2010 in a report entitled Fair Society, Healthy Lives he explained, for example, that although life expectancy for both men and women had improved, the gap between rich and poor in ‘disability-free life expectancy’ had widened. In other words, people were living longer with some form of impairment and the poor were increasingly more likely to live with impairments as they age.

Marmot (2010) presented graphs that showed clear health gradients between the richest and poorest throughout England. For example, Figure 3.3 shows the gradient in years spent with disability, according to levels of deprivation, from figures gathered in 2001. Each of the green dots represents a person.

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Figure 3.3 Number of years from birth spent with disability, persons by neighbourhood income level, England 2001 (Source: Marmot, 2010, p. 51)

View description - Figure 3.3 Number of years from birth spent with disability, persons by neighbourhood ...

End of Figure

Although biomedicine may have enabled the population as a whole to live longer, people living in disadvantaged circumstances are more likely to suffer ill health. It is also true that inequality in populations is bad for everyone’s health. Marmot explained it like this:

Start of Quote

The social gradient in health describes a graded association between an individual’s position on the social hierarchy and health: the lower the socioeconomic position of an individual, the worse their health. The fact that the social gradient extends from the highest echelons of society to the lowest suggests that everyone is affected to a greater or lesser extent by the social determinants of health.

(Marmot, 2018, p. 186)

End of Quote

Marmot concluded that in order to tackle health inequalities the solutions are not to be found within biomedicine. Instead, the solutions are social.

Start of Box

Marmot’s six social solutions to health inequalities

1. Give every child the best start in life.

2. Enable all children, young people and adults to maximise their capabilities and have control over their lives.

3. Create fair employment and good work for all.

4. Ensure a healthy standard of living for all.

5. Create and develop healthy and sustainable places and communities.

6. Strengthen the role and impact of ill health prevention.

(Marmot, 2010, p. 15)

End of Box

In the next activity you will watch an extract from a keynote speech in which Marmot presented his latest findings about the conditions that make people sick.

Start of Activity

Activity 3.8: Addressing the determinants of health

Allow about 30 minutes

Part A

Start of Question

Watch the following presentation given by Marmot in 2017.

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Video content is not available in this format.

Video 3.3 Sir Michael Marmot: Prioritising and developing further action on reducing the social gradient in health

View transcript - Video 3.3 Sir Michael Marmot: Prioritising and developing further action on reducing ...

End of Media Content

You may find it helpful to stop the video when each chart appears to give you time to study it closely.

End of Question

Part B

Start of Question

1. According to Marmot, what is the trend in mortality in the USA and what lessons can the UK learn from it?

End of Question

Provide your answer...

View discussion - Part B

Start of Question

2. How did Marmot demonstrate the effects of austerity on health in the UK?

End of Question

Provide your answer...

View discussion - Part

End of Activity

Start of Study Note

To sum up ...

This section has considered the relationship between government policy and health and wellbeing. Government policy can clearly affect life expectancy, and the health and wellbeing of some members of UK society are particularly vulnerable to policy changes.

Disabled people are often disadvantaged, and therefore rely on government policies to enable change that will improve their access to Marmot’s six themes for addressing the social determinants of health. In the next section, you will consider the experiences of disabled people.

End of Study Note

4 Disability and the social model

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image12.jpg

Campaigning for better access to public transport

End of Figure

Perhaps one of the most important consequences of the challenge to the dominance of professional voices and the biomedical model has been the development of the social model of disability. Viewing disability through the lens of a social model has inspired disabled people to push for positive change in society, as well as helping a professional audience to think differently about disability. You will explore this using video resources and social media, as well as through considering academic perspectives.

There are three activities and they will take about 1 hour 35 minutes of study time.

4.1 Living the social model of disability

In parallel with the differences between the social and biomedical models of health, the social and biomedical models take contrasting perspectives on the subject of disability. The Equality Act 2010, which provides a legal framework for ensuring the rights of disabled people, assumes that:

Start of Quote

(6)(1) A person (P) has a disability if –

· (a) P has a physical or mental impairment, and

· (b) the impairment has a substantial and long-term adverse effect on P’s ability to carry out normal day-to-day activities.

(Great Britain. Equality Act 2010, s.6(1))

End of Quote

The biomedical model considers a person’s impairment to be the cause of any difficulties in day-to-day activities. By contrast, the social model assumes that a person’s social environment is the primary disabling factor. This could be anything from the built environment to the prevailing attitudes in a community.

Under the biomedical model, solutions to a person’s impairment tend to focus on what needs ‘fixing’ in and around them. People with disabilities are expected to have lower aspirations in life because of their impairments. Conversely, under the social model people seek to dismantle environmental, attitudinal and policy barriers that prevent people with disabilities participating in society and achieving their full potential (Scope, 2017). In the next activity, you will consider further the benefits of the social model approach to disabled people.

Start of Activity

Activity 3.9: Social and biomedical models in action

Allow about 30 minutes

Part A

Start of Question

Watch the following two videos about the social model of disability.

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Video content is not available in this format.

Video 3.4 Social model of disability

View transcript - Video 3.4 Social model of disability

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Start of Media Content

Video content is not available in this format.

Video 3.5 What is the social model of disability?

View transcript - Video 3.5 What is the social model of disability?

End of Media Content

End of Question

Part B

Start of Question

Think about how the social model is an improvement over the biomedical model for people with disabilities. Make notes under the headings:

Achieving their full potential

End of Question

Provide your answer...

Start of Question

Having meaningful relationships

End of Question

Provide your answer...

Start of Question

Playing an active part in the world

End of Question

Provide your answer...

Part C

Start of Question

Using your notes from Part B to help you, drag and drop the descriptions to complete each table showing how the biomedical and social models differ in their approach to helping people with disabilities in everyday situations.

1. Click on the following link complete the first table:

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Interactive content is not available in this format.

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image13.jpg

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2. Click on the link below to complete the second table:

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Interactive content is not available in this format.

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image14.jpg

End of Figure

End of Media Content

End of Question

View discussion - Part C

End of Activity

The social model has clear benefits for helping disabled people access information, go about their daily lives and engage in society with a sense of equal opportunity. The model has helped to drive policy changes through the Equality Act 2010. It is interesting, though, that the definition of disability in the Equality Act seems to arise from a biomedical model, where the focus is on a person with an impairment. Nevertheless, even a social interpretation of disability needs to assume the presence of impairment (or at least a notable biological difference), even if the source of disability is social (Priestley, 2005). Next, you will consider what further developments are required.

4.2 Living with disability

There is universal agreement that disabled people are a deprived sector of the community and that in a civilised society government interventions should be initiated to improve their situation. Every survey, census or research project undertaken in diverse countries and cultures around the world has confirmed the existence of this deprivation.

Discussions on social media can offer a good indication of how such issues affect people’s lives. In the next activity, you will find examples on Twitter of the problems disabled people face, and consider whether they regard their disability from a biomedical or social model approach to policy or practice.

Start of Activity

Activity 3.10: Exploring disability issues

Allow about 45 minutes

Part A

Start of Question

Search Twitter either by signing in or using the search box for tweets about disability and its links with the biomedical or social models.

Think about the people and organisations appearing in your results.

· Is anyone disseminating research?

· Does anyone seem to be networking for personal reasons?

· Is there a particular style or composition of tweet that catches your attention?

In the content of the tweets, make a note of anything that indicates an emphasis on a person’s impairment and what they can’t do, or whether the focus is on a disabling social or physical environment. Are they concerned, perhaps, with policy or public attitudes?

You might need to try out different combinations of terms before you find useful results. Remember to use inverted commas around phrases to ensure the whole phrase is searched rather than individual words. For example, a search for references to the social model with inverted commas (‘social model’) will give you very different results than searching without (social model). You can also search using specific hashtags, e.g. #SocialModel. This strategy would narrow your results to only tweets that have included the hashtag. Hashtags tend to be used by people who want their tweets on a certain topic to be found quickly and conveniently, especially if they are taking part in an ongoing conversation.

End of Question

Part B

Start of Question

Spend some time composing your own tweets.

There are many things you could tweet about. For example, you might want to further disseminate some research you think is informative and valuable, or you might want to support an individual in their efforts to network or influence others in some way. You may want to tweet about your own experience. Make sure that you write something original that you have learned about so far through your studies, particularly in relation to this part of K219. In writing your tweet, think about what you’d like to communicate to your K219 peers as well as to the wider Twitter community.

Finally, remember to include the hashtag #OUK219disability.

Post your tweet on Twitter or the module forum . Remember to return to Twitter and the module forum to check the tweets from your peers who use these hashtags. You may want to continue the conversation by commenting and re-tweeting.

End of Question

View discussion - Part B

End of Activity

4.3 The social model re-examined

Finally, as with all models, the social and biomedical models of disability may offer a framework for understanding the issues and provide solutions, but they cannot fully account for the complexity of real life. All models have their weaknesses. Polarised views rarely reflect people’s experiences. In the next activity, you will read an academic paper published in the journal Disability & Society in which the author Jonathan Levitt asks searching questions about the future for the social model.

Start of Activity

Activity 3.11: Considering the way forward for the social model

Allow about 1 hour 20 minutes

Part A

Start of Question

Read Jonathan Levitt’s (2017) paper on ‘ Exploring how the social model of disability can be re-invigorated: in response to Mike Oliver ’.

Scan the headings in the article to get a sense of the content. Then read closely, highlighting his main points about the social model. You can do this by making your own notes, or click through to the PDF version of the paper and use a highlighter tool.

End of Question

View discussion - Part A

Part B

Start of Question

Based on your reading of Levitt’s article, answer the following questions.

1. True or false? In the abstract, Levitt outlines the content of his article.

End of Question

True

False

View discussion - Part B

Start of Question

2. Complete the following sentence.

In the abstract, Levitt explains that he identified his five questions through:

End of Question

… examining websites.

… talking to disabled people.

… examining the published literature.

… an online questionnaire.

View discussion - Part

Start of Question

3. Complete the following sentence.

In the introduction, Levitt explains that:

End of Question

… he wants to see a conclusion to the debate on the social model.

… the scope and relationships of the social model reflect the social circumstances of current times.

… attitudes to disability in the UK have changed slightly over the last 30 years.

… he wants to widen the debate on the focus of the social model.

View discussion - Part

Start of Question

4. True or false? Levitt considers himself to be a disabled person.

End of Question

True

False

View discussion - Part

Start of Question

5. True or false? Levitt is writing in a third-person voice.

End of Question

True

False

View discussion - Part

Start of Question

6. At the beginning of the section on ‘Scope of the social model’, Levitt quotes directly from Oliver’s 2013 paper to reinforce his claim that the social model:

End of Question

… was originally aimed at dismantling barriers.

… unnecessarily restricted people’s participation in society.

… can change society’s understanding of disability.

… did not recognise people’s impairments.

View discussion - Part

Start of Question

7. True or false? According to Levitt, Oliver said that the social model of disability could be a political tool.

End of Question

True

False

View discussion - Part

Start of Question

8. Under ‘Relationship with other models of disability’, why does Levitt want to change the wording in descriptions of the social model of disability by Bolt (2005), Forber-Pratt and Aragon (2013) and the World Health Organization (2017)? Tick all the options that apply.

End of Question

He wants to encourage use of the social model by people who regard disability as not only being shaped by society.

Emancipatory research does not need to be associated with the social model.

‘Society’ is not the only cause of disablement.

View discussion - Part

Start of Question

9. Complete the sentences shown below by selecting the appropriate word from each drop-down list.

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Interactive content is not available in this format.

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End of Question

Start of Question

10. True or false? In Levitt’s conclusion, he claims that the 1995 Disability Discrimination Act led to an improvement in the levels of poverty for disabled people.

End of Question

True

False

View discussion - Part

End of Activity

Start of Study Note

To sum up ...

This section has shown how the concept of disability provides a unique perspective on the idea of a social model. The social model of disability has facilitated the removal of barriers to participation for disabled people. Having a framework for understanding and discussing complex health, wellbeing and equality issues allows people to work through problems in a structured way.

In the next section, you will begin to think through how you will tackle the next TMA.

End of Study Note

5 Getting ready for TMA 02

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image15.jpg

Are you ready for your next assignment?

End of Figure

You are shortly going to be writing an assignment for TMA 02, which will be your first academic essay in K219. It will draw on the content of Learning Guides 1–4. Now is therefore a good time to think about some of the skills you will need to develop for writing at Level 2. This is a continuous process – people never stop developing their writing skills, even experienced writers. Regularly creating a space to think about writing will help to keep it uppermost in your mind. It can also help you to identify any weaknesses and find ways of tackling them.

There are two activities and they will take approximately 1 hour 55 minutes of study time.

5.1 Writing for Level 2 assignments

The essays you write during the course of your studies will draw on and reflect the skills you are developing. At Level 2, these skills are becoming more sophisticated than at Level 1. This is not something you should particularly worry about achieving if you carry out the learning guide activities and give yourself time to develop your writing when you are working on the assignments. Thinking about these things earlier rather than later is therefore worthwhile.

During this module, and through the assignments, you will be demonstrating that you can:

· effectively communicate information, arguments and analysis in a variety of forms to specialist and non-specialist audiences

· show you are familiar with and understand a range of the essential theories, principles or concepts, and that you are aware of major issues in a topic

· gather, evaluate and critically analyse information and ideas relating to your subject.

These are skills expected of every student in the UK studying at this level. In writing this module, the K219 team has created opportunities for you to develop them.

The next two activities focus on the first point – in Activity 3.13 you will explore how to form an argument, but first you will consider what makes communication effective.

Start of Activity

Activity 3.12: Writing effectively

Allow about 40 minutes

Start of Question

Before you start, take a look at your next assignment to get an idea of what it is asking you to do.

End of Question

Start of Question

1. Think back to essays you have written on previous modules you have studied. Write down two or three challenges you find in writing essays. If you are returning to study after many years, you may want to base your notes on your recent writing experiences in a different context, for example, at work, or writing letters/emails to your child’s school. There’s no need to dig out old essays – if anything stands out in your memory, that’s good enough at this point!

End of Question

Provide your answer...

View discussion - Part

Start of Question

2. Go to the OU Help Centre’s (2014) article on ‘Writing for University’ and work through the following sections:

· Using an appropriate writing style

· Dividing your work into paragraphs

· Using linking words

End of Question

View discussion - Part

Start of Question

3. Does the advice in ‘Writing for University’ address any of the challenges you listed in Question 1? Write down any suggestions the article provided in the box below.

End of Question

Provide your answer...

Start of Question

4. If ‘Writing for University’ did not address any of the challenges you identified, investigate the study resources available through the OU Help Centre and write down advice that will help you. Make notes in the box.

End of Question

Provide your answer...

End of Activity

What are the most effective ways of structuring an assignment and using appropriate language in order to present a convincing argument to a particular audience? This is the focus of Section 5.2.

5.2 Forming an argument

Academic essays require you to form an argument. This does not mean, of course, that you need to be argumentative! When constructing an argument, you are making a case for a particular point of view on a subject. The assignment question may ask you to consider different sides of a debate or explain why people behave as they do in particular circumstances. You may need to decide which theory is best at leading people to a better understanding of an issue or solve a problem. Whatever the task, you will need to draw together the appropriate evidence and structure a narrative that leads your reader through a series of steps in your thinking. You need to show your tutor that you understand the subject, and that you know the difference between personal opinion, academic opinion, facts, examples and statistics.

In the following activity you will access a selection of resources that will help you think about how to organise your essay and how to use language cautiously. Good organisation and signposting will help your argument to flow. Careful use of language, including ‘hedging’, will help you show that you understand the limits of the evidence you are drawing on. Does the evidence make you ‘certain’ about something, or is it only ‘likely’ to be the case? Most of the time, academic writing cannot claim certainty. You need to recognise when your personal experience is colouring your interpretations of the evidence. And so on.

Start of Activity

Activity 3.13: Exploring the language and structure of argument

Allow about 1 hour 15 minutes

Start of Question

In Part A of this activity you will work through three resources that are available to all students on The Open University’s website. The resources, which are linked to below, provide information and ideas for structuring and organising your writing, and how to use cautious language. In Part B you will then consider how you might use what you have learned in TMA 02 .

End of Question

Part A

Start of Question

1. Click on the link to Developing academic English: structure of text. Organising the response in an appropriate way . Watch the video to the end and skim read the page it sits on.

2. Click on the link for Developing academic English: academic writing style. Using language appropriate to both audience and task . Watch the video to the end, and remember to skim read the page it sits on.

3. Click on the link to Hedging or using language cautiously and complete the steps. Note that this resource is more involved than those you explored in Questions 1 and 2 and will take about 20–30 minutes to work through.

End of Question

Part B

Start of Question

Make some notes here about how you might use the knowledge you have gained in Part A in your next TMA. Read the assignment and begin to formulate your approach to using evidence well in your argument.

End of Question

Provide your answer...

View discussion - Part B

End of Activity

Start of Study Note

To sum up ...

This section has introduced some important academic skills that you will need to develop as you progress through the module. Planning ahead can help you to make opportunities to practise your skills.

End of Study Note

Conclusion

This learning guide started with the following key questions:

Start of Study Note

· What are the challenges to biomedicine from a social model approach?

· How does the social model add to our understanding of the health and wellbeing of individuals?

· How has social change impacted on how we understand and approach illness, health and wellbeing?

End of Study Note

This learning guide considered challenges to biomedicine from a social model approach and discussed how the social model can aid our understanding of the health and wellbeing of individuals. By looking at our recent past, it also showed some of the developments resulting from social and policy changes.

The social model approach is based on the assumption that however much you may try to ‘treat the individual’ or tailor personalised services, at the end of the day these individuals are embedded in social worlds, relationships, power structures and cultural norms that will always impact on their personal experience of health and illness and their resilience for maintaining wellbeing.

Perhaps the key challenges from a social model approach to biomedicine is the recognition that health is cultural and political, and as a result a range of voices must be heard in relation to it. This has been illustrated by the emergence of a range of challenges to biomedicine from social and community action, for example, through the growth of activity that focuses on women’s and disabled people’s health concerns, and issues of inequality.

Although biomedicine might appear to be under threat from a number of areas, it remains dominant. It continues to play a key role in all our lives and within service provision, but it does need to be responsive to external challenges, and this is why a social model approach has been so important.

Additional selected readings

If you wish to undertake independent study this week, you may find the following resources useful:

· Corry, D. (2018) Hearing Women’s Voices: Why Women? 2018, London, Women’s Resource Centre [Online]. Available at https://thewomensresourcecentre.org.uk/wp-content/uploads/WRC-Report-2018-Full-Report-FINAL-4th-June.pdf (Accessed 9 July 2018).

· The Institute of Heath Equity website: http://www.instituteofhealthequity.org/home

· The benefits section of the Department for Work and Pensions’ website: https://www.gov.uk/browse/benefits

References

Acheson, D. (1998) Independent Inquiry into Inequalities in Health Report, London, The Stationary Office [Online]. Available at Error! Hyperlink reference not valid. (Accessed 17 July 2018).

Anderson, G. (1995) The 22 Non-Negotiable Laws of Wellness: Feel, Think, and Live Better Than You Ever Thought Possible, New York, HarperSanFrancisco.

Anderson, M. (1970) The Little Review Anthology, New York, Horizon Press.

Black D., Morris J., Smith C. and Townsend P. (1980) Inequalities In Health: Report Of A Research Working Group, London, Department of Health and Social Security. Available at Error! Hyperlink reference not valid. (Accessed 17 July 2018).

Dahlgren, G. and Whitehead, M. (2007) European Strategies for Tackling Social Inequities in Health: Levelling Up Part 2, Copenhagen, WHO Regional office for Europe [Online]. Available at Error! Hyperlink reference not valid. (Accessed 11 June 2018).

Dan, A. J. (2013) ‘Emancipatory research: then and now’, Sex Roles, vol. 68, no. 1, pp. 163−167.

Doyal, L. and Elston, M. A. (1986) ‘Women, health and medicine’, in Beechy, V. and Whitelegg, E. (eds) Women in Britain Today, Milton Keynes, Open University Press, pp. 173–208.

Great Britain. Equality Act 2010: Elizabeth II. Chapter 15 (2010) London, The Stationary Office, [Online]. Available at Error! Hyperlink reference not valid. (Accessed 9 July 2018).

Hall, S-M., McIntosh, K., Neitzert, E., Pottinger, L., Sandhu, K., Stephenson, M.-A., Reed, H. and Taylor, L. (2017) Intersecting Inequalities: The Impact of Austerity on Black and Minority Ethnic Women in the UK [Online]. Available at Error! Hyperlink reference not valid. (Accessed 9 July 2018).

Hankivsky, O. and Christoffersen, A. (2008) ‘Intersectionality and the determinants of health: a Canadian perspective’, Critical Public Health, vol. 18, no. 3, pp. 271-283 [Online]. Available at Error! Hyperlink reference not valid. (Accessed 17 July).

Henderson, R. (2014) Holistic Medicine [Online]. Available at Error! Hyperlink reference not valid. (Accessed 9 July 2018).

Iacobucci, G. (2018) ‘Medical model of care needs updating, say experts’, BMJ, vol. 360, no. k1034 [Online]. Available at Error! Hyperlink reference not valid. (Accessed 9 July 2018).

Levitt, J. (2017) ‘Exploring how the social model of disability can be re-invigorated: in response to Mike Oliver’ Disability & Society, vol. 32, no. 4, pp. 589-594 [Online]. Available at Error! Hyperlink reference not valid. (Accessed 17 July 2018).

Lorde, A. (2007) ‘Learning from the 60s’, in Sister Outsider: Essays & Speeches by Audre Lorde, Berkeley, CA, Crossing Press.

Marmot, M. (2010) Fair Society, Healthy Lives: Strategic Review of Health Inequalities in England post-2010, London, The Marmot Review [Online]. Available at Error! Hyperlink reference not valid. (Accessed 17 July 2018).

Marmot, M. (2018) ‘Inclusion health: addressing the causes of the causes’, The Lancet, vol. 391, no. 10117, pp. 186−188.

McKeown, T. (1976) The Role of Medicine: Dream, Mirage or Nemesis?, London, Nuffield Provincial Hospitals Trust.

Office for National Statistics (2010) SOC2010 Volume 3: The National Statistics Socio-economic Classification (NS-SEC rebased on SOC2010) [Online]. Available at Error! Hyperlink reference not valid. (Accessed 9 July 2018).

Parliamentary and Health Service Ombudsman (n.d.) Introduction to the Social and Medical Models of Disability [Online]. Available at Error! Hyperlink reference not valid. (Accessed 9 July 2018).

Priestley, M. (2005) ‘Disability and social inequalities’, in Romero, M. and Margolis, E. (eds) Blackwell Companion to Social Inequalities, Blackwell Publishing, Blackwell Reference Online [Online]. Available at Error! Hyperlink reference not valid. (Accessed 9 July 2018).

Public Health England (2018) Wider Determinants of Health [Online]. Available at Error! Hyperlink reference not valid. (Accessed 6 September 2018).

Reid, C., Pederson, A. and Dupéré, S. (2012) ‘Addressing diversity and inequities in health promotion: the implications of intersectional theory’, in Rootman, I., Dupéré, S., Pederson, A. and O’Neill, M. (eds) Health Promotion in Canada: Critical Perspectives on Practice, 3rd edn, Toronto, Canadian Scholars’ Press Inc.

Scope (2017) The Social Model of Disability [Online]. Available at Error! Hyperlink reference not valid. (Accessed 9 July 2018).

The Open University (2014) Writing for University: Using An Appropriate Writing Style [Online]. Available at Error! Hyperlink reference not valid. (Accessed 17 July 2018).

Women’s Health and Equality Consortium (WHEC) (2011) Why Women’s Health? [Online]. Available at Error! Hyperlink reference not valid. (Accessed 9 July 2018).

Women’s Health and Equality Consortium (WHEC) (2017) Publications [Online]. Available at Error! Hyperlink reference not valid. (Accessed 9 July 2018).

Yuill, C., Crinson, I. and Duncan, E. (2010a) ‘The social model of health’, in SAGE Key Concepts Series: Key Concepts in Health Studies [Online], London, Sage UK. Available at Error! Hyperlink reference not valid. (Accessed 17 July 2018).

Yuill, C., Crinson, I. and Duncan, E. (2010b) ‘Lay knowledge and illness attribution’, in SAGE Key Concepts Series: Key Concepts in Health Studies [Online], London, Sage UK. Available at Error! Hyperlink reference not valid. (Accessed 9 July 2018).

Acknowledgements

Grateful acknowledgement is made to the following sources:

Text

Activity 3.2: Reading 3, Yuill, C., Crinson, I., Duncan, E., Key Concepts in Health Studies, pp. 5-30. Copyright © 2010 by Chris Yuill, Iain Crinston, and Eilidh Duncan. Reprinted by permission of SAGE Publications, Ltd. 5. Copy of Licensee’s Publication. Licensee will provide Licensor with a copy of Licensee’s Publication

Illustrations

Introduction: © SolStock / iStock / Getty Images

Section 1: © kemalbas / iStock / GettyImages

Section 1.1: Dahlgren G, Whitehead M. (1991). Policies and Strategies to Promote Social Equity in Health. Stockholm, Sweden: Institute for Futures Studies.

Section 1.3: © filadendron / iStock / Getty Images

Section 2: © W. Breeze / Hulton Archive / Getty Images / Universal Images Group

Section 2.1: © Authenticated News / Getty Images / Universal Images Group

Section 3: © BBC News

Section 3.3 (photo): © Professor Michael Marmot

Section 4: © John Birdsall / John Birdsall Social Issues Photo Library / Press Association Images / Universal Images Group

Section 5: © monkeybusinessimages / iStock / Getty Images

Videos and audios

Activity 3.1: © BBC

Activity 3.3: © BBC

Activity 3.4 (Video 3.1): © BBC

Activity 3.4 (Audio 3.3): © BBC

Activity 3.6: Copyright Guardian News & Media 2018

Activity 3.8: © The King's Fund

Activity 3.9 (Video 3.4): © Courtesy of Shape Arts

Activity 3.9 (Video 3.5): © Used with permission from Scope

Every effort has been made to contact copyright holders. If any have been inadvertently overlooked the publishers will be pleased to make the necessary arrangements at the first opportunity.

Activity 3.1: Wellbeing beyond the reach of biomedicine

Part B

Discussion

Yvonne received ‘infertility investigations’ that concluded she was unable to conceive. There was no particular cause found, which meant that there was no detectable ‘defect’ to treat medically.

Back to - Part B

Activity 3.1: Wellbeing beyond the reach of biomedicine

Part

Discussion

Yvonne experienced many challenges, starting with the difficulties of talking to her family when she was experiencing shock and grief. She was grieving when there was no visible loss. I thought she also talked a lot about how being diagnosed with unexplained infertility challenged the beliefs and cultural expectations of her and her family, and this further had an impact on her wellbeing:

· There was an expectation that there should be a way of fixing her infertility (perhaps referencing a biomedical approach).

· Yvonne experienced shame in not being able to live up to the expectation that she would one day become a mum. Being from an immigrant family increased the pressure of this expectation. Perhaps the pressure of having to be positive about the situation was the worst element.

· The diagnosis interfered with her sense of identity and belonging.

· She experienced religious challenges, particularly surrounding expectations of turning to God.

Back to - Part

Activity 3.1: Wellbeing beyond the reach of biomedicine

Part

Discussion

Things that helped were simple human gestures, such as ‘being allowed to be sad’, receiving a hug and ‘being accepted for being sad’.

Back to - Part

Activity 3.1: Wellbeing beyond the reach of biomedicine

Part

Discussion

If I were taking a social model perspective, I might want to understand why immigrant families felt the pressures they do, and whether there were any inequality issues. I might also want to look at the place of women in society regarding their reproductive roles and expectations.

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Activity 3.1: Wellbeing beyond the reach of biomedicine

Part C

Discussion

Learning from an audio clip is very different from reading, and slightly different from watching a video. Compared with video, there are fewer visual distractions to listening. Similar to video, you probably wanted to listen more than once in order to engage with the questions and analyse what Yvonne was saying. A broadcast interview such as this one tends to get to the point quickly, and this one certainly packs a lot of information into a short period. You may also have found that people are more tangible and multidimensional when you can hear their voice, rather than when reading about what they said.

Regarding your skills, it may seem obvious that you are listening carefully and taking notes, and these are key abilities in many other contexts too, such as in the workplace. You are also thinking systematically and analytically (and therefore critically). For instance, you might have classified some of Yvonne’s challenges as ‘cultural’ or picked out concepts such as ‘identity’, as I did. These are examples of making connections, which is part of critical and academic thinking and may have already become second nature to you. Never underestimate the power of good listening skills!

Back to - Part C

Activity 3.2: The social model of health

Part B

Discussion

People commonly believe that lifestyle factors such as diet and exercise are simply about personal choices, whereas the social model explains that people’s behaviours are shaped by their social context. For example, social class shapes people’s lives by affecting access to material resources and the amount of control people have over their lives.

Back to - Part B

Activity 3.2: The social model of health

Part

Discussion

The biological aspects of bodies cannot be separated from social, psychological, cultural and individual processes. Identity is a good example of showing how social and cultural expectations blend with people’s psychology to shape how people present their bodies to others. It is important to be aware of the potential impact of chronic illness on identity.

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Activity 3.2: The social model of health

Part

Discussion

All cultures have developed their own norms for understanding illness and expressing its impact. South Asians express mental distress by referring to physical pain in their bodies, whereas inhabitants of a community in North East Scotland were habitually stoical when facing illness and tended not to complain or draw attention to their problems. Football sub-culture involves players masking pain to keep their place in the squad.

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Activity 3.2: The social model of health

Part

Discussion

Social scientists can tend to present an inaccurate ‘caricature’ of biomedicine. Although many criticisms are valid, one should not disregard the many strengths of biomedicine.

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Activity 3.2: The social model of health

Part

Discussion

Different political ideologies can lead to very different healthcare systems. For example, the free-market ideology of the USA has led to predominantly privatised healthcare.

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Activity 3.2: The social model of health

Part

Discussion

Beyond the medical profession, lay people possess knowledge that is shaped by personal biographies and culture. A sense of self is as important as the medical perspective, especially for people living with long-term conditions.

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Activity 3.2: The social model of health

Part

Discussion

Did you think of any metaphors? I thought of a couple. I might tell a friend that I was ‘beside myself with anger’ on a particular occasion. As another example, a pain might be ‘gnawing away’ at your insides. Metaphors can be effective tools for communication and often reveal cultural attitudes and beliefs about health and disease.

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Activity 3.3: Working with lay perspectives of illness

Part B

Discussion

You may have found it refreshing to hear a medical practitioner so deeply engaged with lay perspectives. Here are my notes in response to the questions.

Start of Table

Lay perspective described by:

How this knowledge can help:

Angela

She talked about her upbringing and religious background, particularly with regards to believing in ‘the spirit’.

She believes that her bipolar disorder is a gift from God.

Medication is also a ‘gift’.

She is able to make sense of manic and depressive episodes by linking to passages in the Bible.

The way she views medication helps it to fit with her belief system.

Dr Ascoli

A patient’s desired outcomes from medical treatment can be quite different from the medical outcomes that doctors normally work towards.

Some groups can have different cultural constructs that cause professionals confusion. For example, some ethnic minorities may refer to ‘brothers and sisters’ in a completely different sense to that normally applied in western societies.

Recognising that medical models are also culturally determined, and that taking lay views of health seriously helps patients.

Better communication between healthcare professionals and service users can broaden understanding and ‘fill the gap’.

End of Table

Back to - Part B

Activity 3.3: Working with lay perspectives of illness

Part C

Discussion

It is useful to think carefully about the origins of your own lay perspectives on health and wellbeing. Even if you are a healthcare professional, there will be areas of health of which you do not have a complete, expert grasp. If there are differences between who you would share your belief with, it might indicate that you and/or they are adhering to social pressures to behave in a certain way and hold certain beliefs. You may find it helpful to think a little more about the social pressures you feel. Are they, for example, related to the nature of the illness, or a concern about being judged? Your experience might be that not all healthcare professionals are as receptive to lay beliefs as Dr Ascoli.

Back to - Part C

Activity 3.4: ‘Women’s issues’

Part B

Discussion

The few personal accounts presented in the video and clip are good illustrations of the issues. However, if you really wanted to make a case for social change, you would clearly need more, and stronger, evidence, to represent the extent of the issue (how many people are affected, and the depth of the personal impact) and perhaps some economic statistics. I hope, however, that this activity has helped you see how the social model can be applied to some of the health and wellbeing issues women face these days.

Start of Table

Issue

Proposed social model solutions

Menopause is the butt of jokes.

Men’s blood is acceptable in films, whereas women’s blood is thought to be ‘disgusting’.

A woman can experience discrimination in the workplace because of menopausal symptoms.

Menopause needs more recognition and understanding in society generally, and especially in the workplace. Education in schools and workplaces would help. People need access to better information – in workplaces, on the internet, as well as in health centres.

Women are commonly misdiagnosed with depression rather than as going through the menopause.

Health professionals need better education about the menopause.

Girls growing up in poor families in Leeds do not have access to sanitary protection products.

Eliminate poverty in the first place.

Provide families living in poverty with free access to sanitary products.

A teacher can be in a good position to recognise menstruation issues in schoolgirls.

Provide all girls with free sanitary-protection products in schools.

Educate teachers on the issues of period poverty.

End of Table

Back to - Part B

Activity 3.5: Intersectionality – a Canadian perspective

Part B

Discussion

The authors were using the theoretical paradigm of intersectionality to explore the causes of illness and disease and how they interact to produce health inequalities.

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Activity 3.5: Intersectionality – a Canadian perspective

Part

Discussion

This is how my notes summarising the extract turned out:

· Efforts are being made to analyse the state of health, and the social determinants of health, in Canada.

· There have been calls for theoretical innovations in the areas of population health and health determinants.

· A range of conceptual work has begun responding to these calls from the perspective of social science, particularly in looking at social inclusion/exclusion. However, there are criticisms that this work has not gone far enough. Intersectionality is a promising alternative approach.

· The authors discuss the history of intersectionality and its theoretical origins, and its increasing popularity in health research and policy. Despite growing interest, there is still much to learn about intersectionality and health.

· Intersectionality is uniquely placed to shed new light on how we might eliminate health disparities when faced with health inequality, but researchers and policymakers need to be systematic about it. There are three reasons why intersectionality has value.

· First, one cannot assume that one determinant of health takes priority over any other, and people need to accept that the social determinants of health are multidimensional and overlapping.

· Second, researchers and policymakers need to be bolder in their claims about the social determinants of health, and promote an integrated approach that recognises intersectionality.

· Third, there is nothing simple about intersectionality, and it invites new ways of thinking about what happens at the various intersections of the different social categories.

In summary, Hankivsky and Christoffersen argue that intersectionality provides a valuable theoretical tool for investigating the state of health and its social determinants. This is because it goes beyond existing approaches by recognising complexity, promoting integrated and bold approaches, and inviting new ways of thinking.

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Activity 3.5: Intersectionality – a Canadian perspective

Part

Discussion

You may have noticed that Hankivsky and Christoffersen emphasise the three main reasons why they believe intersectionality is a valuable tool by signposting them with ‘firstly’, ‘secondly’ and ‘thirdly’. In addition, in the last paragraph, they began sentences with ‘Instead’, ‘In other words’, ‘Further’ and ‘Nevertheless’. These words alert the reader to how the sentence fits with the previous point, and make it easier to navigate the paragraph. You could also pick out the first sentence of each paragraph as a signpost for what the paragraph is about. The abstract signposts the whole paper and allows people to decide whether it will be useful to them.

When you write your academic essays, consider how you can refine your signposting skills. This will not only help your reader, but will also help you clarify for yourself how each of your paragraphs and claims are working together.

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Activity 3.5: Intersectionality – a Canadian perspective

Part

Discussion

When you are studying, it is helpful to get into the habit of making connections between the different topics you are reading about. Identifying how concepts, ideas and research fit together is key to developing a broad understanding of a topic.

One of the things I noticed was that the authors referred to a ‘health determinants framework’, although it was not clear which one. However, you can apply your knowledge of Dahlgren and Whitehead’s model when reading to get a general sense of what they were discussing.

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Activity 3.6: Failings in social welfare provision

Part B

Discussion

Here are a few of Laura’s criticisms:

· The processes for claiming benefits are degrading.

· Assessors such as those for Personal Independent Payments do not have the appropriate expertise.

· The welfare system is built on the assumption that people are liars.

· Policymakers are out of touch with the people affected by their policies.

Back to - Part B

Activity 3.6: Failings in social welfare provision

Part

Discussion

Effects on health and wellbeing include benefit claimants experiencing anxiety, fear and terror that they will lose their homes and not have enough money to eat. Some break down in surgeries when describing their situation; some have also expressed suicidal thoughts.

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Activity 3.7: Finding and handling health data

Part

Discussion

You could have downloaded an overview chart or something with less detail. I found a chart under ‘Health outcomes’ (Figure 3.2), which shows that for the East Midlands, although the rate of preventable deaths is decreasing, the rate of decrease was levelling off between 2013 and 2015. This would indicate that progress on ill-health prevention is slowing down.

Start of Figure

image16.png

Figure 3.2 Mortality rate from causes considered preventable in the East Midlands region (Source: Public Health England, 2018)

View description - Figure 3.2 Mortality rate from causes considered preventable in the East Midlands ...

End of Figure

It is important to develop skills in gathering and using statistical information, and this tool on Public Health England’s website stores a wealth of up-to-date data. It is disappointing that other parts of the UK are not similarly catered for!

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Activity 3.8: Addressing the determinants of health

Part B

Discussion

According to Marmot, the mortality rate is increasing in the USA. Top causes of mortality are poisoning due to drugs and alcohol; suicide; chronic liver disease (mainly caused by alcohol). Economic distress led people to take their own lives, drink alcohol and be statistically more likely to vote for Donald Trump. Marmot considered the USA to be a sign of what could happen in the UK if austerity measures, leading to economic distress, continued.

Back to - Part B

Activity 3.8: Addressing the determinants of health

Part

Discussion

Marmot demonstrated that economic distress is also evident in the UK and has increased following the recent austerity measures. Lower spending evidently has affected the quality of life for older people, although more work is needed to find out whether it will shorten lives. The North-South gap continues to widen, which indicates the effects of industrial policy in the UK. He also demonstrated that government policy, focused on improving the lives of the poorest in society, can help to close the life expectancy gap.

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Activity 3.9: Social and biomedical models in action

Part C

Discussion

The tables which you have just completed were written by the Parliamentary and Health Service Ombudsman (n.d.) in a document comparing the social and biomedical models of disability . It provides more information on the models and you may find it useful to read.

Disability can be defined in many ways and different interpretations will result in a range of adaptations in the way services are provided. The social model has inspired and empowered people with impairments and helped them to see how the world around them could adapt to meet their needs. Clearly, both the social model and the biomedical model are in evidence in the UK, and the biomedical model is not completely redundant. My mother, for example, relies heavily on mobility aids provided by an occupational therapist, without which she could not get about at home or outside without falling.

Back to - Part C

Activity 3.10: Exploring disability issues

Part B

Discussion

I had a lot of success with the simple search term ‘disability model’.

Through this search I discovered disabled people tweeting who were often trying to get people to understand what it is like to be disabled. I also found a charity making an announcement about a policy change in Australia, and a social worker tweeting about a research conference. In addition, I saw tweets in my results discussing role models, which was an interesting diversion. Many of the tweets were campaigning for the rights of disabled people in relation to a social model approach. The majority of the tweets I looked at were more concerned with social attitudes than policy, and I thought that social media was an appropriate medium for disseminating viewpoints seeking to change attitudes.

In relation to the style of tweets, I found an excess of hashtags and ‘mentions’ (i.e. adding other tweeters to a post) to be off-putting, and felt drawn to tweets that offered links to further information.

Back to - Part B

Activity 3.11: Considering the way forward for the social model

Part A

Discussion

I hope you enjoyed reading this article. It can be easy to think of models as ‘fixed’, so you may have found it refreshing to see a discussion about how a model could be updated.

Back to - Part A

Activity 3.11: Considering the way forward for the social model

Part B

Discussion

The function of an abstract is to outline the content of an article.

Back to - Part B

Activity 3.11: Considering the way forward for the social model

Part

Discussion

Take another look at the abstract if you weren’t sure about the answer.

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Activity 3.11: Considering the way forward for the social model

Part

Discussion

Levitt states this in the introduction.

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Activity 3.11: Considering the way forward for the social model

Part

Discussion

This statement is true – Levitt makes this clear in the introduction.

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Activity 3.11: Considering the way forward for the social model

Part

Discussion

Levitt is writing in the first person, making it clear that he is expressing his own opinions in addition to drawing on the work of others to provide evidence.

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Activity 3.11: Considering the way forward for the social model

Part

Discussion

Did you get the answer right? Well done if you did – you would need to have read the question and article very closely. Regarding the false options:

· Levitt does not say that the social model unnecessarily restricted people’s participation in society.

· The social model may change society’s understanding of disability, but it is not mentioned in Oliver’s quote.

· The social model does recognise people’s impairments, but views the role of impairment in understanding disability differently. Levitt quotes Oliver as saying the social model sees people as disabled by barriers in society rather than by their impairment.

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Activity 3.11: Considering the way forward for the social model

Part

Discussion

Oliver describes the social model as a tool to improve people’s lives, but Pinder claimed the social model could be a political tool.

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Activity 3.11: Considering the way forward for the social model

Part

Discussion

Levitt does want emancipatory research to be associated with the social model, but he also wants it to be open to other forms of research.

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Activity 3.11: Considering the way forward for the social model

Part

Discussion

Levitt would like to widen the application of the social model and make it more flexible, but not replace it.

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Activity 3.12: Writing effectively

Part

Discussion

Keep these challenges in mind as you will need them in the next question. For the moment, however, it is worth remembering that many students experience a number of writing challenges. When grappling with new ideas, it can be difficult to organise your thoughts in response to an assignment question. This can have all sorts of adverse effects on your grammar, spelling and structuring, as well as on your ability to write in your own words rather than mirror what you have been reading. Do remember that the more you practise, the easier it will get.

In addition, thinking carefully about the assignment task is very important. Marks are awarded for how well you answer the question or address the task, and each assignment asks you to apply particular knowledge and skills. Time spent analysing the task and planning your answer is never wasted.

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Activity 3.12: Writing effectively

Part

Discussion

You may already be familiar with the topics covered in ‘Writing for University’, but it helps to remind yourself of some of the basic principles and skills of essay writing. At Level 2 you need to be aware of the audience you are writing for and the different styles you need to adopt according to the task. For example, when writing for an academic audience, including your tutor, you should use technical language and adopt a more formal tone than when writing for something like a lifestyle blog. Similarly, now that you have considered how Twitter can be used for study purposes, you have seen how concisely ideas can be portrayed when necessary. An important consideration for writing tweets is how to grab people’s attention.

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Activity 3.13: Exploring the language and structure of argument

Part B

Discussion

I hope you found these resources interesting and engaging. You may already have thought about some of the ideas, research and case examples that can illustrate your argument, and how to bring them together.

Back to - Part B

Figure 3.1 The determinants of health (Dahlgren and Whitehead, 1993; in Dahlgren and Whitehead, 2007)

Description

Figure 1.1 is a blue and white colour drawing that overall is semi-circular in shape with a single circular image in the centre. From this central image are four emanating layers each containing slightly larger rainbow shaped areas. The second, third and fifth layers contain one continuous section and the fourth layer is divided up into eight sections. In the central image is a circle in which there is an abstract representation of a range of people of all ages. Under this are the words ‘Age, sex and constitutional factors’. In the next rainbow shaped layer are the words ‘Individual lifestyle factors’. The third layer contains the words ‘Social and community networks’. Working from a clockwise direction each of the sections in fourth layer contains the following words: 1. ‘Agriculture and food production’, 2. ‘Education’, 3. ‘Work environment’, 4. ‘Living and working conditions’, 5. ‘Unemployment’, 6. ‘Water and sanitation’, 7. ‘Health care services’ and 8. ‘Housing’. In the final rainbow shaped layer are the words ‘General socioeconomic, cultural and environmental conditions’.

Back to - Figure 3.1 The determinants of health (Dahlgren and Whitehead, 1993; in Dahlgren and Whitehead, 2007)

There are many things and ideas associated with intersectionality, as suggested by this word cloud

Description

This image shows a word cloud of words related to ‘intersectionality’. Some of the most prominent words include ‘determinant’, ‘actions’, ‘society’, ‘social’ and ‘gender’.

Back to - There are many things and ideas associated with intersectionality, as suggested by this word cloud

The UK political landscape in 2017 showing how constituencies voted in the General Election

Description

The image shows a map of how constituencies in the UK voted in the 2017 General Election. At a general level England is dominated by blue for the Conservatives; Scotland is dominated by yellow, for the Scottish National Party; Wales is split between blue for the Conservatives and green for Plaid Cymru; while Northern Ireland is split between dark green for the Green Party and dark red for the Democratic Unionist Party.

Back to - The UK political landscape in 2017 showing how constituencies voted in the General Election

Figure 3.2 Mortality rate from causes considered preventable in the East Midlands region (Source: Public Health England, 2018)

Description

The graph shows the mortality rate from causes considered preventable for the East Midlands region. The y-axis shows mortality per 100,000, ranging from 100,000 to 400,000. The x-axis shows years ranging from 2001 to 2015. The graph compares data for the East Midlands against England as whole, with data for England shown in black and data for the East Midlands shown in yellow (indicating years when the mortality rate was not significantly different to that for England) and, in 2002 and 2007, red (indicating years when the mortality rate was significantly worse than in England). Overall the data shows that the rate of preventable deaths is decreasing, but levels off between 2013 and 2015.

Back to - Figure 3.2 Mortality rate from causes considered preventable in the East Midlands region (Source: Public Health England, 2018)

Figure 3.3 Number of years from birth spent with disability, persons by neighbourhood income level, England 2001 (Source: Marmot, 2010, p. 51)

Description

The title of the graph is ‘Number of years from birth spent with disability, persons by neighbourhood income level, England 2001’. The y-axis shows ‘Years’, which run from 0 to 30 years in units of 5. The x-axis shows ‘Neighbourhood Income Deprivation’ and runs from 0–100 in units of 5. It is indicated on the graph that on the neighbourhood income deprivation scale, 0 indicates the most deprived and 100 indicates the least deprived. On the graph itself are plotted many green points that run right across the x-axis but are mainly concentrated between 10 and 25 on the y-axis. They indicate individuals. A black trend line has been added to indicate the flow of these data points. It runs from just above 20 years down to 12 years on the y-axis, indicating that individuals living in the most deprived areas also live the greatest number of years with a disability.

Back to - Figure 3.3 Number of years from birth spent with disability, persons by neighbourhood income level, England 2001 (Source: Marmot, 2010, p. 51)

Audio 3.1 Yvonne’s experience of childlessness

Transcript

YVONNE JOHN

I had been trying for three years naturally with my husband, and within that time we had infertility investigations. And at the end of that my consultant sat with me and told me I had unexplained infertility.

JENNI MURRAY

How difficult was it for you to tell your story within your family?

YVONNE JOHN

It was really hard. It was, I think, when you’re in so much pain and so much grief you don’t understand it for yourself anyway, so it’s really hard to find the words to describe it. And what I found is then, trying to tell my family, because I couldn’t explain for myself, it was really hard to tell them. And when I did try and tell them they all wanted to fix it because no one wants to see you hurt and in pain. They just automatically wanted to give you all the, you know, ‘You shouldn’t feel that way’, ‘It’s OK’, ‘Just keep praying about it’, ‘It’s God’s will’. You know, I had so many things that really were unhelpful, so it was just a really difficult time for me.

JENNI MURRAY

And what about friends?

YVONNE JOHN

Friends were the same. Again, no one wants to see you be hurt so they just want to comfort you and give you things like, you know, ‘Well you’ve got a good job’, ‘Have one of my children’, ‘It’s all OK’. And no one really allows you to be that sad about it.

JENNI MURRAY

You used the word ‘grieving’ a lot. Why?

YVONNE JOHN

Because it is a sadness. It’s this place where you don’t understand, and no one understands why because you haven’t lost anything. But we have lost the dream of being mothers. It’s something we had, a lot of women from childhood, we were brought up hearing, ‘When you become a mum you’ll understand’. You know, I remember my parents telling me all the things that I did that I’ll get back when I was going to be a mother. So, I always knew I was supposed to be a mum. And all of a sudden I was in this place where it wasn’t going to happen and I didn’t know what that meant for me or my marriage and I didn’t know who I was anymore. Where did I belong?

JENNI MURRAY

We heard women talking about this last week. Why is it a taboo subject, particularly among women of colour? I know you have two aunts who don’t have children.

YVONNE JOHN

That’s right, yeah. What I found, and it’s something I’ve experienced myself, but I talk to my black friends about it just to see what their experiences were around motherhood and the whole notion of becoming a mum. And one of the things that was very common with all our experiences was the shame. So, being first generation British it was the pride that our parents had when they come to this country, the racism they went through, the things that they stood up for, to afford us this privilege to be in England, to be educated in England, to have lives and good jobs because they fought a lot for that.

So, to come here and show any weakness or shame or negativity in any way wasn’t an option. So it was always about hiding all of that and not talking about it. And also, I found religion was another big thing. So, it was all about praying, turning to God. And I also felt like if we did talk about it, it was like we didn’t trust God because instead of talking to someone about it we should be on our knees praying. And believing and trusting in God and in the absence of that it almost feels like you don’t trust God, or you don’t believe in him, when actually for me that isn’t true. But that was the experience I had from it.

JENNI MURRAY

What kind of things in the period that you’ve gone through have you found helpful and comforting from other people?

YVONNE JOHN

Was being allowed to be sad. Somebody saying to me, ‘Oh my gosh, that sounds really difficult’ was one of the best things I ever heard. And getting a hug as well. It’s being allowed to be sad and being accepted for being sad. You know, even things like when I can’t go to my friends’ birthday, my goddaughter’s birthday party because actually it’s so painful to be amongst parents and young children. And for her to say, ‘You know what, I really understand, it’s OK, let’s have time on our own and spend that together instead’.

JENNI MURRAY

And just one more question. Interestingly, ‘childfree’ has been the sort of accepted expression for women who don’t have children. You used ‘childless’, why?

YVONNE JOHN

Because ‘childfree’ is by choice, so we use ‘childless’ by circumstances to explain that actually it wasn’t our choice not to have children.

Back to - Audio 3.1 Yvonne’s experience of childlessness

Audio 3.2 Mental health: mad or sad

Transcript

ANGELA

My dad’s a pastor and I come from a Pentecostal background, so it’s a lot of clapping, singing, shouting. We really believe in the spirit. It’s very hard for a lot of the West to understand.

I see my bipolar definitely as a gift from God. Now, in the manic phase you’re entering into what I would call a ‘spiritual dimension’ when I then read passages in the Bible, I’m like, ‘Wow, that means I’ve entered into a spiritual dimension’. So, I equate a lot of my religious beliefs to my manic experiences and, similar to my depression, I get some kind of healing because if I can identify people in my faith that have gone through my experiences then I use those same strategies for myself.

DR MICOL ASCOLI

The art of cultural psychiatry is precisely to explore these different views to get to an area of agreement. And I think this work starts from the awareness that your own explanatory model is just as culturally determined as the patient’s one.

The western training can be very reassuring. You’ve got an international classification of mental disease. You’ve got a bulk of evidence that certain treatments work on symptoms, etc., etc. It took me a few years to realise that sometimes the outcome I look for are not the outcomes the patients look for.

I look for symptom relief, discharge, improvement in functioning, quality of life. But quality of life means different things to different people. Some patients tell me ‘I’m quite happy to come to the hospital three times a year if this means that I can enjoy a satisfactory sexual life and a good set of activities and be free from side effects from medications’. People will talk about their culture, their belief, if they feel you are interested and if they feel they can do it safely without being stigmatised or without these resulting in a longer admission or high doses of medication.

ANGELA

Whenever I talk to mental health professionals they normally get involved when I have had a manic experience. They would pick me up from various places. They would say, ‘How did you get there?’ and then I would say to them, ‘I was flown there on the wings of the cloud’. Literally, that’s how my spiritual experience takes me. So, they would say, ‘Right, “wings of the cloud” delusion’. In a lot of the cases I was sectioned.

DR MICOL ASCOLI

People from ethnic minorities are not always happy about the degree to which they perceive the problems are understood by mental health professionals. Things are to be improved, there’s no doubt about it.

There are huge variations in what is considered normal and abnormal in different cultures. A patient who tells you ‘I’ve got 150 brothers and sisters’, what does he mean? Maybe it’s just a family system, where cousins of first, second and third degree are considered as, and called as, ‘brothers’. Tolerating a degree of uncertainty of meanings is quite hard and sometimes painful I think for us.

CLAUDIA HAMMOND

So, if someone is sitting in front of you, in practice what do you do that’s different?

DR MICOL ASCOLI

You start with asking simple questions. ‘How do you call this problem? What does it do to you? What have you tried before? What’s causing it in your view?’ And then a lot of meanings come out of it. And then you try to accommodate into the care plan the things that the patient would want to do about it with the common goal of the patients getting better and feeling better.

For example, I did allow patients to have leave and go to a traditional healer or to a spiritual healer.

CLAUDIA HAMMOND

If I were to come to you and say what I’m having is a spiritual experience, but what you want to do is to treat it with medication, there’s always going to be this divide isn’t there?

DR MICOL ASCOLI

Not necessarily. There are ways to fill the gap. For example, you can talk the medication through and show how it can make people stronger against, for example, spirit intrusions or possessions. And also, I think we have to consider that in a globalised world explanatory models are also sometimes multiple. It’s not like you either believe in spirits or you believe in mental illness. Sometimes you believe in both.

ANGELA

The reason why I take medication even though I believe the spirit is the primary force, it’s because when I am manic it’s a gift that I believe that is given to me.

Back to - Audio 3.2 Mental health: mad or sad

Video 3.1 The menopause: I was taken aback by how crazy I felt

Transcript

[MUSIC PLAYING]

ALLISON PEARSON

All I had in my mind was that sort of joke version of the menopause, the sort of Les Dawson, ‘Oo my mother-in-law, she’s got hot flushes’, kind of thing. I was taken aback by how crazy I felt, absolutely out of control.

[On screen: Allison Pearson’s experiences with the menopause inspired her latest novel, How Hard Can It Be?]

Most movies and popular entertainment is men’s blood, and that’s OK. Gory violence, heads being blown off, that’s all completely standard. But women’s blood, which is not violent, is supposed to be disgusting. So I thought I’ll tackle it head on. I will become the Quentin Tarantino of the menopause.

[On screen: How did menopause affect your health and relationships?]

I really wish I’d known what was happening to me so I could have discussed it with my children, instead of them thinking I was like some kind of a souped-up Lady Macbeth. I became very frightened of things, like going on an escalator. I literally couldn’t get out of the house.

[On screen: What treatment did you seek?]

Eventually went to see a gynaecologist and he said, ‘So many women come in here having been given antidepressants’, and he said, ‘They’re not depressed. It’s their hormones leaving their body.’ And he gave them HRT and almost immediately they felt better. And honestly, I was so grateful to have that oestrogen.

[On screen: What change in attitudes do you want to see?]

We know that puberty is a tumultuous time and that teenagers are likely to be very tricky. And maybe it’s just knowing that menopause is a very tricky time, and mums are likely to be a bit difficult, as well.

Some women deal with it fine, but a lot of people have a lot of trouble. So I think there should be more understanding in the workplace about it.

I spoke to a senior policewoman, actually, who is retired from the force, because she said she’d had such a terrible menopause. And she felt she’d been extremely discriminated against, because she wasn’t functioning very well for a year or 18 months.

Yes, menopause could diminish someone’s abilities for a while, but that doesn’t mean that they need to be chucked on the scrap heap. On the contrary.

Back to - Video 3.1 The menopause: I was taken aback by how crazy I felt

Audio 3.3 Why ‘period poverty’ is a bigger problem than we think

Transcript

FEMALE 1

I wrapped a sock around my underwear just to stop the bleeding because I didn’t want to get shouted at. And I wrapped a whole tissue roll around my underwear just to keep my underwear dry until I got home.

I kept the secret up until about, I was 14 years old and then I started asking, asking for help.

TRACY GEE

14 and you started at 11, three years?

FEMALE 1

Yeah. Using anything I could. I once sellotaped tissue to my underwear. I didn’t know, like, what else to do. I didn’t get any money because my mum was a single parent and she had five mouths to feed. So, there wasn’t much left over money in the pot to be giving to us.

TRACY GEE

Did you miss any time at school?

FEMALE 1

Yeah. I’d just take a few days a month, every month, just because I was in pain.

TRACY GEE

Every single month you were truanting?

FEMALE 1

Yeah.

TRACY GEE

And was this physical pain, emotional pain?

FEMALE 1

Both.

FEMALE 2

When I were in my period I started taking time off school because I didn’t know, like, what were actually going on with my body and that. And that’s made my attendance really low. And I were getting in trouble. One day the teachers came to my house and asked why I’m not at school and they actually took me to school. I thought it were only happening to me and I didn’t know anything were happening to anyone else. So, I was scared, and I wanted to stay at home so then I knew I was safe.

TRACY GEE

What did it mean to you then to have that teacher, to have that one teacher that you could talk to, who could help you, could even give you those things that you needed?

FEMALE 2

She were amazing. She helped me through everything. Like, family problems and periods, everything like that. She explained loads to me like, but I didn’t understand. I didn’t want to speak to no one, but that’s the best thing to do is speak to someone so then you get the help what you need.

JANE GARVEY

Two teenage girls from Leeds talking to Tracey Gee who is a BBC Radio Leeds reporter. And that teacher does sound brilliant doesn’t she? Well done to her.

Tina Lesley is a public health worker in Leeds, also a campaigner and charity worker. And, Tina, you set up a charity called Freedom for Girls. What was that intended to do?

TINA LESLIE

Freedom for Girls is actually a name under another charity and it’s a campaign and also it’s around safe, reusable and usable sanitary protection for girls in the UK, but also in the world as well. There’s 150 plus million women in the world who don’t have access to sanitary protection.

JANE GARVEY

You probably, though, didn’t expect that there would be some living in Leeds. Were you shocked?

TINA LESLIE

Not at all, no, I wasn’t shocked at all. I sort of knew it was happening. I knew homeless women used socks. We had an idea that there was maybe something happening in schools. It’s linked to poverty: 25,000 visits to food banks just in Leeds last year. The teacher who brought it forward to me knew of the work I was doing in Africa and Kenya and she said ‘Is there anything we can do about it?’ So, I said ‘OK, let’s try and do something about it’. We need to give these girls dignity back.

We don’t know how many there is in the UK, how many girls, how many women it’s happening to. We know 60% of women in Kenya don’t have access to sanitary protection. In India, 67%. In the UK, we have no idea. We need to know, we need more research on it.

JANE GARVEY

The fact, though, that those two girls were missing school. I mean, that is appalling. That is something you associate with the Third World isn’t it?

TINA LESLIE

It is. It definitely is. And I’m sure with this campaign and with, you know, thank you for letting me come on today and talk about it. It’s one of those things that people don’t talk about, you know, half the population have some sort of period at some time in their life and it’s not talked about. There’s still shame and embarrassment about it. But we need teachers to talk to us, talk to the girls. Education younger as well, a lot younger.

JANE GARVEY

Yes, because they are starting their periods often at primary school.

TINA LESLIE

Nine or ten, yes.

JANE GARVEY

It will come as a shock to people. We have to acknowledge this, that mothers, and I say mothers specifically because of this particular area I suppose, do not think to provide or are unable to provide their daughters with sanitary towels or tampons.

TINA LESLIE

That’s right, yeah. I mean if you’re accessing a food bank because you’re in crisis for food, it’s just like Kenya, if you’ve got no food you’ve got no money for sanitary protection. And it’s the same, if you have a mum with two teenage girls that’s a lot of money each month when you’re on zero hours contracts, you’re on some sort of benefits, you’re on low income, it’s the working poor that we’re looking at. You know, in this day and age it’s not actually people who are on benefits.

JANE GARVEY

So very simply, Tina, your advice might be, if you’re in a position to donate to a food bank in your local supermarket, think perhaps sometimes about giving sanitary towels?

TINA LESLIE

Exactly, yes.

Back to - Audio 3.3 Why ‘period poverty’ is a bigger problem than we think

Video 3.2 Labour MP Laura Pidcock talks to Owen Jones: ‘The DWP has caused fear and terror’

Transcript

OWEN JONES

Is that the argument, because like, politics sometimes ends up like, it’s all a bit of a joke, where you see people in your surgeries who are suffering as a consequence of policies by Tory MPs. And then you’re supposed to go, ‘Do you know what? Do you want a cheeky little pint?’ Is that what it was?

LAURA PIDCOCK

I know, I know. And actually I see my time here in Westminster as just Monday to Thursday, head down, look for any opportunity to represent your constituents. The idea of going and getting really drunk with Tory MPs, and separating out those two issues is fundamentally flawed for me because I can’t have people breaking down in my surgeries every single weekend, suicidal, with some of the unbelievable welfare reforms. I can’t have people suffering incredibly and not connect that to national decisions of Tory MPs.

I am sure there are good people on the government benches. But they are shielded by their own privilege. And I genuinely think if they had walked a few days in the life of some of my constituents, then they would have a very different view. Or if they had grown up in those communities, they’d have a very different view of how this country should be run.

OWEN JONES

So you talked about the benefit cuts which your constituents have suffered and so on. Tell me about the impact, because the government, they’ll say, ‘Well, we just got to cut back on money’. And ‘We’re making work pay’, and all this dog whistle stuff about scroungers and skivers you see in the British press. What’s the reality on the ground? What do you see in your surgeries?

LAURA PIDCOCK

People that are suicidal, without a doubt. I represent an area that has the highest numbers of suicides. As my colleague Dan Carden said in the chamber, sometimes people will cry first and then tell you the story later because they’re just trying to, it’s just like a relief to speak to somebody about it. I think, right, it’s like a low level – and I don’t say that to devalue anyone’s experience – but there is – what is permeating our society is, at the moment, is a collective experience of, like, ‘terror’ might be, may be a bit dramatic – but certainly fear, like lots of fear – to some people, it is terror – that their house is going to be taken off them, that they’re not going to have enough money to eat.

The Department for Work and Pensions is a national disgrace. The way it treats people, the facelessness, the people come and say, like, ‘I feel like a criminal, please look at this letter’. And so there’s fear. There’s terror. There is anxiety. And –

OWEN JONES

What sort of benefit cuts are we talking about? What are the worst kind of specific ones?

LAURA PIDCOCK

Well, you’ve heard of this. But I don’t think we can repeat it enough. But the Work Capability Assessments are particularly degrading, similarly with the Personal Independence Payments are extremely degrading.

OWEN JONES

This is for disabled people.

LAURA PIDCOCK

That’s right. So it replaces Disability Living Allowance. They’re not carried out by medical experts, but so-called ‘medical professionals’. But they don’t have expertise. And what this is doing, and the whole system, I think – and I’m particularly interested in what an ethical security system would look like – it’s built on the presumption that people are liars. And I think it has to be built on the presumption that people are telling the truth. And yes, of course, we will root out those people that will be fraudulent. But they’re so few in number that it’s barely worth talking about, as you know.

There is a systemic failure of understanding the nature of poverty in the DWP and the nature of unemployment because, and this is back to ideology, because it is a system designed, specifically Universal Credit, by people that haven’t been in prolonged periods of unemployment.

Back to - Video 3.2 Labour MP Laura Pidcock talks to Owen Jones: ‘The DWP has caused fear and terror’

Video 3.3 Sir Michael Marmot: Prioritising and developing further action on reducing the social gradient in health

Transcript

[MUSIC PLAYING]

SIR MICHAEL MARMOT

What good does it do to treat people and send them back to the conditions that made them sick? We need to address the conditions that make people sick. I hope you’ve all seen this.

Life expectancy by local authority classified according to deprivation.

[On screen: a graph called ‘Life expectancy and disability-free life expectancy (DFLE) at birth, males by neighborhood deprivation, England, 1999–2003 and 2009–2013’.]

The top graph is life expectancy. Each dot is a neighbourhood.

So to the right, as you look at it, you’ve got the most affluent local authorities. It’s what I’ve been calling for several decades the ‘social gradient’.

I want to start somewhere else, the United States, because if we’re not careful, this might be where we’re headed, a cautionary tale.

All-cause mortality, age 45 to 54.

[On screen: a graph showing ‘All-cause mortality, ages 45–54 for US white non-Hispanics, US Hispanics and 6 comparison countries’. The comparison countries are France, Germany, United Kingdom, Canada, Australia and Sweden.]

From 1990 to 2012, France, Germany, the UK, Canada, Australia, Sweden, it’s coming down, and US, non-Hispanic whites, mortality is going up. Things are supposed to get better all the time, aren’t they? And the causes? Number one, poisonings due to drugs and alcohol. Number two, suicide. Number three, chronic liver disease, which is mainly alcohol.

Now, here’s a salutary figure. Drug, alcohol and suicide mortality rate quartiles.

[On screen: a bar chart showing ‘Trump overperformance, by drug, alcohol and suicide rate quartile’. The bar chart compares the US overall with the Industrial Midwest, New England and Appalachia.]

Look at the Industrial Midwest. The higher the mortality from drugs, alcohol and suicide, the more likely were people to vote for Donald Trump. And those same areas by economic distress.

The economic distress that led people to take their own lives, and die of alcohol and the like was the same kind of economic distress that led to them voting for Trump. So when I say the US might be our future, we need to be careful.

We published this in the summer, looking at life expectancy, England, 2006 to 2015.

[On screen: a graph showing ‘Life expectancy England 2006–2015’.]

From 2010 on, flat for women, nearly flat for men. Has that slowdown in life expectancy occurred because we’ve reached peak life expectancy?

Well, 2006 to 2010 for various European countries, it slowed down in all these European countries, 2011 to 2015.

[On screen: a graph showing ‘Life expectancy increase 2006–, 2011–2015’ for males. Twenty-five European countries are ranked, from Estonia with the greatest rate of increase in life expectancy to Germany with the lowest rate of increase. The United Kingdom has the second lowest rate of increase.]

But this is males. We’re second bottom. And females, we’re bottom in that slowdown.

[On screen: a graph showing ‘Life expectancy increase 2006–, 2011–2015’ for females. Twenty-five European countries are ranked, from Luxembourg with the greatest rate of increase in life expectancy to the United Kingdom with the lowest rate of increase.]

So it’s not that we’ve reached the peak because it’s still rising in other countries.

Is austerity causing this? The cuts in spending, in social care, the adult component of social care has been greater than 6% from 2009–10, at a time when the elderly population, 65 and above, increased by 1/6th. The spending on health care per person is set to go down. That will impact on the quality of life of older people, but I don’t know whether it led to shortening of life. But it’s urgent to try and find out.

During the 1980s, there was no North-South difference, and mortality was rising, particularly in young men.

[On screen: a graph showing ‘Mortality England North and South 25–34’. The x-axis covers the period 1965 to 2015; recession periods are marked out at around 1974 to 1975, 1980, 1990 and 2008. The y-axis shows standardised mortality per 10,000.]

I think you can see industrial policy writ large in these figures. Suicide was going up, alcohol-related deaths. That’s why I say the US is a cautionary tale. And then in the mid-’90s, things got better. And in the South, it was the growth of the service sector, the loss of manufacturing jobs. Continued to rise in the North, and then finally started coming down. But the North-South gap continues.

Can strategies to reduce health inequalities work? Margaret Whitehead and her colleagues in Liverpool looked at the poorest 20% of local authorities and compared them with the average.

[On screen: figure showing ‘Trends in life expectancy gap between most deprived areas and the average’.]

For males and females in months, in the years before New Labour’s strategy, life expectancy gap between the poorest 20% and the average was increasing. During the strategy, it decreased. When we got a new government and a different set of policies, it started increasing again.

So it’s consistent with saying – I know this will be a shock – government policy can make a difference. I did my English review, Fair Society, Healthy Lives.

[On screen: a slide showing the six policy objectives of Fair Society, Healthy Lifes. These are: A. Give every child the best start in life. B. Enable all children, young people and adults to maximise their capabilities and have control over their lives. C. Create fair employment and good work for all. D. Ensure healthy standard of living for all. E. Create and develop healthy and sustainable places and communities. F. Strengthen the role and impact of ill health prevention.]

We had six domains of recommendations: to give every child the best start in life; education; and lifelong learning; employment; and working conditions. Everybody in a rich society should have at least the minimum income necessary for a healthy life. What a radical idea. Healthy and sustainable places to live and work, and taking a social determinist approach to prevention.

So what are we doing about child poverty? Well, between May 2015 and April 2019 – these are IFS figures – the long run in impact of tax and benefit forms by income decile – look at working age families with children.

[On screen: a graph showing the ‘Long-run impact of tax and benefit reforms introduced between May 2015 and April 2019 by income deciles and household type (including universal credit)’.]

In the poorest decile, the changes to the tax and benefit system will lead to a 10% drop in income, then 12% for the second poorest, and then the more money you have, the better off you do as a result of changes to the tax and benefit system.

So our government policy, set in the 2015 budget and not changed, explicit government policy, is to increase inequality and make things worse. I don’t care who the government is. I would like them to look at the health equity impact of all their policies. And anything that makes life worse for families with children will, other things equal, have an adverse impact on health inequalities.

So I come back to where I started. What good does it do to treat people and send them back to the conditions that made them sick?

Back to - Video 3.3 Sir Michael Marmot: Prioritising and developing further action on reducing the social gradient in health

Video 3.4 Social model of disability

Transcript

[On screen: Social Model: Definition]

NARRATOR

According to the Medical Model of disability, the word ‘disabled’ means less able. Less able to achieve your potential. Less able to have meaningful relationships. Less able to play an active part in the world around you and that this is just your bad luck.

This outdated view of the world puts the responsibility of overcoming disabling barriers on the person with an impairment. But this idea is changing …

The more modern, Social Model of Disability says that a person doesn’t ‘have a disability’ but that they are ‘disabled’. They’re disabled by society. It is the attitudes and physical barriers imposed on them by society that prevents them from achieving their potential.

The Social Model was developed by disabled people and their allies to help them take action against discrimination and to empower people to find solutions, remove barriers and campaign together for equality and human rights. They showed how people with lots of different impairments face many of the same problems. These disabling barriers include prejudiced opinions and attitudes, restricted access and people being systematically excluded.

The social model looks for the ways that society can be planned and organised in order to provide accessibility, independence and opportunity in a way that enables people, rather than ‘disables’ them.

What we learn from the social model of disability is that disability is a social construct created by social barriers, barriers which can be eliminated. We learn that it is the responsibility of government, public spaces, businesses and individual people to make the changes, to increase the access and build a more equal society where everyone has the opportunity to reach their full potential.

Back to - Video 3.4 Social model of disability

Video 3.5 What is the social model of disability?

Transcript

OSSIE STUART (Disability consultant)

I always felt being a disabled person was a problem. After learning about the social model, it challenged me to look at disability completely differently. I myself was able to gain some confidence and self-esteem.

IAN MACRAE (Editor, Disability Now)

The social model basically says, we are people with impairments, and those impairments clearly have an impact on how we live our lives. But the impairments are not the things which disable us.

MIK SCARLET (Broadcaster and journalist)

I’m disabled by the world around me. And if the world was more accessible, I would be less disabled. And then I would just be left with my impairment, i.e. what doesn’t work. It’s not that my legs don’t work that’s disabling me. It’s the fact that if I want to – if I’m on a flat surface, I can wheel around fine, I’m wonderfully happy. It’s only when I come up to a flight of stairs.

ALICE MAYNARD (Chair (2008–2014), Scope)

As a wheelchair user, you have a slightly easier job of explaining the social model. Whereas if you’re trying to explain the less physical barriers, it’s much harder.

LAURENCE CLARK (Comedian and writer)

There’s barriers everywhere in life to do with how we communicate, to do with people’s attitudes.

KIRUNA STAMELL (Actress)

Discovering the social model actually was a massive liberation on another level. Yeah, I was being treated differently. And no, it wasn’t me being deficient. It was everybody else’s social anxieties that were being projected on to me.

LAURENCE CLARK

The blame for you not fitting in is no longer on your shoulders.

IAN MACRAE

Suddenly, my disability is out there and not in here. It was what made me realise that I was something beyond the thing that other people thought I was.

MIK SCARLET

It’s a real liberating thing. But it also means you can change it. We can say to the world, look, you must put a lift in this building. You must make sure that the signage is readable for people with vision impairment.

KIRUNA STAMELL

If you want that equality to be real, you’ve really got to then tackle the inequality people are experiencing in schools, in workplaces, with transport.

IAN MACRAE

The main reason that the social model, I think, is important to disabled people is that it allows us to be a community. You achieve a whole lot more as a group.

MIK SCARLET

As long as we as disabled people make sure that our voices are heard and that all those people that support us also have their voices heard, I think we will get there.

ALICE MAYNARD

I hope that Scope is doing work that will help disabled people to become prouder of who we are, pushing boundaries around who can be included and where.

LAURENCE CLARK

It comes a glorious day, if it ever came, where all the barriers went. We’d just be people with impairments. We wouldn’t be disabled people anymore.

ANNOUNCER

Find out more about Scope’s work and how to get involved by clicking below to subscribe to our YouTube channel.

[MUSIC PLAYING]

Back to - Video 3.5 What is the social model of disability?

Page 2 of 2 9th October 2019

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