Ethnographic Interviews: Second Generation Transnationalism, 2019
O R I G I N A L P A P E R
Exposure and Exclusion: Disenfranchised Biological Citizenship among the First-Generation Korean Americans
Taewoo Kim • Charlotte Haney •
Janis Faye Hutchinson
Published online: 10 October 2012
� Springer Science+Business Media New York 2012
Abstract Based on fieldwork with a highly uninsured and underinsured Korean American population, this article maps how the current healthcare system in the
United States disenfranchises those of marginal insurance status. The vulnerability
of these disenfranchised biological citizens is multiplied through exposure to dis-
proportional health risks compounded by exclusion from essential healthcare. The
first-generation Korean Americans, who commonly work in small businesses, face
the double burden of increased health risks from long, stress-laden work hours and
lack of access to healthcare due to the prohibitive costs of health insurance for small
business owners. Even as their health needs become critical, their insurance status
and costly medical bills discourage them from visiting healthcare institutions,
leaving Korean Americans outside the ‘‘political economy of hope’’ (Good, Cult
Med Psychiatry 52:61–69, 2001). Through an ethnographic examination of the daily
practice of doing-without-health among a marginalized sub-group in American
society, this paper articulates how disenfranchised biological citizenship goes
beyond creating institutional barriers to healthcare to shaping subjectivities of the
disenfranchised.
T. Kim (&) Department of Anthropology, Chonnam National University, Gwangju 500-757, South Korea
e-mail: [email protected]
C. Haney
Department of Anthropology and Cross-Cultural Studies, University of Houston, Clear Lake,
TX 77058, USA
e-mail: [email protected]
J. F. Hutchinson
Department of Comparative Cultural Studies, University of Houston, University Park,
TX 77204, USA
e-mail: [email protected]
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DOI 10.1007/s11013-012-9278-7
Keywords Biological citizenship � Risk � Uninsured � Underinsured � Korean Americans
Introduction
In his book The Politics of Life Itself, Nikolas Rose uses the term biological citizen ‘‘to encompass all those citizenship projects that have linked their conceptions of
citizens to beliefs about the biological existence of human beings’’ (2007, p. 132).
He further argues that producing vitality, which he labels the production of
biovalue, has become an important citizenship project. Rose points to a new
biological age in which agents are inclined to see themselves in somatic/biological
terms and become active citizens in the vitalization of that biology through self-care
programs and through collectivizing around shared biological states to demand care.
He suggests that such actions have become ‘‘routine and expected’’ (Rose 2007,
p. 147). However, studies of uninsurance in the United States show that the current
medical payment system creates barriers to care and conditions differential access to
biological citizenship (Becker 2004, 2007; Hadley 2003; McWilliams 2009).
Through detailed ethnographic research with uninsured and underinsured Korean
Americans working in family-run businesses, this article focuses on the daily
practice of doing-without-health and pushes our discussion of the barriers to
healthcare seeking toward an examination of how such barriers cultivate subjec-
tivities of disenfranchised biological citizenship. We also describe, illustrating a
case of ‘‘bio-devaluation,’’ how such disenfranchisement multiplies the study
participants’ vulnerabilities by exposing them to disproportionate health risks and
excluding them from essential care.
Responding to the critique that much of the discussion of biological citizenship is
‘‘programmatic and decontextualized’’ (Whyte 2009, p. 11) as well as calls for more
anthropological research into the uninsured (Horton 2007; Rylko-Bauer and Farmer
2002), this study employed an ethnographic approach in which the researchers were
situated in the same settings where the un/underinsured live and work. By sharing in
these settings, the researchers contextualized the study participants’ multi-layered
predicaments through firsthand encounters—observing the whole fabric of these
predicaments rather than segregated factors. In-depth interviews allowed the
researchers to move between life history narratives and affective accounts of
experiences in current settings.
This paper examines the predicament of the un/underinsured, taking Korean
Americans, one of the most highly uninsured populations in the United States
(Hughes 2002), as an example. Based on a multi-sited ethnography of Korean–
American communities in Houston, Texas, and Los Angeles, California, this study
attempted to delineate the condition of marginal insurance in the United States. In
order to present a comprehensive picture of the uninsured, this study traces health
risks among Korean Americans, from daily life to life in crisis. Studies of risk have
shown that ethnographically contextualized risk provides a window into ‘‘the
primary mechanism through which social inequality is embodied and is visible in
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different prevalences of diseases and outcomes between different social groups’’
(Nguyen and Peschard 2003, p. 457). In particular, anthropological examinations of
HIV risks have exemplified the effectiveness of ethnographically contextualized
risks in linking inequality and ill health (Chapman 2006; Parikh 2007; Farmer
1999). By mapping the connections from an unequal social structure, in which risks
are unevenly distributed, to the disproportionate prevalence of disease, these studies
chart the inscription of inequality on the bodies of the disenfranchised population.
Building on the advances of previous ethnographic studies of risks, the present study
attends to risks as they become visible in the context of the Korean American
community, and attempts to illuminate the embodiment of the social inequality
among uninsured and underinsured Korean Americans by linking exposure to health
risks and exclusion from healthcare.
In order to examine ethnographically contextualized risks, the fieldwork was
conducted within the Korean American community. Choosing community settings
provides three noticeable benefits. First, the field sites enable us to include data
concerning the un/underinsured who have never visited healthcare institutions, an
unfortunately common health-seeking (or unseeking) practice among the un/
underinsured. To date, most qualitative studies of the uninsured have presented
accounts only of those uninsured who finally resort to healthcare institutions. By
conducting research in community settings, we were able to provide more inclusive
data of how healthcare seeking is delayed or stymied among the un/underinsured.
Second, fieldwork within community settings allowed observation of the unhealthy
working and living conditions that many un/underinsured face, giving us a more
complete picture of their predicaments. Although many studies have separately
examined either the impact of social forces on health disparity (Dressler et al. 2005;
Nguyen and Peschard 2003; Wilkinson 2005) or the influence of healthcare
accessibility on the health of the uninsured (Becker 2001, 2004, 2007; Hadley 2003;
Institute of Medicine 2002; McWilliams 2009; Rylko-Bauer and Farmer 2002), few
studies have addressed the peril created by the combination of disadvantageous
social conditions and unequal healthcare. Linking the issues of health disparity and
healthcare inequality, this study shows a comprehensive picture of the consequences
of disenfranchised biological citizenship. Third, fieldwork in community settings
allowed us to see the manner in which the underinsured are also disenfranchised. As
we will see, the underinsured experience many of the same barriers to health found
in the uninsured population. A consequence of these barriers is the double burden of
increased exposure to major health risks and exclusion from necessary healthcare.
When study participants encounter deteriorating health due to these unfavorable
work conditions, their limited access to healthcare makes the process of seeking
appropriate diagnosis and treatment a baffling undertaking, one in which they have
little hope of success. The ill health of the un/underinsured is often exacerbated by
this synergy of exposure to risks and exclusion from care. Thus, by setting our
research within the community in which people suffer and make choices, we are
able to observe how biological disenfranchisement leaves people outside ‘‘the
political economy of hope’’ (Good 2001).
Although Rose acknowledges that ‘‘not all have equal citizenship in this new
biological age’’ (2007, p. 132), his focus remains on the projects of biological
Cult Med Psychiatry (2012) 36:621–639 623
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citizenship. Drawing on Good’s work, Rose argues that these projects grow out of a
‘‘political economy of hope.’’ States enact projects that they hope will bring greater
vitality to their citizens. Biological citizens enact practices that they hope will
increase their health and band with others who they see as biologically similar to
support one another and lobby the government and researchers for greater hope for
their conditions. However, in this paper we argue that the study population is left out
of vitalization projects, invisible to these projects due to the participants’ place in
the employment structure and the current healthcare payment scheme. The high
concentration of small business owners among the first-generation Korean
Americans, conditioned by the limited economic opportunities available to
immigrants, leads to long work hours in risk-laden conditions as well as high
rates of marginal insurance driven by sky-rocketing private health insurance costs in
the United States. Long work hours expose Korean American small business owners
to the health risks of overwork, physical inactivity and stress. These risks are
compounded by limited access to timely preventive measures and appropriate
medical intervention. This combination of exposure to risk-laden working
conditions and exclusion from healthcare increases Korean Americans’ vulnerabil-
ity, in particular, to chronic illnesses including hypertension, high blood cholesterol,
diabetes, and heart disease. These conditions are the bio-devaluation that results
from biological disenfranchisement. Rather than engaging in the hopeful endeavor
of maximizing vitality, the study population engages in the disenfranchised’s
practice of doing-without-health, pinning their hopes on improving their economic
status and their children’s education.
Methods
Findings are based on data collected during a dual-sited ethnographic project. Los
Angeles, California, and Houston, Texas, 1
were selected to evenly represent
different waves of Korean American immigration to the United States. California is
a historic destination for Korean Americans, while Texas is emerging as a new
popular destination; the state’s Korean population increased 43 % between Census
1990 and Census 2000. The first author engaged in participant observation by
regularly attending group activities of four Korean American religious institutions: a
bible study meeting of a Protestant church, a cell group meeting of a Catholic
church, and activities of two Buddhist temples. These religious venues were
successful entry points into the Korean American community for two reasons: first,
religious institutions serve as the main community centers among Korean
Americans (Choi 2010; Jo et al. 2010; Min 1992) and second, Protestantism,
Catholicism, and Buddhism are three representative religious institutions among
Koreans. Along with participation at the religious venues, in-depth interviews with
Korean Americans were conducted. The interviewees include 48 first-generation
1 Fieldwork was conducted in Houston from January 2004 to August 2004 and in Los Angeles from May
2007 to July 2007.
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Korean Americans 2
(18 in Los Angeles and 30 in Houston) with legal status.
Considering the pivotal importance of small businesses among Korean Americans
(Hurh 1998; Min 1996; Min and Bozorgmehr 2000; Park 1997), the first author
visited 32 Korean-owned businesses to conduct observations of working conditions
and in-depth interviews concerning immigrant life. The Korean businesses visited
include beauty supply shops, an alteration shop, gas stations, grocery stores, liquor
stores, sandwich shops, donut shops, a sushi restaurant, a dry cleaning business, a
printing and advertisement business, a florist shop, a Korean funeral home, a
wholesale store, a used tire shop, an accessory booth in the mall, a shoe repair shop,
a frame (traditional Korean style) shop, clothing stores, a bedding shop, a beauty
salon, etc. Engaging in this in-depth qualitative research enabled the authors to
detail how this population experiences biological disenfranchisement.
Findings
The research revealed that the health consequences we see in surveys of the
uninsured are the product of a culture of doing-without-health, where the
marginalized experience a synergy of elevated exposure to health risks and
exclusion from healthcare. Further, this disenfranchisement from U.S. biovitaliza-
tion projects becomes subjectively absorbed as this community practices going-
without-health. In the first part of this section we examine the daily-lived experience
of this elevation in risk exposure. Then we examine how exclusion from care
operates within the studied community settings. Finally, we examine the collusion
of these factors in the lives of our study population. This study investigates two
health risk issues among Korean Americans: First, what kinds of risks Korean
Americans face and their vulnerability to these risks. Second, how risks are
managed or unmanaged in the context of limited access to care. In combining the
first (discussed in the first section of findings) and the second issues (discussed in the
second), this study demonstrates the synergy of exposure and exclusion in shaping
the sufferings of the biologically devalued.
Exposure to Risk
Social and Economic Contexts of Risks
Korean Americans are shut out of biovitalization projects not only by the healthcare
system but also by the employment structure in the United States. Within the
Korean American community, small business ownership leads to many health risks,
yet this is the major source of employment for recent immigrants. One survey
showed a 53 % self-employment rate among Korean–American men in Los Angeles
(Min and Bozorgmehr 2000), and running small businesses is the typical economic
activity in this community. The uneven distribution of economic activities is
testament to the unequal economic opportunities that Korean Americans face after
2 The interviewees’ ages range from 32 to 74 with a mean age of 54.
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immigration. Studies of Korean Americans affirm that small business ownership is
not a voluntary choice; rather, ‘‘Korean Americans were forced by circumstances to
choose careers—in retail or service—that would have been unthinkable had they
remained in Korea’’ (Ablemann and Lie 1995, p. 144). Circumstances include:
institutional barriers disregarding educational attainments and professional experi-
ences in South Korea, linguistic barriers, and already saturated economic
opportunities in the host country (Ablemann and Lie 1995). Small businesses are
one of the few economic opportunities available to Korean Americans. The present
study shows that this typical form of economic participation exposes Korean
Americans to health risks such as overwork, physical inactivity, and stress on a daily
basis. Although Rose suggests habits that maximize biovalue are now expected and
those who ‘‘refuse to identify themselves with this responsible community’’ are
problematic persons (2007, p. 147), as we will see, small business ownership
precludes engaging in the most commonly expected American health habits:
sufficient sleep and relaxation, stress avoidance, exercise, and preventative medical
care.
Overwork and Physical Inactivity
In a society where citizens are commonly exhorted to ‘‘take time for themselves,’’
for the sake of mental and physical health, many Korean small business owners find
themselves without any spare time. Korean businesses are typically concentrated in
small scale retail endeavors such as grocery stores, convenience or liquor stores,
beauty supply shops, restaurants, etc., characterized by long hours of operation.
Many Korean businesses are open 7 days a week. A statement in a Korean
newspaper, explaining the merits of a dry cleaning business over other common
business pursuits, implies the near-ubiquity of a seven-day work week among
Korean Americans: ‘‘The dry cleaning business has the advantage of not opening seven days’’ (emphasis added, Kang 2007). According to the field data, the average
business hours of the businesses enumerated above are 11 (grocery), 16 (liquor
store), 18 (convenience store), 10 (beauty supply shop), 11 (restaurant), and 13 (dry
cleaning). The three convenience stores in this study are open from 7 a.m. to
12:30 a.m., 5:30 a.m. to 12:00 a.m., and 5 a.m. to 11 p.m., 7 days a week,
respectively. Korean Americans tend to work long hours at their businesses to
compensate for the low-profit margins of the typical Korean businesses (Ablemann
and Lie 1995). As a direct result of the demanding work schedules, Korean
Americans are often exposed to overwork and physical inactivity.
When asked how much time they exercise per day, most participants responded
that their demanding work schedule does not allow them to reserve time for
exercise. They insisted that they ‘‘cannot’’ exercise rather than ‘‘do not.’’ The story
of Shin, 3
a 39-year-old man, who runs a convenience store in Houston, points out
some of the serious health risks of small business ownership. He works in the store
from 7 a.m. to 12:30 a.m. (17.5 hours), 7 days a week. He bought the convenience
store with a relatively small down payment. In order to pay the mortgage every
3 All names are pseudonyms.
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month, he and his wife spend most of their time at the store. When the interviewer
visited around 10 p.m., Shin was there alone and looked exhausted. He said his wife
was at home taking care of their two children. When asked about exercise, he
expressed his frustration:
I was a tennis player when I was in Korea. Every Sunday I played tennis all
day long with members of our tennis club. I still really want to play sports. In
front of our apartment there is a golf range. Every morning when I come here,
I think about playing golf. But I can’t… After coming here [to the United States], I just work from the time when I open my eyes and to the time when I
close my eyes…I’m in a very bad condition now. I feel very severe fatigue, but I can’t recover from that. I feel like my whole body and mind are stuck on
the bottom. I think the fatigue that I can’t recover from is because I’m always
in a state of tension at work and because the working time is too long. 4
In the 48 interviews, Korean Americans reiterated this sense of inescapability
regarding overwork and physical inactivity. Prior studies have also pointed to long
hours as a major difficulty for Korean Americans (Ablemann and Lie 1995; Min
1990, 1998). In addition to the health risks of the demanding work schedule
necessary to keep the businesses profitable, the manner in which this time is spent
creates additional risks. For many Korean Americans, these long hours are spent in a
state of stress.
Stress
Korean Americans face a significant amount of work-related stress. The stress that
Shin describes as ‘‘being in a state of tension’’ is a regular part of their daily
economic activities. Our data identified this stress as multi-layered, chronic, and
intensive. Stress is causally layered. It is situated in anxieties caused by the
following: (1) a variety of face-to-face interactions with culturally unfamiliar and
heterogeneous customers, (2) high levels of criminal victimization, and (3) the
financial precariousness of small business ownership. Our informants reported that
they suffered from a persistent state of tension throughout their daily economic
activities, and associated this tension with the ‘‘unfamiliarity’’ and ‘‘unexpected-
ness’’ they often face in their businesses.
When asked about the stresses of immigrant life, informants commonly noted a
‘‘language problem.’’ However, observation data showed that this ‘‘language
problem’’ does not just indicate limited fluency in English. Rather, when the
language problem is contextualized in Korean Americans’ everyday economic
practice, the problem refers to the bewildering array of unfamiliar interactions the
business owners encounter during their business hours, ranging from conducting
ordinary transactions with other ethnic groups to handling complaints and quarrels.
This ‘‘language problem’’ is a source of considerable stress to Korean Americans,
who have often not participated in small business activities before immigration and
in their homeland may have had limited exposure to other ethnicities. Even though
4 All interviews were conducted in Korean and translated into English later by the first author.
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the ‘‘unfamiliarity’’ associated with this ‘‘language problem’’ is mitigated by the
respondents’ length of stay in the host land, they report the ‘‘unexpectedness’’
associated with face-to-face customer encounters continues to be a source of
tension.
A lawsuit in Washington D.C., in which a customer sued a Korean-owned dry
cleaning store for his lost pants and asked for $67.3 million (Sabar and Lee 2007),
circulated widely throughout the community, revealing the high level of tension
with which Korean Americans anticipate quarrelsome situations with their
customers. In addition to anxiety about conflict with customers, Korean Americans
also report greater stress associated with their increased anxiety about crime.
Robbery and theft are not rare at Korean businesses. Min’s (1996) survey of a
Korean ethnic newspaper showed that, from 1987 to 1991, 20 Korean Americans in
Los Angeles County were the victims of homicides associated with armed robberies.
In the present study, 7 of 48 Korean Americans who participated in in-depth
interviews said that they had experienced at least one robbery. The stress associated
with anxiety about robbery is severe and not limited to those who have themselves
experienced a robbery. Tragic stories about Korean victims circulate widely in the
Korean community, increasing worry about victimization.
This generalized anxiety is evidenced by the numerous strategies put forth by our
informants operating businesses in high-crime areas for preventing robberies from
becoming homicides. Yoon, a Korean man in Houston who runs a used tire shop,
warned that ‘‘if you encounter robbers, you should not look at their faces. If they
think you can remember their face, they will kill you.’’ Joo, a 50-year-old female
who runs a fabric store in Korean Town, Los Angeles, said, ‘‘When I encountered a
robber a few years ago, I picked up cash from the register and showed the cash in
my raised hands. He just took it.’’ Kim, who operates a convenience store in
Houston, gave his safety plan: ‘‘I will escape from the counter to the inside room
[there is a small room behind the counter in his convenience store] if I get robbers.
But I need to be careful. I should escape before they pull out a gun.’’ Min’s (1990)
study on Korean American business problems corresponds with this data. Based on
a survey of 557 Korean Americans in Los Angeles, the study found vulnerability to
armed robbery along with long work hours as one of the major problems for Korean
American businesses. It is noteworthy that many of the Korean Americans who now
run businesses in lower crime areas were also exposed to the similar levels of
anxiety about crime in previous businesses. As Korean Americans accumulate
enough capital to start a new business, they often move their businesses from
higher-crime areas to safer ones. 5
This widespread pattern of changing businesses
marks crime anxiety as one of the leading sources of stress in the Korean American
community.
Studies of social change and health have shown that lack of familiarity with
social environments results in greater stress that can significantly affect health
outcomes (Dressler 1999; Janes 1990; Kelleher et al. 2006; Steffen et al. 2006). In
5 For example, Bae, a 58-year-old Korean American man in Houston, enumerated his previous
businesses as he moved from a grocery store and a beauty supply shop in a minority community to a
Korean grocery and his current dry cleaning business in an upper-class community.
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other words, ‘‘[t]he more closely individuals approximate in their own behaviors the
shared expectations of local cultural models of these domains, the better their health
status’’ (Dressler and Bindon 2000, p. 247). Korean immigrants, far away from the
familiar realities of their homeland, are exposed to high levels of stress. The radical
transition of migration, unfamiliarity of daily transactions with customers, and
unexpected situations in their businesses, including armed robbery, put an
insurmountable distance between Korean Americans’ taken-for-granted notions of
daily life and the realities of immigrant life. This insurmountable distance results in
intolerable stress among Korean Americans.
Along with the stresses associated with daily transactions in their businesses, the
financial precariousness of small businesses ownership exposes Korean Americans
to an additional layer of stress. This typical stress associated with small business
ownership weighs more heavily on Korean Americans because of their limited
opportunities in the United States. With limited English language skills and
qualifications that are not understood or valued in the US in a saturated employment
market, small business ownership is for many the only employment option. Even
when their businesses are unsuccessful or unprofitable, Korean Americans have
difficulty adopting alternative economic strategies. Instead, their strategic response
is limited to changing businesses within the typical scope of Korean businesses,
going from a grocery store to a restaurant or from a beauty supply to a dry cleaning
establishment.
In the interviews, the Korean American participants clearly demonstrate their
awareness of the high risk (overwork, physical inactivity, and stress) associated with
their economic activities. Yet, the participants also unambiguously state the
unavoidability of these risks; for these Korean Americans, practicing healthful
behaviors—the ‘‘lifestyle changes’’ so widely urged in American media—is not an
option. In the narratives, this inevitability is often expressed as ‘‘we know that, but
it’s not avoidable.’’ The exposure to risks in daily life often lasts until their
retirement. Constrained by limited economic opportunities, Korean Americans are,
despite their awareness of the risks, forced to stay in deleterious employment
environments. The intensive exposure to multiple health risks over a prolonged
period is exacerbated by exclusion from healthcare.
Exclusion from Care
Following previous ethnographic studies’ emphasis on the role of institutions in
shaping immigrants’ subjectivities (Becker 2007; Horton 2004; Ong 1996), we also
focus on the role of the U.S. healthcare system in molding the study population’s
disenfranchisement from biological citizenship. In line with Becker’s findings
(2007), detailing how the uninsured who visit healthcare institutions experience
‘‘discouragement’’ from using healthcare services, we find that the un/underinsured
outside medical settings also experience discouragement. Even those who have
never visited hospitals in the United States, a category into which many Korean
Americans fall, experience discouragement through the payment system embedded
within the current healthcare system. Long-term uninsured status, a common pattern
among Korean Americans working in small businesses, and widely circulated
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stories of financially devastating medical bills build an unreachable distance
between Korean Americans and healthcare institutions. Underinsured Korean
Americans, despite their allegedly insured status, also encounter discouragement
from the current healthcare system. For them, managed care, in particular the high
out-of-pocket costs, serves as the discouraging agent. With tight budgets,
underinsured Korean Americans, fearing the high cost of medical care, avoid
visiting doctors’ offices as much as possible. These experiences of discouragement
among un/underinsured Korean Americans carve a specific subjectivity in which
healthcare is perceived as ‘‘a project not for us.’’ In this molding of subjectivity and
health-seeking practice, a disenfranchised biological citizenship emerges, one
unable to engage in vitalization and vulnerable to the excess suffering of
preventable health crises.
The Uninsured
Studies of healthcare access have shown an elevated rate of uninsured among
Korean Americans, ranking them as the most highly uninsured population among
Asian Americans (Brown et al. 2000, 2007; Chin et al. 2000; Hughes 2002; Shin
et al. 2005). Even though the estimated percentages of uninsured Korean Americans
vary according to age groups and survey methods (ranging from 34.1 to 52 %),
these studies confirm that Korean Americans are highly uninsured compared to the
national average (16.3 % in 2010). Significantly, the uninsured rate for Korean
Americans under 65 years is 48.7 % (Shin et al. 2005, cited in National Institute of
Health 2006) and 52 % for those between age 18 and 64 (Hughes 2002). In the
present study, 22 out of 48 informants report that they do not have health insurance.
Furthermore, the in-depth interviews reveal that healthcare access is even more
limited than indicated by these statistics: because uninsured Korean Americans,
with a few exceptions, have been uninsured the entire length of their residency in
the United States and the underinsured’s access to healthcare is not discernible from
that of the uninsured.
Among the 22 informants who are uninsured and under 65 years of age, most (19
participants) responded that they have not had health insurance since immigrating to
the United States. Korean Americans’ narrow scope of occupations—self-employ-
ment—explains this long-term lack of coverage. According to a report of the 2005
California Health Interview Survey (Brown et al. 2007), Korean Americans have a
significantly lower rate of employment-based health insurance coverage (38.2 %)
compared to other sub-populations such as European Americans (66.8 %), Asian
Americans (59.3 %), and African Americans (50.3 %). The majority of Korean
Americans who do not have access to employer-subsidized coverage have to buy
private insurance. According to the Census 2000, Korean Americans’ median
income is $42,010/year. Taking into account the skyrocketing costs of average
annual premiums, more than $15,000 for employer-sponsored family coverage
(Kaiser Family Foundation and Health Research and Education Trust 2011), many
Korean Americans clearly cannot afford costly private health insurance.
In this long-term non-insurance situation, many Korean Americans forego
preventative care, diagnoses, and treatments. For example, Jung, a 64-year-old man
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who recently retired from running a grocery in downtown Houston, has been
uninsured during his entire 29-year residence in the United States. In an interview,
he expressed his excitement about the coming year in which he would finally be
insured by Medicare, enumerating medical exams and treatments he planned to have
in the next year. A survey conducted in Los Angeles examining healthcare
utilization by Korean Americans has made clear their limited access to healthcare
(Shin et al. 2005). Korean Americans show noticeably lower rates of annual
physician visits (2.8) compared to other population groups such as European
Americans (5.92) and African Americans (3.70). Korean Americans also exhibit a
significantly lower rate of physician visits than their counterpart-population in South
Korea (10.7) where coverage is mandatory through national health insurance. In
particular, Korean Americans under 65, who are the most likely to be uninsured,
show the lowest rate (1.8) of annual physician visits. This lack of access to wellness
demonstrates Korean Americans’ exclusion from the ranks of citizens whose
biovalue is cultivated by the state.
The Underinsured
Due to the high out-of-pocket cost, Korean Americans with private health insurance
are not exempt from the practice of forgoing needed preventive measures and
medical intervention. They tend to buy insurance with high deductibles to reduce
the financial burden. Kim, a Korean American woman who operates a beauty salon
in Los Angeles, has a family plan covering her four family members that has a
$5000 deductible. When asked about healthcare utilization, she responded that, even
though she pays $399 monthly for the family plan, she has never been to the
hospital, fearing the high cost of the deductible. Underinsured Korean Americans
face a dilemma: they have health insurance, but they cannot use it. When asked why
they pay for health insurance if it does not increase their access to healthcare, study
participants responded with comments epitomized by one reply: ‘‘It would reduce
the financial burden, when I get a deadly disease.’’ Multiple interviews with
underinsured Korean Americans 6
revealed that for many study participants health
insurance is synonymous with crisis insurance, not an avenue to access care but
protection for their families in the eventuality of an expensive life-threatening crisis.
In order to accurately map the dilemma of underinsured Korean Americans, we
need to examine how managed care, the structuring principle of the American
healthcare system, is situated within the Korean American community. Since the
1973 HMO Act was passed, the issue of cost control has provided the ground for
managed care’s hegemony over the healthcare system in the United States (Dutton
2007) and deductibles have been one of the main tools proponents of market-based
healthcare reform used to reduce healthcare costs (Hoffman 2006). However, when
contextualized in the everyday lives of underinsured Korean American, deductibles
mean real barriers to access. With an average income of $42,010 a year, most
Korean Americans need strict budgets to cover their monthly expenses. The study’s
6 Among the 48 interviewees, 9 are categorized as underinsured. When they are added to the 22
uninsured, a total of 31 are uninsured or underinsured.
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ethnographic data show that the spending priorities in these budgets are usually
arranged in accordance with the Korean American dream. Economic opportunity
and better education for their children are the main reasons motivating Korean
Americans to cross the Pacific (Hurh 1998). On this basis, business expenses,
housing costs, and education are prioritized. In a context with limited incomes and
the high costs of medical care, Korean Americans are forced to place medical
expenses near the bottom of their priorities. Using high-deductible insurance plans
is seen as a severe budget disruption. Most who have these insurance plans do not
use them for routine care, preferring to pay cash at clinics in Korean Town without
informing their insurance companies for fear of increasing premiums. For example,
Son, a 42-year-old Korean American woman reported that she had had a medical
exam at a clinic in Los Angeles Korean Town and paid the $250 bill in cash. Over
the course of the fieldwork, no informant reported using or hearing of someone
using his or her insurance for preventive measures. Rather widely circulated disaster
stories of, for example, the bankruptcies of uninsured cancer patients, lead Korean
Americans to buy high-deductible plans—crisis insurance—in an attempt to avoid a
combined catastrophe of health and financial crises.
For many study participants, high deductibles served as the discouraging agent
from buying any health insurance at all. When asked about regular check-ups, Kim,
a 54-year-old Korean man who operates a convenience store in Houston, and who
has been uninsured during his entire 28-year residence in the United States said:
There is no such a thing as check-up for us [Korean Americans]. The hospital
is a place where we go when we feel pain, isn’t it? If I have health insurance, it
would be a different matter. But even the American insurance system is not
good. American insurance often has a one thousand or two thousand
deductible [here, he points to the deductible he would pay at one hospital
visit]. Who would buy it? It’s too expensive.
Among most Korean American business owners, health insurance is synonymous
with high deductibles. As Kim’s statement illustrates, high deductibles leave Korean
Americans with the belief that ‘‘even though you have insurance, you have to pay a
great deal when you visit the hospital.’’ Caught between two bad choices, Korean
Americans either buy under-insurance as a form of crisis insurance or decide to be
uninsured with the sentiment, ‘‘who would buy it?’’ In either case, they are left to
engage in a daily practice of doing-without-health.
The Culture of Doing-without-health
Rose (2007) suggests that there are two directions in the vitalization project of
biological citizenship, one coming from above as the state and institutions attempt
to enact measures that will increase their citizens’ vitality and the other coming
from individuals as they incorporate this project into their subjectified reality
through accepted habits of good health. In the case of the disenfranchised, these
behaviors often do not occur. As we see in our study population, the un/
underinsured avoid visiting healthcare institutions as much as possible. Signifi-
cantly, the observation and interview data show that healthcare barriers are not
632 Cult Med Psychiatry (2012) 36:621–639
123
simply a question of denied or limited access to healthcare, but a different
subjectified reality for the un/underinsured, the biologically disenfranchised. Ong’s
notion of ‘‘cultural citizenship’’ provides a plausible framework for explaining this
phenomenon (1996). Ong argues that citizenship is ‘‘a cultural process of ‘‘subject-
ification,’’ in the Foucaultian sense of self-making and being-made by power
relations that produce consent through schemes of surveillance, discipline, control,
and administration,’’ shaping a population’s ‘‘cultural practices and beliefs’’ (1996,
pp. 737–738). Ong suggests that in the subjectification process in the United States
social institutions play crucial roles. This argument is embraced and elaborated by
Becker (2007) and Horton (2004), who found that, among social institutions, the
healthcare system plays a crucial role in shaping cultural citizenship. In an
examination of the uninsured who visit the hospitals, Becker found that they were
discouraged from frequenting healthcare institutions, resulting in avoidance of
healthcare among the uninsured.
These direct and indirect interactions with the unequal healthcare system
construct a subjectivity of a disenfranchised biological citizenship. This subjecti-
fication results in a culture of avoiding medical care among Korean Americans. In
an interview, Yoon, a 49-year-old uninsured woman in Los Angeles, explained,
‘‘Seeing a doctor in America is too expensive a matter.’’ Even though she has never
visited the hospital and never paid for health services in the United States, she had
an assertive and negative attitude toward American healthcare services. Like Yoon,
informants in this study attached a shared assertion to hospitals: ‘‘too expensive to
go.’’ They discuss healthcare in the United States as if it were located in some
remote place beyond their reach. In the course of 48 interviews, we witnessed a
‘‘distance’’ placed between the Korean Americans and the American healthcare
institutions. This distance is a specific health-seeking belief as well as a practice,
disciplining the avoidance of American healthcare. Korean Americans’ distance
from valued forms of American citizenship is further seen in the common practice
of crossing the Pacific Ocean for medical care.
Fearing high medical costs, 7
Korean Americans even visit South Korea to receive
medical exams and treatments. In this context, Asiana Airlines, a major South
Korean airline, sells tour packages to South Korea for medical exams (Moon 2008).
As demonstrated by one South Korean hospital reporting it had examined 566
Korean Americans during a 13-month period (Lee 2010), many Korean Americans
take this far alternative route to medical care. When asked about their latest check-
up, a number of interviewees in this study said that it was ‘‘a few years ago in
Korea’’ when they visited their home country. In the field, the interviewer
encountered numerous tales of Korean Americans visiting South Korea for surgery.
Crossing the Pacific Ocean for care is a testament to the disenfranchised biological
citizenship conferred in the United States. Unfortunately, avoiding medical care and
seeking help far away only amplify the serious health risks resulting in the negative
health outcomes seen among Korean Americans.
7 When Korean Americans decide to visit healthcare institutions, the population tends to visit Korean
American clinics usually located in Korean Town. However, using clinics in Korean Town is also
impeded by insurance status and costly medical bills.
Cult Med Psychiatry (2012) 36:621–639 633
123
Unmanaged Risks under Limited Accessibility to Care
Although the phrase ‘‘disenfranchisement from the project of vitalization’’ sounds a
bit anemic, this disenfranchisement results in very real and systematic social
suffering. Chronic diseases cannot be managed by doing-without-health. When the
study population develops chronic illnesses such as high blood cholesterol,
hypertension, and diabetes, illnesses that require regular preventive measures and
timely medical intervention, the population suffers enormously. For example, Roh,
a 58-year-old man in Los Angeles, had recently had his first check-up since
immigrating to the United States 15 years ago. After running his own businesses for
more than 10 years, he was working for a business owned by a Korean friend. Roh’s
job did not provide health insurance, and he had been uninsured since his
immigrating to the United States. After developing symptoms of numbness around
his mouth and chronic, severe exhaustion, Roh finally went for a check-up. The
physician who reviewed the results of medical exams informed him that he had high
blood pressure, high cholesterol, and an enlarged heart. Roh has no way of knowing
how long he has had these conditions. Roh is similar to many uninsured or under-
insured Korean Americans, who tend to visit healthcare facilities only when their
symptoms become unmanageable. Unfortunately, major chronic illnesses such as
high cholesterol, hypertension, and even diabetes often reach a serious phase
without noticeable symptoms. The study participants are more likely to experience
these disorders because of the elevated risks—overwork, physical inactivity, and
stress—encountered while running small businesses. Since the participants work in
small businesses and therefore have restricted access to preventative care, they are
more likely to let these diseases go untreated and unmanaged. 8
Studies examining the consequences of uninsurance (Ayanian, et al., 2000;
Becker 2001, 2004; Institute of Medicine 2002) have demonstrated its detrimental
impact on diagnosing health problems as well as its negative influence on managing
ill health. We see this detrimental impact detailed in the case of Yoo, a 56-year-old
man. Since immigrating 22 years ago, Yoo has been uninsured. He was first
diagnosed with heart disease when he visited a clinic in Korea Town, Los Angeles,
five years before the interview. At the time of his diagnosis, he was running a
wholesale store in downtown Los Angeles. Although he suffered from sleepless-
ness, weight loss, thirst, and dry cough, he delayed visiting a doctor’s office for fear
of a high medical bill. At the time, his business was experiencing financial
difficulties. He said, with a bitter smile, ‘‘I was using my body to block financial
loss.’’ At the clinic, the doctor prescribed medications. Yoo took the medications for
a year but by the end of the year his symptoms had returned and worsened. He could
only sleep sitting up, and the pigmentation of his face darkened. The worsening
symptoms forced him to give up his business and finally persuaded him to visit the
University of Southern California (USC) medical center. At the medical center, he
8 Many issues frame accessibility to healthcare among immigrant populations, including linguistic and
cultural ones. For Korean Americans (a highly uninsured and underinsured population) health insurance
status is the critical issue shaping their practice of not seeking healthcare. Linguistic and cultural barriers
do little to explain why many Korean Americans do not visit clinics in Korean Town run by Korean
American doctors.
634 Cult Med Psychiatry (2012) 36:621–639
123
had an angiogram for the first time and was informed that his left ventricle was not
pumping blood properly. Between his first visit to the clinic in Korea Town 5 years
before and his visit to the USC medical center 2 years later, his heart disease had
been poorly managed. With no insurance, he reported that he was reluctant to pursue
follow-up care. This lack of follow-up care has resulted in a deteriorating heart
condition.
The literature warns of premature death among the uninsured (Hadley 2003;
Institute of Medicine 2000; McWilliams 2009). The uninsured ‘‘who have been
hospitalized for heart attacks are over 25 percent more likely to die while in the
hospital’’ (Becker 2004, p. 259; Hadley 2003). The ethnographic data from this
study demonstrate that difference in treatment at the hospital does not cause these
different outcomes, but rather differences in care that occur in community settings
do. In order to see the unfortunate synergy that occurs when people do-without-
health, let us turn to a final narrative. Park and his wife ran a burger shop near
downtown Houston. He opened the shop 7 days a week, 10 a.m. to 9 p.m. from
Monday to Saturday and 12 a.m. to 8 p.m. on Sunday. In response to high crime
rates, a fence was built covering the front part of the shop. Due to security issues
and the size of the shop, customers could not enter. The customers placed and
received their orders through a small window in the fence. Park cooked and served
up the orders while his wife tended the register. After 5 years of this life, he died of
acute myocardial infarction. On the day before he died, he worked until 9 p.m.
Early the next morning, he complained of chest pain and difficulty breathing. His
wife called 911, and he was sent to the hospital. He died there 4 hours later. The
hospital was the first and the last healthcare institution he visited in the United
States. When the interviewer visited the shop with a key informant, his wife was
running the shop with the help of her grown children. The interviews with Park’s
wife and the key informant, Park’s friend, clearly show that Park had limited
opportunities to manage his health risks. We cannot know if Park would have died if
he had been able to engage in the vitalization project of enfranchised biological
citizens, but we do know that his disenfranchisement made his death more likely.
Conclusion
Exemplified in this study is an un/underinsured population with significant
healthcare needs brought about by increased exposure to health risks and exclusion
from appropriate healthcare. We see in this study how the costs of bio-devaluation
increased morbidity and mortality among the un/underinsured. These consequences
are not limited to the first-generation Korean Americans. The National Health and
Nutrition Examination Survey (NHANES 1999–2006) found that among those with
elevated cholesterol and diabetes, the uninsured were more often undiagnosed, and
those with hypertension and elevated cholesterol more often had uncontrolled
conditions (Wilper et al. 2009). While these health conditions are observed among
the insured, they are even more prevalent among the uninsured. Although the
current study examines how these outcomes proceed from the particulars of
disenfranchised biological citizenship among the first-generation Korean
Cult Med Psychiatry (2012) 36:621–639 635
123
Americans, evidence like the NHANES study makes clear that this bifurcation is
continually embedded within the American healthcare system.
The current healthcare system in the United States does not allow the un/
underinsured to participate in biovitalization projects. The system discourages
preventive care and delays visits to physicians, and diagnosis and treatment.
Consequently, the un/underinsured do not feel connected to the healthcare system
and use it only in dire circumstances. Social institutions, such as health insurance
and managed care, play a crucial role in crafting subjectivities of disenfranchised
biological citizenship and shaping a culture of doing-without-health. If the state
determines what citizenship is and is not by drawing this line both at the
institutional level (insured versus uninsured) and the internal level (inclined to seek
care versus disinclined to seek care), the current healthcare system in the United
States ‘‘separate[s] those whose lives are to be enhanced from those whose lives are
not worth preserving’’ (Das and Das 2007, p. 87). Such line drawing crafts expectant
biological citizens and disenfranchised, devitalized citizens contained outside the
political economy of hope. If citizenship is the process through which we delineate
citizen from non-citizen, when we investigate of biological citizenship we must
commit ourselves to studying the consequences borne by the disenfranchised.
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- Exposure and Exclusion: Disenfranchised Biological Citizenship among the First-Generation Korean Americans
- Abstract
- Introduction
- Methods
- Findings
- Exposure to Risk
- Social and Economic Contexts of Risks
- Overwork and Physical Inactivity
- Stress
- Exclusion from Care
- The Uninsured
- The Underinsured
- The Culture of Doing-without-health
- Unmanaged Risks under Limited Accessibility to Care
- Conclusion
- References