P PROJECT

Instructions:

1. Identify a source of support for children, individuals and families with this genetic disorder. For example: support group, website, organization, text, institute or research study/clinical trial.

2. This document should include the following information:

a. Characteristics of the disorder (phenotype/ signs and symptoms)

b. Heritability pattern of the disorder (genotype)

c. Incidence and prevalence of the disorder in the population

d. Medical management and treatment

e. Nursing implications and appropriate health teaching topics

f. Long term consequences of the disorder

g. Identified resources

h. Reference list, using APA format

3. Every source used for the project must be referenced appropriately using APA style. Any plagiarized work or use of a source that is not documented or is

misrepresented will result in failure for the assignment.