assignment

tatty2021

Chapter_0131.pptx

Home >Nursing homework help >assignment

Chapter 13

The Evolving ePatient

Historical Background and Drivers of the ePatient Evolution

ePatient as a pioneering concept

Technology, policy, and legislative influences

Characteristics of early and contemporary online healthcare consumers

The term epatient has its origins long before the advent of the Internet. It was coined in 1975 by a physician to describe a patient who is Equipped, Enabled, Empowered, and Engaged.

A number of factors converged to propel the epatient movement including access to the Internet and simplified search capability; policy initiatives focused on safety and quality in healthcare; passage of legislation to encourage widespread adoption of electronic medical records and health care reform legislation calling for patient-centered care and comparative effectiveness research.

People seeking health information online were categorized by their health status. The Well, the Newly Diagnosed, and the Chronically Ill and their caregivers often exhibit information-seeking behaviors based on these health states.

Studies show that 71% of adults seek information, care, and support from healthcare professionals, reinforcing the importance of collaboration.

Contemporary epatients continue to be characterized by their health status as identified in early online healthcare consumers. However, the contemporary epatient has access to a more interactive Internet environment known as Health 2.0.

Activist epatients are increasingly invited to participate in conferences targeting health professionals.

New tools for tracking and monitoring personal health metrics have given rise to the quantified self-movement.

ePatient as a Pioneering Concept

1960s: Computer-based, patient-driven medical interviews were conducted.

1975: Term epatient was coined.

1999: eHealth becomes a common term.

Today, eHealth remains a broad concept used to describe Internet or web-based activities that relate to healthcare, yet no consensus about the definition exists among researchers, policymakers, clinicians, or patients.

Technology, Policy, and Legislative Influences

Use of the Internet has had an unprecedented impact on access to information, sharing, and connectedness.

As of the first quarter of 2012, approximately 2.3 billion people worldwide were on the Internet, with nearly 8 new users being added every second.

Safety and quality flaws in the American healthcare system has led many to become vigilant advocates.

World Internet Usage

Figure 13-1 from text.

Technology, Policy, and Legislative Influences (Cont.)

Patients should expect the following from their healthcare:

Beyond patient visits

Individualization

Control

Information

Science

Safety

Transparency

Anticipation

Value

Cooperation

Characteristics of Early and Contemporary Online Healthcare Consumers

Well: Online needs are episodic and occasionally driven by the need to seek out specific information related to prevention and wellness.

Newly Diagnosed: Is driven by a sense of urgency to understand, manage, and mitigate a recent change in health status.

Chronically Ill: Aligns loyalty to sites with resources, services, and support for their specific condition.

Convergence of ePatient, Patient-Centered Models of Care, and Informatics

Patient-centered care model

Participatory healthcare characterized by patient-clinician collaboration

Evolution of healthcare informatics

Electronic health records (EHRs)

Personal health records

Transparency and access to data

Participatory healthcare is characterized by meaningful patient-clinician collaboration

Health professionals involved in informatics should seek input from epatients in developing information technology innovations.

Clinicians may need new skills to integrate epatients and participatory medicine into their practice.

Adoption of Electronic Health Records and Personal Health Records.

Epatients will lead the way in demanding a healthcare system that includes patients as integral members of the healthcare team.

Participatory Patient-Centered Healthcare

Berwick’s three maxims:

The needs of the patient come first.

Every patient is the only patient.

Nothing about me, without me.

Discuss pros and cons of patients vs. providers direction healthcare.

New Role of Clinicians and Informaticists in ePatient Care

New culture of partnership and “guided discovery” is emerging.

Clinicians may need to learn new skills.

ePatients look for willingness by understanding the value of online resources to epatients.

Health Informatics and ePatient

Hospital Consumer Assessment of Healthcare Providers and Systems (HCAHPS): Is the first national, standardized, public report of patients’ perspectives of their experiences with healthcare organizations and healthcare providers.

Patients Like Me: Is a research-based, online platform created for patients to share and learn from real-world experiences and to produce outcome-based health data for advancing the current pace of research.

Personal Health Records, Transparency, and Access to Data

Some physicians believe in the tangible benefits of sharing notes with patients.

Concerns of others include:

Increased demands on time

Lengthier office visits

Inability to be candid in office notes

Who owns a patient’s data?

Evolution of Health 2.0 and Beyond

eHealth matures in the Health 2.0 environment

Health 2.0 and virtual patient communities

Ehealth remains a broad concept used to describe Internet or web-based activities that relate to health care.

The seven themes of Health 2.0 include: Web 2.0/technology, patients, professionals, social networking, health information/content, collaboration, and change of health care.

Digital divide exists in Internet accessibility despite the proliferation of technology across all aspects of society.

Patient-focused virtual communities are environments where patients interact, freely share health-related data and learn from each other’s experiences while unbounded by geographic limitations, social stigmas or other limiting characteristics.

Patients should consider both the benefits and risks of virtual online communities

Health 2.0 Environment

Dynamic and interactive environment of Web 2.0 within which collective intelligence is harnessed

How does Health 2.0 differ from Health 1.0?

Health 2.0 and the Creation of Virtual Patient Communities

Patients interact, freely share health-related data, and learn from each other’s experiences while being unbounded by geographic limitations, social stigmas, or other limiting characteristics.

Health 2.0 and the Creation of Virtual Patient Communities (Cont.)

PatientsLikeMe

iVillage

CafeMom

Baby Center

Patient and Caregiver Journey

Figure 13-2

Chaordic

Figure 13-3 from text.

Future Directions: Moving toward Health 3.0

Web 1.0 was similar to a library where loads of information could be accessed but where nothing could be contributed.

Web 2.0 has more of a community feel where groups can gather and exchange information.

What might Web 3.0 bring about?