powerpoint help

profileNancy W
cdr-b4-autism.docx

VR Counselor Desk Reference Chapter B4: Autism Spectrum Disorders

Chapter B4: Autism Spectrum Disorders 1

B4.1 Overview of Disability 1

B4.1.1 General Information 1

B4.1.2 Symptoms 2

B4.1.3 Treatment 5

B4.1.4 Typical Functional Limitations 6

B4.2 Assessment 7

B4.2.1 Reviewing and Evaluating Records 7

B4.2.2 Asking the Right Questions 7

B4.2.3 Medical and Psychological Assessments 8

B4.2.4 Vocational Assessment 9

B4.3 Planning 10

B4.3.1 Typical Services 10

B4.3.2 Counseling and Guidance 10

B4.3.3 Employment Services 11

B4.3.4 Service Provider Considerations 12

B4.3.5 Comparable Services and Benefits 12

B4.4 Resources 12

B4.1 Overview of Disability

B4.1.1 General Information

With the Diagnostic and Statistical Manual, Fifth Edition (DSM-5) classification system, Asperger’s and PDD-NOS are no longer a diagnosis. Autism was renamed autism spectrum disorder (ASD) and classified under neurodevelopmental disorders. Autism is defined on a “spectrum” because of the various ways in which the disorder impacts an individual. It is characterized by difficulties in social interaction, verbal and nonverbal communication, repetitive behaviors, and hyperreactivity or hyporeactivity to sensory input.

For more vocational rehabilitation–related information on all neurodevelopmental disorders, see the Texas Workforce Commission (TWC) Vocational Rehabilitation (VR) Division’s Neurodevelopment Disorder intranet page.

B4.1.2 Symptoms

There are four characteristics that can be seen in every customer with autism. The level at which the following characteristics impact a customer can vary significantly:

· Impairment in social interaction

· Impairment in communication

· Restricted, repetitive, and stereotyped patterns of behavior, interests, and activities

· Sensory abnormalities

See Temple Grandin’s website for more on the characteristics of ASD .

Social Interaction Impairment—Examples

· Lack of social awareness or observance of social norms

· Does not imitate peers, that is, pick up on social cues that other individuals learn through observing

· Needs to have social skills and norms explicitly taught to him or her, because he or she struggles to learn by observation

· Lacks the ability to adjust perspective and imagine being “in someone else’s shoes”

· Difficulties adjusting behaviors to fit the social context

· Difficulties deciphering nonverbal cues and understanding unspoken rules

· Exhibits social anxiety and fear due to lack of social understanding and fear of the unknown

Communication Impairment—Examples

· Nonverbal (from no verbalizations to a few utterances)

· Echolalia (repeating verbatim what he or she has heard; can be delayed or instant)

· Low verbal (able to string phrases together, but consistent sentences are difficult)

· Anxiety-impaired verbalization (no deficits in language abilities until he or she feels anxious)

Other Deficits in Social Communication—Examples

· Inability to carry on a normal back-and-forth conversation

· Not understanding the use of nonverbal body language or pragmatics in language (how to use language in social settings, that is, greetings and requests)

· Poor social skills directly impact ability to communicate—for example, if the individual doesn’t know what to say, he or she won’t say anything or will only talk about his or her preferred interest.

Rigid thought processes impact communication as well—for example, if the individual doesn’t know the “right” or “perfect” thing to say, he or she won’t say anything.

Rigid Thought Processes and Resistance to Change—Examples

· Thinking in absolutes, black and white, wrong or right—the individual struggles to see the “grey” in life

· Logical thinker who struggles to “think outside the box” or engage in “what if” conversations

· Takes words literally—requires sarcasm and idioms to be explained

· Can get ideas and thoughts stuck in a loop—often a negative or illogical thought

· Poor tolerance for change due to rigid thought processes

Restricted Interests and Activities—Examples

· Rigid thought patterns and resistance to change can lead to having very few appropriate leisure activities, further isolating the individual

· Prefers to do already familiar activities and doesn’t want to explore new ones

· Can become “little professors” in familiar interests

· Struggles to find others that like exactly the same things

· Only wants to talk “at” not “with” others on the preferred topic

Repetitive Patterns—Examples

· Prefers sameness in routine and environment—for example, eating the same meal from the same blue plate in the same seat, meal after meal, day after day

· May “self-stim,” that is, rock him- or herself or engage in repetitive movement like watching a spinning fan or spinning an object

· May engage in repetitive activities like listening to the same music or watching the same movie over and over

Sensory Abnormalities—Examples

· Hears the humming of fluorescent lights

· Covers ears in a public setting in fear of a sudden loud sound

· Does not mind odors that most find offensive

· Does mind odors that most find pleasant

· Wears a jacket zipped up in 90-degree heat

· Can become moody and irritable in a busy, crowded place

· Likes to watch repetitive movement in objects, like a fan

· Has a delayed sense of pain or an extreme pain reaction to a scratch

· Prefers to eat only the same colored or textured food

The most common two sensory integration issues involve the need to seek or avoid contact with objects, clothing, and environmental sensory input:

· Hyposensitive = seeks sensory contact

· Hypersensitive = avoids sensory contact

Common environmental input that causes sensory issues include the following:

· Lights

· Sounds

· Smells

· Temperature

· Pace—that is, busy or slow environments

· When social interactions are required

· Structure and predictability of environments

Current medical theory supports the belief that ASD is hereditary and results from under-activity in the brain’s production of the neurotransmitters dopamine and norepinephrine. These chemicals help with blocking out distractions and coordinate long-term and short-term memory.

Severity of Symptoms

To address the wide-ranging challenges of what it means to be “on the spectrum,” the DSM-5 diagnostic criteria established three “functional levels,” each of which is defined based on the amount of support an individual requires to function in the general community.

It is important to note that individuals with ASD can move up or down a level at any time in their lives.

DSM-5 Levels

Level 1: needs support

Level 2: needs substantial support

Level 3: needs very substantial support

Co-Occurring Conditions

According the DSM-5, more than two-thirds of individuals with ASD have at least one other coexisting condition. The following are the most common:

· Social anxiety disorder

· Generalized anxiety disorder

· Specific learning disorder

· Attention-deficit/hyperactivity disorder

· Depression

· Tourette Syndrome

· Obsessive-Compulsive Disorder

· Epilepsy

· Sleep problems

B4.1.3 Treatment

Medication

National Institutes of Health (NIH) Medication Recommendations for ASD

The common medication types used to treat ASD are used to manage symptomology, not to cure, and include the following:

Selective serotonin reuptake inhibitors (SSRIs) and tricyclics treat:

· Depression

· Anxiety

· Obsessive-Compulsive Disorder

Antipsychotic medications treat:

· Irritability

· Aggression

· Stereotyped behaviors

Stimulants treat:

· Focus, attention, eye contact issues

· Hyperactivity

Antianxiety medications treat:

· Long-term anxiety disorder

· Panic attacks

Anticonvulsant medications treat:

· Erratic or violent mood swings

· Seizures (one-third of individuals with ASD also have a seizure disorder)

Applied Behavior Analysis

See the Behavior Analysis Certification Board for resources: www.bacb.com .

Applied Behavior Analysis (ABA) is the science of applying experimentally derived principles of behavior to improve socially significant behavior. ABA takes what is known about human behavior and uses it to develop and apply strategies that are intended to bring about real-world, meaningful change in an individual's behavior. In ABA, behaviors are defined in observable and measurable terms to assess behavioral changes over time. The behaviors are then analyzed within a real-world environment to identify factors that are influencing the behavior and assess how these factors and/or the behaviors can be modified.

ABA can address, but is not limited to addressing, the following:

· Decrease maladaptive behavior

· Increase social and communication skills

· Increase self-regulation and emotional intelligence

· Increase problem-solving and executive functioning

· Increase vocational and life skills

ABA should:

· evaluate and treat the environment in which a behavior and/or a skill deficit is occurring;

· evaluate and treat the customer as well as pertinent individuals directly involved in the customer obtaining and maintaining employment; and

· generalize learned skills in the employment environment.

B4.1.4 Typical Functional Limitations

Typical functional limitations include the following:

· History of academic and/or career underachievement that limits job opportunities

· Potential for co-existing disorders such as depression, learning, and anxiety disorders resulting in the additional limitations associated with these disorders

· Difficulty handling stress, low tolerance to change in schedule, or work tasks interfering with production, coworker relations, and supervisor relations

· Poor ability to manage day-to-day responsibilities, such as completing household chores, maintenance tasks, paying bills, or organizing things

· Chronic stress and worry due to failure to accomplish goals and meet responsibilities

· Chronic and intense feelings of frustration, guilt, or blame

· Social isolation

B4.2 Assessment

B4.2.1 Reviewing and Evaluating Records

The diagnosis of ASD alone does not necessarily indicate a need for services. Some individuals with ASD function well vocationally because they have selected jobs compatible with their disability, thereby eliminating functional job limitations. They use treatment and/or compensatory strategies to help control or work around functional limitations.

Therefore, the primary determiners of successful employment for individuals with ASD are:

· identifying the individual’s social, communication, and sensory integration deficits;

· the individual's willingness to select realistic vocational goals, which concentrate on using assets and working around symptoms;

· if necessary, medical treatment to reduce symptoms (most pervasive is anxiety that can lead to depression as individuals age); and

· developing compensatory strategies to work around residual symptoms.

In most cases, records obtained from treating psychiatrists, psychologists, and/or therapists, combined with the applicant's perspectives on the disability, can help determine the following:

· What are the individual’s ASD symptoms?

· Are VR services needed to identify realistic vocational goals?

· Are VR services needed to develop compensatory job strategies?

Records may also identify other conditions that the applicant did not disclose or is unaware of that can impact employment (for example, individuals with ASD are at a high risk for substance abuse, depression symptoms, and anxiety disorders).

B4.2.2 Asking the Right Questions

Additional questions to ask an individual with ASD in the diagnostic interview include the following:

Education

· Did you receive accommodations or modifications in school?

· Did you request help or did teachers tell you what you needed?

· Do you know your “learning style”—how you learn best?

· Did your performance in school represent your true ability?

Social/Communication

· Do you feel nervous around new situations or people?

· How do you handle being around people whom you don’t agree with or maybe don’t like?

· Are there things that help calm you down if you become anxious or upset?

Rigid/Repetitive Patterns of Thinking

· How would you feel or do if your schedule changed without notice?

· What routines would it upset you to change?

· Do you like to try new things? If you are asked to do new things, how do you respond?

· What happens when you come across a situation that you have never dealt with or don’t have a solution for?

Sensory Abnormalities

· Are there environments that you know will stress you out?

· Do any particular lights, sounds, or smells trigger you?

· Does a busy place with lots of people stress you out?

· What is your ideal environment, one which helps you be the most productive?

Vocationally:

· At which of your past jobs were you most successful and why?

· At which of your past jobs were you least successful and why?

· What do you need to make your next job successful?

B4.2.3 Medical and Psychological Assessments

In some cases, medical and psychological records may be unobtainable or outdated, or there is a suspected change in the individual’s disability. It may then be helpful to purchase new diagnostics. If additional medical or psychological evaluations are needed, sending previous psychological and medical records (if available) can assist the examiner in identifying progress and stability. Also, asking pertinent questions of the examiner can help with plan development. Examples of pertinent questions include the following:

· Is the individual currently stable and complying with treatment?

· Is the customer's selected vocational goal appropriate and realistic?

· What is the individual’s best learning style (for example, academic or on the job)?

· Are there significant changes or differences from the customer's previous assessments?

A psychological diagnostic should only be ordered under the following conditions:

· Individual is in need of a comprehensive assessment due to a new diagnosis

· The presence of a co-occurring condition, such as depression, is suspected.

· Records are old or missing, or diagnostic is required for secondary training.

Use the following ASD psychological batteries:

· VR 40 ASD Verbal Battery

· VR 41 ASD Nonverbal-Low Battery

Use the following add-on or single options:

· VR 42 ASD ADOS 2

· VR 43 ASD Emotional and Behavioral

Note: A psychological diagnostic is not meant to be a vocational assessment. Especially for ASD, a psychological diagnostic does not constitute an accurate assessment of an individual’s work potential.

B4.2.4 Vocational Assessment

Since individuals with ASD can face various residual symptoms or functional limitations, reviewing previous work history and the diagnostic reports together, the customer and the VR counselor can identify residual symptoms of the disorder to target appropriate jobs. Using Birkman’s Career Exploration can help cluster interests and skills, which in turn helps to identify what services and goals are needed to develop an Individualized Plan for Employment.

Note: A traditional vocational assessment is rarely recommended. If the VR counselor does conduct one, make sure that the tests administered assess the direct needs of ASD and that the assessor has expertise in testing an individual with ASD.

Is the customer’s expressed vocational goal realistic and compatible with the disability? Considering the individual’s identified symptoms is important when selecting an appropriate vocational goal. ASD can be an asset to many jobs (for example, seeing details others miss, and hyper focusing can be an asset in jobs requiring an individual to attend to a task until it is completed).

It is also important to identify jobs or tasks that can lead to failure and avoid them. By avoiding such jobs or developing compensatory strategies, employment success can be achieved. See 12 steps to help people with autism find the right job .

If the individual is currently employed, can reasonable accommodations or job modifications be made to maintain the employment? See ASD work accommodations.

Are there treatments or medication side effects that may interfere with the individual’s ability to work? This can include medication side effects such as drowsiness and reduced stamina or concentration. Additionally, the individual may need time off from work periodically to attend doctor appointments and undergo adjustments or changes in medication.

What compensatory strategies are needed to maintain employment? This will vary from customer to customer depending on their ASD symptoms. See Work strategies for ASD adults .

B4.3 Planning

B4.3.1 Typical Services

Typical VR services provided to individuals with ASD include the following:

· Counseling and guidance

· Birkman career assessment

· Environment work assessment

· Work experience

· JobTIPS, www.do2learn.com

· ASD supports

· ABA

· Employment services

· Job placement directly through the VR counselor

· Job placement purchased through a provider, with or without the autism premium

B4.3.2 Counseling and Guidance

The following are counseling issues that often come up when working with individuals with ASD:

· Making appropriate job choices—Adults with ASD often experience employment difficulties due to restricted interests, rigid thought processes, and a low tolerance of change. In other instances, they may quit a job because of social anxiety or fear of the unknown. However, adults who learn to adapt to their disability and to harness their strengths in following routines, creating systems, and using the creativity that often accompanies ASD, can turn their symptoms into vocational assets. The VR counselor may need to guide the individual toward jobs that are more compatible with his or her disability. By reviewing past jobs, the VR counselor and the customer can consider job situations to determine which are more compatible with the customer’s disability. This information can assist the customer in selecting successful job goals.

· Reasonable accommodations—The VR counselor may be able to help the customer identify reasonable accommodations that can help save a job or maintain future jobs. These can include:

· job restructuring;

· adjusting the work schedule to account for medication drowsiness;

· requesting extra time to learn tasks; and/or

· modifying jobsites to reduce distractions.

· Lifestyle changes—Changing patterns, which jeopardize employment and stability, i.e., reacting to fears, taking on too many tasks, seeing the big picture and not getting bogged down in the details

· Continuing treatment, strategies, or medication—Medication, therapy, and treatment can be expensive. The VR counselor can guide the customer and family members to review concerns with the treatment source before stability is jeopardized. Additionally, helping the individual and family establish contact with community resources can help reduce out-of-pocket expenses for medications and treatments until they become eligible for insurance benefits.

· Disclosure of the disability—Some guidance considerations regarding disclosure of the disability to employers are that:

· certain jobs require drug screening, and medications may trigger a false positive; and

· reasonable accommodations may need to be requested to maintain employment.

· Positive feedback—Due to low self-esteem from multiple academic, social, and employment failures, many individuals with ASD need to have their progress and successes pointed out to prevent them from quitting.

· Family counseling—When there are family members or significant others who are actively involved in the customer's life, they need to be included in the rehabilitation "team." This is to ensure that everyone is guiding the customer in the same direction and to reduce enabling behaviors or patterns that can jeopardize employment. Connecting family and significant others with support groups can provide them with better understanding of the disability and ways to help the customer.

· Skills training—Training to upgrade skills or retraining in more appropriate areas of work may help some individuals with ASD achieve vocational stability. This can be important for individuals whose transferable skills are insufficient for appropriate jobs.

B4.3.3 Employment Services

Some people with ASD may need more intense preparation or support to enter or reenter the workforce. This may be due to insecurity, limited successful work experiences, or having been unemployed for an extensive period. See Moving Into the World of Employment to learn how to get an individual past this transition.

Job placement can often be conducted by the VR counselor, using WorkInTexas.com to assist the customer in finding an appropriate job. For individuals who may not present themselves well at an interview or who need assistance to locate potential job opportunities, job placement services can be purchased through a provider. See the Autism Speaks Employment Toolkit .

B4.3.4 Service Provider Considerations

When purchasing job placement services through a provider, it is important that the provider be aware of specific symptoms or characteristics of the individual's ASD. A provider with the autism endorsement from UNTWISE is specially trained in ASD and may be able to better meet the needs of the customer with ASD. This can avoid placing the customer in inappropriate jobs and/or having service providers reinforce inappropriate thoughts or behaviors.

B4.3.5 Comparable Services and Benefits

The following are potential resources for comparable benefits for medications, treatment, and other issues:

· Local Intellectual and Developmental Disability Authorities Directory

· NeedyMeds.org —A nonprofit with the mission of helping individuals who cannot afford medicine or health care costs

· RxAssist —A national Volunteers in Health program funded through private foundations, corporate sponsorships, and private donations

· Partnership for Prescription Assistance (PPA)—The PPA, also known as HelpingPatients.org

· Medical Benefit Program —A program designed to help individuals, regardless of insurance status, reduce the cost of paying for prescription medications

B4.4 Resources

· ASD work accommodations

· Autism Research Institute

· Autism Society

· Autism Speaks

· Autism Speaks Employment Toolkit

· CDC Autism Spectrum Disorder

· Overall Guide to Autism & Employment

· Developing Talents: Careers for Individuals with Asperger Syndrome & High Functioning Autism, Temple Grandin and Kate Duffy, AAPC Publishing, 2004

· Texas Autism Research and Resource Center

· VCU ASD Career Links

· The Austin Asperger's Support Group

· Going to College

· NIH Medication Recommendations for ASD

· Temple Grandin’s website

· Moving Into the World of Employment

· Work strategies for ASD adults

· Behavior Analysis Certification Board www.bacb.com

· 12 steps to help people with autism find the right job

Owner: Jennifer Hines