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342-SG-HenriettaLacksSignatureAssignment-Fall20223.docx

Immortal Life of Henrietta Lacks

NURS 342 – Signature Assignment – Fall 2022

Assignment Overview

This semester you will read (or listen to) the book Immortal Life of Henrietta Lacks by Rebecca Skoot.

Assignment Learning Objectives

1. Addresses Course Learning Objectives 1, 3, &5.

2. Recognize the impact of equity issues in research (1.2)

3. Identify ethical principles to protect the health and safety of diverse populations (3.1i)

4. Promote the ethical conduct of scholarly activities (4.3)

5. Demonstrate an ethical comportment in one’s practice reflective of nursing’s mission to society (9.1)

6. Demonstrate accountability to the individual, society, and the profession (9.3)

Expectations. This semester students will...

· Purchase any version of the book (paper copy, e-book, audio book).

· Refer to the course schedule for reading schedule and table due dates.

· Read assigned chapter weekly and create one entry for each chapter the table (template provided).

· Complete entries prior to class in order to contribute to discussion.

· Upload tables to Blackboard by the assigned due date or it will be considered a late assignment submission.

· Engage in end of the semester group presentations and personal reflections.

Reading/Listening to the Text

Depending on your learning style you have two options: you can either read the text or listen to the audiobook. As you go through each chapter be taking brief notes on potential examples for your table. At the end of the chapter, fill out the corresponding table (provided in this document)

Filling Out the Table

Create a new document for each table. As you read, fill out one example in each chapter. Include the page number of your example for reference during class discussions and final presentation. Entries can be brief, but should be as specific as possible (proper spelling required; abbreviations and bullet points acceptable; APA format not required).

Prompt: How do personal characteristics, personal/family values, cultural beliefs, social determinants of health, and/or cultural racism affects this vulnerable person/population(s) health, well-being, or access to health care?

For each chapter:

1. Identify one (1) vulnerable individual or population (group of individuals) from the book health, wellness, or access to healthcare is compromised due to a stereotype, bias, equity issue, and/or ethical challenge.

2. Describe the stereotype, bias, or ethical challenges.

3. Identify personal characteristics, values, cultural beliefs, structural racism/oppression, and/or social determinants contribute to their experience.

Table Submissions

Fill in the tables associated with the correct chapter (e.g., Life, Death, Immortality) to organize your thoughts about the individual person/populations experience. Anticipate you will see similar examples more than once, this should help you identify themes. The grading rubric is in the course syllabus. Here is an example of a potential entry:

Chapter

Vulnerable Person or Population

Stereotype, Bias, Equity Issue, and/or Ethical Concern

Contributing Factors: Characteristics, Values, Beliefs, Racism, Oppression, and/or SDoH

Example:

Chapter 6, p. 23

Lacks family members

Scientists lied to them when taking samples about the real purpose.

Racism, not able to self-advocate, lack of knowledge regarding medical procedures, female patient/male providers.

Important Terms

Column 1: Person or Population. Select individuals and groups of individuals from the book.

· Vulnerable. The quality or state of being exposed to the possibility of being attacked or harmed, either physically or emotionally

· Population. A group of people with common characteristics (e.g., sex, race and ethnicity, educational attainment, family income, disability status, and geographic location)

Column 2: Stereotype, Bias, Equity Issue, and/or Ethical Challenges. Explain how this makes the patient’s health and wellness vulnerable.

· Stereotype. widely held but fixed and oversimplified image or idea of a particular type of person or thing

· Bias. prejudice in favor of or against one thing, person, or group compared with another, usually in a way considered to be unfair:

· Equity Issue. Systemic disparities in health between groups with different levels of underlying social advantage/disadvantage (e.g., wealth, power, or prestige).

· Ethical Dilemma. a situation in which a difficult choice has to be made between two courses of action, either of which entails transgressing a moral principle

Column 3: Contributing Factors. Explain the internal and external factors that contribute to this vulnerability (e.g., personal characteristics, values, cultural beliefs, and/or social determinants of health.

· Characteristics. Qualities or features that belong to a person.

· Values. A. person's principles or standards of behavior; one's judgment of what is important in life.

· Cultural Beliefs. A set of behavioral patterns related to thoughts, manners and actions, which members of society (or group) have shared and passed on to succeeding generations (cohorts).

· Structural Racism. Racism embedded in laws and regulations of a society or organization.

· Social Determinants of Health. Conditions in which people are born, grow, live, work and age ; these circumstances are shaped by the distribution of money, power and resources at global, national and local levels.

Henrietta Lacks Signature Assignment

Each group will explore a theme from the book Immortal Life of Henrietta Lacks related to health inequity and/or an ethical dilemma. After the instructor assigned each group a theme, the groups will work to develop a class presentation. You are encouraged to slightly edit the template provided to include graphic and photos, but make sure the presentation is easy to follow (e.g., visually clear with bullet points, not paragraphs). Students will present their theme to the class; all members are expected to participate in the presentation. The grading rubric is in the course syllabus. Each presentation should contain the following information.

 

1. Explain and Evaluate the Theme.

c. Equity Issues. Explain the contributing factors of the theme/issues, how it affects health and wellness, and the challenges with resolving it.

d. Ethical Dilemma. Explain the two sides of the difficult choice describing pros and cons of taking action towards either side.

e. Use examples two (2) from the book to support your explanation, if applicable.

 

2. Present Day Equity Issues and/or Ethical Dilemmas.

a. Search for media articles about a similar issue/dilemma in healthcare/research since 2012. Find at least two (2) examples. Include a photo to provide a visual illustration. Provide the citation in the references section of the template.

b. Provide a brief description of the article, the issue it discusses, and how this current event is similar to the theme in the book.

 

3. Describe the Role of the Nurse

a. Describe the role of the nurse when faced with this issue, including responsibility to the profession and the patient?

b. Describe how nurses can use the resources available to them to resolve the issue. (You learned about these resources all throughout the semester - e.g., ethical frameworks, Nursing Code of Ethics, Standards of Practice, regulations, quality and safety, etc.)?

c. What additional factors support the ability of any professional nurse to speak up (student nurse, nursing student, experienced nurse).

Social Determinants of Health  Economic  Stability  Employment  Income  Expenses  Debt  Medical Bills  Support  Neighborhood  and Physical  Environment  Housing  Transportation  Parks  Playgrounds  Walkability  Zip Code/  Geography  Education  Literacy  Language  Early Childhood  Education  Vocational  Training  Higher  Education  Food  Food Security  Access to  Community, Safety,  & Social Context  Social Integration  Support Systems  Community  Engagement  Stress  Healthy Options  Exposure to  Violence/Trauma  Policing/Justice  Policy  Health Care System  Health Coverage  Provider & Pharmacy  Availability  Access to  Linguistically And  Culturally Appropriate  & Respectful Care  Quality of Care  Heath and Well-Being:  Mortality, Morbidity, Life Expectancy, Heath Care Expenditures, Heath Status, Functional Limitations  KFF

Source. Beyond Health Care: The Role of Social Determinants in Promoting Health and Health Equity | KFF

Part 1: Life (Chapters 1-11) Table

Copy and paste this table into a separate document and prepare for submission to Blackboard on assigned day.

Chapter*

Vulnerable Person or Population

Stereotype, Bias, Equity Issue and/or Ethical Concern

Contributing Factors: Characteristics, Values, Beliefs, Racism, Oppression, and/or SDoH

1

2

3

4

5

6

7

8

9

10

11

*include page numbers for reference later.

Part 2: Death (Chapters 12-22) Table

How do personal characteristics, personal/family values, cultural beliefs, social determinants of health, and/or cultural racism affects this person/population(s) health, well-being, or access to health care?

Chapter*

Vulnerable Person or Population

Stereotype, Bias, Equity Issue and/or Ethical Concern

Contributing Factors: Characteristics, Values, Beliefs, Racism, Oppression, and/or SDoH

Example

12

13

14

15

16

17

18

19

20

21

22

*include page numbers for reference later.

Part 3: Immortality (Chapters 23-38) Table

Copy and paste this table into a separate document and prepare for submission to Blackboard on assigned day.

Chapter*

Vulnerable Person or Population

Stereotype, Bias, Equity Issue and/or Ethical Concern

Contributing Factors: Characteristics, Values, Beliefs, Racism, Oppression, and/or SDoH

23

24

25

26

27

28

29

30

31

32

33

34

35

36

37

38

*include page numbers for reference later.

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