reading response
Patient Education and Counseling 85 (2011) e16–e25
Review
The quality of mental disorder information websites: A review
Nicola J. Reavley *, Anthony F. Jorm
Orygen Youth Health Research Centre, Centre for Youth Mental Health, University of Melbourne, Parkville, Parkville, Australia
A R T I C L E I N F O
Article history:
Received 22 June 2010
Received in revised form 10 September 2010
Accepted 14 October 2010
Keywords:
Internet
Website
Mental disorder
Quality
Depression
Anxiety
A B S T R A C T
Objective: This paper reviews studies assessing the quality of websites providing information about
mental disorders.
Methods: The review included 31 articles identified by searching research databases in March 2010.
Topics covered included affective disorders, anxiety disorders, eating disorders, substance use disorders
and schizophrenia/psychosis.
Results: The largest number of articles (13) reported studies assessing affective disorder information
quality. Methodologies varied in site selection and rating methods, with some of limited validity. Most
concluded that quality was poor, although quality of affective disorder sites may be improving.
Conclusion: There is currently very little understanding of the influence of website quality on user
behaviour. Future quality assessments might use the criteria informed by key behaviour change theories.
Practice implications: A possible approach to research on websites and user behaviour might be to
develop an evaluation framework incorporating strategies from behaviour change models, key mental
health literacy elements and health outcomes relevant to mental health promotion.
� 2010 Elsevier Ireland Ltd. All rights reserved.
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1. Introduction
Current estimates suggest that over 1.8 billion people have access to over 2.5 million sites on the Internet [1,2]. As many as 80% of Internet users in developed countries use the Internet to search for health information, typically to find information on conditions, symptoms, diseases and treatments [3,4]. Information on mental disorders is commonly accessed online, particularly by those with a psychiatric diagnosis or their carers [5–7]. The increase in health information on the Internet has been closely followed by an increase in the number of studies analysing the quality of that information. Concerns about information quality led to proposals for ways of assessing this, with an early focus on accountability [8]. Since then other assessment measures have been developed and while these vary, most cover one or more of the following: accuracy, completeness, readability, accountability and design and technical criteria [9,10]. One of the most commonly used is DISCERN, a 16 item checklist designed to assist consumers to assess the quality of health information [11]. Codes of conduct have also been developed, for example the e-Health Code of Ethics and the Health on the Net Foundation [12,13]. In a 2002 review of studies of quality, Eysenbach et al. reported that 70% considered quality a problem [9]. However,
* Corresponding author at: Orygen Youth Health Research Centre, Centre for
Youth Mental health, University of Melbourne, Locked Bag 10, Parkville, Victoria
3052, Australia. Tel.: +61 3 9342 3769; fax: +61 3 9342 2941.
E-mail address: [email protected] (N.J. Reavley).
0738-3991/$ – see front matter � 2010 Elsevier Ireland Ltd. All rights reserved. doi:10.1016/j.pec.2010.10.015
there is evidence that accuracy varies between health domains, with Eysenbach et al. noting that up to 90% of diet and nutrition information was unreliable compared to only 5% of that for cancer. Given the swift evolution of the Internet and a relatively recent focus on information quality, there is a need for a clearer picture of the quality of available mental disorder information, including differ- ences between disorders and types of sites. Such information may be useful for healthcare practitioners in discussions with patients who use the Internet and for organisations involved in mental health promotion. The primary aim of this paper is to review studies assessing the quality of websites providing information about mental disorders, including depression, anxiety disorders, eating disorders, substance use disorders, schizophrenia and psychosis. Further aims are to examine quality assessment methods, correlates of quality, methods of improving it and the influence of quality on user behaviour.
2. Methods
Studies to review were identified by searching PubMed, PsycInfo and the Cochrane Database of Systematic Reviews in March 2010. Search terms were (anxiety OR depression OR bipolar disorder OR psychosis OR schizophrenia OR mental disorder OR alcohol OR substance misuse OR dementia) AND (Internet OR web OR websites) AND (quality OR accuracy OR evaluation) AND (information OR education). Full text articles were retrieved if they were in English. Information from abstracts of articles in languages other than English was included in the review.
N.J. Reavley, A.F. Jorm / Patient Education and Counseling 85 (2011) e16–e25 e17
3. Results
The search retrieved 450 articles and their titles and abstracts were screened for relevance (see Fig. 1). Articles were excluded if they evaluated the effects of web-based interventions. The studies evaluating quality of websites giving information on smoking cessation were also excluded. We also checked the references of all identified studies and retrieved articles not in the original search. This led to the inclusion of further five articles. In total we retrieved 27 full text articles and assessed these for eligibility. Two were subsequently excluded, as they did not involve any assessment of quality. A further article by one of the authors (AFJ) was added when it was accepted for publication. Thirty-one articles were included in the final review. The largest number of articles (13) reported studies assessing the quality of information on affective disorders (see Table 1) [14–26]. Four studies assessed the quality of information on substance misuse [27–30] and three assessed information on anxiety disorders [31–33]. Other topics included schizophrenia/psychosis [34,35], suicide prevention [36], gam- bling [37], eating disorders [38], female hypoactive sexual desire [39], psychological trauma [40], dementia [41], St John’s wort [42] and attention deficit hyperactivity disorder (ADHD) [34,43]. Five of the articles were in languages other than English and the information given in Table 1 is from the English language abstracts [27,33,35,41,44].
3.1. Methods of assessing quality
Study methodologies varied in their site selection and rating methods. Some studies assessed all available websites that met their criteria, which varied according to the study [19,21– 23,25,26,28–30,32,37,39,42,45], while others limited their assess- ment to the top 10, 20 or 50 results given by common search
450 rec ords iden�fied through database searching
450 rec ords screened by �tle and abstract
27 full-text ar� assessed for e
31 studies included in review
22 full-text ar�cles retrie
Abstracts of 5 foreign langu age ar�cles reviewed and included
1 ar�cle by one of the study authors included on acceptance for publica�on
Fig. 1. Flow diagram for review of studies of qu
engines [14–18,20,31,34,36,38,40,43]. Rating methods typically involved the use of expert assessment and rating instruments. All the studies, with the exception of that by Bremner et al. [40], which used a single rater, used rating by two or more experts. Griffiths and Christensen [19,20] involved consumers in the rating and Griffiths et al. [21] used a computer algorithm for the automated assessment of evidence-based quality of depression treatment information.
3.2. Validity of quality assessments
The Silberg scale, which assesses accountability, and DISCERN were the most commonly used quality assessment tools [8,11]. However, evidence for links between these instruments and overall site quality is mixed. In their assessments of depression sites, Griffiths and Christensen [18] and Khazaal et al. [30] did not find significant associations between Silberg scores and site quality. DISCERN is designed to be used by consumers without content expertise and therefore does not assess scientific quality or accuracy of evidence. A small number of studies did not find associations between site quality and DISCERN scores [23,29,30,37] while others did [14,19,20,26,31,32,43].
In addition, a number of studies reviewed here incorporated the development of rating instruments, a practice of questionable value, as such instruments are rarely validated or sustainable. In 1998, Jadad and Gagliardi [10] reviewed 47 Internet health information rating instruments, none of which provided informa- tion on the interobserver reliability and construct validity of the measurements. In a follow-up study done in 2002, 98 instruments were identified. Of 51 newly identified rating instruments, only five provided some information by which they could be evaluated and none of these were validated [46]. This limits the ability to draw conclusions from such studies.
428 rec ords excluded if they did not assess quality, if they ev aluated the effects of interve n�ons or if they evaluated smoking cessa�on websites
cles ligibility
2 full-text ar�cles excluded as they did not involve assessme nt of informa�on quality
ved
5 addi�onal full-text ar�cles retr ieve d a�er checking references
ality of Internet mental health information.
Table 1 Summary of studies of quality of mental disorder information on the Internet.
Material evaluated Time period Measures Mean scores
(where available)
Overall conclusions
All mental disorders Nemoto et al. [45] Japanese language websites dealing
with mental health and mental
disorders (37 websites)
May 2005 DISCERN (15–75)
Global score (1–10)
45.4 (16.8)
4.0 (9.3)
Information on mood disorder,
panic disorder, and
schizophrenia most common.
Quality of information mostly
inadequate, especially
that regarding treatment.
Substance misuse Faden et al. [28] US college online alcohol policy
information (52 websites)
– Comparison of 2002 and 2007 Information more available and
accessible to the students and
other interested parties in
2007 than 2002
Coquard et al.
[27] [French]
Quality of French language
information on alcohol dependence
– Standardised pro forma Overall quality of sites poor
Khazaal et al. [29] Quality of information on cannabis
use (57 websites)
June 2007 Health on the net (HON) quality labela Overall quality of sites poor
Silberg score (0–9) 3.9 (2.4)
Interactivity score (0–6) 1.9 (1.4)
Abbot aesthetic criteria (0–4) 3 (0.8)
Flesch reading ease score (0–100) 43.7 (15.5)
Flesch–Kincaid reading grade
education scores
10.5 (3.3)
Brief DISCERNb (16–20) 30.2 (8.7)
Content quality scores (0–20) 8.0 (3.9)
Global scores (0–39) 16.5 (5.3)
Khazaal et al. [30] Quality of information on cocaine
addiction (120 websites)
July 2007 Health on the net (HON) quality labela Overall quality of sites poor
Silberg score (0–9) 3.8 (2.2)
Interactivity score (0–6) 1.6 (1.1)
Abbot aesthetic criteria (0–4) 3 (0.8)
Flesch reading ease score (0–100) 42.2 (12.2)
Flesch–Kincaid reading grade
education scores
10.5 (2.1)
DISCERNb (16–80) 32.1 (8.9)
Content quality scores (0–20) 9.6 (5)
Global scores (0–39) 18 (6)
Affective disorders Zermatten et al. [26] Quality of information on depression
(45 websites)
February 2009 Health on the net (HON) quality labela Overall quality of sites good
Silberg score (0–9) 6.47 (2.2)
Interactivity score (0–6) 3.2 (1.47)
Abbot aesthetic criteria (0–4) 2.44 (0.76)
Flesch reading ease score (0–4) 40.07 (9.73)
Flesch–Kincaid reading grade
education scores
12.1 (1.78)
DISCERNb (16–80) 30.2 (8.7)
Content quality scores (0–20) 8.0 (3.9)
Global scores (0–39) 16.5 (5.3)
Barnes et al. [14] Quality of information on bipolar
disorder (15 websites)
August 2007 DISCERN
Bipolar Website Quality Checklist (BWQC)
Overall quality of sites good
Websites with an editorial board
or affiliation
to a professional
organisation had higher
quality information
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Morel et al. [23] Quality of information on bipolar
disorder (34 websites)
November 2006 Health on the net (HON) quality labela Overall quality of sites good
Silberg score (0–9) 4.8 (2.2)
Interactivity score (0–6) 1.8 (1.2)
Abbot aesthetic criteria (0–4) 2.8 (0.6)
Flesch reading ease score (0–100) 30.1 (12.7)
Flesch–Kincaid reading grade
education scores
10.3 (2)
DISCERNb (16–80) 43.7 (11.9)
Content quality scores (0–28) 19 (4.8)
Global scores (0–39) 38.3 (6)
Ferreira-Lay and
Miller [17]
Quality of information on depression
(23 websites)
– Depression website content checklist Higher quality information from
websites of government,
professional and charitable
organisations.
Seyringer et al.
[24] [German]
Quality of German language information
on bipolar disorder and manic depressive
disorder
– A range of criteria considering
form and content
Comprehensive information on
the nature of the
illness more frequent in sites
resulting from the search term
‘‘manic-depressive disorder’’.
The term ‘‘bipolar disorder’’
produced more results offering
information on evidence-based
therapeutic
strategies.
Stjernsward and
Ostman [25]
Information for the relatives and significant
others of depressed individuals (22 websites)
November 2004 Grounded Theory methodology Some websites contained valuable
information and
partly addressed known needs.
Griffiths et al. [21] Quality of depression websites Computer algorithm for the automated
assessment of evidence-based quality
of treatment information (AQA)
Correlation between AQA and
human ratings was high leading
to the
conclusion that quality assessment
can be automated.
Griffiths and
Christensen [20]
Quality of depression websites April 2003 Sites rated by health professionals using
evidence-based criteria.
Health professionals and consumers
rated sites using DISCERN
Google PageRank
Overall scores low for both health
professionals
and consumers. Correlation
between evidence-based guideline
score and DISCERN.
Griffiths and
Christensen [19]
Quality and accessibility of Australian
depression sites (15 websites)
November–December 2001 Quality of treatment content (concordance with
evidence-based guidelines, conformity with
DISCERN criteria, citation of scientific evidence)
Accessibility (search engine rank)
Mean content quality scores were
not high and site
accessibility was poor.
Berland et al. [15] Depression information in English
and Spanish (25 websites)
July–December 2000 Accessibility
Quality (topics and questions developed
by expert panel)
Readability (Flesch–Kincaid) criteria
Coverage of key information
generally poor and inconsistent.
Accuracy of the information
generally good.
Lissman and
Boehnlein [22]
Depression information (178 sites) April 2000 Rating according to mention of the nine symptoms
and five major criteria of a major
depressive episode and mention of any of
three basic treatment recommendations.
Overall quality of sites poor.
For-profit websites appeared
much more
frequently than
not-for-profit sites among the
first 20 sites generated by
each search
engine, and they
contained poorer information.
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Table 1 (Continued )
Material evaluated Time period Measures Mean scores
(where available)
Overall conclusions
Christensen
et al. [16]
Depression information (21 websites) March–July 1999 Treatment types and treatment
categories compared across commercial,
professional and consumer websites
Antidepressant medication and
psychotherapy
noted by all sites.
Consumer sites mentioned
psychotherapy
less frequently but did not
mention complementary
treatments
more frequently.
Griffiths and
Christensen [18]
Depression information (21 websites) March 1999 Site characteristics
Quality (concordance with evidence-
based guidelines)
Accountability (Silberg score),
Level of evidence scores
Overall quality poor
Websites with an editorial board
or affiliation
to a professional
organisation had higher quality
information
Mean Silberg 5.4 (2–9)
Global score 2.95/10 (0.5–7.5)
Anxiety disorders Khazaal et al. [32] Quality of information on social
phobia (58 websites)
July 2006 Health on the net (HON) quality labela Overall quality of sites poor
Silberg score (0–9) 3.3 (.7)
Interactivity score (0–6) 1.3 (1.0)
Abbot aesthetic criteria (0–4) 1.9 (0.8)
Flesch reading ease score (0–100) 53.8 (12.7)
Flesch–Kincaid reading grade education scores 7.3 (2)
DISCERNb (16–80) 35.6 (13.9)
Content quality scores (0–28) 11.4 (7.3)
Global scores (0–39) 18 (8.3)
Ipser et al. [31] Quality of information on anxiety
disorders (67 websites)
– DISCERNb
Websites also compared on popularity,
readability and a range of technical criteria
Websites were generally of poor
to moderate quality.
Higher quality scores obtained
by those whose authors attributed
the sources and clearly stated
the purpose of the website.
Serdobbel et al.
[33] [Dutch]
Quality of Dutch-language
information on OCD
– DISCERNb
Google PageRank
Quality of information
generally poor
Schizophrenia/ psychosis
Schrank et al.
[35] [German]
Quality of German-language information
on schizophrenia
– Evaluation of a range of criteria,
including diagnosis
and therapy, links and interactive offer
Evidence-based medical
information was provided
by more than half of the sites
resulting from the search term
schizophrenia and by less
than one-third of psychosis hits.
Kisely et al. [34] Quality of information on the treatment
of schizophrenia
(90 websites)
June–September 2001 Accountability (Silberg score),
Presentation and readability (Flesch–Kincaid
Grade Level score)
3.2 (0–9)
1.9 (0–4)
11.5 (6.25–12.25)
Accountability, presentation and
readability, were poor.
Agreement with evidence-based
practice for low sites
in the top 10% of scores were
significantly
more likely to be owned by an
organisation or have an
editorial board than those
in the bottom 10%.
Other
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Jorm et al. [36] Effect of feedback on the quality of suicide
prevention websites:
randomised control trial (52 websites)
November 2008 Websites scored on a 26 item quality
checklist and feedback
given to 26 randomly assigned websites
Many sites found to be low
quality. Feedback to website
administrators did not improve
quality.
Khazaal et al. [37] Quality of web-based information on
pathological gambling
(75 sites)
September 2007 Health on the net (HON) quality labela Overall quality of sites poor
Silberg score (0–9) 4 (2)
Interactivity score (0–6) 2.07 (1.04)
Abbot aesthetic criteria (0–4) 2.8 (0.6)
Flesch reading ease score (0–100) 48.8 (10.8)
Flesch–Kincaid reading grade education scores 8.5 (2.1)
DISCERNb (16–80) 35.3 (8.2)
Content quality scores (0–28) 12.5 (4.9)
Global scores (0–39) 21.6 (6)
Akram et al. [43] UK websites providing information about ADHD and its
pharmacological management (48 websites)
January 2007 Strathclyde Website evaluation
Form
Flesch reading ease score
DISCERNb
20.4 (5.5) Information basic and incomplete.
Websites by government and
professional bodies better than
other categories
Touchet et al. [39] Quality of web-based information on female hypoactive sexual
desire disorder (HSDD) (24 websites)
– Tool incorporating expert consensus-derived quality
criteria for HSDD, including structural
criteria (currency, authorship, disclosure of competing
interests) and performance criteria
(accuracy, and comprehensiveness).
Websites ranked by quality score.
Results indicated room for
improvement in
the quality of majority of websites
Bremner et al. [40] Quality of Internet sites related to the topic of psychological
trauma (80 websites)
– Published guidelines for evaluating
medical information
Websites providing information
about psychological
trauma are often
not useful, and can sometimes
provide inaccurate and
potentially harmful information.
Seomun et al.
[41] [Korean]
Quality of Korean language information on Dementia – Construction
Accessibility
Operation
Contents
Overall quality of sites poor
Murphy et al. [38] Quality of information on the treatment of
eating disorders (15 websites)
January 2003 Two reviewers evaluated the characteristics,
quality of content, and
accountability of the sites
Silberg score
Global score
2.7 (0–7)
2.0 (0–5) max 10
Overall quality of sites poor
Kisely et al. [34] Quality of information on the treatment of ADHD (92 sites) June–September 2001 Accountability (Silberg score)
Presentation
Readability (Flesch–Kincaid Grade Level score)
3.2 (0–9)
1.9 (0–4)
11.5 (6.25–12.25)
Accountability, presentation and
readability, were poor.
Agreement with evidence-
based practice for
low Sites in the top 10% of scores
were significantly more likely to
be owned by an
organisation or have an editorial
board than those in the
bottom 10%.
Martin-Facklam
et al. [42]
Quality of information on St John’s wort (208 websites) July 2000 HON quality labela
Statement of correct indication and
mentioning of interacting drugs
Quality generally poor.
Non-commercial sites preferable.
a Health on the net (HON) quality label indicates websites which include the author’s credentials, the date of the last modification with respect to clinical documents, confidentiality of data, source data reference,
funding and the advertising policy [65]. b DISCERN – an instrument that aims to identify written health-related material of good content quality [11,66].
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3.3. Variation in quality across topics
Twenty-three studies concluded that the overall quality of sites was inadequate. This was particularly notable for reviews of studies of the quality of information on anxiety disorders and mental disorders other than affective disorders. The highest quality information appears to be that relating to bipolar disorder, with two studies concluding that information was generally of good quality [14,23]. A comparison of two of the studies using the same methodology reveals that the quality of information on bipolar disorders was higher than that for depression, with mean (SD) DISCERN scores of 43.7 (11.9) and 30.2 (8.7) respectively [23,26]. However, a number of sites giving information on bipolar disorder were assessed in one of these papers [26], which may partly explain the higher quality rating for depression websites in that paper compared to others assessing depression site quality. A number of the papers listed the top-rated websites for the topic area. These are given in Table 2.
3.4. Is quality improving?
Studies reviewing the quality of affective disorder information were carried out between 2000 and 2010. While earlier studies generally concluded that information quality was poor, the four most recent studies, two of which assessed information on bipolar disorder, concluded that the overall quality of website information was good [14,17,23,26]. While study methodologies and quality indicators differed, it may be reasonable to conclude that there has been an improvement in information quality over time, particu- larly in the case of more frequently assessed topics.
Table 2 Top-rated currently available websites for mental disorders.
Depression Top websites (2010) [26]
Medicinenet.com http://www.medicinenet.c
Netdoctor.co.uk http://www.netdoctor.co.u
The Royal College of Psychiatrists http://www.rcpsych.ac.uk/
Top websites (2008) [17]
National Health Service (NHS) www.nhs.uk/depression
National Institutes of Mental Health (NIMH) www.nimh.nih.gov/health
www.nimh.nih.gov/public
www.nimh.nih.gov/medlin
SANE www.sane.org.uk/About__
www.sane.org.uk
Top Australian websites (2002) [19]
beyondblue www.beyondblue.org.au
BluePages www.bluepages.anu.edu.a
University of New South Wales Clinical Research
Unit for Anxiety and Depression (CRUfAD)
www.crufad.unsw.edu.au
Bipolar disorder (2009) [14] Black Dog Institute www.blackdoginstitute.org
National Institutes of Mental Health (NIMH) www.nimh.nih.gov
bipolar.about.com www.bipolar.about.com
ADHD Top UK websites (2008) [43]
BMJ Publishing Group Best Treatments www.besttreatments.co.uk
NHS Direct Health Encyclopaedia ADHD www.nhsdirect.nhs.uk/art
Pharmaceutical company Janssen–Cilag Products www.janssen-cilag.co.uk/b
Top websites (2003) [34]
National Institutes of Mental Health (NIMH) http://www.nimh.nih.gov/
Interactive metronome http://www.interactiveme
Northern County Psychiatric Associates http://www.baltimorepsyc
Schizophrenia (2003) [34] Medical Journal of Australia http://www.mja.com.au/p
Treatment Advocacy Centre http://www.psychlaws.org
Healthcommunities.com http://www.mentalhealthc
Suicide prevention (2010) [36] Suicide.org www.suicide.org
Suicideline www.suicideline.org.au
3.5. Correlates of content quality
Several studies investigated the links between site owner characteristics and content quality. Five studies found that higher quality information came from websites of government, profes- sional and charitable organisations [14,17,22,31,43], while five others found that site ownership did not predict quality [23,29,30,32,37]. Other criteria associated with higher quality included editorial boards, having information on a variety of mental health issues, having internal search engines, mentioning scientific evidence or citation of references and absence of financial interest. Sites by professional organisations tended to recommend one type of provider, perhaps limiting their quality scores. Evidence for association between quality labels (e.g. seals of approval) and quality score was mixed, as was evidence for links between search engine page ranks and quality scores [20,47].
3.6. Methods of improving quality
While there has been discussion of a number of proposals for improving quality, there is no clear consensus on the best way to accomplish this. Early concerns about the quality of health information on the Internet led to proposals for labelling and filtering information [48]. Codes of conduct have also been developed and graphic images denoting an award or approval seal appear on some websites [49]. However, there is no way to stop websites using such images without permission. It is likely that such an approach would be more useful if there were a consistent, universal and well-recognised way of indicating high quality websites. A number of other technological solutions have been proposed, for example, the use of web browser encryption
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icons, and automated quality assessments, but these face significant barriers to implementation [50,51].
In an attempt to assess the effect of feedback on website quality improvement, Jorm et al. [36] scored 52 suicide prevention websites against expert consensus guidelines. Half the websites received feedback on how to improve the sites and half did not. Websites were evaluated again 6 months later. However, feedback did not lead to improvement.
3.7. Influence on user behaviour
Despite the large number of studies assessing the quality of health information on the Internet, there is very little understand- ing of quality in the context of the use that consumers make of such information. There is little evidence of the usefulness to consumers
Fig. 2. Mental health website quality evaluation framework in
of checklists such as DISCERN and it is largely unknown if better quality information leads to better health outcomes [52]. Many of the studies discussed here use expert rating and there is evidence that consumers are influenced by different criteria to experts when evaluating information [53,54]. Design features appear to play a significant part in assessment and consumers have been shown to reject clinically credible sites because of poor design [53]. Readability may also be a factor. Many of the studies reviewed here found reading levels to be relatively high, perhaps limiting the usefulness of sites to those of lower educational levels. In such cases, simplicity and intelligibility may need more emphasis than scientific rigour. Perceived expertise and absence of bias are also relevant, for example, a consumer may mistrust a pharmaceutical company website that an expert may rate highly against evidence- based criteria [54,55]. In a study of mental health-related Internet
corporating behavioural change theory-driven strategies.
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use, Lam-Po-Tang and McKay [56] found that perceived reliability was not associated with perceived influence on decision making.
Assessments of the effects of Internet information quality are further complicated by the fact that consumers typically use many sources of health information and effects may take a long time to develop. Evidence suggests that many of those who source information on the Internet discuss this with their health practitioners [54,56].
In the context of the low rates of help-seeking for mental health problems [57], an aim of some websites is to promote evidence-based treatments, many of which involve seeking professional help. However, research examining the links between Internet use and help seeking has provided mixed results [58–60]. In a more recent study, analysis of data from the Australian National Survey of Mental Health and Wellbeing (NSMHWB) showed that those who used the Internet in the previous 12 months were almost three times as likely to seek help from any service and from GPs. They were just over twice as likely to seek help from mental health professionals. Other information sources, namely, non-fiction book, pamphlet, news- paper, television, radio, were less strongly associated with service use [61]. However, the use of cross-sectional data limits the ability to tell if help-seekers are more likely to use the Internet or if the Internet actually promotes help-seeking and there is a need for further research on this issue.
3.8. Practice implications
There is therefore a need for further research on identifying consumers of mental health information on the Internet and how the various aspects of quality affect health behaviour such as help seeking and use of evidence-based treatments. There may need to be more consideration of factors uniquely relevant to the Internet such as privacy, usability and accessibility.
As the goal of much health education is behavioural change, it can be argued that the extent to which a website applies recognised behaviour change theories is an indicator of quality. Thus, future assessments of quality might use criteria informed by key behaviour change theories. A possible approach to this might be to develop an evaluation framework incorporating strategies from behaviour change models, key mental health literacy elements and health outcomes relevant to mental health promo- tion. A logic model, which specifies principles, elements and outcomes, along with the assumed linkages among these may be a useful approach [62].
An example of a logic model which could be used for an evaluation framework is given in Fig. 2. This example involves a hypothetical website aiming to improve public action for common mental disorders. The first line incorporates strategies from key behaviour change models, such as the Health Belief Model, Theory of Reasoned Action and Planned Behaviour, Transtheoretical (Stages of Change) Model and Social Learning Theory. The second line outlines key messages developed as a result of work on mental health literacy, which is defined as ‘‘knowledge and beliefs about mental disorders which aid their recognition, management or prevention’’ [63]. The third line outlines improvements in mental health literacy, the fourth line outlines intermediate health outcomes and the fifth line outlines final desirable health outcomes. Mental health website quality assessment could be extended to cover the extent to which sites meet the evaluation criteria arising out of such a framework and might include naturalistic reports of user behaviour [54,64]. Such assessments might involve the development of innovative ways of assessing health-related behaviours and outcomes. The move towards greater interactivity, information sharing, and collaboration on the Internet may offer such opportunities.
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- The quality of mental disorder information websites: A review
- Introduction
- Methods
- Results
- Methods of assessing quality
- Validity of quality assessments
- Variation in quality across topics
- Is quality improving?
- Correlates of content quality
- Methods of improving quality
- Influence on user behaviour
- Practice implications
- References