Discussion
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Sexuality and Intellectual Disability –Resources & Reading List
By Grace Kelly November 2009
Resources: For training and networking in the area of sexuality and intellectual disability (for people with intellectual disabilities, family members and staff) contact
• The Irish Sex Education Network (ISEN) –email: isentraining@yahoo.co.uk; ph: 087- 6284538, website: http://www.isenonline.com/
For a comprehensive list and review of available sex education resources, see:
• Health Scotland (2008). Sexual Health and Relationships A Review of Resources for people with learning disabilities. http://www.healthscotland.com/uploads/documents/7819- AReviewOfResourcesforPeopleWithLearningDisabilities.pdf
• Also forthcoming, Irish Sex Education Network (ISEN) online database of resources http://www.isenonline.com/
For a list of resources in the area of people with intellectual disabilities as parents, see:
• Working Together with Parents Network (Supporting parents with learning disabilities and their children) http://www.bristol.ac.uk/norahfry/right-support/
• Through the Looking Glass http://lookingglass.org/index.php For resources for working with gay men and women with intellectual disabilities, see:
• Online resources of the: http://www.bristol.ac.uk/norahfry/resources/online/#sexuality
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Reading list: This reading list covers:
• Attitudes, experiences & aspirations (of society, families, staff & people with intellectual disabilities),
• Sexual knowledge • Sex education, • Sexual health, • Sexual abuse, • Gender, • Sexual orientation, • Marriage, • Parenting, • Facilitated/ PA assisted sexuality, • Training needs, • Policy, • Capacity to consent, • Legislation, • Research and • Theory.
Abbott, D. & Burns, J. (2007). What’s love got to do with it? The experiences of lesbian, gay and bisexual people with intellectual disabilities and the views of the staff that support them. Sexuality Research and Social Policy, University of California Press, 4 (1), 27-39.
Abbott, D. & Howarth, J. (2007). Still Off-Limits? Staff Views on Supporting Gay, Lesbian and Bisexual People with Intellectual Disabilities to Develop Sexual and Intimate Relationships? Journal of Applied Research in Intellectual Disabilities, 20(2), 116-126.
Allen, M. & Seery, D. (2007). The current status of relationships and sexuality education practice for people with an intellectual disability in Ireland. Dublin: Irish Sex Education Network.
Ames, T. R. (1995) Perspectives: Inclusionary standard for determining sexual consent for individuals with developmental disabilities. Mental Retardation, Aug 1995, 264 -268.
Anderson, P. & Kitchin, R. (2000). Disability, space and sexuality: access to family planning services. Social Science & Medicine, 51(8), 1163-1173.
Archibald, J., Gillespie, S., Maloney, A., Moore, B., O'Hara, C., Scanlon, C. et al. (2007). The Management of Menopause for Women with Intellectual Disabilities. Frontline, Spring, No. 69.
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Aunos, M. & Feldman, A.A. (2002). Attitudes towards sexuality, sterilization and parenting rights of persons with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 15(4), 285-296.
Bambara, L.M. & Brantlinger, E. (2002). Toward a healthy sexual life: An introduction to the special series on issues of sexuality for people with developmental disabilities. Research and Practice for Persons with Severe Disabilities, 27(1), 5-7.
Bazzo, G., Nota, L., Soresi, S, Ferrari, L. & Minnes, P. (2007). Attitudes of Social Service Providers toward the Sexuality of Individuals with Intellectual Disability. Journal of Applied Research in Intellectual Disabilities, 20(2), 110-115.
Bell, D.M. & Cameron, L. (2003). The assessment of the sexual knowledge of a person with a severe learning disability and a severe communication disorder. British Journal of Learning Disabilities, 31(3), 123-129.
Blanchett, W.J. & Wolfe, P.S. (2002). A review of sexuality education curricula: Meeting the sexuality education needs of individuals with moderate and severe intellectual disabilities. Research and Practice for Persons with Severe Disabilities, 27(1), 43-57.
Block, P. (2000). Sexuality, fertility and danger: twentieth-century images of women with cognitive disabilities. Sexuality and Disability, 18(4), 239-254.
Block, P. (2002). Introduction to the Special Issue: Parents with disabilities. Sexuality and Disability, 20(1), p.3-5.
Block, P. (2002). Sexuality, parenthood & cognitive disability in Brazil. Sexuality and Disability, 20(1), p7-27.
Bonnie, S. (2002). Facilitated Sexual Expression in the Independent Living Movement in Ireland. http://www.independentliving.org/docs6/bonnie200208.html
Booth, T. & Booth, W. (1994). Parenting Under Pressure: Mothers and Fathers with Learning Difficulties. Buckingham: Open University Press.
Booth, T. & Booth, W. (1998). Growing Up with Parents who have Learning Difficulties. London: Routledge.
Booth, T. & Booth, W. (1999). Parents Together: action research and advocacy support for parents with learning difficulties. Health & Social Care in the Community, 7(6), 464-474.
Booth, T. & Booth, W. (2000). Against the odds: Growing up with parents who have learning difficulties. Mental Retardation, 38(1), 1-14. Feb 2000.
Booth, T. & Booth, W. (2002). Men in the lives of mothers with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 15(3), 187- 199.
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Booth, W. & Booth, T. (2004). A Family at Risk: Multiple Perspectives on Parenting and Child Protection. British Journal of Learning Disabilities, 32(1), 9- 15.
Booth, W. (2000). Sexuality and women with learning disabilities. British Journal of Social Work, 30(1), 127-128.
Brown, H. (1994). ‘An Ordinary Sexual Life?’: a review of the normalisation principle as it applies to the sexual options of people with learning disabilities. Disability & Society, 9(2), p. 123-140.
Brown, H. & Craft, A. (1992). Working with the Unthinkable. London: Family Planning Association.
Brown, H. & Turk, V. (1992). Defining sexual abuse as it affects adults with learning disabilities. Mental Handicap, 8(1), 3-24.
Brown, H., Hunt, N. & Stein J. (1995). ‘Alarming but very necessary’: Working with staff groups around the sexual abuse of adults with learning disabilities. Journal of Intellectual Disability Research, 38, 393-412.
Brown, H., Stein, J. & Turk, V. (1995). The sexual abuse of adults with learning disabilities: Report of a second two-year incidence survey. Mental Handicap Research, 8(1), 3-24.
Browne, J. & Russell, S. (2005). My Home, Your Workplace: People with Physical Disability Negotiate their Sexual Health without Crossing Professional Boundaries. Disability & Society, 20(4), 375-388.
Caffrey, S. (1992). S. A. M. & S. U. E. Sexual Attitudes Measured & Sexual Understanding Explored. Submitted in fulfilment of the requirements for the degree of Doctor of Philosophy (Ph.D). Dept of Psychology, Trinity College Dublin: Unpublished Ph.D. thesis.
Caffrey, S. (2004). Adult relationships and sexuality. In Walsh, P.N. & Gash, H. Lives and Times: Practice, Policy and People with Disabilities. Dublin: Rathdown Press.
Cambridge, P. & McCarthy, M. (1997). Developing and implementing sexual policy for a learning disability provider service. Health and Social Care in the Community, 5(4), pp. 227-236. Subject: Policy
Cambridge, P. (1994). A practice and policy agenda for HIV and learning difficulties. British Journal of Learning Disabilities 22, 134–139.
Cambridge, P. (1995). HIV risk and men with learning disabilities. Nursing Times, 91,11.
Cambridge, P. (1996). The Sexuality and Sexual Rights of People with Learning Disabilities: Considerations for Staff and Carers. Plymouth: British Institute of Learning Disabilities (BILD).
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Cambridge, P. (1997a). At whose risk: priorities and conflicts for policy development in HIV and intellectual disability. Journal of Applied Research in Intellectual Disabilities 10, 83–104.
Cambridge, P. (1997b). How far to gay? The politics of HIV in learning disability. Disability and Society 12, 427–453.
Cambridge, P. (1997c). HIV, Sex and Disability: A Staff Training and Sex Education Resource for Working on HIV and Men with Learning Disabilities Who Have Sex with Men. Pavilion Publishing, Brighton.
Campion M.J. (1990). Reproductive and contraceptive considerations for women with physical disabilities: The Baby Challenge. London, Routledge.
Carson, D. (1987). A case for castration, m’luds? The Health Service Journal, 97, May, 354-354.
Carson, D. (1989). Sterilisation: whose body is it anyway? Health Service Journal, 99, January, 130-130.
Cheng M. M. & Udry R. (2005). Sexual experiences of adolescents with low cognitive abilities in the US. Journal of Developmental and Physical Disabilities 17, 155– 72.
Chivers, J. and Mathieson, S. (2000). "Training in Sexuality and Relationships: An Australian Model" Sexuality and Disability. 18(1), p 73-80.
Christian, L., Stinson, J. & Dotson, L.A. (2001). Staff values regarding the sexual expression of women with developmental disabilities. Sexuality and Disability, 19(4), 283-291.
Clements, J., Clare, I. & Ezelle, L.A. (1995). Real men, real women, real lives – Gender issues in learning disabilities and challenging behaviour. Disability and Society, 10 (4), p 425-435.
Conneally, S. (1988). Developing the Sexuality of People with a Handicap. In McConkey, R. & Mc Ginley, P. (eds), Concepts and Controversies in Services for People with Mental Handicap. Ireland: Woodlands Centre Galway & St Michael’s House Dublin.
Cooney, T. (1989). Sterilisation and the mentally handicapped. Dublin University Law Journal, Vol. 2.
Craft, A. (1994). Practice issues in Sexuality and Learning Disabilities. London: Routledge. Subject: Sexuality.
Craft, A. (1987). Mental handicap and sexuality: Issues and perspectives. Tunbridge Wells: Costello.
Craft, A. & Craft, M. (1978). Sex and the Mentally Handicapped. London: Routledge & Kegan Paul.
Kelly, G. (2009) Page 6
Craft, A. & Craft, M. (1979). Handicapped Married Couples. London: Routledge & Keegan Paul.
Craft, A. & Craft, M. (1983). Sex education and counselling for mentally handicapped people. Tunbridge Wells: Costello.
Cuskelly, M & Bryde, R. (2004). Attitudes towards the sexuality of adults with an intellectual disability: parents, support staff, and a community sample. Journal of Intellectual & Developmental Disability, 29(3), 255-265.
De Rossa, N. (1994). An Investigation of the Socio-sexual Knowledge Needs and Experiences of Adults with Mild and Moderate Mental Handicaps. Unpublished dissertation submitted in part requirement for the degree of Master of Science in Clinical Psychology. Belfast: School of Psychology, Queens University.
Dixon, H. & Craft, A. (1992). Picture Yourself. Learning Development Aids, Cambridge.
Dotson, L.A. Stinson, J. & Christian, L. (2003). "People tell me I can't have sex": Women with disabilities share their personal perspectives on health care, sexuality, and reproductive rights. Women & Therapy, 26(3-4), 195-209.
Drummond, E. (2006). Attitudes towards sexuality: A pilot study in Ireland. Learning Disability Practice, 9(4), 28-34.
Drummond, E. (2006). Supporting Sexuality - Acknowledging Rights: Practice and Professional Issues for Working with People with Intellectual Disability. Frontline, 67 (Autumn), 12-13.
Dukes E. & McGuire B. E. (2009). Enhancing capacity to make sexuality-related decisions in people with an intellectual disability. Journal of Intellectual Disability Research 53, 727–34.
Earle, S. (1999). Facilitated Sex and the Concept of Sexual Need: Disabled Students and their Personal Assistants. Disability & Society, 14(3), 309–323.
Egan, R. & O’Dea, E. (2002). Freedom. Relationship & Sexuality Education: A Resource Book for Teachers & Facilitators of Students with a Mild Learning Disability. Limerick: Brothers of Charity Services Limerick
Ehlers-Flint, M.L. (2002). Parenting perceptions and social supports of mothers with cognitive disabilities. Sexuality and Disability, 20(1), p.29-51.
Esterle, M., Munoz Sastre, M.T. & Mullet, E. (2008). Judging the Acceptability of Sexual Intercourse Among People with Learning Disabilities: French Laypeople’s Viewpoint. Sexuality and Disability, 26,219-227.
Evans, D.S. (2002). The Development of Personal Relationship and Sexuality Guidelines for People with Learning Disabilities. Final report prepared on behalf of Galway Association by the Dept of Public Health Western Health Board. Ireland: Western Health Board.
Kelly, G. (2009) Page 7
Evans,D.S., McGuire, B.E., Healy, E. & Carley, S.N. (2009). Sexuality and personal relationships for people with an intellectual disability. Part II: staff and family carer perspectives. Journal of Intellectual Disability Research, 53(11), 913–921.
Everett, B. (2007). Ethically Managing Sexual Activity in Long-term Care. Sexuality and Disability, 25(1), 21–27.
Fegan, L., Rauch, A. & McCarthy, W.;(1993). Sexuality and People with Intellectual Disability. 2nd Ed. Australia: MacLennan & Petty Pty.
Finger, A. (1983). Disability & Reproductive Rights. Off Our Backs, 13(9), p.18. Washington: Oct 1983.
Finger, A. (1991). Past due: a story of disability, pregnancy and birth. Women's Press. London: Women’s Press Ltd.
Finger, A. (1992). Disabled lives –Forbidden fruit. Http://www.newint.org/isssue233/fruit.html (Taken from New Internationalist, 233. July 1992).
Foley S. (2009). Friendships and taboos: Research on sexual health promotion for people with mild to moderate intellectual disabilities in the 18-25 age range: Results of a consultation process and literature review. Cork, Health Promotion Department, Health Service Executive South.
Fyson, R. & Kitson, D. (2007). Independence or Protection - Does it have to be a Choice? Reflections on the Abuse of People with Learning Disabilities in Cornwall. Critical Social Policy, 27(3), 426-436.
Galea, J., Butler, J., Iacono, T. & Leighton, D. (2004). The assessment of sexual knowledge in people with intellectual disability. Journal of Intellectual & Developmental Disability, 29(4), 350-365.
Galvin, R. (2006). A Genealogy of the Disabled Identity in Relation to Work and Sexuality. Disability & Society, 21(5), 499-512
Gerschick, T.J. (2006). The Body, Disability, and Sexuality. In Seidman, S., Fischer, N. & Meeks, C., (Eds.), Introducing the New Sexuality Studies: Original Essays and Interviews. London & New York: Routledge.
Gill, K.M. & Hough, S. (2007). Sexuality Training, Education and Therapy in the Health Care Environment: Taboo, Avoidance, Discomfort or Ignorance? Sexuality and Disability, 25(2), 73–76.
Graydon, C. (2006). Can Consent be Uninformed? Suggested Reform of Sexual Offences against Persons with Intellectual Disability. Australia: Centre for Social Change Research, Queensland University of Technology.
Grieve, A., McLaren, S., Lindsay, W.R. & and Ewan Culling (2009). Staff attitudes towards the sexuality of people with learning disabilities: a comparison of different
Kelly, G. (2009) Page 8
professional groups and residential facilities. British Journal of Learning Disabilities, 37, 76–84
Grieveo, A., McLaren, S. & Lindsay, W.R. (2007). An evaluation of research and training resources for the sex education of people with moderate to severe learning disabilities. British Journal of Learning Disabilities, 35(1), 30–37.
Griffiths, D.M., & Lunsky, J. (2003). Socio-Sexual Knowledge and Attitudes Assessment Tool – Revised (SSKAAT-R). Wooddale, Illinois: Stoelting Company.
Griffiths, D.M., Watson, S.L., Lewis, T. & Stoner, K. (2004). Sexuality Research and Persons with Intellectual Disabilities. In Emerson E., Hatton, C., Thompson, T. & Parmenter, T.R. The International Handbook of Applied Research in Intellectual Disabilities. USA: John Wiley & Sons Inc.
Griffiths, M. (2006). Sex: Should we all Be at it? - A Study into the Struggles of Disabled People's Fight for Sexual Expression, and the Implications of Using Prostitutes and Surrogates to Facilitate this Sexual Expression. Sociology Dissertation, UK. www.leeds.ac.uk/Disability- studies/archiveuk/griffiths/dissertation.pdf.
Grossman, B.R., Shuttleworth, R.P. & Prinz, P.M. (2003). Locating Sexuality in Disability Experience. A Report from Disability Studies: Theory, Policy and Practice, The Inaugural Conference of the Disability Studies Association, Lancaster University, Lancaster, England, September 4-6, 2003. Sexuality Research and Social Policy, 1(2). San Francisco: National Sexuality Resource Centre (NSRC).
Gust, D.A., Wang, S.A., Grot, J., Ransom, R. & Levine, W.C. (2003). National survey of sexual behaviour and sexual behaviour policies in facilities for individuals with mental retardation/developmental disabilities. Mental Retardation, 41(5), 365-373. Oct 2003.
Hamilton, C. (2007). “Now I'd Like To Sleep with Rachel”: Researching sexuality support in a service agency group home. Disability & Society, 24(3), 303 – 315
Healy, E. McGuire, B.E., Evans, D.S. & Carley, S.N. (2009). Sexuality and personal relationships for people with an intellectual disability. Part I: service-user perspectives. Journal of Intellectual Disability Research 53(11), 905–912.
Heyman, B. & Huckle, S. (1995). Sexuality as a perceived hazard in the lives of adults with learning difficulties. Disability & Society, 10(2), 139-156.
Hingsburger, D. & Tough, S. (2002). Healthy sexuality: Attitudes, systems & policies. Research and Practice for Persons with Severe Disabilities, 27(1), 8-17.
Hingsburger, D. (2006). Upping the Anti - Stop Abuse: Anti Abuse Policies:Handling Allegations of Sexual Abuse within Organizations that Serve People with Intellectual Disabilities. Canada: Diverse City Press Inc. www.diverse-city.com
Kelly, G. (2009) Page 9
Hogg, J., Campbell, M., Cullen, C. & Hudson, W. (2001). Evaluation of the effect of an open learning course on staff knowledge and attitudes towards the sexual abuse of adults with learning disabilities. Journal of Applied Research in Intellectual Disabilities, 14(1), 12-29.
Holland, N. (2004). A Study of Service Users’ Knowledge of, and Attitudes to, aspects of their Sexuality. Unpublished thesis. Submitted in Partial Fulfilment of the Requirements of the Psychological Society of Ireland’s Diploma in Professional Psychology (Clinical).
Hollomotz, A. & The Speakup Committee (2008). ‘May we please have sex tonight’ – people with learning difficulties pursuing privacy in residential group settings. British Journal of Learning Disabilities, 37(2), 91-97.
Holmes, S. (1998). Evaluation of staff attitudes towards sexual activity of people with learning disabilities. British Journal of Occupational Psychology, 61, 111- 115.
IASSID Special Interest Research Group on Parents and Parenting with Intellectual Disabilities (2008). Parents labelled with Intellectual Disability: Position of the IASSID SIRG on Parents and Parenting with Intellectual Disabilities. Journal of Applied Research in Intellectual Disabilities, 21, 296–307.
IFPA (2007). Sexuality & Disability: IFPA Briefing Paper. Dublin: IFPA. http://www.ifpa.ie/eng/Media-Info-Centre/Publications/Briefing-Papers/Sexuality- and-Disability
IFPA (2007). Sexuality & Disability: A briefing guide for primary healthcare providers. Dublin: IFPA. http://www.ifpa.ie/eng/Media-Info- Centre/Publications/Briefing-Papers/Sexuality-and-Disability
Image in Action (2002). The Sexuality of People with Learning Disabilities: Policy and Guidelines. London: Yarrow. www.yarrowhousing.org.uk
Inclusion Ireland (2007). Marriage: Information Leaflet. Dublin: Inclsion Ireland.
Inclusion Ireland (2007). Sexual Relationships: Information Leaflet. Dublin: Inclsion Ireland.
Isler, A., Tass, F., Beytut, D. & Conk, Z. (2009). Sexuality in Adolescents with Intellectual Disabilities. Sexuality and Disability, 27(1), 27-34.
Jobling, A., Moni, K, & Nolan, A. (2000). Understanding friendship: young adults with down syndrome explore relationships. Journal of Intellectual & Developmental Disability, 25, 235-245.
Johnson, K., Hillier, L., Harrison, L. & Frawley, P. (2001). Living Safer Sexual Lives: Final Report. Australia: Australian Research Centre in Sex, Health and Society, La Trobe University.
Kelly, G. (2009) Page 10
Johnson, K., Strong, R., Hillier, L. & Pitts, M. (2006) Screened Out: Women with Disabilities and Preventive Health. Scandinavian Journal of Disability Research, 8(2), 150 — 160.
Kaeser, F. (1992). Can people with severe mental retardation consent to mutual sex? Sexuality and Disability, 10(1), 33-42.
Kaeser, F. (1996). A survey of the perceptions of twenty-three service providing agencies on the sexual behaviours of persons with severe or profound mental retardation. Sexuality and Disability, 14(4), p.309-320.
Kallianes, V. & Rubenfeld, P. (1997). Disabled women and reproductive rights. Disability & Society, 12(2), 203- 221
Kaplan, C. (2006). Special Issues in Contraception: Caring for Women with Disabilities. Journal of Midwifery & Women's Health, 51(6), 450-456/
Karellou J. (2003). Laypeople’s attitudes towards the sexuality of people with learning disabilities in Greece. Sexuality and Disability 21(1), 65–84.
Karellou, J. (2003). Development of the Greek Sexuality Attitudes Questionnaire - Learning Disabilities (GSAQ-LD). Sexuality and Disability, 21(2), 113-135.
Kelly, G., Crowley, H. & Hamilton, C. (forthcoming). Rights, Sexuality and Relationships in Ireland: “It’d be nice to be kind of trusted”. British Journal of Learning Disabilities, Special Irish Edition. Dec 2009.
Kelly, G. (2009). Rights, Sexuality and Relationships: an exploration of people with learning disabilities’ views and experiences. Frontline Magazine, issue 74, March 2009.
Kempton, W. & Kahn, E. (1991). Sexuality and people with intellectual disabilities: A historical perspective. Sexuality and Disability, 9(2), 93-111.
Kempton, W. & Stiggall, L. (2001). Sex education for persons who are mentally handicapped. Theory into Practice xxvii(3), 203-210.
Kennedy C. H. (1999) Assessing competency to consent to sexual activity in the cognitively impaired population. Journal of Forensic Neuropsychology 1, 17–33.
Kennedy, C.H. & Niederbuhl, J. (2001). Establishing criteria for sexual consent capacity. American Journal on Mental Retardation, 106(6), 503-510. Nov 2001.
Kennedy, C.H. (2003). Legal and psychological implications in the assessment of sexual consent in the cognitively impaired population. Assessment, 10(4), 352- 358. Dec 2003.
Keywood, K. (2003). Supported to be Sexual? Developing Sexual Rights for People with Learning Disabilities. Tizard Learning Disability Review, 8(3), July 2003.
Kelly, G. (2009) Page 11
Law Reform Commission (2005). Consultation Paper on vulnerable adults and the law in relation to capacity (LRC CP37-2005).
Le Touze, S. & Pahl, J. (1992). Facilitating Friendships for People with Learning Disabilities. Mental Handicap, 20, p. 144-148.
Lesseliers, J. (1999). "A Right to Sexuality?" British Journal of Learning Disabilities, 27, 137-140.
Lesseliers, J. & Van Hove, G. (2002). Barriers to the development of intimate relationships and the expression of sexuality among people with developmental disabilities: Their perceptions. Research and Practice for Persons with Severe Disabilities, 27(1), 69-81.
Leutar, Z. & Mihoković, M. (2007). Level of Knowledge about Sexuality of People with Mental Disabilities. Sexuality & Disability, 25(3), 93-109.
Leyin, A. (1992). Sexuality and personal relationships, policies, guidelines and values. Mental Handicap, 20, 70-73.
Llewellyn, G. & McConnell, D. (2002). Mothers with learning difficulties and their support networks. Journal Of Intellectual Disability Research, 46 (Part 1), 17-34. Jan 2002.
Llewellyn, G., McConnell, D. & Bye, R. (1998). Perception of service needs by parents with intellectual disability, their significant others and their service workers. Research in Developmental Disabilities, 19(3), 245-260.
Llewellyn, G., McConnell, D., Honey, A., Mayes, R. & Russo, D. (2003). Promoting health and home safety for children of parents with intellectual disability: a randomised controlled trial. Research in Developmental Disabilities, 24(6), 405-431. Nov-Dec 2003.
Llewellyn, G., McConnell, D., Honey, A., Mayes, R. & Russo, D. (2003). Promoting Health and Home Safety for Children of Parents with Intellectual Disability: A Randomised Controlled Trial. Research in Developmental Disabilities, 24(6), 405-431.
Lofgren-Martenson, L. (2004). “May I?” –About sexuality and love in the new generation with intellectual disabilities. Sexuality and Disability, 22(3), 197-207.
Lofgren-Martenson, L. (2009). The Invisibility of Young Homosexual Women and Men with Intellectual Disabilities. Sexuality and Disability, 27, 21–26.
Lyden, M. (2007). Assessment of Sexual Consent Capacity. Sexuality & Disability, 25(1), 3-20.
Manthorpe, J., Walsh, M., Alaszewski, A. & Harrison, L. (1997). Issues of risk practice and welfare in learning disability services. Disability & Society, 12(1), 69- 82.
Kelly, G. (2009) Page 12
Martin, R. (1995). Working Paper: Sexuality and People with Disabilities. Ireland: Commission on the Status of People with Disabilities.
Mason, L. & Cunningham, C. (2008). An Exploration of Issues around Menstruation for Women with Down Syndrome and their Carers. Journal of Applied Research in Intellectual Disabilities, 21(3), 257-267.
Mattinson, J. (1975). Marriage and Mental Handicap (2nd ed.). London: Institute of Marital Studies, The Tavistock Institute of human relations.
May, D. & Simpson, M.K. (2003). The parent trap: Marriage, parenthood and adulthood for people with intellectual disabilities. Critical Social Policy, 23(1), p. 25-43.
McCabe, M.P. & Cummins, R.A. (1996). The sexual knowledge, experience, feelings and needs of people with mild intellectual disability. Education and Training in Mental Retardation and Developmental Disabilities, 31(1), 13-21.
McCabe, M.P., Cummins, R.A. & Deeks, A.A. (1999). Construction and psychometric properties of sexuality scales: Sex Knowledge, Experience, and Needs scales for people with intellectual disabilities (SexKen-ID), people with physical disabilities (SexKen-PD), and the general population (SexKen-GP). Research In Developmental Disabilities, 20(4), 241-254.
McCabe, M.P., Cummins, R.A. & Reid, S.B. (1994). An empirical-study of the sexual abuse of people with intellectual disability. Sexuality and Disability, 12(4), 297-306.
McCarthy, M. (1999). Gender Matters. BILD Bulletin, 112, March 1999.
McCarthy, M. (1993). Sexual experiences of women with learning difficulties in long-stay hospitals. Sexuality and Disability, 11(4), p.277-286.
McCarthy, M. (1994). Against all odds: HIV and safer sex education for women with learning disabilities. In L. Doyal, J. Naidoo & T. Wilton (Eds) AIDS: Setting a Feminist Agenda. Taylor & Francis, London.
McCarthy, M. (1998). Sexual violence against women with learning disabilities. Feminism & Psychology, 8(4), 544-551.
McCarthy, M. (1999). Sexuality and Women with Learning Disabilities. London: Jessica Kingsley Publishers.
McCarthy, M. (2002) Responses to women with learning disabilities as they go through the menopause. Tizard Learning Disability Review Volume 7(1), January 2002/
McCarthy, M. & Thompson, D. (1995). No more double standards: Sexuality and people with learning disabilities. In T. Philpot & L. Ward (eds.) Values and visions: Changing ideas in services for people with learning disabilities. Oxford: Butterworth-Heinemann.
Kelly, G. (2009) Page 13
McCarthy, M. & Thompson, D. (1997). A prevalence study of sexual abuse of adults with intellectual disabilities referred for sex education. Journal of Applied research in Intellectual Disability, 10(2), 105-124.
McCarthy, M. & Thompson, D. (1998). Sex and the 3R's'. Rights, Responsibilities and Risks. A Sex Education Package for Working with People with Learning Disabilities. (2nd ed.). Brighton: Pavilion Publishing.
McConkey, R. & Ryan D. (2001). Experiences of staff in dealing with client sexuality in services for teenagers and adults with intellectual disability. Journal of Intellectual Disability Research, 45(1), 83-87.
McConnell, D., Llewellyn, G., Mayes, R., Russo, D. & Honey, A. (2003). Developmental Profiles of Children Born to Mothers with Intellectual Disability. Journal of Intellectual & Developmental Disability, 28(2), 122-34.
McConnell, D., Matthews, J., Llewellyn, G., Mildon, R. & Hindmarsh, G. (2008). "Healthy Start." A National Strategy for Parents With Intellectual Disabilities and Their Children. Journal of Policy and Practice in Intellectual Disabilities, 5(3), 194- 202.
McCormack, B., Kavanagh, D., Caffrey, S. & Power, A. (2005). Investigating Sexual Abuse: Findings of a 15-Year Longitudinal Study. Journal of Applied Research in Intellectual Disabilities, 18, 217–227
McGaw, S., Ball, K. & Clark, A. (2002). The effect of group intervention on the relationships of parents with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 15(4), 354-366.
McGillivray, J.A. (1999). Level of knowledge and risk of contracting HIV/AIDS amongst young adults with mild/moderate intellectual disability. Journal of Applied Research in Intellectual Disabilities, 12(2), 113-126.
McVilly, K.R., Stancliffe, R.J., Parmenter, T.R. & Burton-Smith, M. (2006). I Get by with a Little Help from my Friends': Adults with Intellectual Disability Discuss Loneliness. Journal of Applied Research in Intellectual Disabilities, 19(2), 191 – 203.
Melberg Schwier, K. (1994). Couples with intellectual disabilities talk about living and loving. Rockville: Woodbine House.
Mencap, Respond & Voice, UK (2001). Behind closed doors: Preventing sexual abuse against adults with a learning disability. London: Mencap.
Milligan, M.S. & Neufeldt, A.H. (2001). The myth of asexuality: A survey of social and empirical evidence. Sexuality and Disability, 19(2), p91-109.
Mirenda, P., Brown, J. & Ludwig, S. (1998). Express yourself! Acknowledging & respecting the sexual rights & freedoms of people with developmental disabilities: A learning guide. The Canadian Journal of Human Sexuality, 7(2), 195-196.
Kelly, G. (2009) Page 14
Mona, L.R. & Shuttleworth, R.P. (2000). Introduction to the Special Issue. Sexuality and Disability, 18(3), p155-157.
Mona, L.R. (2003). Sexual options for people with disabilities: Using personal assistance services for sexual expression. Women & Therapy, 26(3-4), 211-221.
Morris, J. (1996) (ed). Encounters with strangers: feminism and disability. London: Women's Press.
Morris, J. (2003) (ed). The right support: report of the task force on supporting disabled adults in their parenting role. UK: Joseph Rowntree Foundation.
Murphy, G.H. & O’Callaghan, A. (2004). Capacity of adults with intellectual disabilities to consent to sexual relationships. Psychological Medicine, 34(7), Oct 2004,1347-1357.
Murphy, G.H. (2003). Capacity to consent to sexual relationships in adults with learning disabilities. Journal of Family Planning and Reproductive Health Care, 29(3), 148-149. Jul 2003.
Murray, J., MacDonald, R. & Levenson, V.L. (2001). Sexuality: Policies, Beliefs and Practice. Tizard Learning Disability Review, 6(1), 29-35.
Murray, J.L. & Minnes, P.M. (1994). Staff attitudes toward the sexuality of persons with intellectual disability. Australian and New Zealand Journal of Developmental Disabilities, 19, 45-52.
namhi (2003). Who decides and how? People with intellectual disabilities –Legal capacity and decision making. Dublin: Inclusion Ireland
National Disability Authority (2005). Disability and Sexual Orientation: A Discussion Paper. Dublin: NDA.
National Disability Authority (2007). Exploring the Research and Policy Gaps: A Review of Literature on Women and Disability. Ireland: National Disability Authority
NDA (2009). NDA submission on capacity and sexual relations in the context of the mental capacity scheme of bill (internet). Dublin: National Disability Authority. Available from: http://www.nda.ie/website/nda/cntmgmtnew.nsf/0/66292BBCC27B2914802575B7 003D5E83?OpenDocument
O’Dea, E. and Egan, R. (2002). Relationships and sexuality needs: are they being addressed? Frontline, 50, April, pp. 22-23.
O'Callaghan, A.C. & Murphy, G.H. (2007). Sexual Relationships in Adults with Intellectual Disabilities: Understanding the Law. Journal of Intellectual Disability Research, 51(3), 197 – 206.
Oliver, M.N., Anthony, A., Leimkuhl, T.T. & Skillman, G.D. (2002). Attitudes toward acceptable socio-sexual behaviours for persons with mental retardation:
Kelly, G. (2009) Page 15
Implications for normalization and community integration. Education and Training in Mental Retardation and Developmental Disabilities, 37(2), 193-201. Jun 2002.
O'Toole, C.J. (2002). Sex, Disability and Motherhood: Access to Sexuality for Disabled Mothers. Disability Studies Quarterly, 22(4), 81-101.
Paransky, O.J. & Zurawin, R.K. (2003). Surgical Challenges - Management of Menstrual Problems and Contraception in Adolescents with Mental Retardation: A Medical, Legal, and Ethical Review of New Suggested Guidelines. Journal of Paediatric Adolescent Gynaecology, 16(4), 223-235.
Passer, A., Rauh, J., Chamberlain, A., McGrath, M. & Burket, R. (1984). Issues in fertility control for mentally retarded female adolescents. II. Parental attitudes toward sterilization. Pediatrics 73, 451–454.
Patterson-Keels, L., Quint, E., Brown, D., Larson, D. & Elkins, T. E. (1999). Family views on sterilization for their mentally retarded children. Journal of Reproductive Medicine 39, 701–706.
Pixa-Kettner, U (2008). Parenting with Intellectual Disability in Germany: Results of a New Nationwide Study. Journal of Applied Research in Intellectual Disabilities, 21, 315–319.
Plaute, W., Westling, D.L. & Cizek, B. (2002). Sexuality education for adults with cognitive disabilities in Austria: Surveys of attitudes and the development of a model program. Research and Practice for Persons with Severe Disabilities, 27(1), 58-68.
Pueschel, S.M. & Scola, P.S. (1988). Parents’ perceptions of social and sexual functions in adolescents with Down’s syndrome. Journal of Mental Deficiency Research, 32, 215-220.
Redmond, B. (1995). Listening to Parents : The Aspirations, Expectations and Anxieties of Parents about their Teenager with Learning Disability. Dublin: Family Studies Centre, University College Dublin.
Reed, E.J. (1997). Criminal law and the capacity of mentally retarded persons to consent to sexual activity. Virginia Law Review, 83(4), 799-827.
Regional Residential Services Society & The Nova Scotia Department of Health (1998). Relationships & Sexuality: A Guide to Policy for Individuals with Intellectual Disabilities and their Residential Service Providers. Canada: Regional Residential Services Society & The Nova Scotia Department of Health Community Health Promotion Fund.
Reinders, H.S. (2008). Persons with Disabilities as Parents: What is the Problem? Journal of Applied Research in Intellectual Disabilities, 21, 308–314.
Richards, D., Miodrag, N., Watson, S.L., Feldman, M., Aunos, M., Cox- Lindenbaum & Griffiths, D. (2009). Sexuality and human rights of persons with intellectual disabilities. In F. Owen & D. Griffiths (eds) Challanges to the Human
Kelly, G. (2009) Page 16
Rights of People with Intellectual Disabilities. London & Philadelphia: Jessica Kingsley Publishers.
Rodgers, J. (2001). Pain, Shame, Blood, and Doctors: How Women with Learning Difficulties Experience Menstruation. Women’s Studies International Forum, 24(5), 523–539.
Rogers, C. (2009). (S)excerpts from a Life Told: Sex, Gender and Learning Disability. Sexualities, 12(3), 270–288.
Rohleder, P. & Swartz, L. (2009). Providing sex education to persons with learning disabilities in the era of HIV/AIDS: Tensions between discourses of human rights and restriction. Journal of Health Psychology, 14(4), 601-610.
Rose, J. (1990). Accepting and developing the sexuality of people with mental handicaps: Working with parents. Mental Handicap, 18, 4-6.
Rose, J. & Holmes, S. (1991). Changing staff attitudes to the sexuality of people with mental handicaps: an evaluative comparison of 1 and 3 day workshops. Mental Handicap Research, 4, 67-79.
Rose, J. & Jones, C. (1994). Working with parents. In Craft, A. (ed.) Practice Issues in Sexuality and learning disability. London: Routledge.
Rousso, A. (1984) Sterilization of the mentally retarded. Medical Law 3, 353–62.
Ryan, D. & McConkey, R. (2000). Staff attitudes to sexuality and people with intellectual disabilities. The Irish Journal of Psychology. 21(1-2), p 88-97.
Saltonstall, B. (2007). Mothers Raising Daughters with Cognitive Delay: Reflections on Menarche & Menstruation. Women's Health and Urban Life, 6 (1), 41-59.
Sanders, T. (2007). The Politics of Sexual Citizenship: Commercial Sex and Disability. Disability & Society, 22(5), 439 – 455.
Scally, B.G. (1973). Marriage and mental handicap: Some observations in Northern Ireland. In F.F. de la Cruz & G.D. La Veck (eds.) Human Sexuality and the Mentally Retarded. London: Butterworth.
Scotti, J.R., Slack, B.S., Bowman, R.A. & Morris, T.L. (1996). College student attitudes concerning the sexuality of persons with mental retardation: Development of the perceptions of sexuality scale. Sexuality and Disability, 14(4), p249-263.
Servais, L. (2006). Sexual health care in persons with intellectual disabilities. Mental Retardation and Developmental Disabilities Research Reviews 12: 48–56.
Servais, L., Jacques, D., Leach, R., Conod, L., Hoyois, P., Dan, B. & Roussaux, J.P. (2002). Contraception of women with intellectual disability: prevalence and determinants. Journal of Intellectual Disability Research, 46 (Part 2), 108-119. Feb 2002.
Kelly, G. (2009) Page 17
Sex Education Forum (2004). Sex and relationships education for children and young people with learning difficulties. Sex Education Forum Factsheet 32. London: National Children’s Bureau for the Sex Education Forum. www.ncb.org.uk/sef.
Shakespeare, T. (1996). Power and prejudice: issues of gender, sexuality and disability. In L. Barton’s (Ed) Disability and Society: Emerging Issues & Insights.
Shakespeare, T. (1999). She dances to different drums: Research into disabled women's sexuality. Disability & Society, 14(3), 412-414.
Shakespeare, T. (2000). Disabled Sexuality: Towards Rights and Recognition. Sexuality and Disability, 18(3), p159-165.
Shakespeare, T. (2003). ‘I haven’t seen that in the Kama Sutra’: The sexual stories of disabled people. In Weeks, J., Holland, J. and Waites, M. (eds) Sexuality and Society: A reader. UK – USA: Polity Press.
Shakespeare, T., Gillespie-Sells, K. & Davies, D. (1996). The Sexual Politics of Disability: Untold Desires. London and New York: Cassell.
Sherry, M. (2004). Overlaps and Contradictions between Queer Theory and Disability Studies. Disability & Society, 19(7), 769-783.
Shildrick, M. (2007). Dangerous Discourses: Anxiety, Desire, and Disability. Studies in Gender and Sexuality, 8(3), 221-244
Shildrick, M. (2009). Dangerous Discourses: Subjectivity, Sexuality and Disability. UK: Palgrave Macmillan.
Shuttleworth, R.P. (2000). The search for sexual intimacy for men with cerebral palsy. Sexuality and Disability, 18(4), 263-282.
Shuttleworth, R.P. (2007). Disability and Sexuality: From Medical Model to Sexual Rights. In Herdt, G. & Howe, C., (Eds.), 21st Century Sexualities: Contemporary Issues in Health, Education and Rights. London & New York: Routledge.
Shuttleworth, R.P. (2007). Disability and Sexuality: Toward a Constructionist Focus on Access and the Inclusion of Disabled People in the Sexual Rights Movement. In Teunis N. & Herdt, G., (Eds.), Sexual Inequalities and Social Justice. Berkeley & L.A., USA: University of California Press.
Siebelink, E.M., de Jong, M.D.T., Taal, E., & Roelvink, L. (2006). Sexuality and people with Intellectual Disabilities: Assessment of Knowledge, Attitudes, Experiences, and Needs. Mental Retardation, 44(4), 283-294.
Simpson, A., Lafferty, A. & McConkey, R. (2006). Out of the Shadows - "Our voices aren't going to go quietly into the dark anymore": A Report of the Sexual Health and Wellbeing of People with Learning Disabilities in Northern Ireland. London & Belfast: Family Planning Association.
Kelly, G. (2009) Page 18
Sobsey, D. (1994). Violence and Abuse in the Lives of People with Disabilities: The End of Silent Acceptance? Baltimore: Paul H. Brookes Publishing.
Stansfield, A.J., Holland, A.J. & Clare, I.C.H. (2007). The Sterilisation of People with Intellectual Disabilities in England and Wales during the Period 1988 to 1999. Journal of Intellectual Disability Research, 51(8), 569 – 579.
Stinson, J., Christian, L. & Dotson, L.A. (2002). Overcoming barriers to the sexual expression of women with developmental disabilities. Research and Practice for Persons with Severe Disabilities, 27(1), 18-26.
Strike, R. & McConnell, D. (2002). Look at me, listen to me, I have something important to say! Sexuality and Disability, 20(1), p.53-63.
Sumarah, J., Maksym, D. & Goudge, J. (1988). The effects of staff training program on attitudes and knowledge of staff toward the sexuality of persons with intellectual handicaps. Canadian Journal of Rehabilitation, 1(3), 169-175.
Sundram, C. & Stavis, P. (1994) Sexuality and Mental Retardation: Unmet Challenges. Mental Retardation, 32(4), 255 – 264.
Swango-Wilson, A. (2008). Caregiver Perception of Sexual Behaviours of Individuals with Intellectual Disabilities. Sexuality and Disability, 26, 75–81.
Swango-Wilson, A. (2008). Caregiver Perceptions and Implications for Sex Education for Individuals with Intellectual and Developmental Disabilities. Sexuality and Disability, 26,167–174.
Talbot, T.J. & Langdon, P.E. (2006). A Revised Sexual Knowledge Assessment Tool for People with Intellectual Disabilities: Is Sexual Knowledge Related to Sexual Offending Behaviour? Journal of Intellectual Disability Research, 50(7), 523 – 531.
Tarleton, B. (2007). Specialist Advocacy Services for Parents with Learning Disabilities Involved in Child Protection Proceedings. British Journal of Learning Disabilities, 36(2), 134 – 139.
Tepper, M.S. (2000). Sexuality and disability: the missing discourse of pleasure. Sexuality and Disability, 18(4), p.283-290.
Tepper, M.S. (2001). Becoming sexually able: Education to help youth with disabilities. SIECUS Report, 29(3), 5-13. Feb/Mar 2001.
Thomas, G. & Sternfert Kroese, B. (2005). An investigation of students’ with mild learning disabilities reactions to participating in sexuality research. British Journal of Learning Disabilities, 33, 113–119
Thompson, D. & Brown, H. (1998). Responsibility: working with men with learning disabilities who have difficult or abusive sexual behaviours. Brighton: Pavilion Publishing.
Kelly, G. (2009) Page 19
Thompson, D. (1994). Sexual experience and sexual identity for men with learning disabilities who have sex with men. Changes, 12(4), 254-263.
Thompson, D. (1997). Profiling the sexually abusive behaviour of men with learning disabilities. Journal of Applied Research in Intellectual Disability, 10(2), 125-139.
Thompson, D., Clare, I. & Brown, H. (1997). Not such an ‘Ordinary’ Relationship: the role of women support staff in relation to men with learning disabilities who have difficult sexual behaviour. Disability & Society, 12(4), 573-592.
Through the Looking Glass (2005). Parents with Disabilities and their Teenage Children. http://lookingglass.org/parents/parentteen.php
Toomey, J.F. (1992). Bawnmore Personal Development Programme -Research Project. Limerick: Brothers of Charity Services.
Trudel, G. & Desjardins, G. (1992). Staff reactions toward the sexual behaviours of people living in institutional settings. Sexuality and Disability, 10(3), p173-188.
UFC Handicap (no date). Violence against Women with Disabilities. Denmark: Danish National Research and Information Centre for People with Disabilities. http://www.ufch.dk.
UFC Handicap: National Information and Research Centre for Persons with Disabilities & Henningsen, U.R. (2004). A Guide to Sexuality – Regardless of Disabilities. Denmark: The Ministry of Social Affairs, 7th Section. http://www.ufch.dk.
UFC Handicap: Skov, A. & Henningsen, U. (no date). Parents with learning disabilities - A survey of 28 local authorities. Denmark: Danish National Research and Information Centre for People with Disabilities. http://www.ufch.dk.
UNFPA (2007). Sexual and Reproductive Health of Persons with Disabilities. New York, USA: United Nations Population Fund. http://www.unfpa.org/upload/lib_pub_file/741_filename_UNFPA_DisFact_web_sp -1.pdf
Wade, C. M., Mildon, R.L. & Matthews, J.M. (2007). Service Delivery to Parents with an Intellectual Disability: Family-centred or Professionally Centred? Journal of Applied Research in Intellectual Disabilities, 20(2), 87 – 98.
Wade, H.A. (2002). Discrimination, Sexuality and People with Significant Disabilities: Issues of Access and the Right to Sexual Expression in the United States. Disability Studies Quarterly, 22(4), 9-27.
Walker-Hirsch, L. (2007). The Facts of Life…and More: Sexuality and Intimacy for People with Intellectual Disabilities. Maryland, USA: Paul H. Brookes Publishing Co.
Walmsley, J. (2000). Women and the mental deficiency act of 1913: Citizenship, sexuality and regulation. British Journal of learning disabilities, 28, 65-70
Kelly, G. (2009) Page 20
Ward, L. (2001a). Sexuality and women with learning disabilities. Disability & Society, 16(1), 169-172. Jan 2001.
Ward, L. (2001b). Sexuality and women with learning disabilities. Disability & Society, 16(2), 329-332. March 2001.
Watson, G. & Rogers, R.S. (1980). Sexual instruction for the mildly retarded and normal adolescent: A comparison of educational approaches, and pupil knowledge and attitude. Health Education Journal, 39(3), 88-95.
Waxman Fiduccia, B. (2000). Current Issues in Sexuality and the Disability Movement. Sexuality & Disability, 18(3), 167-174.
West Midlands Learning Disability Forum & BILD (2000). Social & personal relationships. policy and good practice guidelines for staff working with adults with learning disabilities. Worcestershire: Bild.
Wheatley, H. (2005). Sex, Sexuality and Relationships for Young People with Learning Disabilities. Current Paediatrics, 15(3), 195-199.
Whitehouse, M.A. & McCabe, M.P. (1997). Sex education programs for people with intellectual disability: How effective are they? Education and Training in Mental Retardation and Developmental Disabilities, 32(3), 229-240.
Willems, D.L., de Vries, J.-N., Isarin, J. & Reinders, J.S. (2007). Parenting by Persons with Intellectual Disability: An Explorative Study in the Netherlands. Journal of Intellectual Disability Research, 51(7), 537-544.
Williams, L. & Nind, M. (1999). Insiders or outsiders: normalisation and women with learning difficulties. Disability & Society, 14(5), 659-672.
Withers, P., Ensum, I., Howarth, Krall, P., Thomas, D., Weekes, D., Winter, C., Mulholland, A., Dindjer, T., Mulholland, A., Dindjer, T. & Hall, J. (2001). A Psychoeducational Group for Men with Intellectual Disabilities Who Have Sex with Men. Journal of Applied Research in Intellectual Disabilities 14, 327–339.
Wolfe, P.S. & Blanchett, W.J. (2003). Sex education for students with disabilities: An Evaluation Guide. Teaching Exceptional Children, 36(1), 46-51. Sep/Oct 2003.
Wolfe, P.S. (1997). The influence of personal values on issues of sexuality and disability. Sexuality and Disability, 15(2), 69-90.
Wood, R. (2007). Cervical Screening for Women with Learning Disability: Current Practice and Attitudes within Primary Care in Edinburgh. British Journal of Learning Disability, 35(2), 84-92.
World Bank Organisation (2004). Disability and HIV/AIDS: At a Glance. www.sitesresources.worldbank.org/DISABILITY/Resources/Health-and- Wellness/HIVAIDS.pdf
Kelly, G. (2009) Page 21
World Bank/ Yale University (2004). HIV/AIDS & Disability: Capturing Hidden Voices. Global Survey on HIV/AIDS & Disability. http://cira.med.yale.edu/globalsurvey.
Yacoub, E. & Hall, I. (2008). The sexual lives of men with a mild learning disability: a qualitative study. British Journal Learning Disability, 37, 5-11.
Yool, L., Langdon, P.E. & Garner, K. (2003). The Attitudes of Medium-Secure Unit Staff Toward the Sexuality of Adults with Learning Disabilities. Sexuality and Disability, 21(2),137-149.
Young, S., Young, B & Ford, D. (1997). Parents with a learning disability: Research issues and informed practice. Disability & Society, 12(1), 57-68.