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Quality of oncology nurses’ preparedness to practice palliative care in King Abdullah specialized children hospital in Riyadh, Saudi Arabia

PART 1: Socio-demographic data for nurses

Age (years)

· 25

· 30

· 35

· 40

· 45

· 50

· <55

Gender

· Male

· Female

NATONALITY

· Saudi

· Non-Saudi

Nursing degree

· Doctoral

· Master

· Bachelor

· Diploma

Work experience ( years )

· 1-5 years

· 6-10 years

· 11-15 years

· 16-20 years

PART 2: The questions in the Evaluation Tool for Determining Knowledge of Palliative Care:

Please indicate if the following sentences are true or false:

N

Knowledge of Palliative Care

F /T

1

Palliative care should be applied as early as possible in patients with chronic and life-threatening diseases.

2

Palliative care is one of the most important components of cancer prevention.

3

Palliative care is a service which starts as soon as diagnosis is made in patients with cancer.

4

Palliative care is a service only for patients with cancer.

5

Palliative care is essentially the care for terminally ill patients.

6

Palliative care helps patients to relieve pain and to improve the quality of care.

7

The aim of palliative care is to improve the symptoms rather than Investigating the underlying reasons for the symptoms.

8

Palliative care is a therapeutic care.

9

Palliative care seeks to maximize the functional capacity of the individual by being sensitive to religious values, beliefs, culture, and individuality.

10

Palliative care should be started when medical and surgical methods of treatment are ineffective.

11

Palliative care helps patients to relieve pain and suffering during the terminal period and provides a good death without losing one’s dignity.

12

Palliative care is applied regardless of whether the individual receives treatment.

13

In the palliative care approach, family members are supported during disease process and during grief period after the death.

14

Palliative care only consists of pain control.

15

Palliative care neither slows down nor accelerates death.

16

In palliative care the continuity of care is maintained by being together with the patient everywhere including hospital, home, mobile clinic, day care center, and nursing home.

17

Persons who benefit from palliative care should contact with health professionals at any time.

18

Chronic diseases such as chronic obstructive pulmonary disease are also included in the context of palliative care.

19

Palliative care and hospice care serve the same purpose.

20

Palliative care team includes physicians, nurses, social workers, psychologists, physiotherapists, dieticians, pharmacists, chaplains, patients' relatives and volunteers.

PART 3: Attitude toward Care of the Dying Patient Instrument

Please chose the most applicable answer to you:

N

Attitude toward Care of the Dying

Strongly Disagree

Disagree

Neutral

Agree

Strongly Agree

1

Giving care to the dying person is a worthwhile experience.

2

Death is not the worst thing that can happen to a person.

3

I would be uncomfortable talking about impending death with the dying person.

4

Caring for the patient’s family should continue throughout the period of grief and bereavement.

5

I would not want to care for a dying person.

6

The nonfamily caregivers should not be the ones to talk about death with the dying person.

7

The length of time required to give care to a dying person would frustrate me.

8

I would be upset when the dying person I was caring for gave up hope of getting better.

9

It is difficult to form a close relationship with the dying person.

10

There are times when death is welcomed by the dying person.

11

When a patient asks, “Am I dying?” I think it is best to change the subject to something cheerful.

12

The family should be involved in the physical care of the dying person.

13

I would hope the person I’m caring for dies when I am not present.

14

I am afraid to become friends with a dying person.

15

I would feel like running away when the person actually died.

16

Families need emotional support to accept the behavior changes of the dying person.

17

As a patient nears death, the nonfamily caregiver should withdraw from his or her involvement with the patient.

18

Families should be concerned about helping their dying member make the best of his or her remaining life.

19

The dying person should not be allowed to make decisions about his or her physical care.

20

Families should maintain as normal an environment as possible for their dying member.

21

It is beneficial for the dying person to verbalize his or her feelings.

22

Care should extend to the family of the dying person.

23

Caregivers should permit dying persons to have flexible visiting schedules.

24

The dying person and his or her family should be the in-charge decision makers.

25

Addiction to pain-relieving medication should not be a concern when dealing with a dying person.

26

I would be uncomfortable if I entered the room of a terminally ill person and found him or her crying.

27

Dying persons should be given honest answers about their condition.

28

Educating families about death and dying is not a nonfamily caregiver’s responsibility.

29

Family members who stay close to a dying person often interfere with the professional’s job with the patient.

30

It is possible for nonfamily caregivers to help patients prepare for death.

Quality of oncology nurses’ preparedness to practice palliative care in King Abdullah

specialized children hospital in Riyadh, Saudi Arabia

PART

1: S

ocio

-

demographic data for nurses

Age (years)

·

25

·

30

·

35

·

40

·

45

·

50

·

<55

Gender

·

Male

·

Female

NATONALITY

·

Saudi

·

Non

-

Saudi

Nursing degree

·

Doctoral

·

Master

·

Bachelor

·

Diploma

Work experience ( years )

·

1

-

5 years

·

6

-

10 years

·

11

-

15 years

·

16

-

20 years

Quality of oncology nurses’ preparedness to practice palliative care in King Abdullah

specialized children hospital in Riyadh, Saudi Arabia

PART 1: Socio-demographic data for nurses

Age (years)

 25

 30

 35

 40

 45

 50

 <55

Gender

 Male

 Female

NATONALITY

 Saudi

 Non-Saudi

Nursing degree

 Doctoral

 Master

 Bachelor

 Diploma

Work experience ( years )

 1-5 years

 6-10 years

 11-15 years

 16-20 years