consumer informatics - essentials in health informatics
Introduction to Healthcare Informatics, Second Edition
Chapter 15:
Consumer Health Informatics
© 2017 American Health Information Management Association
© 2017 American Health Information Management Association
Objectives
Define consumer health informatics
Describe characteristics of the online health information consumer
Identify current and past consumer health informatics technology
Discuss ubiquitous computing
Characterize the differences between validity and reliability
Explain privacy and security issues for online health information
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Introduction
Concept of Consumer Health Informatics
Consumer Involvement
ONC
Online Diagnosers
Patient Portal
Meaningful use
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Consumer Health Informatics
Standardized definition
Consumer
Health
Informatics
Mindmap
Explicit Themes
Implicit Themes
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Mindmap
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Explicit Themes
Types of consumers
The term health as opposed to disease or illness
Tools and applications
Rationale for CHI
Nondependency on a healthcare professional for health information
Intersection with other disciplines
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Implicit Themes
Content is created by experts
Information is available in a searchable repository
The acquisition of health information is a solitary and personal activity
Consumers do not seek health information from other consumers
The desired information is pulled or retrieved by the consumer
There is no push of information to the consumer
Limited to staying healthy; not about finding information about disease or illness
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Literacy
Health literacy
Computational literacy
Visual literacy
e-Health literacy
Computer literacy
Technology literacy
Health People 2020
Digital Immigrant or Digital Native
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Online Health Consumer
Characteristics
Use of Internet
Demographics
Cell Phone/Smart Phone
Educational Level
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Initial Topics of Interest
A specific disease or medical problem
A specific medical treatment or procedure
Doctors or other health professionals
Hospitals or other medical facilities
Health insurance, including private insurance, Medicare, or Medicaid
Environmental health hazards
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Current Topics of Interest
Food safety or recalls
Drug safety or recalls
Pregnancy and childbirth
Memory loss and dementia or Alzheimer’s
Medical test results
Management of chronic pain
Long-term care for an elderly or disabled person
End of life decisions
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CHI Technology
Self-help books
Online health articles or sites
Bulletin boards and online discussion groups
Automated appointment reminders
Automated systems for learning more about health conditions
Wearable sensors, such as glucose monitors
Social media sites such as Facebook and Twitter
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Ubiquitous Computing of Online Health Information
WebMD
Healthcare Organizations and Hospitals
Medical Libraries
Disease Societies and Associations
Pharmacies
Mobile Technology
Social Networking Sites
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Personal Health Records
Definition
Barriers to Adoption
Disparities in Access to Health Information
Cost
Benefits
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Barriers to Adoption
Physicians question reliability of patient-reported data
Question of who would pay for the costs of the PHRs
Interoperability needed to exchange data
Patient privacy and security
Encryption and problems of authentication
Legal implications of health provider relying on inaccurate patient-entered PHR data
Providers concern for use of electronic PHR to elicit prescriptions for narcotics
© 2017 American Health Information Management Association
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Personal Health Record (PHR)
Maintained and updated by the patient
Paper or electronic format (USB, CD, and such)
Microsoft Health Vault
Barriers to implementation
Benefits to the PHR
Patient generated data
© 2017 American Health Information Management Association
Blue Button
Veterans Administration
Patient Portals
Veterans, Uniformed Service Members, Medicare Beneficiaries
Information Available
Current Medicines
Drug Allergies
Treatments
Laboratory Results
Uses
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Patient Portal
HIPAA mandate for access to information
Meaningful Use Stages 1 and 2
Features and functionalities
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Validity and Reliability
Validity
Reliability
HON Code of Conduct (HONcode)
Sources for Determining Validity and Reliability
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The Current HONcode
Authoritative—expertise of the authors
Complementarily—uphold the doctor-patient bond
Privacy—ensure privacy and security of personal data
Attribution—give credit to sources of information
Justifiable—corroborate assertions of improvement and betterment
Transparency—clarity of content and inclusion of webmaster’s e-mail address
Financial disclosure—disclosure of
Advertising policy—a clear distinction between advertising and verifiable content (HON 2011)
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Trusted Sources for Determining Validity and Reliability Online Information
MedlinePlus Guide to Healthy Web Surfing
Finding Reliable Health Information Online
Finding Reliable Health Information Online
MedlinePlus Quality Guidelines
Medical Library Association List of 100 Websites You can Trust
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Privacy and Security
Privacy Policy Statement
Type of information collected
Cookies
Personally identifiable information (PII)
Links to other sites
Security
Third-party websites and applications
Challenges
Mobile and Online Health Information
© 2017 American Health Information Management Association
Summary
Consumer Empowerment
Validity and Reliability
Privacy and Security
Patient Portal Requirements
© 2017 American Health Information Management Association