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Introduction

The sky-high costs of prescription drugs is a monumental issue in our nation that needs to

be addressed and reformed. As a nation, we pay the highest prices for prescription drugs

compared to the rest of the world, which has caused an uproar amongst our citizens. Research

shows that in the past year, approximately “one in five Americans between the ages of nineteen

and sixty-four –64 million people, did not get their prescriptions refilled because they did not

have enough money” (On The Issues, 2018). As healthcare consumers in the wealthiest nation, it

is unacceptable that people are going without their necessary medications due to an inability to

afford them. Though there have been efforts made towards policies reforming drug prices in the

United States, the current state of this dilemma shows that immediate action must be taken, and

policies need to be reformed to either lower drug prices or offer alternatives to consumers.

According to a report from the National Academies of Science, Engineering, and

Medicine, there are policy reforms that can be implemented to fix this issue such as

“consolidating the government’s purchasing power to negotiate lower drug prices with

manufactures, closing loopholes in the regulatory framework that block competition, and

mandating pharmaceutical price transparency” (Kacik 2017). There are people who have been

paying tremendously high prices for their medication for years, and still don’t have the option for

a generic version of the drug due to monopoly pricing and blocks of generic drugs. A recent

uproar occurred over this issue following the death of 26-year-old Alec Smith. Smith suffered

from type-1 diabetes and was under his parents’ insurance plan until his 26 th birthday in June of

2017. After getting kicked off his parents’ plan, the burden of purchasing his insulin fell on

Smith alone. Less than a month later, Alec Smith lost his life due to a lack of insulin because he

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Public Policy

was budgeting his medication until his next paycheck. This case hit home for millions of

Americans across the nation who have found themselves in similar situations. Another

nationwide problem that has been causing chaos in the lives of thousands of Americans is the

opioid crisis. According to the New York Times, in 2017, President Trump declared the opioid

crisis a “health emergency,” following over 59,000 deaths by overdose in 2016 (Davis, 2017).

Though the issue I am discussing differs from the opioid issue, they relate in a certain way that is

supported by an article titled “The Opioid Epidemic: Who Is to Blame?” There have been

several reported cases of patients who were prescribed pain medications that they were unable to

afford, so they resorted to self-medicating with street bought drugs. This is not to be taken as a

generalized statement that the pharmaceutical industry is to blame for every addict’s substance

abuse, but it does indeed support the dire need for policy reform.

There are two major types of public policies: regulatory and distributive policies. A

regulatory policy is when the “government prescribes and controls the behavior of a particular

group, by monitoring the group and imposing sanctions if it fails to comply.” The types of policy

reform I am seeking for this issue would fall under regulatory policies, with the pharmaceutical

industry being the “particular group” whose actions the government should prescribe and

control. The reason that drug pricing reform policies should be regulatory policies, is because the

focus is not to reallocate funds from one entity to another, but to impose effective regulations

upon the entity in control, which in this case, is the pharmaceutical industry.

There are far too many loopholes being used by this industry to keep the prices of

prescription drugs as high as they are. According to an article titled “Big Pharma Vs. The

People,” consumers are upset because “they feel that the drug companies abuse the laws, abuse

the system, and take advantage of people” (Lo, 2018). The Food and Drug Administration (FDA)

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Commissioner Dr Scott. Gottlieb has condemned the practices of the pharmaceutical industry

such as “drug-makers blocking access to reference samples for generic competitors” (Lo, 2018).

President Donald Trump himself has emphasized drug price reform as one of the core issues of

his administration, and once stated that pharmaceutical companies are “getting away with

murder” (Lo, 2018). We can all agree that there is an incredibly visible nationwide issue here,

and the next step is creating solid policies that will be effective without providing loopholes for

drug-makers to continue manipulating through. As stated in an article on WebMD - Canada, like

most other industrialized nations “imposes restrictions and limit what pharmacies can charge for

drugs” (Osterweil, 2018). These restrictions are the reason for the fact that the same brand-name

medication can cost up to 55% more in the United States than in Canada. I am proposing a drug

pricing policy reform that will impose similar restrictions by state on the pharmaceutical industry

in the United States as well.

Addressing the Issue

I feel that my policy solution would best be suited at the state level. Though I would love

to see nationwide restrictions on the pharmaceutical industry, I believe that it is best to address

this issue by state, then with positive results, hopefully the federal government will follow. The

policy solution I am proposing for the state of Virginia is a modified version of a bill that was

proposed to mandate drug pricing transparency. In the fiscal year 2015, Virginia’s total spending

on prescription drugs exceeded $1.2 billion (rga.lis.virginia.gov). Moreover, the continuous rise

of drug costs “drives increases in Medicare and private insurance premiums, including those on

the Exchange, thereby negatively impacting Virginia consumers” (rga.lis.virginia.gov). The

recently proposed bill in Virginia would have “required drug makers to provide detailed financial

information which would include costs for R&D, manufacturing and marketing, price changes,

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Public Policy

profits, and financial assistance for consumers” (Policy and Medicine, 2018). The

pharmaceutical industry fought back saying that “it unfairly singled out the pharmaceutical

industry,” and that “the cost to develop a particular drug has little to do with that drug’s price.”

The Virginia General Assembly Senate panel voted to delay consideration of the proposed bill,

making Virginia one of many states whose efforts towards drug transparency legislation had

fallen short of successful. In my modified version of this bill, I want to focus less on the

transparency concerning the prices of production for the drugs, and more on setting a regulated

limit how much payers are required to pay for the drugs. This idea was derived from the Health

Service Cost Review Commission (HSCRC), which is an independent state agency in Maryland.

The HSCRC doesn’t focus on regulating what hospitals charge, rather it imposes a limit “on

what payers will pay regardless of what the hospital charges.” Not only would this method of

regulation help reduce the burden of costs for consumers, it could potentially lead to the

pharmaceutical industry lowering the price of the drugs because of a strict cap on what they can

sell them for.

In order to successfully propose a bill that has any chance of it becoming a law, a strong

execution plan is necessary. First and foremost, one must determine who can be deemed as

strong allies to tackle the issue with and gain the attention of policy makers in the government.

For my particular case, The Virginia Center for Health Innovation (VCHI) is an organization that

I would like to work towards this mission with. The VCHI is a community of healthcare systems,

providers, employers, consumers, and pharmaceutical manufactures that came together in 2010

to engage in health reform. Getting this organization on board with my proposed policy would be

incredibly beneficial, because it is composed of members from various backgrounds and

standpoints of the situation. This is an organization that has healthcare providers and consumers

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Public Policy

on the team, as well as pharmaceutical manufacturers. This gives us the advantage of being able

to have the opinions of people from both sides of the issue come together and work towards

reaching a goal that benefits the greater good.

Another organization I would want to work towards this mission with is a non-profit

generic drug company that has been launched and is set to be operational by 2019. Intermountain

Healthcare is a non-profit health system that is based in Salt Lake City, Utah that “aims to make

generic versions of critical drugs that are in short supply and are prohibitively expensive in the

United States (Trager, 2018). Though this organization is based in another state and is taking a

different approach to the issue of drug pricing in the nation, I believe that presenting their

mission to policymakers will further emphasize for the need of changes and regulations on this

issue. The fact that individuals are taking matters into their own hands to develop non-profit

organizations that will ease the burden of prescription drugs to the public should speak volumes

to policymakers.

It would also be beneficial to have renowned physicians from Virginia advocating

alongside my team to push for this policy solution. Healthcare providers have firsthand insight

into the world of pharmaceuticals and the struggle that thousands of patients have with affording

them, so it would be an advantage for me to have physicians on board with my proposal. I am

currently employed at a medical office as a front desk secretary and I receive multiple calls from

patients everyday asking if there are other options to the medication that they were prescribed

because they cannot afford it. I find it noteworthy to share that I work in the very affluent town

of Ashburn, Virginia, yet every single day patients are opting out of medications or looking for

alternatives due to an inability to afford it.

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Networking is essential when dealing with a task of this nature, so it is crucial to gain the

support of as many people as you can. I would reach out to the hosts of local television and radio

stations and share my concerns with them. As regular working people, I am confident that we

will find support in many people who can relate to the issue at hand and would be passionate

about helping. Having the support of influential people with a large base of listeners is a key

component when you are ready to start lobbying.

Once we have gathered all the support we can get, we will start calling our

representatives for support to win over their vote. The National Academy for State Health Policy

Report, The Secretary of Health and Human Services, The Department of Medical Assistance

Services, and The Virginia Department of Health are all agencies that will be targeted during my

lobbying efforts. The National Academy for State Heath Policy actually provides a model for

states to draft a proposal to promote prescription drug price transparency and cost control. This is

an agency that would be incredibly supportive of our initiative, so efforts will be made to gain

their attention during this process. Living in the Washington, D.C. area is very convenient for

lobbying purposes. If I cannot get a direct hold of my representative or senators, I would make

an appointment with a staff person. I would come well-informed, equipped, and prepared to

answer any questions that may arise. Following my in-person attempt, I would send a thank-you

note and use it as an opportunity to reiterate my argument. It is also important to publicize these

efforts, so I would try to get booked on local radio shows, write letters to the editors of local

papers, and hold local events or workshops that will cover the issues I am addressing and how.

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Proposed Policy

Committee: Drug Price Reform Principal Author: Ruth Yosef

Delegation: House of Representatives

Bill No: Modification of HB 1436 Prescription Drug; Price Transparency

A BILL ENTITLED

1. An ACT concerning

Imposing a Limit on How Much the Pharmaceutical Industry Can Charge

Consumers for Prescription Drugs to Tackle Issue of High-Cost Drug Prices

2. BE IT ENACTED BY THE CONGRESS HERE ASSEMBELED THAT:

3. SECTION 1. We are proposing that a state regulated limit be imposed on the

4. pharmaceutical industry to put a cap on the amount that they can charge consumers

5. for prescription drugs

6. We are proposing this bill to help decrease the monumentally high spending cost

7. that we have accumulated from high-drug prices

8. We also seek to lighten the burden on consumers who require these life-saving

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9. medications, but are unable to afford the market prices for these brand-name drugs

10. SECTION 2. To clarify any ambiguity from section one – by “putting a cap” on the

11. amount that the pharmaceutical industry can charge consumers for prescription

12. drugs, a state regulated policy would protect citizens from sky-high, monopolized

13. drug prices.

14. SECTION 3. The State’s Department of Health will oversee the enforcement of this

15. bill along with these specific enforcement mechanisms:

16. The executives of pharmaceutical companies will be asked to sit with the committee and

17. provide a detailed overview of their products and the current price on the market

18. The committee will review the pharmaceutical industries justifications of their prices

19. and determine a reasonable limit to impose on how much said company may charge

20. for life-saving medications

21. Once an agreement has been made on a regulated limit for drug-costs, consumers will no

22. longer be charged anything above the set limit.

23. When a new drug is manufactured, the company must provide a detailed overview of the

24. drug, the proposed market price for the drug and a justification for the price

25. the manufactures of the drug must submit these details to a committee for review

26. Through this enactment of this bill, we hope to continue to move forward toward

27. drug-pricing reform

28. SECTION 4. This act shall take effect on January 1 st , 2019.

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References:

Fighting to Lower Prescription Drug Prices

https://berniesanders.com/issues/fighting-to-lower-prescription-drug-prices/

Kacik, A (2017). Policy reforms needed to lower drug prices. Retrieved from

https://www.modernhealthcare.com/article/20171130/NEWS/171139991

National Academy for State Health Policy

https://nashp.org/wp-content/uploads/2017/03/Transparency-Model-Legislation1.pdf

Lo, C (2018). The People Vs. Big Pharma

https://www.pharmaceutical-technology.com/features/people-vs-big-pharma-tackling-

industrys-trust-issues/

Trager, K (2018). Intermountain Healthcare

https://intermountainhealthcare.org/about/

Pharmaceutical regulation

http://ushealthpolicygateway.com/vii-key-policy-issues-regulation-and-reform/l-health-

care-regulation/pharmaceutical-regulation/#Pharmaceutical_Prices-2

Virginia the latest state to push drug pricing transparency bill

https://www.statnews.com/pharmalot/2016/02/02/virginia-drug-prices-transparency-bill/